Clinical psychology and amyotrophic lateral sclerosis

Frontiers in Psychology

Volumn , Issue JUL, 2010, Pages

  Pagnini, Francesco ^a,b   Rossi, Gabriella ^c   Lunetta, Christian ^c   Banfi, Paolo ^c   Corbo, Massimo ^c  

^a UNIVERSITÀ CATTOLICA DEL SACRO CUORE   (Italy)

^b UNIVERSITY OF BERGAMO   (Italy)

^c OSPEDALE NIGUARDA CA GRANDA   (Italy)

Author keywords

Amyotrophic lateral sclerosis; Burnout; Clinical psychology; Neurological illness; Psychological support

Indexed keywords

EID: 84857316511     PISSN: None     EISSN: 16641078     Source Type: Journal    
DOI: 10.3389/fpsyg.2010.00033     Document Type: Article

References (26)

1. Banfi, P., Rossi, G., Pagnini, F., Cellotto, N., Gorni, K. O., Lunetta, C., Roma, E., Castelnuovo, G., Molinari, E., and Corbo, M. (2009). Towards a multi-step informed consent: considerations and proposals for a good practice. Clin. Ter. 160, 425-426.
2. Bedell, S. E., Cadenhead, K., and Graboys, T. B. (2001). The doctor's letter of condolence. N. Engl. J. Med. 344, 1162-1164.
3. Borasio, G. D., Sloan, R., and Pongratz, D. E. (1998). Breaking the news in amyotrophic lateral sclerosis. J. Neurol. Sci. 160(Suppl. 1), S127-S133.
4. Borasio, G. D., Voltz, R., and Miller, R. G. (2001). Palliative care in amyotrophic lateral sclerosis. Neurol. Clin. 19, 829-847.
5. Buckman, R. (1996). Talking to patients about cancer. BMJ 313, 699-700.
6. Chio, A., Gauthier, A., Montuschi, A., Calvo, A., Di Vito, N., Ghiglione, P., and Mutani, R. (2004). A cross sectional study on determinants of quality of life in ALS. J. Neurol. Neurosurg. Psychiatr. 75, 1597-1601.
7. Cobb, A. K., and Hamera, E. (1986). Illness experience in a chronic disease - ALS. Soc. Sci. Med. 23, 641-650.
8. Engel, G. L. (1977). The need for a new medical model: a challenge for biomedicine. Science 196, 129-136.
9. Goldstein, L. H., Atkins, L., Landau, S., Brown, R., and Leigh, P. N. (2006).ALSPredictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study. Psychol. Med. 36, 865-875.
10. Haverkamp, L. J., Appel, V., and Appel, S. H. (1995). Natural history of amyotrophic lateral sclerosis in a database population. Validation of a scoring system and a model for survival prediction. Brain 118(Pt 3), 707-719.
11. Hebert, R. S., Lacomis, D., Easter, C., Frick, V., and Shear, M. K. (2005). Grief support for informal caregivers of patients with ALS: a national survey. Neurology 64, 137-138.
12. Hecht, M. J., Graesel, E., Tigges, S., Hillemacher, T., Winterholler, M., Hilz, M. J., Heuss, D., and Neundorfer, B. (2003). Burden of care in amyotrophic lateral sclerosis. Palliat. Med. 17, 327-333.
13. Krivickas, L. S., Shockley, L., and Mitsumoto, H. (1997). Home care of patients with amyotrophic lateral sclerosis (ALS). J. Neurol. Sci. 152(Suppl. 1), S82-S89.
14. Lambert, R. (2006). "Spiritual care," in Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement, 2nd Edn. eds. D. Oliver et al. (Oxford: Oxford University Press), 169-185.
15. Lo Coco, G., Lo Coco, D., Cicero, V., Oliveri, A., Lo Verso, G., Piccoli, F., and La Bella, V. (2005). Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers. J. Neurol. Sci. 238, 11-17.
16. Martin, J., and Turnbull, J. (2001). Lasting impact in families after death from ALS. Amyotroph. Lateral Scler. Other Motor Neuron Disord. 2, 181-187.
17. Mitchell, J. D., and Borasio, G. D. (2007). Amyotrophic lateral sclerosis. Lancet 369, 2031-2041.
18. Mitsumoto, H. (2002). Caregiver assessment: summary. Amyotroph. Lateral Scler. Other Motor Neuron Disord. 3(Suppl. 1), S31-S34.
19. Mulder, D. W., Kurland, L. T., Offord, K. P., and Beard, C. M. (1986). Familial adult motor neuron disease: amyotrophic lateral sclerosis. Neurology 36, 511-517.
20. O'Connor E, J., McCabe, M. P., and Firth, L. (2008). The impact of neurological illness on marital relationships. J. Sex Marital Ther. 34, 115-132.
21. Pagnini, F., Manzoni, G. M., and Castelnuovo, G. (2009). Emotional intelligence training and evaluation in physicians. JAMA 301, 600; author reply 601.
22. Rabkin, J. G., Albert, S. M., Del Bene, M. L., O'Sullivan, I., Tider, T., Rowland, L. P., and Mitsumoto, H. (2005). Prevalence of depressive disorders and change over time in late-stage ALS. Neurology 65, 62-67.
23. Rabkin, J. G., Wagner, G. J., and Del Bene, M. (2000). Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom. Med. 62, 271-279.
24. Simmons, Z. (2005). Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death. Neurologist 11, 257-270.
25. Talbot, K. (2002). Motor neurone disease. Postgrad. Med. J. 78, 513-519.
26. Worms, P. M. (2001). The epidemiology of motor neuron diseases: a review of recent studies. J. Neurol. Sci. 191, 3-9.