Development of a social morbidity score in patients with chronic ulcerative colitis as a potential guide to treatment

Colorectal Disease

Volumn 14, Issue 5, 2012, Pages

  Smith, J J ^a   Netuveli, G ^b   Sleight, S P ^a   Das, P ^c   Tekkis, P P ^d   Gabe, S M ^c   Clark, S K ^c   Nicholls, R J ^c,d  

^a WEST MIDDLESEX UNIVERSITY HOSPITAL   (United Kingdom)

^b INSTITUTE OF HUMAN GENETICS   (United Kingdom)

^c ST MARK S HOSPITAL   (United Kingdom)

^d IMPERIAL COLLEGE LONDON   (United Kingdom)

Author keywords

Questionnaire; Social morbidity score; Ulcerative colitis

Indexed keywords

ADULT; ARTICLE; DISEASE SEVERITY; EDUCATIONAL STATUS; EMPLOYMENT; ENDOSCOPY; FEMALE; FINANCE; FOLLOW UP; HUMAN; HUMAN RELATION; INDEPENDENCE; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; SHORT FORM 36; SOCIAL IMPACT OF CHRONIC CONDITION INFLAMMATORY BOWEL DISEASE QUESTIONNAIRE; SOCIAL INTERACTION; ULCERATIVE COLITIS;

COLITIS, ULCERATIVE; EDUCATION; EMPLOYMENT; FEMALE; HUMANS; INCOME; INDEPENDENT LIVING; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 84859223309     PISSN: 14628910     EISSN: 14631318     Source Type: Journal    
DOI: 10.1111/j.1463-1318.2012.02880.x     Document Type: Article

References (27)

1. Farmer RG, Easley KA, Farmer JM. Quality of life assessment by patients with inflammatory bowel disease. Cleve Clin J Med 1992; 59: 35-42.
2. Garrett JW, Drossman DA. Health status in inflammatory bowel disease. Biological and behavioral considerations. Gastroenterology 1990; 99: 90-6.
3. Irvine EJ. Quality of Life - rationale and methods for developing a disease-specific instrument for inflammatory bowel disease. Scand J Gastroenterol Suppl 1993; 199: 22-7.
4. Martin A, Dinca M, Leone L et al. Quality of life after proctocolectomy and ileo-anal anastomosis for severe ulcerative colitis. Am J Gastroenterol 1998; 93: 166-9.
5. Martin A, Leone L, Castagliuolo I, Di Mario F, Naccarato R. What do patients want to know about their inflammatory bowel disease? Ital J Gastroenterol 1992; 24: 477-80.
6. Martin A, Leone L, Fries W, Naccarato R. Quality of life in inflammatory bowel disease. Ital J Gastroenterol 1995; 27: 450-4.
7. Zbrozek A, Hoop R, Robinson M, McPherson M. Test of an instrument to measure function-related quality of life in patients with ulcerative colitis. [Erratum appears in PharmacoEconomics 1993 Nov; 4(5):395]. Pharmacoeconomics 1993; 4: 31-9.
8. Cheung WY, Garratt AM, Russell IT, Williams JG. The UK IBDQ-a British version of the inflammatory bowel disease questionnaire: development and validation. J Clin Epidemiol 2000; 53: 297-306.
9. Han SW, McColl E, Steen N, Barton JR, Welfare MR. The inflammatory bowel disease questionnaire: a valid and reliable measure in ulcerative colitis patients in the North East of England. Scand J Gastroenterol Suppl 1998; 33: 961-6.
10. Irvine EJ. Quality of Life - measurement in inflammatory bowel disease. Scand J Gastroenterol Suppl 1993; 199: 36-9.
11. Irvine EJ. Quality of life in inflammatory bowel disease and other chronic diseases. Scand J Gastroenterol Suppl 1996; 221: 26-8.
12. Irvine EJ. Development and subsequent refinement of the inflammatory bowel disease questionnaire: a quality-of-life instrument for adult patients with inflammatory bowel disease. J Pediatr Gastroenterol Nutr 1999; 28: S23-7.
13. Jenkinson C. Comparison of UK and US methods for weighting and scoring the SF-36 summary measures. J Public Health Med 1999; 21: 372-6.
14. Jenkinson C, Coulter A, Wright L. Short form 36 (SF36) health survey questionnaire: normative data for adults of working age. BMJ 1993; 306: 1437-40.
15. Jenkinson C, Norquist JM, Fitzpatrick R. Deriving summary indices of health status from the Amyotrophic Lateral Sclerosis Assessment Questionnaires (ALSAQ-40 and ALSAQ-5). J Neurol Neurosurg Psychiatry 2003; 74: 242-5.
16. Jenkinson C, Stewart-Brown S, Petersen S, Paice C. Assessment of the SF-36 version 2 in the United Kingdom. J Epidemiol Community Health 1999; 53: 46-50.
17. Jenkinson C, Wright L, Coulter A. Criterion validity and reliability of the SF-36 in a population sample. Qual Life Res 1994; 3: 7-12.
18. Jenkinson C, Layte R, Wright L et al. (1996) The UK SF-36: An Analysis and Interpretation Manual. Health Services Research Unit, University of Oxford, Institute of Health Sciences, Oxford, UK.
19. Health DO. (1989) Working for Patients. HMSO, London.
20. Wan TTH, Connell A. (2003) Monitoring the Quality of Health Care: Issues and Scientific Approaches. Kluwer Academic Publishers, Boston, MA.
21. Casali P, Licitra L, Costantini M et al. Quality of life assessment and clinical decision-making. Ann Oncol 1997; 8: 1207.
22. Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ 2001; 322: 1297-300.
23. Patrick DL, Erickson P (1993) Assessing health-related quality of life for clinical decision making. In: Quality of Life Assessment: Key Issues in the 1990s (ed Rosser RM, Walker SR), pp. 11-63. Kluwer, Dordrecht.
24. Streiner D, Norman GR (1995) Health Measurement Scales: a Practical Guide to Their Development and Use, 2nd edition. Oxford University Press, Second Edition 1995.
25. Parks AG, Nicholls RJ. Proctocolectomy without ileostomy for ulcerative colitis. Br Med J 1978; 2: 85-8.
26. Bland JM, Altman DG. Cronbach's alpha. BMJ 1997; 314: 572.
27. Cronbach L. Coefficient alpha and the internal structure of tests. Psychometrika 1951; 16: 297.