메뉴 건너뛰기




Volumn 33, Issue 3, 2012, Pages 229-235

Living with phenylketonuria from the point of view of children, adolescents, and young adults: A qualitative study

Author keywords

adherence; diet; metabolism; phenylketonuria; qualitative methods

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CHILD; FEMALE; HUMAN; MALE; PATIENT COMPLIANCE; PHENYLKETONURIA; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SOCIAL BEHAVIOR;

EID: 84859755028     PISSN: 0196206X     EISSN: None     Source Type: Journal    
DOI: 10.1097/DBP.0b013e3182460d8a     Document Type: Article
Times cited : (24)

References (24)
  • 1
    • 0027453180 scopus 로고
    • Framework for identifying children who have chronic conditions: The case for a new definition
    • Stein REK, Bauman LJ, Westbrook LE, Coupey SM, Ireys HT. Framework for identifying children who have chronic conditions: the case for a new definition. J Pediatr. 1993;122:342-347. (Pubitemid 23067210)
    • (1993) Journal of Pediatrics , vol.122 , Issue.3 , pp. 342-347
    • Stein, R.E.K.1    Bauman, L.J.2    Westbrook, L.E.3    Coupey, S.M.4    Ireys, H.T.5
  • 2
    • 0034760635 scopus 로고    scopus 로고
    • Dietary recommendations to prevent and manage chronic pediatric health conditions: Adherence, intervention, and future directions
    • Mackner LM, McGrath AM, Stark LJ. Dietary recommendations to prevent and manage chronic pediatric health conditions: adherence, intervention, and future directions. J Dev Behavl Pediatr. 2001;22:130-143. (Pubitemid 33040485)
    • (2001) Journal of Developmental and Behavioral Pediatrics , vol.22 , Issue.2 , pp. 130-143
    • Mackner, L.M.1    Mcgrath, A.M.2    Stark, L.J.3
  • 3
    • 33947572375 scopus 로고    scopus 로고
    • Adolescents with a chronic condition: challenges living, challenges treating
    • DOI 10.1016/S0140-6736(07)60370-5, PII S0140673607603705
    • Sawyer SM, Drew S, Yeo MS, Britto MT. Adolescents with a chronic condition: challenges living, challenges treating, Lancet. 2007;369:1481-1489. (Pubitemid 46635756)
    • (2007) Lancet , vol.369 , Issue.9571 , pp. 1481-1489
    • Sawyer, S.M.1    Drew, S.2    Yeo, M.S.3    Britto, M.T.4
  • 4
    • 47149103344 scopus 로고    scopus 로고
    • Psychological adjustment to chronic disease
    • DOI 10.1016/S0140-6736(08)61078-8, PII S0140673608610788
    • De Ridder D, Greenen R, Kruijer R, Middendorp H. Psychological adjustment to chronic disease. Lancet. 2008;372:246-255. (Pubitemid 351978113)
    • (2008) The Lancet , vol.372 , Issue.9634 , pp. 246-255
    • De Ridder, D.1    Geenen, R.2    Kuijer, R.3    Van Middendorp, H.4
  • 7
    • 0025102115 scopus 로고
    • Coping with PKU: Results of narrative interviews with parents
    • Awiszus D, Unger I. Coping with PKU: results of narrative interviews with parents. Eur J Pediatr. 1990;149:S45-S51. (Pubitemid 20279483)
    • (1990) European Journal of Pediatrics , vol.149 , Issue.SUPPL. 1
    • Awiszus, D.1    Unger, I.2
  • 8
    • 0033034060 scopus 로고    scopus 로고
    • Review: Emotional and behavioral functioning in phenylketonuria
    • DOI 10.1093/jpepsy/24.3.281
    • Sullivan JE, Chang PN. Review: emotional and behavioral functioning in phenylketonuria. J Pediatr Psychol. 1999;24: 281-299. (Pubitemid 29279650)
    • (1999) Journal of Pediatric Psychology , vol.24 , Issue.3 , pp. 281-299
    • Sullivan, J.E.1    Chang, P.2
  • 9
    • 0036085533 scopus 로고    scopus 로고
    • Quality of life and psychologic adjustment in children and adolescents with early treated phenylketonuria can be normal
    • DOI 10.1067/mpd.2002.123663
    • Landolt MA, Nuoffer JM, Steinman B, Superti-Furga A. Quality of life and psychologic adjustment in children and adolescents with early treated phenylketonuria can be normal. J Pediatr. 2002; 140:516-521. (Pubitemid 34666719)
    • (2002) Journal of Pediatrics , vol.140 , Issue.5 , pp. 516-521
    • Landolt, M.A.1    Nuoffer, J.-M.2    Steinmann, B.3    Superti-Furga, A.4
  • 11
    • 42549100298 scopus 로고    scopus 로고
    • Evaluation of quality of life and description of the sociodemographic state in adolescents and young adult patients with phenylketonuria (PKU)
    • Simon E, Schwarz M, Roos J, et al. Evaluation of quality of life and description of the sociodemographic state in adolescents and young adult patients with phenylketonuria (PKU). Health Qual Life Outcomes. 2008;6:25.
    • (2008) Health Qual Life Outcomes , vol.6 , pp. 25
    • Simon, E.1    Schwarz, M.2    Roos, J.3
  • 12
    • 32144431585 scopus 로고    scopus 로고
    • Stigma and its public health implications
    • DOI 10.1016/S0140-6736(06)68184-1, PII S0140673606681841
    • Link BG, Phelan J. Stigma and its public health implications. Lancet. 2006;367:528-529. (Pubitemid 43208908)
    • (2006) Lancet , vol.367 , Issue.9509 , pp. 528-529
    • Link, B.G.1    Phelan, J.C.2
  • 13
    • 32144447256 scopus 로고    scopus 로고
    • Stigma and global health: Developing a research agenda
    • DOI 10.1016/S0140-6736(06)68183-X, PII S014067360668183X
    • Keusch G, Wilentz J, Kleinman A. Stigma and global health: developing a research agenda. Lancet. 2006;367:525-527. (Pubitemid 43208907)
    • (2006) Lancet , vol.367 , Issue.9509 , pp. 525-527
    • Keusch, G.T.1    Wilentz, J.2    Kleinman, A.3
  • 14
    • 36949034282 scopus 로고    scopus 로고
    • Negotiating PKU: Insights from New Zealand
    • Frank N, Fitzgerald R, Legge M. Negotiating PKU: insights from New Zealand. SITES. 2007;4:161-189.
    • (2007) SITES , vol.4 , pp. 161-189
    • Frank, N.1    Fitzgerald, R.2    Legge, M.3
  • 15
    • 77954730843 scopus 로고    scopus 로고
    • How individuals with phenylketonuria experience their illness: An age-related qualitative study
    • Vegni E, Fiori L, Riva E, Giovannini M, Moja EA. How individuals with phenylketonuria experience their illness: an age-related qualitative study. Child Care Health Dev. 2009;36:539-548.
    • (2009) Child Care Health Dev , vol.36 , pp. 539-548
    • Vegni, E.1    Fiori, L.2    Riva, E.3    Giovannini, M.4    Moja, E.A.5
  • 16
    • 84859738804 scopus 로고    scopus 로고
    • Interpreting and explaining sickness
    • Maidenhead UK: Open University Press
    • Pool R, Geissler W. Interpreting and explaining sickness. In: Medical Anthropology. Maidenhead, UK: Open University Press; 2005:52-62.
    • (2005) Medical Anthropology , pp. 52-62
    • Pool, R.1    Geissler, W.2
  • 17
    • 0034620170 scopus 로고    scopus 로고
    • Mays N Analysing qualitative data
    • Pope C, Ziebland S, Mays N Analysing qualitative data. BMJ 2000;320:114-116.
    • (2000) BMJ , vol.320 , pp. 114-116
    • Pope, C.1    Ziebland, S.2
  • 18
    • 67649977073 scopus 로고    scopus 로고
    • Food that makes you different: The stigma experienced by adolescents with celiac disease
    • Olsson C, Lyon P, Hornell A, Ivarsson A, Sydner YM. Food that makes you different: the stigma experienced by adolescents with celiac disease. Qual Health Res. 2009;19:976-984.
    • (2009) Qual Health Res , vol.19 , pp. 976-984
    • Olsson, C.1    Lyon, P.2    Hornell, A.3    Ivarsson, A.4    Sydner, Y.M.5
  • 19
    • 21444458508 scopus 로고    scopus 로고
    • Situational analysis of dietary challenges of the treatment regimen for children and adolescents with phenylketonuria and their primary caregivers
    • DOI 10.1097/00004703-200506000-00004
    • Ievers-Landis CE, Hoff AL, Brez C, Cancilliere MK, McConnell J, Kerr D. Situational analysis of dietary challenges of the treatment regimen for children and adolescents with phenylketonuria and their primary caregivers. J Dev Behav Pediatr. 2005;26:186-193. (Pubitemid 40917085)
    • (2005) Journal of Developmental and Behavioral Pediatrics , vol.26 , Issue.3 , pp. 186-193
    • Ievers-Landis, C.E.1    Hoff, A.L.2    Brez, C.3    Cancilliere, M.K.4    McConnell, J.5    Kerr, D.6
  • 20
    • 84859755113 scopus 로고    scopus 로고
    • Theories of health behaviour
    • Hoboken NJ: John Wiley & Sons, Inc.
    • Sanderson CA. Theories of health behaviour. In: Health Psychology. Hoboken, NJ: John Wiley & Sons, Inc.; 2004:61-65.
    • (2004) Health Psychology , pp. 61-65
    • Sanderson, C.A.1
  • 21
  • 22
    • 0034828191 scopus 로고    scopus 로고
    • PKU adults and their return to diet: Predicting diet continuation and maintenance
    • DOI 10.1023/A:1010546000617
    • Finkelson L, Bailey I, Waisbren SE. PKU adults and their return to diet: predicting diet continuation and maintenance. J Inherit Metab Dis. 2001;24: 515-516. (Pubitemid 32894523)
    • (2001) Journal of Inherited Metabolic Disease , vol.24 , Issue.4 , pp. 515-516
    • Finkelson, L.1    Bailey, I.2    Waisbren, S.E.3
  • 23
  • 24
    • 74849087796 scopus 로고    scopus 로고
    • Parental and child perspectives on adaptation to childhood chronic illness: A qualitative study
    • Gannoni AF, Shute RH. Parental and child perspectives on adaptation to childhood chronic illness: a qualitative study. Clin Child Psychol Psychiatry. 2010;15:39-53.
    • (2010) Clin Child Psychol Psychiatry , vol.15 , pp. 39-53
    • Gannoni, A.F.1    Shute, R.H.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.