Distrust in the healthcare system and organ donation intentions among African Americans

Journal of Community Health

Volumn 37, Issue 1, 2012, Pages 40-47

  Russell, Emily ^a   Robinson, Dana H Z ^a   Thompson, Nancy J ^a   Perryman, Jennie P ^b   Arriola, Kimberly R Jacob ^a  

^a EMORY UNIVERSITY   (United States)

^b EMORY UNIVERSITY   (United States)

Author keywords

African American; Disparities; Medical distrust; Organ donation

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; ANALYSIS OF VARIANCE; ARTICLE; ATTITUDE TO HEALTH; BEHAVIOR; ETHNOLOGY; FEMALE; HEALTH CARE DELIVERY; HUMAN; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; STATISTICAL MODEL; STATISTICS; TRANSPLANTATION; TRUST;

ADULT; AFRICAN AMERICANS; AGED; AGED, 80 AND OVER; ANALYSIS OF VARIANCE; ATTITUDE TO HEALTH; DELIVERY OF HEALTH CARE; FEMALE; HUMANS; INTENTION; LOGISTIC MODELS; MALE; MIDDLE AGED; TISSUE AND ORGAN PROCUREMENT; TRUST; YOUNG ADULT;

EID: 84857063442     PISSN: 00945145     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10900-011-9413-3     Document Type: Article

References (51)

1. Bureau USC Census. (2000). Demographic profile highlights in the state of Georgia. 2000; http://census.gov. Accessed 24 April 2010.
2. Network OPaT (2010). Organ by Ethnicity. http://optn. transplant. hrsa.gov/latestData/rptdata.asp. Accessed 24 April 2010.
3. Fund, A. K. (2008) Kidney disease: African Americans. http://www.kidneyfund.org/kidney-health/are-you-at-risk/africanamericans.html. Accessed 20 April 2010.
4. Durand, R., Decker, P. J., & Bruder, P. (2002). Organ donation among African Americans: Opportunities for increasing donor rates. Hospital Topics, 80(3), 34-37.
5. Alexander, G. C., & Sehgal, A. R. (1998). Barriers to cadaveric renal transplantation among Blacks, women, and the poor. Journal of the American Medical Association, 280(13), 1148-1152. (Pubitemid 28457804)
6. Callender, C. O., Miles, P. V., Hall, M. B., & Gordon, S. (2002). Blacks and whites and kidney transplantation: A disparity! But why and why won't it go away? Transplantation Reviews, 16(3), 163-176.
7. Hartwig, M. S., Hall, G., Hathaway, D., & Gaber, A. W. (1993). Effect of organ donation race on health team procurement efforts. Archives of Surgery, 128, 1331-1335. (Pubitemid 23360025)
8. Minniefield, W. J., Yang, J., & Muti, P. (2001). Differences in attitude toward organ donation among African Americans and whites in the United States. Journal of the National Medical Association, 93, 372-379. (Pubitemid 33614748)
9. McNamara, P., Guadagnoli, E., Evanisko, M. J., Beasley, C., Santiago-Delphin, E. A., Callender, C. O., et al. (1999). Correlates of support for organ donation among three ethnic groups. Clinical Transplantation, 13, 45-50. (Pubitemid 29110388)
10. Morgan, S. E., Miller, J. K., & Arasaratnam, L. A. (2003). Similarities and differences between African Americans' and European Americans' attitudes, knowledge, and willingness to communicate about organ donation. Journal of Applied Social Psychology, 33, 693-715. (Pubitemid 36971143)
11. Joint commission on accreditation of healthcare organizations (JCAHO). (2004). Health Care at the Crossroads: Strategies for Narrowing the Organ Donation Gap and Protecting Patients. http://www.jointcommission.org/nr/ rdonlyres/e4e7dd3f-3fdf-4acc-b69e-aef3a1743ab0/0/organ-donation-white-paper.pdf. Accessed 25 April 2010.
12. Siminoff, L. A., & Arnold, R. (1999). Increasing organ donation in the African-American Community: altruism in the face of an untrust-worthy system. Annals in Internal Medicine, 130, 607-609. (Pubitemid 29169391)
13. Callender, C. O., Bayton, J. A., & Yeager, C. (1982). Attitudes among blacks toward donating kidneys for transplantation: A pilot project. Journal of the National Medical Association, 74(6), 807-809. (Pubitemid 12020493)
14. De Jong, W., Franz, H. G., Wolfe, S. M., Nathan, H., Payne, D., & Beasley, C. (1998). Requesting organ donation: An interview study of donor and nondonor families. American Journal of Critical Care, 7, 13-23. (Pubitemid 128456906)
15. Kopfman, J. E., & Smith, S. W. (1996). Understanding the audiences of a health communication campaign: A discriminant analysis of potential organ donors based on intent to donate. Journal of Applied Communication, 24, 22-49.
16. Reitz, N. N., & Callender, C. O. (1993). Organ donation in the African American population: A fresh perspective with a simple solution. Journal of National Medical Association, 85, 353-358.
17. Terrell, F., Mosley, K. L., Terrell, A. S., & Nickerson, K. J. (2004). The relationship between motivation and volunteer, gender, cultural mistrust, and willingness to donate organs among Blacks. Journal of National Medical Association, 96(1), 53-60. (Pubitemid 38095685)
18. Arriola, K. J. R., Perryman, J., & Doldren, M. (2005). Moving beyond attitudinal barriers: Understanding African Americans' support for organ and tissue donation. Journal of the National Medical Association, 97(3), 339-350. (Pubitemid 40315938)
19. Shilling, L. M., Norman, M. L., Chavin, K. D., HIldebrand, L. G., Lunsford, S. L., Martin, M. S., et al. (2006). Healthcare professionals' perceptions of the barriers to living donor kidney transplantation among African Americans. Journal of the National Medical Association, 98(6), 834-840. (Pubitemid 43846239)
20. Washington, H. A. (2006). Medical Apartheid: The dark history of medical experimentation on Black Americans from Colonial times to the present. New York: Harlem Moon.
21. Shavers, V. L., Burmeister, L. F., & Lynch, C. F. (2001). Factors that influence African-Americans' willingness to participate in medical research studies. Cancer, 91, 223-236.
22. Sengupta, S., Strauss, R. P., & De Vellis, R. (2000). Factors affecting African-American participation in AIDS research. Journal of Aquired Immune Deficiency Syndrome, 24(3), 275-284.
23. Jacobs, E. A., Rolle, I., Ferrans, C. E., Whitaker, E. E., & Warnecke, R. B. (2006). Understanding African Americans' views of the trustworthiness of physicians. Journal of General Internal Medicine, 21, 642-647. (Pubitemid 43801496)
24. Lewis, L. M., Askie, P., Randleman, S., & Shelton-Dunston, B. (2010). Medication adherence beliefs of community-dwelling hypertensive African Americans. Journal of Cardiovascular Nursing, 25(3), 199-206.
25. Murphy, V. H., Krumholz, H. M., & Gross, C. P. (2004). Participation in cancer clinical trials: Race-, sex-, and age-based disparities. Journal of the American Medical Association, 291(22), 2720-2726. (Pubitemid 38725421)
26. Hall, W. D. (1999). Representation of blacks, women and the very elderly (aged>= 80) in 28 major randomized clinical trials. Ethnic Disparities, 9(3), 333-340.
27. Helat, A., Gross, C. P., & Krumholz, H. M. (2002). Representation of the elderly, women, and minorities in heart failure clinical trials. Archives of Internal Medicine, 162(15), 1682-1688.
28. Gifford, A. L., Cunningham, W. E., & Heslin, K. C. (2002). Participation in research and access to experimental treatments by HIV-infected patients. New England Journal of Medicine, 346(16), 1373-1382. (Pubitemid 34754611)
29. Terrell, F., & Terrell, S. L. (1984). An inventory to measure cultural mistrust among blacks. Western Journal of Black Studies, 3, 180-185.
30. Sanner, M. S. (1994). Attitudes toward organ donation and transplantation. Social Science and Medicine, 38(8), 1141-1152.
31. Yuen, C. C., Burton, W., Chiraseveenuprapund, P., Elmore, E., Wong, S., & Ozuah, P. (1998). Attitudes and beliefs about organ donation among different racial groups. Journal of National Medical Association, 90, 13-18. (Pubitemid 128457805)
32. Siminoff, L. A., & Saunders Sturm, C. M. (2000). African-American reluctance to donate: Beliefs and attitudes about organ donation and implications for policy. Kennedy Institute of Ethics Journal, 10(1), 59-74.
33. Morgan, S. E. (2006). Many facets of reluctance: African Americans and the decision (not) to donate organs. Journal of the National Medical Association, 98(5), 695-703.
34. La Veist, T. A., & Bowie, J. V. (2000). Attitudes about racism, medical mistrust, and satisfaction with care among African American and white cardiac patients. Medical Care Research and Review, 57(1), 146-161.
35. Wagstaff, D. A., Korda, H., & McCleary, K. J. (2008). African Americans' organ donation intentions: Who has used which registration mode to express her or his intentions? Journal of public health management and practice, 14(1), E7-E13. (Pubitemid 350307734)
36. United Network for Organ Sharing. (2010). Donor designation (first person consent) status by state http://www.unos.org/inTheNews/factsheets.asp?fs=6. Accessed 24 April 2010.
37. Eng, E., & Parker, E. (2002). Natural helper models to enhance a community's health and competence. In R. J. Di Clemente, R. A. Crosby, & M. C. Kegler (Eds.), Emerging theories in health promotion practice and research: Strategies for improving public health (pp. 126-156). San Francisco: Jossey-Bass.
38. Prochaska, J. O., & Di Clemente, C. C. (1983). Stages and process of change of smoking: Toward integrative model. Journal of Consult Clinical Psychology, 51, 390.
39. Musa, D., Schulz, R., Harris, R., Silverman, M., & Thomas, S. B. (2009). Trust in the health care system and the use of preventive health services by older black and white adults. American Journal of Public Health, 99(7), 1293-1299.
40. Official Code of Georgia Annotated. § 40-5-25 et seq 1995.
41. Bruzzone, P. (2010). Financial incentives for organ donation: A slippery slope toward organ commercialism? Transplantation Proceedings, 42(4), 1048-1049.
42. Rodrigue, J. R., Crist, K., Roberts, J. P., Freeman, R. B., Merion, R. M., & Reed, A. I. (2009). Stimulus for organ donation: A survey of the American society of transplant surgeons membership. American Journal of Transplantation, 9(9), 2172-2176.
43. Cynowiec, J., Kim, J., & Qazi, Y. A. (2009). Incentivizing living organ donation. Current Opinion in Organ Transplantation, 14, 201-205.
44. Israni, A. K., Halpern, S. D., Zink, S., Sidhwani, S. A., & Caplan, A. (2005). Incentive models to increase living kidney donation: Encouraging without coercing. American Journal of Transplantation, 5(1), 15-20. (Pubitemid 40095123)
45. Boulware, L. E., Troll, M. U., Wang, N. Y., & Powe, N. R. (2006). Public attitudes toward incentives for organ donation: A national study of different racial/ethnic and income groups. American Journal of Transplantation, 6, 2774-2785. (Pubitemid 44571700)
46. Organ Procurement and Transplantation Network. (2010). National organ donor data. http://optn. transplant.hrsa.gov/latest Data/step2.asp? Accessed 8 June 2010.
47. Kankam, M. K., Ktsanes, V. K., Moore, R. M., Kaczmarek, R. G., & Jeng, L. L. (1990). Knowledge in relation to deceased donor kidney donation in urban blacks. Journal of Health Care of the Poor and Underserved, 3(1), 297-304.
48. Laver, J. H., Hulsey, T. C., Jones, J. P., Gautreaux, M., Barredo, J. C., & Abboud, M. R. (2001). Assessment of barriers to bone marrow donation by unrelated African American potential donors. Biology of Bone Marrow Transplantation, 7, 45-48. (Pubitemid 32229502)
49. Callender, C. O., Hall, M. B., & Branch, H. (2001). An assessment of the effectiveness of the MOTTEP model for increasing donation rates and preventing the need for transplantation-adult finding: Program years 1998 and 1999. Seminars in Nephrology, 21, 419-428. (Pubitemid 32643171)
50. Rice, C., & Tamburlin, J. A. (2004). Confirmatory analysis of the organ donation readiness index: Measuring the potential for organ donation among African Americans. Research on Social Work Practice, 14, 295-303. (Pubitemid 38809122)
51. Creecy, R. F., & Wright, R. (1990). Correlates of willingness to consider organ donation among blacks. Social Science and Medicine, 31, 1229-1232.