Survivorship care planning in colorectal cancer: Feedback from survivors & providers

Journal of Psychosocial Oncology

Volumn 30, Issue 2, 2012, Pages 198-216

  Faul, Leigh Anne ^a   Rivers, Brian ^b   Shibata, David ^b   Townsend, Ione ^b   Cabrera, Patricia ^b   Quinn, Gwendolyn P ^b   Jacobsen, Paul B ^b  

^a GEORGETOWN UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE   (United States)

Author keywords

cancer; colorectal cancer; follow up care; oncology; survivorship care plans

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CANCER RECURRENCE; CANCER SURVIVOR; CLINICAL ARTICLE; CLINICAL PRACTICE; COLORECTAL CANCER; FEAR; FEEDBACK SYSTEM; FEMALE; FOLLOW UP; HEALTH CARE COST; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH CARE QUALITY; HUMAN; MALE; MEDICAL INFORMATION; PATIENT ATTITUDE; PERSONALIZED MEDICINE; REIMBURSEMENT; SELF CONCEPT; SEMI STRUCTURED INTERVIEW; TIME;

AGED; AGED, 80 AND OVER; COLORECTAL NEOPLASMS; CONTINUITY OF PATIENT CARE; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PATIENT CARE PLANNING; RECURRENCE; SELF EFFICACY; SURVIVORS;

EID: 84859192510     PISSN: 07347332     EISSN: 15407586     Source Type: Journal    
DOI: 10.1080/07347332.2011.651260     Document Type: Article

References (58)

1. American Cancer Society. (2010). Cancer facts and figures 2010. Atlanta, GA: Author.
2. American Cancer Society. (n.d.). Survivorship care plans. Retrieved from http://www. cancer.org/Treatment/SurvivorshipDuringandAfterTreatment/ SurvivorshipCare Plans/index.
3. American College of Surgeons Commission on Cancer2011 Cancer Program Standards 2012: Ensuring Patient-Centered Care. Retrieved from http://www.facs.org/cancer/coc/programstandards2012.html
4. American Society of Clinical Oncology. (n.d.). Chemotherapy treatment plan and summary (generic). Retrieved from http://www.asco.org/ASCOv2/Practice+% 26+Guidelines/Quality+Care/Quality+Measurement+%26+Improvement/Che motherapy+Treatment+Plan+and+Summary.
5. American Society of Clinical Oncology. (2009a). Colon cancer adjuvant treatment plan and summary (v3). Retrieved from http://www.asco.org/ASCOv3/ Colon+ Cancer+Treatment+Plan+and+Summary.
6. American Society of Clinical Oncology. (2009b). Colon cancer survivorship plan (v3). Retrieved from http://www.asco.org/ASCOv3/Colon+Cancer+ Survivorship+Plan.
7. Ayanian, J., & Jacobsen, P.B. (2006). Enhancing research on cancer survivors. Journal of Clinical Oncology, 24, 5149-5153.
8. Baravelli, C., Krishnasamy, M., Pezaro, C., Schofield, P., Lofti-Jam, K., Rogers, M., . . . Jefford, M. (2009). The views of bowel cancer survivors and health care professionals regarding survivorship care plans and post treatment follow-up. Journal of Cancer Survivorship, 3, 99-108.
9. Bober, S. L., Recklitis, C. J., Campbell, E. G., Park, E. R., Kutner, J. S., Najita, J. S., & Diller, L. (2009). Caring for cancer survivors: Survey of primary care physicians. Cancer, 115(18 Suppl.), 4409-4418.
10. Brennan, M. E., Butow, P., Marven, M., Spillane, A. J., & Boyle, F. M. (2011). Survivorship care after breast cancer treatment: Experiences and preferences of Australian women. Breast, 20, 271-277.
11. Brennan, M., Butow, P., Spillane, A., & Boyle, F. (2010). Survivorship care after breast cancer: Follow-up practices of Australian health professionals and attitudes to a survivorship care plan. Asia Pacific Journal of Clinical Oncology, 6, 116-125.
12. Burg, M., Lopez, E., Dailey, A., Keller, M., & Prendergrast, M. (2009). The potential of survivorship care plans in primary care follow-up of minority breast cancer patients. Journal of General Internal Medicine, 24(Suppl. 2), S467-471.
13. Casillas, J., Syrjala, K. L., Ganz, P. A., Hammond, E., Marcus, A. C., Moss, K. M., . . . Friedman, D. L. (2011). How confident are young adult survivors in managing their survivorship care? A report from the LIVESTRONG Survivorship Center of Excellence Network. Journal of Cancer Survivorship, 5, 371-381.
14. Centers for Disease Control and Prevention. (2004). Cancer survivorship-United States 1971-2001. Morbidity and Mortality Weekly Report, 53, 526-529.
15. Centers for Disease Control and Prevention. (n.d.). Basic information about cancer survivorship. Retrieved from http://www.cdc.gov/cancer/ survivorship/ basic info.
16. Centers for Disease Control and Prevention & the Lance Armstrong Foundation. (2004). A national action plan for cancer survivorship: Advancing public health strategies. Atlanta, GA: Centers for Disease Control and Prevention.
17. Cheung, W., Neville, B., Cameron, D., Cook, E., & Earle C. (2009). Comparisons of patient and physician expectations for cancer survivorship care. Journal of Clinical Oncology, 27, 2489-2495.
18. Del Giudice, M., Grunfeld, E., Harvey, B., Piliotis, V., & Verma, S. (2009). Primary care: Physicians' views of routine follow-up care of cancer survivors. Journal of Clinical Oncology, 27, 3338-3345.
19. Desch, C. E., Benson III, A. B., Somerfield, M. R., Flynn, P. J., Krause, C., Loprinzi, C. L., . . . . Petrelli, N. J. (2005). Colorectal cancer surveillance: 2005 update of American Society of Clinical Oncology practice guideline. Journal of Clinical Oncology, 23, 8512-8519.
20. Earle, C. (2006). Failing to plan is planning to fail: Improving the quality of care with survivorship care plans. Journal of Clinical Oncology, 24, 5112-5116.
21. Earle, C. (2007). Cancer survivorship research and guidelines; maybe the cart should be before the horse. Journal of Clinical Oncology, 25, 3800-3801.
22. Engstrom, P. F., Arnoletti, J. P., Benson III, A. B., Chen, Y. J., Choti, M. A., Cooper, H. S., . . . Willett, C. (2009a). NCCN clinical practice guidelines in oncology: Colon cancer. Journal of the National Comprehensive Cancer Network: JNCCN, 7, 778-831.
23. Engstrom, P. F., Arnoletti, J. P., Benson III, A. B., Chen, Y. J., Choti, M. A., Cooper, H. S., . . . Willett, C. (2009b). NCCN clinical practice guidelines in oncology: Rectal cancer. Journal of the National Comprehensive Cancer Network: JNCCN, 7, 838-881.
24. Eschelman-Kent, D., Kinahan, K. E., Hobbie, W., Landier, W., Teal, S., Friedman, D., . . . Freyer, D. R. (2011, September 26, 2011). Cancer survivorship practices, services, and delivery: A report from the Children's Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees. Journal of Cancer Survivorship, 5, 345-357. [Epub ahead of print]
25. Evans, H., Moller, H., Robinson, D., Lewis, C., Bell, C., & Hodgson, S. (2002). The risk of subsequent primary cancers after colorectal cancer in southeast England. Gut, 50, 647-652.
26. Faul, L. A., Shibata, D., Townsend, I., & Jacobsen, P. B. (2010). Improving survivorship care for patients with colorectal cancer. Cancer Control, 17, 35-43.
27. Ganz, P. (2006). Monitoring the physical health of cancer survivors: A survivorshipfocused medical history. Journal of Clinical Oncology, 24, 5105-5111.
28. Ganz, P., Casillas, J., & Hahn, E. (2008). Ensuring quality care for cancer survivors: Implementing the survivorship care plan. Seminars in Oncology Nursing, 24, 208-217.
29. Ganz, P., & Hahn, E. (2008). Implementing a survivorship care plan for patients with breast cancer. Journal of Clinical Oncology, 26, 759-767.
30. Green, R. J., Metlay, J. P., Propert, K., Catalano, P. J., MacDonald, J. S., Mayer, R. J., & Haller, D. G. (2002). Surveillance for second primary colorectal cancer after adjuvant chemotherapy: An analysis of Intergroup 0089. Annals of Internal Medicine, 136, 261-269.
31. Grunfeld, E., & Earle, C. (2010). The interface between primary and oncology specialty care: Treatment through survivorship. Journal of the National Cancer Institute Monographs, 2010(40), 25-30.
32. Grunfeld, E., Julian, J. A., Pond, G., Maunsell, E., Coyle, D., Folkes, A., . . . Levine, M. N. (2011). Evaluating survivorship care plans: Results of a randomized, clinical trial of patients with breast cancer. Journal of Clinical Oncology, 29, 4755-4762.
33. Hahn, E., & Ganz, P. (2011). Survivorship programs and care plans in practice: Variations on a theme. Journal of Oncology Practice, 7, 70-75.
34. Haylock, P., Mitchell, S., Cox, T., Temple, S., & Curtiss, C. (2007). The cancer survivor's prescription for living. American Journal of Nursing, 107, 58-71.
35. Hewitt, M., Bamundo, A., Day, R., & Harvey, C. (2007). Perspectives on posttreatment cancer care: Qualitative research with survivors, nurses, and physicians. Journal of Clinical Oncology, 25, 2270-2273.
36. Hewitt, M., Greenfield, S., & Stovall, E. (2006). From cancer patient to cancer survivor: Lost in transition. Washington, DC: National Academies Press.
37. Institute of Medicine. (2007). Implementing cancer survivorship care planning: Workshop summary. Washington, DC: National Academies Press.
38. Jefford, M., Lofti-Jam, K., Baravelli, C., Grogan, S., Rogers, M., Krishnasamy, M., . . . Schofield, P. (2011). Development and pilot testing of a nurse-led post-treatment support package for bowel cancer survivors. Cancer Nursing, 34, E1-10.
39. Jemal, A., Siegel, R., Xu, J., & Ward, E. (2010). Cancer statistics 2010. CA: A Cancer Journal for Clinicians, 60, 277-300.
40. Journey Forward. (n.d.). About survivorship care planning. Retrieved from http://journeyforward.org/about-survivorship-care-planning
41. LIVESTRONG. (n.d.). Develop my LIVESTRONG care plan. Retrieved from: http://www.livestrongcareplan.org/.
42. Miller, R. (2008). Implementing a survivorship care plan for patients with breast cancer. Clinical Journal of Oncology Nursing, 12, 479-487.
43. Muhr, T., & Friese S. (2004). Atlas.ti 5.0 User's manual: guide and reference. Berlin, Germany: Scientific Software Development.
44. National Cancer Institute. (n.d.). Follow up care after treatment. Retrieved from http://www.cancer.gov/cancertopics/factsheet/Therapy/followup.
45. National Coalition for Cancer Survivorship. (n.d.). Cancer care planning. Retrieved from http://www.canceradvocacy.org/careplanning.
46. National Comprehensive Cancer Network. (2011). NCCN clinical practice guidelines in oncology. Retrieved from http://www.nccn.org/professionals/ physician gls/f guidelines.asp.
47. National Comprehensive Cancer Network. (n.d.). Moving forward after cancer. Retrieved from http://www.nccn.com/component/content/article/69-life- aftercancer- overview/50-moving-forward-after-cancer.html.
48. Oeffinger, K. C., Hudson, M. M., Mertens, A. C., Smith, S. M., Mitby, P. A., Eshelman- Kent, D. A., . . . Robinson, L. L. (2010). Increasing rates of breast cancer andcardiac surveillance among high-risk survivors of childhood Hodgkin Lymphoma following a mailed, one-page survivorship care plan. Pediatric Blood Cancer, 56, 818-824.
49. Oncology Nursing Society. (n.d.). ONS joins Journey Forward collaborative to benefit cancer survivors. Retrieved from http://www.ons.org/news.aspx?id= 108.
50. Ramsey, S., Berry, K., Moinpour, C., Giedzinska, A., & Anderson, M. (2002). Quality of life in long-term survivors of colorectal cancer. American Journal of Gastroenterology, 97, 1228-1234.
51. Rauch, P., Miny, J., Conroy, T., Neyton, L., & Guillemin, F. (2004). Quality of life among disease- free survivors of rectal cancer. Journal of Clinical Oncology, 22, 354-360.
52. Reuben, S., & Leffall, L. (2006). Living beyond cancer: Finding a new balance: President's Cancer Panel 2003-2004 Annual report. Bethesda, MD: National Cancer Institute.
53. Robison, L. L., Armstrong, G. T., Boice, J. D., Chow, E. J., Davies, S. M., Donaldson, S. S., . . . Zeltzer, L. K. (2009). The Childhood Cancer Survivor Study: A National Cancer Institute-supported resource for outcome and intervention research. Journal of Clinical Oncology, 27, 2308-2318.
54. Robison, L. L., Mertens, A. C., Boice, J. D., Breslow, N. E., Donaldson, S. S., Green, D. M., . . . Zeltzer, L. K. (2002). Study design and cohort characteristics of the Childhood Cancer Survivor Study: A multi-national collaborative project. Medical and Pediatric Oncology, 38, 229-239.
55. Snyder, C. F., Garrett-Mayer, E., Brahmer, J. R., Carducci, M. A., Pili, R., Stearns, V., . . . Wu, A. W. (2008). Symptoms, supportive care needs, and function in cancer patients: How are they related? Quality of Life Research, 17, 665-677.
56. Sprangers, M., Taal, B., Aaronson, N., & te Velde, A. (1995). Quality of life in colorectal cancer: Stoma vs. nonstoma patients. Diseases of the Colon and Rectum, 38, 361-369.
57. Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed). London, UK: Sage.
58. Stricker, C. T., Jacobs, L. A., Risendal, B., Jones, A., Panzer, S., Ganz, P. A., . . . Palmer, S. C. (2011). Survivorship care plans after the Institute of Medicine recommendations: How are we faring? Journal of Cancer Survivorship, 5, 358-370.