A Study on Caregiver Burden: Stressors, Challenges, and Possible Solutions

American Journal of Hospice and Palliative Medicine

Volumn 29, Issue 3, 2012, Pages 210-218

  Bialon, Laura Nelson ^a   Coke, Sallie ^a  

^a GEORGIA COLLEGE AND STATE UNIVERSITY   (United States)

Author keywords

care; caregiver burden; end of life; family caregiver; home care; hospice; palliative; terminal illness

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; CAREGIVER; FAMILY; FEMALE; HEALTH SERVICE; HOSPICE CARE; HUMAN; MALE; MENTAL STRESS; METHODOLOGY; MIDDLE AGED; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; FAMILY; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HOSPICE CARE; HUMANS; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84860184942     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909111416494     Document Type: Article

References (18)

1. Meyers JL,Gray LN.The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden.Onc Nurs Forum. 2001;28 (1): 73-82.
2. Carlson MD,Morrison R,Holford TR,Bradley EH.Hospice care: what services do patients and their families receive?.HSR. 2007;42 (4): 1672-1690.
3. National Hospice and Palliative Care Organization. 2010 NHPCO's Facts & Figures on Hospice (Report). Available at The National Hospice and Palliative Care Organization Website:http://www.nhpco.org/i4a/pages/index.cfm?pageid=5994. Accessed November 20, 2010.
4. Hudson P,Quinn K,Kristjanson L, et al.Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care.Palliat Med. 2008;22 (3): 270-280.
5. Andrews SC.Caregiver burden and symptom distress in people with cancer receiving hospice care.Onc Nurs Forum. 2001;28 (9): 1469-1474.
6. Waldrop DP,Kramer BJ,Skretny MA,Milch RA,Finn W.Final transitions: family caregiving at the end of life.J Palliat Med. 2005;8 (3): 623-638.
7. Given B,Kozachik S,Collins C, et alNursing Care of Older Adult Diagnoses: Outcome and Interventions. Maas MBuckwalter KHardy MTripp-Reimer TTitler M., ed. St. Louis, MO: Mosby; 2001:679-695.
8. Given B,Wyatt G,Given C, et al.Burden and depression among caregivers of patients with cancer at the end of life.Onc Nurs Forum. 2004;31 (6): 1105-1117.
9. D'Amelio M,Terruso V,Palmeri B, et al.Predictors of caregiver burden in partners of patients with parkinson's disease.Neuro Sci. 2009;30 (2): 171-174.
10. Morano CL.Appraisal and coping: moderators or mediators of stress in alzheimer's disease caregivers?.Social Work Res. 2003;27 (2): 116-128.
11. Huang C,Sousa VD,Perng S, et al.Stressors, social support, depressive symptoms and general health status of taiwanese caregivers of persons with stroke or alzheimer's disease.J Clin Nurs. 2009;18 (4): 502-511.
12. Haley WE,LaMonde LA,Han B,Burton AM,Schonwetter R.Predictors of depression and life satisfaction among spousal caregivers in hospice: application of a stress process model.J Palliat Med. 2003;6 (2): 215-224.
13. Waldrop DP.Caregiver grief in terminal illness and bereavement: a mixed-methods study.Health Soc Work. 2007;32 (3): 197-206.
14. Kutner J,Kilbourn KM,Costenaro A, et al.Support needs of informal hospice caregivers: a qualitative study.J Palliat Med. 2009;12 (12): 1101-1104.
15. Koenig HGSpirituality in Patient Care: Why, How, When and What. Philadelphia, PA: Templeton Foundation Press; 2002:.
16. Deal B.A pilot study of 'nurses' experience of giving spiritual care.Qual Report. 2010;15 (4): 852-863.
17. Schumacher KL,Stewart BJ,Archbold PG,Caparro M,Mutale F,Agrawal S.Effects of caregiving demand, mutuality, and preparedness on family caregiver outcomes during cancer treatment.Onc Nurs Forum. 2008;35 (1): 49-56.
18. Polit DF,Beck CTNursing Research: Generating and Assessing Evidence for Nursing Practice. 8th ed.Philadelpha, PA: Lippincott Williams & Wilkins; 2008.