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Volumn 14, Issue 4, 2012, Pages 385-392

Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants

Author keywords

biobank; bioethics; biorepository; genetics; genomics; human subjects research; incidental findings; research ethics; return of results

Indexed keywords

ARTICLE; BIOETHICS; CYTOGENETICS; EPIGENETICS; FACTUAL DATABASE; GENETIC ASSOCIATION; GENETICS; GENOME IMPRINTING; HUMAN; HUMAN CELL; HUMAN TISSUE; INCIDENTAL FINDING; MEDICAL RESEARCH; METHODOLOGY; POLICY; RESEARCH ETHICS; RESEARCH SUBJECT;

EID: 84859610707     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1038/gim.2011.69     Document Type: Article
Times cited : (10)

References (7)
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    • (2008) J Law Med Ethics , vol.36
    • Wolf, S.M.1    Lawrenz, F.P.2    Nelson, C.A.3
  • 2
    • 57449115536 scopus 로고    scopus 로고
    • Subjects matter: A survey of public opinions about a large genetic cohort study
    • Kaufman D, Murphy J, Scott J, Hudson K. Subjects matter: a survey of public opinions about a large genetic cohort study. Genet Med 2008;10: 831-839.
    • (2008) Genet Med , vol.10 , pp. 831-839
    • Kaufman, D.1    Murphy, J.2    Scott, J.3    Hudson, K.4
  • 3
    • 0037043254 scopus 로고    scopus 로고
    • The debate over research on stored biological samples: What do sources think?
    • Wendler D, Emanuel E. The debate over research on stored biological samples: what do sources think? Arch Intern Med 2002;162:1457-1462. (Pubitemid 34747478)
    • (2002) Archives of Internal Medicine , vol.162 , Issue.13 , pp. 1457-1462
    • Wendler, D.1    Emanuel, E.2
  • 5
    • 79951863517 scopus 로고    scopus 로고
    • Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from an NHLBI working group
    • Fabsitz RR, McGuire A, Sharp RR, et al. Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from an NHLBI working group. Circ Cardiovasc Genet 2010;3:574-580.
    • (2010) Circ Cardiovasc Genet , vol.3 , pp. 574-580
    • Fabsitz, R.R.1    McGuire, A.2    Sharp, R.R.3
  • 6
    • 84859566974 scopus 로고    scopus 로고
    • Managing incidental findings and research results in genomic research involving biobanks and archived data sets
    • Wolf SM, Crock, BN, Van Ness, B, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med, 2012;14:361-384.
    • (2012) Genet Med , vol.14 , pp. 361-384
    • Wolf, S.M.1    Crock, B.N.2    Van Ness, B.3
  • 7
    • 32044457939 scopus 로고    scopus 로고
    • Towards a social contract for genomics: Property and the Public in the 'Biotrust' Model
    • Winickoff D, Neumann LB. Towards a social contract for genomics: property and the Public in The 'Biotrust' Model. Genomics Soc Policy 2005;1:8-21.
    • (2005) Genomics Soc Policy , vol.1 , pp. 8-21
    • Winickoff, D.1    Neumann, L.B.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.