Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement Building

Social Movement Studies

Volumn 11, Issue 2, 2012, Pages 161-176

  Cordner, Alissa ^a   Ciplet, David ^a   Brown, Phil ^a   Morello Frosch, Rachel ^b  

^a BROWN UNIVERSITY   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

community based participatory research; community engaged research; environmental health; environmental justice; reflexivity; Research ethics

Indexed keywords

EID: 84859598899     PISSN: 14742837     EISSN: 14742829     Source Type: Journal    
DOI: 10.1080/14742837.2012.664898     Document Type: Article

References (55)

1. Adams, C., Brown, P., Morello-Frosch, R., Brody, J. G., Rudel, R. A., Zota, A., Dunagan, S., Tovar, J. and Patton, S. 2011. Disentangling the exposure experience: The roles of community context and report-back of environmental exposure data. Journal of Health and Social Behavior, 52(2): 180-196.
2. Altman, R. G. (2006) Body of evidence: Reproductive health and the environment, Report published by Collaborative on Health and the Environment, Alaska Community Action on Toxics. Available at:http://www.akaction.org/Publications/Health_Care/Body_of_Evidence_Bulletin_v1n1.pdf
3. Altman, R. G. (2008) Chemical body burden and place-based struggles for environmental health and justice, Ph.D. dissertation, Department of Sociology, Brown University
4. Altman, R. G., Morello-Frosch, R., Rudel, J. G., Brown, P. and Averick, M. 2008. Pollution comes home and gets personal: Women's experience of household chemical exposure. Journal of Health and Social Behavior, 49(4): 417-435.
5. Atkinson, P. 2009. Ethics and ethnography. 21st Century Society, 4(1): 17-30.
6. Baron, S., Sinclair, R., Payne-Sturges, D., Phelps, J., Zenick, H., Collman, G. and O'Fallon, L. 2009. Partnerships for environmental and occupational justice: Contributions to research, capacity and public health. American Journal of Public Health, 3(Suppl. 3): S517-S525.
7. Bastida, E., Tseng, T., McKeever, C. and Jack, L. 2010. Ethics and community-based participatory research: Perspectives from the field. Health Promotion Practice, 11: 16-20.
8. Beck, U. 1992. Risk Society: Towards a New Modernity, London: Sage.
9. Blee, K. M. and Currier, A. 2011. Ethics beyond the IRB: An introductory essay. Qualitative Sociology, 34: 401-413.
10. Bourdieu, P. 1992. An Invitation to Reflexive Sociology, Chicago: University of Chicago Press.
11. Bourdieu, P. 2000. Pascalian Meditations, Cambridge: Polity Press.
12. Brody, J. G., Morello-Frosch, R., Brown, P., Rudel, R. A., Frye, M., Osimo, C., Perez, C. and Seryak, L. 2007. Improving disclosure and consent: 'Is it safe?'. Journal of Public Health, 97: 1547-1554.
13. Brody, J. G., Morello-Frosch, R., Zota, A., Pérez, C. and Rudel, R. 2009. Linking exposure assessment science with policy objectives for environmental justice and breast cancer advocacy: The northern California household exposure study. American Journal of Public Health, 99: S600-S609.
14. Brown, P., Brody, J. G., Morello-Frosch, R., Tovar, J., Zota, A. R. and Rudel, R. A. 2011. Measuring the success of community science: The northern California household exposure study. Environmental Health Perspectives, (ahead of print, online December 6, 2011 at http://dx.doi.org/10.1289/ehp.1103734)
15. Brown, P. and Mikkelsen, E. J. 1990. No Safe Place: Toxic Waste, Leukemia, and Community Action, Berkeley: University of California Press.
16. Brown, P., Morello-Frosch, R., Brody, J., Altman, R. G., Rudel, R., Senier, L., Pérez, C. and Simpson, R. 2010. Institutional review board challenges related to community-based participatory research on human exposure to environmental toxins: A case study. Environmental Health, 9: 39
17. Brugge, D. and Kole, A. 2003. A case study of community-based participatory research ethics: The healthy public housing initiative. Science and Engineering Ethics, 9: 485-501.
18. Bullard, R. 1990. Dumping in Dixie: Race, Class, and Environmental Quality, Boulder: Westview Press.
19. Cable, S. and Cable, C. 1995. Environmental Problems Grassroots Solutions: The Politics of Grassroots Environmental Conflict, New York: St. Martin's Press.
20. Callero, L. P. 2003. The sociology of the self. Annual Review of Sociology, 29: 115-133.
21. Cohen, A., Lopez, A., Malloy, N. and Morello-Frosch, R. 2011. Our environment, our health: A community-based participatory environmental health survey in Richmond, California. Health Education and Behavior, online ahead of print July 8, 2011
22. Corburn, J. 2005. Street Science: Community Knowledge and Environmental Health Justice, Cambridge, MA: MIT Press.
23. Costello, A. and Zumla, A. 2000. Moving to research partnerships in developing countries. British Medical Journal, 321(7264): 827-829.
24. Dunlap, R. and Catton, W. 1979. Environmental sociology. Annual Review of Sociology, 5: 243-273.
25. Dunlap, R. and Mertig, A. 1992. American Environmentalism: The U.S. Environmental Movement 1970-1990, Philadelphia: Taylor & Francis.
26. Emirbayer, M. 1997. Manifesto for a relational sociology. The American Journal of Sociology, 103(2): 281-317.
27. Emmett, E. and Desai, C. 2010. Community first communication: Reversing information disparities to achieve environmental justice. Environmental Justice, 3(3): 79-84.
28. Epstein, S. 2008. "Patient groups and health movements". In The Handbook of Science and Technology Studies, 3rd ed., Edited by: Hackett, E., Amsterdamska, O., Lynch, M. and Wajcman, J. 499-539. Cambridge, MA: MIT Press.
29. Flicker, S., Travers, R., Guta, A., McDonald, S. and Meagher, A. 2007. Ethical dilemmas in community-based participatory research: Recommendations for institutional review boards. Journal of Urban Health, 84(4): 478-493.
30. Gerhardstein, B. and Brown, P. 2005. The benefits of community medical monitoring at nuclear weapons production sites: Lessons from Fernald. Environmental Law Reporter, 35: 10530-10538.
31. Giddens, A. 1984. Constitution of Society: Outline of the Theory of Structuration, Berkeley, CA: University of California Press.
32. Giddens, A. 1991. Modernity and Self-Identity: Self and Society in the Late Modern Age, Cambridge: Polity Press.
33. Giese-Davis, J. 2008. Community/research collaborations: Ethics and funding. Clinical Psychology: Science and Practice, 15(2): 149-152.
34. Gottlieb, R. 1993. Forcing the Spring: The Transformation of the American Environmental Movement, Washington, DC: Island Press.
35. Hammersley, M. and Atkinson, P. 2007. Ethnography: Principles in Practice, London: Routledge.
36. Israel, B. A., Schulz, A. J., Parker, E. A. and Becker, A. B. 1998. Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19: 173-202.
37. Kenway, J. and McLeod, J. 2004. Bourdieu's reflexive sociology and 'spaces of points of view': whose reflexivity, which perspective?. British Journal of Sociology of Education, 25(4): 525-544.
38. Mayer, B. 2008. Blue-Green Coalitions: Fighting for Safe Workplaces and Health Communities, Ithaca, NY: Cornell University Press.
39. Minkler, M. 2004. Ethical challenges for the 'outside' researcher in community-based participatory research. Health Education & Behavior, 31: 684-697.
40. Minkler, M. and Wallerstein, N. 2008. Community-Based Participatory Research for Health: From Process to Outcome, San Francisco: Jossey-Bass.
41. Mohai, P. and Bryant, B. 1992. Environmental injustice: Weighing race and class as factors in the distribution of environmental hazards. University of Colorado Law Review, 63: 921
42. Mohai, P., Pellow, D. and Roberts, J. T. 2009. Environmental justice. Annual Review of Environment and Resources, 34: 405-430.
43. Morello-Frosch, R., Brody, J., Brown, P., Altman, R., Rudel, R. and Pérez, C. 2009. Toxic ignorance and right-to-know in biomonitoring results communication: A survey of scientists and study participants. Environmental Health, 8(1): 6
44. Morello-Frosch, R., Brown, P., Brody, J. G., Altman, R. G., Rudel, R. A., Zota, A. R. and Perez, C. 2011. "Exerts, ethics, and environmental justice: Communicating and contesting results from personal exposure science". In Environmental Justice and the Transformation of Science and Engineering, Edited by: Ottinger, G. and Cohen, B. 93-118. Cambridge, MA: MIT Press.
45. Morello-Frosch, R., Pastor, M., Sadd, J., Porras, C. and Prichard, M. 2005. "Citizens, science, and data judo: Leveraging community-based participatory research to build a regional collaborative for environmental justice in southern California". In Methods for Conducting Community-Based Participatory Research in Public Health, Edited by: Israel, B. A., Eng, E., Schulz, A. J. and Parker, E. A. 371-391. San Francisco: Jossey-Bass.
46. Morello-Frosch, R., Zavestoski, S., Brown, P., Altman, R. G., McCormick, S. and Mayer, B. 2006. "Embodied health movements: Responses to a 'scientized' world". In The New Political Sociology of Science: Institutions, Networks, and Power, Edited by: Frickel, S. and Moore, K. 244-271. Madison: University of Wisconsin Press, Madison.
47. Murphy, E. and Dingwall, R. 2001. "The ethics of ethnography". In Handbook of Ethnography, Edited by: Atkinson, P. 339-351. London: Sage.
48. O'Fallon, L. and Dearry, A. 2002. Community-based participatory research as a tool to advance environmental health sciences. Environmental Health Perspectives, 110(S2): 155-159.
49. Pillow, W. 2003. Confession, catharsis, or cure? Rethinking the use of reflexivity as methodological power in qualitative research. International Journal of Qualitative Studies in Education, 16(2): 175-196.
50. Schirato, T. and Webb, J. 2003. Bourdieu's concept of reflexivity as metaliteracy. Cultural Studies, 17(3/4): 539-552.
51. Senier, L., Hudson, B., Fort, S., Hoover, L., Tillson, R. and Brown, P. 2008. Brown superfund basic research program: A multistakeholder partnership addresses real-world problems in contaminated communities. Environmental Science & Technology, 42(13): 4655-4662.
52. Smith-Doerr, L. 2006. "Learning to reflect or deflect? U.S. policies and graduate programs' ethics trainings for life scientists". In New Political Sociology of Science, Edited by: Frickel, S. and Moore, K. 405-431. Madison: University of Wisconsin Press.
53. Swauger, M. 2011. Afterword: The ethics of risk, power, and representation. Qualitative Sociology, 34: 497-502.
54. Watkins, B. X., Shepard, P. and Corbin-Mark, C. 2009. Completing the circle: A model for effective community review of environmental health research. American Journal of Public Health, 99: S567-S577.
55. Wu, N., McClean, M., Brown, P., Aschengrau, A. and Webster, T. 2009. Participant experiences in a breastmilk biomonitoring study: Qualitative assessment. Environmental Health, 8: 4