Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French

Haemophilia

Volumn 18, Issue 3, 2012, Pages 353-357

  Young, N L ^a   St Louis, J ^b   Burke, T ^a   Hershon, L ^c   Blanchette, V ^d  

^a LAURENTIAN UNIVERSITY   (Canada)

^b MAISONNEUVE ROSEMONT HOSPITAL   (Canada)

^c UNIVERSITY OF MONTREAL   (Canada)

^d HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Haemophilia; Measurement; Patient reported outcomes; Quality of life; Validation

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CANADA; CANADIAN HEMOPHILIA OUTCOME KID LIFE ASSESSMENT TOOL; CHILD; CLINICAL ARTICLE; CLINICAL ASSESSMENT TOOL; EVALUATION; HEMOPHILIA; HEMOPHILIA SPECIFIC MEASURE OF QUALITY OF LIFE A; HUMAN; INTERMETHOD COMPARISON; LANGUAGE PROCESSING; MALE; PRIORITY JOURNAL; PUBLICATION; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; SCHOOL CHILD; VALIDATION STUDY;

ADULT; AGED; CANADA; CHILD; CHILD, PRESCHOOL; CROSS-CULTURAL COMPARISON; FRANCE; HEMOPHILIA A; HEMOPHILIA B; HUMANS; LANGUAGE; MALE; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; TRANSLATIONS;

EID: 84860343510     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2011.02703.x     Document Type: Article

References (15)

1. Young NL, Bradley CS, Blanchette V et al. Development of a health-related quality of life measure for boys with haemophilia: the Canadian Haemophilia Outcomes - Kids' Life Assessment Tool (CHO-KLAT). Haemophilia, 2004; 10: 34-43.
2. Young NL, Bradley CS, Wakefield CD, Barnard D, Blanchette VS, McCusker PJ. How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia? Pediatr Blood Cancer, 2006; 47: 305-11.
3. Rentz A, Flood E, Altisent C et al. Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia. Haemophilia, 2008; 14: 1023-34.
4. Bradley CS. Assessment and Interpretation of Age Effects in Pediatric Health Data, in Graduate Department of Rehabilitation Science. Masters of Science Thesis 2003, University of Toronto: Toronto.
5. Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine, 2000; 25: 3186-91.
6. Bullinger M, Alonso J, Apolone G et al. Translating health status questionnaires and evaluating their quality: the IQOLA Project approach. International Quality of Life Assessment. J Clin Epidemiol, 1998; 51: 913-23.
7. Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol, 1993; 46: 1417-32.
8. Price VE, Klaassen RJ, Bolton-Maggs PHB et al. Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation. Health Qual Life Outcomes, 2009; 7: 92.
9. Jobe JB. Cognitive psychology and self-reports: models and methods. Qual Life Res, 2003; 12: 219-27.
10. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality Of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care, 2001; 39: 800-12.
11. Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the Pediatric Quality of Life Inventory. Med Care, 1999; 37: 126-39.
12. Hopman WM, Towheed T, Anastassiades T et al. Canadian normative data for the SF-36 health survey. Can Med Assoc J, 2000; 163: 265-71.
13. Hopman WM, Berger C, Joseph L et al. Health-related quality of life in Canadian adolescents and young adults: normative data using the SF-36. Can J Public Health, 2009; 100: 449-52.
14. Dauphinee SW, Gauthier L, Gandek B, Magnan L, Pierre U. Readying a US measure of health status, the SF-36, for use in Canada. Clin Invest Med, 1997; 20: 224-38.
15. Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res, 2006; 15: 203-15.