What is spirituality? Evidence from a New Zealand hospice study

Mortality

Volumn 16, Issue 4, 2011, Pages 307-324

  Egan, Richard ^a   MacLeod, Rod ^b   Jaye, Chrystal ^a   McGee, Rob ^a   Baxter, Joanne ^a   Herbison, Peter ^a  

^a UNIVERSITY OF OTAGO   (New Zealand)

^b UNIVERSITY OF AUCKLAND   (New Zealand)

Author keywords

end of life; existential; healthcare; hospice; New Zealand; palliative care; spiritual definitions; spirituality

Indexed keywords

EID: 84859078894     PISSN: 13576275     EISSN: 14699885     Source Type: Journal    
DOI: 10.1080/13576275.2011.613267     Document Type: Article

References (61)

1. Arai, T. and Ariarajah, W. 1989. Spirituality in interfaith dialogue, Geneva: World Council of Churches Publications.
2. Balboni, T. A., Paulk, M. E., Balboni, M. J., Phelps, A. C., Loggers, E. T.Wright, A. A. 2009. Provision of spiritual care to patients with advanced cancer: Associations with medical care and quality of life near death. Journal of Clinical Oncology, 28(3): 445-452.
3. Berry, D. 2005. Methodological pitfalls in the study of religiosity and spirituality. Western Journal of Nursing Research, 27(5): 628-647.
4. Blazer, D. G. 2006. Spirituality, depression, and the elderly. Southern Medical Journal, 99(10): 1178-1179.
5. Bolletino, R. C. 2001. A model of spirituality for psychotherapy and other fields of mind-body medicine. Advances in Mind-Body Medicine, 17(2): 90
6. Caelli, K., Ray, L. and Mill, J. 2003. 'Clear as mud': Toward greater clarity in generic qualitative research. International Journal of Qualitative Methods,
7. Capstick, S., Norris, P., Sopoaga, F. and Tobata, W. 2009. Relationships between health and culture in Polynesia - A review. Social Science & Medicine, 68(7): 1341-1348.
8. Chiu, L., Emblen, J. D., Van Hofwegen, L., Sawatzky, R. and Meyerhoff, H. 2004. An integrative review of the concept of spirituality in the health sciences. Western Journal of Nursing Research, 26(4): 405-428.
9. Chochinov, H. M. 2006. Dying, dignity, and new horizons in palliative end-of-life care. CA: ACancer Journal for Clinicians, 56(2): 84-103.
10. Clark, L., Leedy, S., McDonald, L., Muller, B., Lamb, C.Mendez, T. 2007. Spirituality and job satisfaction among hospice interdisciplinary team members. Journal of Palliative Medicine, 10(6): 1321-1328.
11. Crabtree, B. and Miller, W. L. 1999. Doing qualitative research, (2nd ed.), Thousand Oaks, CA: Sage.
12. Creswell, J. W. and Plano Clark, V. L. 2007. Designing and conducting mixed methods research, Thousand Oaks, CA: Sage.
13. D'Souza, R. 2002. Do patients expect psychiatrists to be interested in spiritual issues?. Australasian Psychiatry, 10(1): 44-47.
14. Durie, M. 1985. A Maori perspective of health. Social Science & Medicine, 20(5): 483-486.
15. Durie, M. 1998. Whaiora: Māori health development, (2nd ed.), Auckland: Oxford University Press.
16. Elliott, M. and Taylor-Brown, J. 2007. National psychosocial oncology education framework, Canadian Strategy for Cancer Control, Ottawa.
17. Garces-Foley, K. 2006. Hospice and the politics of spirituality. Omega: Journal of Death & Dying, 53(1/2): 117-136.
18. Harris, F. M., Kendall, M., Bentley, A., Maguire, R., Worth, A.Murray, S. 2008. Researching experiences of terminal cancer: a systematic review of methodological issues and approaches. European Journal of Cancer Care, 17: 377-386.
19. Heelas, P., Woodhead, L., Seel, B., Bronislaw, S. and Tusting, K. 2005. The spiritual revolution: Why religion is giving way to spirituality, Oxford: Blackwell Publishing.
20. Joint Commission on Accreditation of Healthcare Organizations. 2005. The source: evaluating your spiritual assessment process, Vol. 3, 2, 6-7. USA: Joint Commission on Accreditation of Healthcare Organizations, Washington.
21. Kellehear, A. 2000. Spirituality and palliative care: A model of needs. Palliative Medicine, 14: 149-155.
22. King, A. S. 1996. Spirituality: Transformation and metamorphosis. Religion, 26: 345-351.
23. Kissane, D. and Street, A. 2004. "Research into psychosocial issues". In Oxford textbook of palliative medicine, (3rd ed, Edited by: Doyle, D., Hanks, G., Cherny, N. I. and Calman, K. 154-163. New York, NY: Oxford University Press.
24. Koenig, H. 2008. Concerns about measuring 'spirituality' in research. Journal of Nervous & Mental Disease, 196(5): 349-355.
25. Koenig, H., McCullough, M. and Larson, D. 2001. Handbook of religion and health, New York, NY: Oxford University Press.
26. Kuhl, D. 2005. What dying people want: Practical wisdom for the end of life, Sydney: ABC Books.
27. La Cour, P. and Hvidt, N. C. 2010. Research on meaning-making and health in secular society: Secular, spiritual and religious existential orientations. Social Science & Medicine, 71(7): 1292-1299.
28. McCord, G., Gilchrist, V. J., Grossman, S. D., King, B. D., McCormick, K. F.Oprandi, A. M. 2004. Discussing spirituality with patients: A rational and ethical approach. Annals of Family Medicine, 2(4): 356-361.
29. McGrath, P. 1999. Exploring spirituality through research: An important but challenging task. Progress in Palliative Care, 7(1): 3-9.
30. McGrath, P. 2002. Creating a language for 'spiritual pain' through research: A beginning. Supportive Care in Cancer, 10(8): 637-646.
31. McNamara, B. 2004. Good enough death: Autonomy and choice in Australian palliative care. Social Science & Medicine, 58(5): 929-938.
32. McSherry, W. 2007. The meaning of spirituality and spiritual care within nursing and health care practice, London: Quay Books.
33. Ministry of Health. 2001. The New Zealand palliative care strategy, Wellington: Ministry of Health.
34. Moberg, D. O. 2002. Assessing and measuring spirituality: Confronting dilemmas of universal and particular evaluative criteria. Journal of Adult Development, 9(1): 47-60.
35. Moreira-Almeida, A. and Koenig, H. G. 2006. Retaining the meaning of the words religiousness and spirituality: A commentary on the WHOQOL SRPB group's 'A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life'. Social Science & Medicine, 63(4): 843-845.
36. Morgan, D. 2008. "Paradigms lost and pragmatism regained: Methodological implications of combing qualitative and quantitative methods". In The mixed methods reader, Edited by: Piano Clark, V. L. and Creswell, J. W. Thousand Oaks, CA: Sage.
37. National Institute for Clinical Excellence. 2004. Guidance on cancer services. Improving supportive and palliative care for adults with cancer: Executive summary, London: National Institute for Clinical Excellence.
38. O'Cathain, A. 2009. Editorial: Mixed methods research in the health sciences: A quiet revolution. Journal of Mixed Methods Research, 3(1): 3-6.
39. Okon, T. 2005. Palliative care review: Spiritual, religious, and existential aspects of palliative care. Journal of Palliative Medicine, 8(2): 392-401.
40. Patton, M. Q. 2002. Qualitative research and evaluation methods, (3rd ed.), Thousand Oaks, CA: Sage.
41. Puchalski, C. M. 2006. A time for listening and caring: Spirituality and the care of the chronically ill and dying, New York, NY: Oxford University Press.
42. Puchalski, C. M., Ferrell, B., Virani, R., Otis-Green, S., Baird, P.Bull, J. 2009. Improving the quality of spiritual care as a dimension of palliative care: The report of the consensus conference. Journal of Palliative Medicine, 12(10): 885-904.
43. Rochford, T. 2004. Whare Tapa Wha: A Māori model of a unified theory of health. The Journal of Primary Prevention, 25(1): 41-57.
44. Roudsari, R. L., Allan, H. T. and Smith, P. A. 2007. Looking at infertility through the lens of religion and spirituality: a review of the literature. Human Fertility, 10(3): 141-149.
45. Salander, P. 2006. Who needs the concept of 'spirituality'?. Psycho-Oncology, 15(7): 647-649.
46. Saunders, C. 2004. "Foreword". In Oxford textbook of palliative medicine, (3rd ed.), Edited by: Doyle, D., Hanks, G., Cherny, N. I. and Calman, K. New York, NY: Oxford University Press.
47. Sinclair, S., Pereira, J. and Raffin, S. 2006. A thematic review of the spirituality literature within palliative care. Journal of Palliative Medicine, 9(2): 464-479.
48. Speck, P. 2004. Spiritual care in health care. Scottish Journal of Healthcare Chaplaincy, 7(1): 21-25.
49. Speck, P., Higginson, I. and Addington-Hall, J. 2004. Spiritual needs in health care. British Medical Journal, 329(7458): 123-124.
50. Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L. and Tulsky, J. A. 2000. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA, 284(19): 2476-2482.
51. Stewart, M., Brown, J., Weston, W., McWinney, I., McWilliam, C. and Freeman, T. 1995. Patient-centred medicine: Transforming the clinical method, Thousand Oaks, CA: Sage.
52. Strang, S. and Strang, P. 2002. Questions posed to hospital chaplains by palliative care patients. Journal of Palliative Medicine, 5: 857-864.
53. Sulmasy, D. 2002. A biopsychosocial-spiritual model for the care of patients at the end of life. TheGerontologist, 42(Special Issues III): 24-33.
54. Swinton, J. and Pattison, S. 2010. Moving beyond clarity: Towards a thin, vague, and useful understanding of spirituality in nursing care. Nursing Philosophy, 11(4): 226-237.
55. Tanyi, R. A. 2002. Towards clarification of the meaning of spirituality. Journal of Advanced Nursing, 39(5): 500-509.
56. Unruh, A. M., Versnel, J. and Kerr, N. 2002. Spirituality unplugged: A review of commonalities and contentions, and a resolution. The Canadian Journal of Occupational Therapy, 69(1): 5-19.
57. Vachon, M. 2008. Meaning, spirituality, and wellness in cancer survivors. Seminars in Oncology Nursing, 24(3): 218-225.
58. Weaver, A. J., Pargament, K. I., Flannelly, K. J. and Oppenheimer, J. E. 2006. Trends in the scientific study of religion, spirituality, and health: 1965-2000. Journal of Religion & Health, 45(2): 208-214.
59. WHOQOL-SRPB Group. 2006. A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life. Social Science & Medicine, 62(6): 1486-1497.
60. World Health Organization. 2002. National cancer control programmes: Policies and managerial guidelines, Geneva: World Health Organization.
61. Wright, M. C. 2008. "Good for the soul? The spiritual dimension of hospice and palliative care". In Palliative care nursing: Principles and evidence for practice, (2nd ed.), Edited by: Payne, S., Seymour, J. and Ingleton, C. Buckingham: Open University Press.