Perceived quality of life of children after successful bridging to heart transplantation

Journal of Heart and Lung Transplantation

Volumn 31, Issue 4, 2012, Pages 381-386

  Wray, Jo ^a   Lunnon Wood, Tracy ^a   Smith, Liz ^a   Orrells, Claire ^a   Iguchi, Akane ^a   Burch, Mike ^a   Brown, Kate ^a  

^a GREAT ORMOND STREET HOSPITAL   (United Kingdom)

Author keywords

bridging; children; emotional; physical; quality of life; school; social; transplant

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CARDIOMYOPATHY; CHILD; CHILDHOOD DISEASE; CLINICAL ARTICLE; CLINICAL ASSESSMENT; CONTROLLED STUDY; DEMOGRAPHY; DISEASE SEVERITY; FEMALE; FOLLOW UP; HEART TRANSPLANTATION; HUMAN; MALE; MEDICAL SERVICE; PEDIATRIC SURGERY; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REGRESSION ANALYSIS; SCHOOL CHILD; TREATMENT OUTCOME; VALIDATION PROCESS;

ADOLESCENT; AGE FACTORS; CARDIOMYOPATHIES; CHILD; CHILD, PRESCHOOL; COHORT STUDIES; EXTRACORPOREAL MEMBRANE OXYGENATION; FAMILY; FEMALE; FOLLOW-UP STUDIES; HEART TRANSPLANTATION; HEART-ASSIST DEVICES; HUMANS; MALE; PATIENTS; PERCEPTION; QUALITY OF LIFE; REGRESSION ANALYSIS; RETROSPECTIVE STUDIES; TREATMENT OUTCOME;

EID: 84858342741     PISSN: 10532498     EISSN: 15573117     Source Type: Journal    
DOI: 10.1016/j.healun.2011.11.014     Document Type: Article

References (28)

1. A.P. Goldman, J. Cassidy, M. de Leval The waiting game: bridging to paediatric heart transplantation Lancet 362 2003 1967 1970 (Pubitemid 37548420)
2. W.T. Mahle, G. Ianucci, R.N. Vincent Costs associated with ventricular assist device use in children Ann Thorac Surg 86 2008 1592-73
3. H.J. Bastardi, D.C. Naftel, S.A. Webber Ventricular assist devices as a bridge to heart transplantation in children J Cardiovasc Nurs 23 2008 25 29
4. E.D. Blume, D.C. Naftel, H.J. Bastardi Outcomes of children bridged to heart transplantation with ventricular assist devices: a multi-institutional study Circulation 113 2006 2313 2319 (Pubitemid 43947977)
5. K.L. Brown, J. Wray, T.L. Wood Cost utility evaluation of extracorporeal membrane oxygenation as a bridge to transplant for children with end-stage heart failure due to dilated cardiomyopathy J Heart Lung Transplant 28 2009 32 38
6. M.N. Hanekamp, P. Mazer, M.H. van der Cammen-van Zijp Follow-up of newborns treated with extracorporeal membrane oxygenation: a nationwide evaluation at 5 years of age Crit Care 10 2006 R127
7. M.N. Hanekamp, P. Mazer, M.H. van der Cammen-van Zijp Neurological defects and developmental disorders following neonatal extracorporeal membrane oxygenation: results of a follow-up study after 5 years [in Dutch] Ned Tijdschr Geneeskd 152 2008 207 212 (Pubitemid 351195763)
8. M.W. Nijhuis-van der Sanden, M.H. van der Cammen-van Zijp, A.J. Janssen Motor performance in five-year-old extracorporeal membrane oxygenation survivors: a population-based study Crit Care 13 2009 R47
9. A. Ahmad, E. Gangitano, R.M. Odell Survival, intracranial lesions, and neurodevelopmental outcome in infants with congenital diaphragmatic hernia treated with extracorporeal membrane oxygenation J Perinatol 19 1999 436 440
10. A. Combes, P. Leprince, C.E. Luyt Outcomes and long-term quality-of-life of patients supported by extracorporeal membrane oxygenation for refractory cardiogenic shock Crit Care Med 36 2008 1404 1411 (Pubitemid 351620652)
11. M.A. Dew, R.L. Kormos, S. Winowich Quality of life outcomes after heart transplantation in individuals bridged to transplant with ventricular assist devices J Heart Lung Transplant 20 2001 1199 1212 (Pubitemid 33036855)
12. J.W. Varni, M. Seid, C.A. Rode The PedsQL: measurement model for the pediatric quality of life inventory Med Care 37 1999 126 139
13. J.W. Varni, M. Seid, P.S. Kurtin PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations Med Care 39 2001 800 812 (Pubitemid 33686263)
14. S.M. Pollock-BarZiv, S.J. Anthony, R. Niedra Quality of life and function following cardiac transplantation in adolescents Transplant Proc 35 2003 2468 2470 (Pubitemid 37378034)
15. P. Upton, C. Eiser, I. Cheung Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales Health Qual Life Outcomes 3 2005 22
16. J.W. Varni, C.A. Limbers, T.M. Burwinkle Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales Health Qual Life Outcomes 5 2007 43
17. T.G. Power, L.M. Dahlquist, S.M. Thompson Interactions between children with juvenile rheumatoid arthritis and their mothers J Pediatr Psychol 28 2003 213 221 (Pubitemid 36403051)
18. L. Wright, T. Mullen, K. West The VCOP scale: a measure of overprotection in parents of physically vulnerable children J Clin Psychol 49 1993 790 798 (Pubitemid 23361793)
19. J.E. Rennick, J. Rashotte Psychological outcomes in children following pediatric intensive care unit hospitalization: a systematic review of the research J Child Health Care 13 2009 128 149
20. J. Falger, M.A. Landolt, B. Latal Outcome after renal transplantation Part II: Quality of life and psychosocial adjustment Pediatr Nephrol 23 2008 1347 1354
21. J.C. Bucuvalas, M. Britto, S. Krug Health-related quality of life in pediatric liver transplant recipients: a single-center study Liver Transpl 9 2003 62 71 (Pubitemid 36104917)
22. E.M. Alonso, K. Neighbors, C. Mattson Functional outcomes of pediatric liver transplantation J Pediatr Gastroenterol Nutr 37 2003 155 160 (Pubitemid 39274542)
23. C. Eiser, R. Morse Can parents rate their child's health-related quality of life? Results of a systematic review Qual Life Res 10 2001 347 357 (Pubitemid 33079013)
24. K. Wagner, I. Risnes, T. Berntsen Clinical and psychosocial follow-up study of children treated with extracorporeal membrane oxygenation Ann Thorac Surg 84 2007 1349 1355 (Pubitemid 47417884)
25. J. Wray, T. Lunnon-Wood Quality of life after paediatric heart transplantationdo children and their parents agree? J Heart Lung Transplant 27 suppl 2008 S189
26. P. Upton, J. Lawford, C. Eiser Parentchild agreement across child health-related quality of life instruments: a review of the literature Qual Life Res 17 2008 895 913
27. J. Cremeens, C. Eiser, M. Blades Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales Health Qual Life Outcomes 4 2006 58
28. C.M. Vrijmoet-Wiersma, A.M. Kolk, M.A. Grootenhuis Child and parental adaptation to pediatric stem cell transplantation Support Care Cancer 17 2009 707 714