Patients who plan for conservative care rather than dialysis: A national observational study in Australia

American Journal of Kidney Diseases

Volumn 59, Issue 3, 2012, Pages 419-427

  Morton, Rachael L ^a   Turner, Robin M ^a   Howard, Kirsten ^a   Snelling, Paul ^b   Webster, Angela C ^a,c  

^a UNIVERSITY OF SYDNEY   (Australia)

^b ROYAL PRINCE ALFRED HOSPITAL   (Australia)

^c WESTMEAD HOSPITAL   (Australia)

Author keywords

chronic kidney disease; dialysis; End stage kidney disease; palliative care; treatment options

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; AUSTRALIA; CAREGIVER; CHILD; CONSERVATIVE TREATMENT; DIALYSIS; FEMALE; GROUPS BY AGE; HEALTH INSURANCE; HUMAN; INFANT; KIDNEY FAILURE; LANGUAGE ABILITY; MAJOR CLINICAL STUDY; MALE; NEPHROLOGIST; NEWBORN; OBSERVATIONAL STUDY; PATIENT EDUCATION; PRESCHOOL CHILD; SCHOOL CHILD; SEX DIFFERENCE;

ADULT; AGED; AGED, 80 AND OVER; AUSTRALIA; CHILD; FEMALE; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PROSPECTIVE STUDIES; RENAL DIALYSIS;

EID: 84857363627     PISSN: 02726386     EISSN: 15236838     Source Type: Journal    
DOI: 10.1053/j.ajkd.2011.08.024     Document Type: Article

References (34)

1. C.R.V. Tomson Chapter 1 Summary of findings in the 2009 UK Renal Registry Report UK Renal Registry Report 12th Annual Report 2009 The Renal Association Bristol, UK 1 2
2. US Renal Data System USRDS 2010 Annual Data Report: Atlas of Chronic Kidney Disease and End-Stage Renal Disease in the United States Am J Kidney Dis 57 1 2011 e1 e526 (suppl 1)
3. B. Grace, L. Excell, S. McDonald Chapter 1 Stock and flow ANZDATA Registry 2010 Report 33rd Annual Report 2010 Australia and New Zealand Dialysis and Transplant Association Adelaide, South Australia 1-1-1-8
4. M. Kurella, K.E. Covinsky, A.J. Collins, G.M. Chertow Octogenarians and nonagenarians starting dialysis in the United States Ann Intern Med 146 3 2007 177 183 (Pubitemid 351650630)
5. D.S.P. Yong, A.O.L. Kwok, D.M.L. Wong, M.H.P. Suen, W.T. Chen, D.M.W. Tse Symptom burden and quality of life in end-stage renal disease: a study of 179 patients on dialysis and palliative care Palliat Med 23 2 2009 111 119
6. I. Dasgupta, H.C. Rayner Dialysis versus conservative management of elderly patients with advanced chronic kidney disease Nat Clin Pract Nephrol 3 9 2007 480 481 (Pubitemid 47313024)
7. C. Smith, M. Da Silva-Gane, S. Chandna, P. Warwicker, R. Greenwood, K. Farrington Choosing not to dialyse: evaluation of planned non-dialytic management in a cohort of patients with end-stage renal failure Nephron Clin Pract 95 2 2003 c40 c46
8. Royal College of Physicians The Changing Face of Renal Medicine in the UK: the Future of the Specialty Report of a Working Party 2007 The Renal Association London, UK 23 24
9. Department of Health National Service Framework Renal Team The National Service Framework for Renal Services Part Two: Chronic Kidney Disease, Acute Renal Failure and End of Life Care 2005 Department of Health London, UK 21 23
10. National Kidney Foundation K-DOQI Clinical Practice Guidelines for Hemodialysis Adequacy Guideline 1. Initiation of dialysis. 1.1 Preparation for kidney failure http://www.kidney.org/Professionals/kdoqi/guideline-upHD-PD-VA/ index.htm 2006 Accessed January 28, 2011
11. G. Kainer, D. Fetherstonhaugh The CARI guidelines. Acceptance onto dialysis. Ethical considerations Nephrology 15 suppl 1 2010 S12 S14
12. Renal Physicians Association Shared Decision Making in the Appropriate Initiation of and Withdrawal from Dialysis Clinical Practice Guideline 2nd edition 2010 Renal Physicians Association Rockville, MD
13. R.L. Morton, K. Howard, A.C. Webster, P. Snelling Patient INformation about Options for Treatment (PINOT): methods of a national audit of information provision in chronic kidney disease Nephrology 15 6 2010 649 652
14. R.L. Morton, K. Howard, A.C. Webster, P. Snelling Patient INformation about Options for Treatment (PINOT): a prospective national study of information given to incident CKD stage 5 patients Nephrol Dial Transplant 26 4 2010 1266 1274
15. J.R. Landis, G.G. Koch The measurement of observer agreement for categorical data Biometrics 33 1 1977 159 174 (Pubitemid 8054849)
16. J.C. Hornberger, C.D. Gibson, W. Wood Eliminating language barriers for non-English-speaking patients Med Care 34 8 1996 845 856 (Pubitemid 126433276)
17. T.A.B. Snijders, R.J. Bosker Multilevel Analysis An Introduction to Basic and Advanced Multilevel Modeling 1999 Sage Publications Ltd London, UK
18. J.E. Leggat, W.E. Bloembergen, G. Levine An analysis of risk factors for withdrawal from dialysis before death J Am Soc Nephrol 8 11 1997 1755 1763 (Pubitemid 27475877)
19. C.M. Kjellstrand Giving lifegiving death. Ethical problems of high-technology medicine Acta Med Scand Suppl 725 1988 1 88
20. C.F. Wong, M. McCarthy, M.L. Howse, P.S. Williams Factors affecting survival in advanced chronic kidney disease patients who choose not to receive dialysis Ren Fail 29 6 2007 653 659 (Pubitemid 47346982)
21. F.E.M. Murtagh, J.E. Marsh, P. Donohoe, N.J. Ekbal, N.S. Sheerin, F. Harris Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5 Nephrol Dial Transplant 22 7 2007 1955 1962 (Pubitemid 47244766)
22. C.R. Simpson, C. Wilson, P.C. Hannaford, D. Williams Evidence for age and sex differences in the secondary prevention of stroke in Scottish primary care Stroke 36 8 2005 1771 1775 (Pubitemid 41098777)
23. A. Harris The organization and funding of the treatment of end-stage renal disease in Australia Int J Health Care Finance Econ 7 2-3 2007 113 132
24. N. Demoulin, C. Beguin, L. Labriola, M. Jadoul Preparing renal replacement therapy in stage 4 CKD patients referred to nephrologists: a difficult balance between futility and insufficiency. A cohort study of 386 patients followed in Brussels Nephrol Dial Transplant 26 1 2011 220 226
25. D.M. Poppel, L.M. Cohen, M.J. Germain The Renal Palliative Care Initiative J Palliat Med 6 2 2003 321 326 (Pubitemid 36538910)
26. M. Karim, D. Murphy-Burke, M. Leung, C. Chun-Yan, R. Warb, G. Hargrove Advancing end of life care provision A provincial framework [abstract SU313] Poster presented at the World Congress of Nephrology. Vancouver, Canada, April 8-12, 2011 www.bcrenalagency.ca Accessed April 9, 2011
27. S.N. Davison End-of-life care preferences and needs: perceptions of patients with chronic kidney disease Clin J Am Soc Nephrol 5 2 2010 195 204
28. C. Foote, S. Tranter, E. Jossland Symptom burden in a palliative nephrology clinic [abstract 185] Nephrology 15 suppl 4 2010 5
29. D.M.-W. Tse Experience of a renal palliative care program in a Hong Kong center: characteristics of patients who prefer palliative care to dialysis Hong Kong J Nephrol 11 2 2009 50 58
30. R. Chan, J. Webster End-of-life care pathways for improving outcomes in caring for the dying Cochrane Database Syst Rev 1 2010 CD008006
31. R.G. Fassett, I.K. Robertson, R. Mace, L. Youl, S. Challenor, R. Bull Palliative care in end-stage kidney disease Nephrology 16 1 2011 4 12
32. M. Ashby, C. op't Hoog, A. Kellehear Renal dialysis abatement: lessons from a social study Palliat Med 19 5 2005 389 396 (Pubitemid 41150267)
33. H. Campbell, R. Hotchkiss, N. Bradshaw, M. Porteous Integrated care pathways BMJ 316 7125 1998 133 137 (Pubitemid 28121114)
34. R.C. Carson, M. Juszczak, A. Davenport, A. Burns Is maximum conservative management an equivalent treatment option to dialysis for elderly patients with significant comorbid disease? Clin J Am Soc Nephrol 4 10 2009 1611 1619