Goals Set in the Land of the Living/Dying: A Longitudinal Study of Patients Living with Advanced Cancer

Death Studies

Volumn 36, Issue 4, 2012, Pages 360-390

  Nissim, Rinat ^a   Rennie, David ^b   Fleming, Stephen ^b   Hales, Sarah ^a,c   Gagliese, Lucia ^a,b,d   Rodin, Gary ^a,c  

^a PRINCESS MARGARET HOSPITAL   (Canada)

^b York University   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d UNIVERSITY HEALTH NETWORK   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ANTINEOPLASTIC AGENT;

AGED; ALTRUISM; ARTICLE; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; FEMALE; GASTROINTESTINAL TUMOR; HUMAN; LUNG TUMOR; MALE; MIDDLE AGED; MOTIVATION; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SUICIDE; VERY ELDERLY;

AGED; AGED, 80 AND OVER; ALTRUISM; ANTINEOPLASTIC AGENTS; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; FEMALE; GASTROINTESTINAL NEOPLASMS; GOALS; HUMANS; INTERVIEW, PSYCHOLOGICAL; LUNG NEOPLASMS; MALE; MIDDLE AGED; QUESTIONNAIRES; SUICIDE;

EID: 84858195786     PISSN: 07481187     EISSN: 10917683     Source Type: Journal    
DOI: 10.1080/07481187.2011.553324     Document Type: Article

References (58)

1. Back, A. L., Arnold, R. M., Baile, W. F., Tulsky, J. A., & Fryer-Edwards, K. (2005). Approaching difficult communication tasks in oncology. CA: A Cancer Journal for Clinicians, 55, 164 - 177.
2. Carter, H., MacLeod, R., Brander, P., & McPherson, K. (2004). Living with terminal illness: Patients' priorities. Journal of Advanced Nursing, 45, 611 - 620.
3. Charles, C. A., Gafni, A., & Whelan, T. (1999). Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Social Science & Medicine, 49, 651 - 661.
4. Chochinov, H. M. (2002). Dignity-conserving care: A new model for palliative care: Helping the patient feel valued. Journal of the American Medical Association, 287, 2253 - 2260.
5. Collins, L. G, Haines, C., Perkel, R., & Enck, R. E. (2007). Lung cancer: Diagnosis and management. American Family Physician, 75, 56 - 63.
6. Copp, G. (1998). A review of current theories of death and dying. Journal of Advanced Nursing, 28, 382 - 390.
7. Corr, C. A. (1992). A task-based approach to coping with dying. Omega: The Journal of Death and Dying, 24, 81-94.
8. Corr, C. A., Doka, K. J., & Kastenbaum, R. (1999). Dying and its interpreters: A review of selected literature and some comments on the state of the field. Omega: The Journal of Death and Dying, 39, 239 - 259.
9. Coyle, N. (2006). The hard work of living in the face of death. Journal of Pain and Symptom Management, 32, 266 - 274.
10. Diaz-Rubio, E. (2004). New chemotherapeutic advances in pancreatic, colorectal, and gastric cancers. The Oncologist, 9, 282 - 294.
11. Doka, K. J. (1993). Living with life-threatening illness. Lexington, MA: Lexington Books.
12. Eliott, J. A., & Olver, I. N. (2009). Hope, life, and death: A qualitative analysis of dying cancer patients' talk about hope. Death Studies, 33, 609 - 638.
13. Emanuel, E. J., Fairclough, D. L., Wolfe, P., & Emanuel, L. L. (2004). Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? Is it helpful? Archives of Internal Medicine, 164, 1999 - 2004.
14. Fleming, S. J., & Robinson, P. (2001). Grief and cognitive behaviour therapy: The reconstruction of meaning. In M. Stroebe, R. O. Hansson, W. Stroebe & H. Schut (Eds.), Handbook of bereavement research: Consequences, coping and care (pp. 647 - 670). Washington, DC: American Psychological Association.
15. Ganzini, L., Goy, E. R., & Dobscha, S. K. (2009). Oregonians' reasons for requesting physician aid in dying. Archives of Internal Medicine, 169, 489 - 492.
16. George, L. K. (2002). Research design in end-of-life research: State of science. Gerontologist, 42, 86 - 98.
17. Gibbons, F. X. (1999). Social comparison as a mediator of response shift. Social Science & Medicine, 48, 1517 - 1530.
18. Gilden, D. E., Kubisiak, J. M., & Gilden, D. M. (2007). Managing Medicare's HIV caseload in the era of suppressive therapy. American Journal of Public Health, 97, 1053 - 1059.
19. Giorgi, A. (1970). Psychology as a human science: A phenomenologically based approach. New York, NY: Harper & Row.
20. Glaser, B. G., & Strauss, A. L. (1965). Awareness of dying. New York, NY: Aldine.
21. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago, IL: Aldine.
22. Gourdji, I., McVey, L., & Purden, M. (2009). A quality end of life from a palliative care patient's perspective. Journal of Palliative Care, 25, 40 - 50.
23. Gum, A., & Snyder, C. R. (2002). Coping with terminal illness: The role of hopeful thinking. Journal of Palliative Medicine, 5, 883 - 894.
24. Howell, D., & Brazil, K. (2005). Reaching common ground: A patient-family based conceptual framework on quality end-of-life care. Journal of Palliative Care, 1, 19 - 26.
25. Kaufman, S. R. (2005). And a time to die: How American hospitals shape the end of life. New York, NY: Scribner.
26. Kübler-Ross, E. (1969). On death and dying. London, UK: Tavistock.
27. Kutner, J., Nowels, D., Cordt, T., Houser, J., Bryant, L., & Main, D. (2003). Confirmation of the "disability paradox" among hospice patients: Preservation of quality of life despite physical ailments and psychosocial concerns. Palliative and Supportive Care, 1, 231-237.
28. Kylmä, J., Vehviläinen-Julkunen, K., & Lähdevirta, J. (2001). Dynamically fluctuating hope, despair and hopelessness along the HIV/AIDS continuum as described by caregivers in voluntary organizations in Finland. Issues in Mental Health Nursing, 22, 353 - 377.
29. Lifton, R. J. (1973). The sense of immortality: On death and the continuity of life. American Journal of Psychoanalysis, 33, 3 - 15.
30. Little, M., Jordens, C. F., Paul, K., Montgomery, K., & Philipson, B. (1998). Liminality: A major category of the experience of cancer illness. Social Science & Medicine, 47, 1485 - 1494.
31. Lunney, J. R., Lynn, J., Foley, D. J., Lipson, S., & Guralnik, J. (2003). Patterns of functional decline at the end of life. Journal of the American Medical Association, 289, 2387 - 2392.
32. Lynn, J. (2005). Living long in fragile health: The new demographics shape end-of-life care. The Hastings Center Report, 35, 14 - 18.
33. Marwit, S. J., & Klass, D. (1996). Grief and the role of the inner representation of the deceased. In D. Klass, P. R. Silverman & S. L. Nickman (Eds.), Continuing bonds: New understandings of grief (pp. 297 - 309). Washington, DC: Taylor & Francis.
34. Matsuyama, R., Reddy, S. N., & Smith, T. J. (2006). Why do patients choose chemotherapy near the end of life? A review of the perspective of those facing death from cancer. Journal of Clinical Oncology, 24, 1 - 7.
35. McPherson, C. J., Wilson, K. G., Lobchuk, M. M., & Brajtman, S. (2007). Self-perceived burden to others: Patient and family caregiver correlates. Journal of Palliative Care, 23, 135 - 142.
36. Morse, J. (2000). Denial is not a qualitative concept. Qualitative Health Research, 10, 147 - 148.
37. Nissim, R. (2008). In the land of the living/dying: A longitudinal qualitative study on the experience of individuals with fatal cancer. Dissertation Abstracts International: Section B. The Sciences and Engineering, 69 (5), 3273.
38. Nissim, R., Gagliese, L., & Rodin, G. (2009). The desire for hastened death in individuals with advanced cancer: A longitudinal qualitative study. Social Science and Medicine, 69, 165 - 171.
39. Norem, J. K., & Chang, E. C. (2002). The positive psychology of negative thinking. Journal of Clinical Psychology, 58, 993 - 1001.
40. O'Brien, M., Johnston, G., Gao, J., & Dewar, R. (2007). End-of-life care for nursing home residents dying from cancer in Nova Scotia, 2000-2003. Supportive Care in Cancer, 15, 1015 - 1021.
41. Parkin, D. M., Bray, F., Ferlay, J., & Pisani, P. (2005). Global cancer statistics: 2002. CA: Cancer Journal for Clinicians, 55, 74 - 108.
42. Pattison, E. M. (1977). The experience of dying. New York, NY: Simon and Schuster.
43. Rennie, D. L. (2000). Grounded theory methodology as methodical hermeneutics: Reconciling realism and relativism. Theory & Psychology, 10, 481 - 502.
44. Rennie, D. L. (2006). The grounded theory method: Application of a variant of its procedure of constant comparative analysis to psychotherapy research. In C. T. Fischer (Ed.), Qualitative research: Instructional empirical studies (pp. 59-78). New York, NY: Elsevier.
45. Rennie, D. L., & Fergus, K. (2006). Embodied categorizing in the grounded theory method: Methodical hermeneutics in action. Theory & Psychology, 4, 483 - 503.
46. Rennie, D. L., Phillips, J. R., & Quartaro, G. K. (1988). Grounded theory: A promising approach to conceptualization in psychology? Canadian Psychology, 29, 139 - 150.
47. Rodin, G., Zimmermann, C., Rydall, A., Jones, J., Shepherd, F., Moore, M.,... Gagliese, L. (2007). The desire for hastened death in patients with metastatic cancer. Journal of Pain and Symptom Management, 33, 661 - 675.
48. Rosenfeld, B., Breitbart, W., Stein, K., Funesti-Esch, J., Kaim, M., Krivo, S., & Galietta, M. (1999). Measuring desire for death among patients with HIV/AIDS: The schedule of attitudes toward hastened death. American Journal of Psychiatry, 156, 94 - 100.
49. Sand, L., Olsson, M., & Strang, P. (2009). Coping strategies in the presence of one's own impending death from cancer. Journal of Pain and Symptom Management, 37, 13 - 22.
50. Singer, P. A., Martin, D. K., & Kelner, M. (1999). Quality end-of-life care: Patients' perspectives. Journal of the American Medical Association, 281, 163 - 168.
51. Steinhauser, K. E. (2005). Measuring end-of-life care outcomes prospectively. Journal of Palliative Medicine, 8 (Suppl. 1), 30 - 41.
52. Steinhauser, K. E., Alexander, S. C., Byock, I. R., George, L. K., & Tulsky, J. A. (2009). Seriously ill patients' discussions of preparation and life completion: An intervention to assist with transition at the end of life. Palliative and Supportive Care, 7, 393 - 404.
53. Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284, 2476 - 2482.
54. Steinhauser, K. E., Clipp, E. C., Hays, J. C., Olsen, M., Arnold, R., Christakis, N. A.,... Tulsky, J. A. (2006). Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliative Medicine, 20, 745 - 754.
55. Steinhauser, K. E., Clipp, E. C., & Tulsky, J. A. (2002). Evolution in measuring the quality of dying. Journal of Palliative Medicine, 5, 407 - 414.
56. Wilson, K. G., Chochinov, H. W., McPherson, C. J., Graham, M., Allard, P. Chary, S.,... Clinch, J. J. (2007). Desire for euthanasia or physician-assisted suicide in palliative cancer care. Health Psychology, 26, 314 - 323.
57. World Health Organization. (2008). The global burden of disease: 2004 update. Geneva, Switzerland: Author.
58. Zimmermann, C. (2004). Denial of impending death: A discourse analysis of the palliative care literature. Social Science and Medicine, 59, 1769 - 1780.