"Hiding the story": Indigenous consumer concerns about communication related to chronic disease in one remote region of Australia

International Journal of Speech-Language Pathology

Volumn 14, Issue 3, 2012, Pages 200-208

  Lowell, Anne ^a   Maypilama, Elaine ^a   Yikaniwuy, Stephanie ^b   Rrapa, Elizabeth ^b   Williams, Robyn ^a   Dunn, Sandra ^a  

^a CHARLES DARWIN UNIVERSITY   (Australia)

^b Ngalkanbuy Health Centre   (Australia)

Author keywords

Cross cultural; Indigenous; interaction; workforce issues

Indexed keywords

ABORIGINE; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; AUSTRALIA; CHRONIC DISEASE; COMMUNICATION DISORDER; COMPREHENSION; CULTURAL FACTOR; ETHNOLOGY; HEALTH CARE DELIVERY; HEALTH CARE DISPARITY; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; LANGUAGE; MIDDLE AGED; PATIENT EDUCATION; PATIENT SATISFACTION; PERCEPTION; QUALITATIVE RESEARCH; RURAL HEALTH CARE; VIDEORECORDING;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; CHRONIC DISEASE; COMMUNICATION BARRIERS; COMPREHENSION; CULTURAL CHARACTERISTICS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES ACCESSIBILITY; HEALTHCARE DISPARITIES; HUMANS; LANGUAGE; MIDDLE AGED; NORTHERN TERRITORY; OCEANIC ANCESTRY GROUP; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; PERCEPTION; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; RURAL HEALTH SERVICES; TRUTH DISCLOSURE; VIDEO RECORDING;

EID: 84860753691     PISSN: 17549515     EISSN: 17549507     Source Type: Journal    
DOI: 10.3109/17549507.2012.663791     Document Type: Conference Paper

References (25)

1. Amery, H. (1999). They don't give us the full story Attitudes to hospitalisation amongst Yolngu people of North-East Arnhem Land: A comparative study. Darwin: Aboriginal Resource and Development Service.
2. Anderson, K., Devitt, J., Cunningham, J., Preece, O., & Cass, A. (2008). "All they said was my kidneys were dead": Indigenous Australian patients'understanding of their chronic kidney disease. Medical Journal of Australia, 189, 499-503.
3. Brennan, G. (1979). The need for interpreting and translation services for Australian Aboriginals, with special reference to the Northern Territory: A research report. Darwin: Department of Aboriginal Affairs.
4. Campbell, M. (1995). Communication with Aboriginal patients in the pre-hospital environment. Australian Journal of Emergency Care, 2, 24-27.
5. Department of Health and Families. (2009). Northern Territory Chronic Conditions Prevention and Management Strategy 2010-2020. Darwin: Department of Health and Families.
6. Devitt, J., & McMasters, A. (1998). Living on medicine: A cultural study of end-stage renal disease among Aboriginal people. Alice Springs, NT: IAD Press.
7. Eckerman, A.-K., Dowd, T., Chong, E., Nixon, L., Gray, R., & Johnson, S. (2006) Binang Goonj: Bridging cultures in Aboriginal health (2nd ed.). Sydney: Elsevier.
8. Edis, F. (1998). Just scratching the surface: Miscommunication in Aboriginal health care. (Unpublished Masters Thesis). Northern Territory University, Darwin.
9. Garnett, S., Coe, K., Golebiowska, K., Walsh, H., Zander, K., Guthridge, S., et al. (2008). Attracting and keeping nursing professionals in an environment of chronic labour shortage: A study of mobility among nurses and midwives in the Northern Territory of Australia. Darwin: Charles Darwin University Press.
10. Hardie, E. A., & Critchley, C. R. (2008). Public perceptions of Australia's doctors, hospitals and health care systems. Medical Journal of Australia, 189, 210-214.
11. Harrington, Z., Thomas, D. P., Currie, B., & Bulkanhawuy, J. (2006). Challenging perceptions of non-compliance with rheumatic fever prophylaxis in a remote Aboriginal community. Medical Journal of Australia, 184, 514-551.
12. Hill, P. (1994). Aboriginal culture and the doctor-patient relationship. Australian Family Physician, 23, 29-32.
13. Humphery, K., Weeramanthri, T., & Fitz, J. (2001). Forgetting compliance: Aboriginal health and medical culture. Darwin Northern Territory University Press in conjunction with Cooperative Research Centre for Aboriginal and Tropical Health.
14. Kemp, K. (2001). Cross-cultural understanding and the Northern Territory intensive care experience: Dismantling the wall. (Unpublished Masters Thesis). University of Sydney, Sydney.
15. Lowell, A. (2001). Communication and cultural knowledge in Indigenous health care. Darwin: Co-operative Research Centre for Aboriginal and Tropical Health.
16. Lowell, A., Brown, I., Marr anyin, B., Flack, M., Christie, M., Snelling, P., et al. (2005). Sharing the true stories: Improving communication between health staff and Aboriginal patients, Stage 1 Report. Darwin: Cooperative Research Centre for Aboriginal and Tropical Health.
17. Lowell, A., Maypilama, E., Yikaniwuy, S., Rrapa, E., Williams, R., & Dunn, S. (2010). Taking control of chronic disease: Strengthening communication and education strategies supporting selfmanagement for Indigenous consumers. Unpublished project report. Darwin: Charles Darwin University.
18. Maher, P. (1999). A review of "traditional" Aboriginal health beliefs. Australian Journal of Rural Health, 7, 229-236.
19. McConnel, F. (2003). Compliance, culture and the health of Indigenous people. Rural and Remote Health 3 (online) 190. Available online at: http://www.rrh.org.au, accessed 15/12/10.
20. Northern Territory Government Department of Education and Training. (2010). Annual Report 2009-10. Darwin: Northern Territory Government. Available online at: http://www.det. nt.gov.au/about-us/publications/annual-report-200910, accessed 15/05/11.
21. Shahid, S., Finn, L. D., & Thompson, S. C. (2009). Barriers to participation of Aboriginal people in cancer care: Communication in the hospital setting. Medical Journal of Australia, 190, 574-579.
22. Shannon, B. (1994). Social and cultural differences affect medical treatment. Australian Family Physician, 23, 33-35.
23. Trudgen, R. (2000). Why warriors lie down and die: Towards an understanding of why the Aboriginal people of Arnhem Land face the greatest crisis in health and education since European contact. Darwin: Aboriginal Resource and Development Service.
24. Wild, R., & Anderson, P. (2007). Ampe Akelyernemane Meke Mekarle "Little Children are Sacred". Report of the Northern Territory Board of Inquiry into the Protection of Aboriginal Children from Sexual Abuse. Darwin: Northern Territory Government.
25. Zhao, Y., Connors, C., Wright, J., Guthridge, S., & Bailie, R. (2008). Estimating chronic disease prevalence among the remote Aboriginal population of the Northern Territory using multiple data sources. Australian and New Zealand Journal of Public Health, 32, 307-313.