Ethical considerations for biobanking: Should individual research results be shared with relatives?

Personalized Medicine

Volumn 9, Issue 2, 2012, Pages 159-162

  Garrett, Jeremy R ^a  

^a CHILDREN S MERCY HOSPITAL   (United States)

Author keywords

biobanks; ethics; genetic research; individual research results; relatives

Indexed keywords

BIOBANK; DIAGNOSTIC PROCEDURE; DONOR; GENETICS; GENOTYPE; HEALTH CARE FACILITY; HUMAN; MALPRACTICE; MEDICAL ETHICS; MEDICAL RESEARCH; PHENOTYPE; PRIORITY JOURNAL; REVIEW; SCREENING;

EID: 84858422328     PISSN: 17410541     EISSN: 1744828X     Source Type: Journal    
DOI: 10.2217/pme.12.11     Document Type: Review

References (8)

1. Couzin-Frankel J. Human genome 10th anniversary. What would you do? Science 331(6018), 662-665 (2011).
2. Black L, McClellan KA. Familial communication of research results: a need to know? J. Law Med. Ethics 39(4), 605-613 (2011).
3. Knoppers BM, Kharaboyan L. 'Deconstructing' biobank communication of results. SCRIPTed 6(3), 677-684 (2009).
4. Beauchamp TL, Childress JF. Principles of Biomedical Ethics (6th Edition). Oxford University Press, NY, USA (2009).
5. Meltzer LA. Undesirable implications of disclosing individual genetic results to research participants. Am. J. Bioeth. 6(6), 28-30 (2006).
6. Parker LS. Rethinking respect for persons enrolled in research. ASBH Exchange 9(1), 6-7 (2006).
7. Cho MK. Understanding incidental findings in the context of genetics and genomics. J. Law Med. Ethics 36(2), 280-285 (2008).
8. Clayton EW. Incidental findings in genetics research using archived DNA. J. Law Med. Ethics 36(2), 286-291 (2008).