Transition from pediatric to adult healthcare services for young adults with chronic illnesses: The special case of human immunodeficiency virus infection

Journal of Pediatrics

Volumn 159, Issue 5, 2011, Pages 714-719

  Andiman, Warren A ^a  

^a YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Acquired immunodeficiency syndrome; Adolescent Trials Network; AIDS; Antiretroviral; ARV; ATN; CF; Cystic fibrosis; HCP; Healthcare provider; HIV; Human immunodeficiency virus; Maternal and Child Health Bureau; MCHB; New York State Department of Health; NYSDOH; YLHA; Youth living with HIV and AIDS; Youth with special healthcare needs; YSHCN

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ARTICLE; ASTHMA; CHILD HEALTH CARE; CHILDHOOD CANCER; CHRONIC DISEASE; CYSTIC FIBROSIS; DIABETES MELLITUS; HEALTH CARE PERSONNEL; HEALTH CARE SYSTEM; HEALTH SERVICE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; LIFESPAN; PATIENT EDUCATION; PRIORITY JOURNAL; QUALITY OF LIFE; SEXUAL INTERCOURSE; SURVIVAL RATE;

ADOLESCENT; ADOLESCENT DEVELOPMENT; ANTI-RETROVIRAL AGENTS; CONGRESSES AS TOPIC; CONTACT TRACING; FAMILY RELATIONS; HIV INFECTIONS; HUMANS; MEDICATION ADHERENCE; PARENTS; PEDIATRICS; RISK-TAKING; SOCIAL STIGMA; TRANSITION TO ADULT CARE; TRUTH DISCLOSURE; YOUNG ADULT;

EID: 84860394364     PISSN: 00223476     EISSN: 10976833     Source Type: Journal    
DOI: 10.1016/j.jpeds.2011.06.040     Document Type: Article

References (40)

1. R.W. Blum, D. Garell, C.H. Hodgman, T.W. Jorissen, N.A. Okinow, and D.P. Orr Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine J Adolesc Health 14 1993 570 576 (Pubitemid 23345069)
2. P. Scal, T. Evans, S. Blozis, N. Okinow, and R. Blum Trends in transition from pediatric to adult health care services for young adults with chronic conditions J Adolesc Health 24 1999 259 264 (Pubitemid 29191722)
3. Bureau MaCH Moving On Transition from Child-Centered to Adult Health Care for Youth with Disabilities US Department of Health and Human Services PHS, Health Resources and Services Administration 1992 National Center for Education in Maternal and Child Health Washington DC
4. P.W. Newacheck, and N. Halfon Prevalence and impact of disabling chronic conditions in childhood Am J Public Health 88 1998 610 617 (Pubitemid 28350042)
5. C.L. Betz Adolescents with chronic conditions: linkages to adult service systems Pediatr Nurs 25 1999 473 476
6. P. Scal, and M. Ireland Addressing transition to adult health care for adolescents with special health care needs Pediatrics 115 2005 1607 1612 (Pubitemid 43843170)
7. D.S. Lotstein, R. Ghandour, A. Cash, E. McGuire, B. Strickland, and P. Newacheck Planning for health care transitions: results from the 2005-2006 National Survey of Children With Special Health Care Needs Pediatrics 123 2009 e145 e152
8. D.S. Lotstein, M. McPherson, B. Strickland, and P.W. Newacheck Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs Pediatrics 115 2005 1562 1568 (Pubitemid 43843164)
9. N.G. Peter, C.M. Forke, K.R. Ginsburg, and D.F. Schwarz Transition from pediatric to adult care: internists' perspectives Pediatrics 123 2009 417 423
10. T. Vijayan, A.L. Benin, K. Wagner, S. Romano, and W.A. Andiman We never thought this would happen: transitioning care of adolescents with perinatally acquired HIV infection from pediatrics to internal medicine AIDS Care 2 2009 1222 1229
11. A.T. Pavia Management of Pediatric/Adolescent HIV and Transition to Adulthood HIV/AIDS Annual Update 2006: Clinical Care Options HIV 2006 115 131
12. Myerson A, Ng YKW. Disclosure of HIV to perinatally infected children and adolescents. Available at http://www.hivguidelines.org. New York State Department of Health AIDS Institute; 2009.
13. R.R. Chugani An analysis of issues surrounding disclosure of the diagnosis of human immunodeficiency virus infection to children 1998 A Thesis submitted to Yale University School of Medicine New Haven
14. Group HTCW. Transitioning HIV-infected adolescents into adult care. Available at www.hivguidelines.org. New York State Department of Health AIDS Institute; 2011.
15. D.P. Hogan, and A.M. Astone The transition to adulthood Ann Rev Sociol 12 1986 109 130
16. M. Weitzman School and peer relations Pediatr Clin North Am 31 1984 59 69 (Pubitemid 14082198)
17. M. Weitzman School absence rates as outcome measures in studies of children with chronic illness J Chronic Dis 39 1986 799 808 (Pubitemid 16004763)
18. H.B. Battles, and L.S. Wiener From adolescence through young adulthood: psychosocial adjustment associated with long-term survival of HIV J Adolesc Health 30 2002 161 168 (Pubitemid 34175140)
19. M.L. Nozyce, S.S. Lee, A. Wiznia, S. Nachman, L.M. Mofenson, and M.E. Smith A behavioral and cognitive profile of clinically stable HIV-infected children Pediatrics 117 2006 763 770 (Pubitemid 46063218)
20. J.E. Moorman, R.A. Rudd, C.A. Johnson, M. King, P. Minor, and C. Bailey National surveillance for asthma - United States, 1980-2004 MMWR Surveill Summ 56 2007 1 54
21. P. Scal, M. Davern, M. Ireland, and K. Park Transition to adulthood: delays and unmet needs among adolescents and young adults with asthma J Pediatr 152 2008 471 475 5 e1
22. A.J. Houtrow, and P.W. Newacheck Understanding transition issues: asthma as an example J Pediatr 152 2008 453 455 (Pubitemid 351381044)
23. L.K. Tuchman, L.A. Schwartz, G.S. Sawicki, and M.T. Britto Cystic fibrosis and transition to adult medical care Pediatrics 125 2010 566 573
24. F.P. Busse, P. Hiermann, A. Galler, M. Stumvoll, T. Wiessner, and W. Kiess Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care Horm Res 67 2007 132 138 (Pubitemid 46355586)
25. M. Frank Factors associated with non-compliance with a medical follow-up regimen after discharge from a pediatric diabetes clinic Can J Diabetes Care 20 1996 13 20
26. D. Pacaud, B. McConnell, C. Huot, C. Aebi, and J. Yale Transition from pediatric care to adult care for insulin-dependent diabetes patients Can J Diabetes Care 20 1996 14 20
27. D. Pacaud, J. Yale, D. Stephure, R. Trussell, and H. Davies Problems in transition from pediatric care to adult care for individuals with diabetes Can J Diabetes Care 29 2005 13 18 (Pubitemid 43733694)
28. T.O. Henderson, D.L. Friedman, and A.T. Meadows Childhood cancer survivors: transition to adult-focused risk-based care Pediatrics 126 2010 129 136
29. D.L. Friedman, D.R. Freyer, and G.A. Levitt Models of care for survivors of childhood cancer Pediatr Blood Cancer 46 2006 159 168 (Pubitemid 43076065)
30. E.A. Wojciechowski, A. Hurtig, and L. Dorn A natural history study of adolescents and young adults with sickle cell disease as they transfer to adult care: a need for case management services J Pediatr Nurs 17 2002 18 27 (Pubitemid 40439259)
31. American Academy of Pediatrics Ad Hoc Task Force on Definition of the Medical Home: the medical home Pediatrics 90 1992 774
32. P.R. Ziring, D. Brazdziunas, W.C. Cooley, T.A. Kastner, M.E. Kummer, L. Gonzalez de Pijem American Academy of Pediatrics. Committee on Children With Disabilities Care coordination: integrating health and related systems of care for children with special health care needs Pediatrics 104 4 Pt 1 1999 978 981 (Pubitemid 29463572)
33. C. Foster, A. Judd, P. Tookey, G. Tudor-Williams, D. Dunn, and D. Shingadia Young people in the United Kingdom and Ireland with perinatally acquired HIV: the pediatric legacy for adult services AIDS Patient Care STDS 23 2009 159 166
34. J. Rusley, W.A. Andiman, J. Dziura, L. Chwastiak, and K. Wagner Transition from Pediatric to Adult-oriented Care for Youth Living with HIV/AIDS: lessons from a National Survey of Pediatric HIV Care Providers AIDS Care 2010 submitted for publication
35. P.P. Gilliam, J.M. Ellen, L. Leonard, S. Kinsman, C.M. Jevitt, and D.M. Straub Transition of adolescents with HIV to adult care: characteristics and current practices of the adolescent trials network for HIV/AIDS interventions J Assoc Nurses AIDS Care 2010
36. J.S. Hagood, C.V. Lenker, and S. Thrasher A course on the transition to adult care of patients with childhood-onset chronic illnesses Acad Med 80 2005 352 355 (Pubitemid 40446173)
37. A.M. Kelly, B. Kratz, M. Bielski, and P.M. Rinehart Implementing transitions for youth with complex chronic conditions using the medical home model Pediatrics 110 6 Pt 2 2002 1322 1327 (Pubitemid 35425174)
38. D.S. Rosen, R.W. Blum, M. Britto, S.M. Sawyer, and D.M. Siegel Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine J Adolesc Health 33 2003 309 311
39. C.L. Betz Adolescent transitions: a nursing concern Pediatr Nurs 24 1998 23 28 quiz 9-30
40. D. Rosen Between two worlds: bridging the cultures of child health and adult medicine J Adolesc Health 17 1995 10 16