Effectiveness of online and face-to-face fatigue self-management programmes for adults with neurological conditions

Disability and Rehabilitation

Volumn 34, Issue 7, 2012, Pages 564-573

  Ghahari, Setareh ^a,b,c   Packer, Tanya ^a,d  

^a CURTIN UNIVERSITY   (Australia)

^b UNIVERSITY OF SOCIAL WELFARE AND REHABILITATION SCIENCES   (Iran)

^c UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^d DALHOUSIE UNIVERSITY   (Canada)

Author keywords

Fatigue; Internet; Self management

Indexed keywords

ADULT; AGED; ARTICLE; DAILY LIFE ACTIVITY; FATIGUE; FEMALE; HEALTH CARE QUALITY; HOSPITALIZATION; HUMAN; INTERNET; MALE; METHODOLOGY; MIDDLE AGED; NEUROLOGIC DISEASE; OUTCOME ASSESSMENT; PATIENT EDUCATION; PSYCHOLOGICAL RATING SCALE; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL (TOPIC); SELF CARE; SELF CONCEPT; TIME; TREATMENT OUTCOME;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; AGED, 80 AND OVER; FATIGUE; FEMALE; HUMANS; INTERNET; MALE; MIDDLE AGED; NERVOUS SYSTEM DISEASES; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT EDUCATION AS TOPIC; PROGRAM EVALUATION; PSYCHIATRIC STATUS RATING SCALES; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIALS AS TOPIC; SELF CARE; SELF EFFICACY; SEVERITY OF ILLNESS INDEX; TIME FACTORS; TREATMENT OUTCOME; YOUNG ADULT;

EID: 84856862576     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2011.613518     Document Type: Article

References (30)

1. Krupp LB, Coyle PK, Doscher C, Miller A, Cross AH, Jandorf L, Halper J, et al. Fatigue therapy in multiple sclerosis: results of a double-blind, randomized, parallel trial of amantadine, pemoline, and placebo. Neurology 1995;45:1956-1961.
2. Stankoff B, Waubant E, Confavreux C, Edan G, Debouverie M, Rumbach L, Moreau T et al.; French Modafinil Study Group. Modafinil for fatigue in MS: a randomized placebo-controlled double-blind study. Neurology 2005;64:1139-1143.
3. Mostert S, Kesselring J. Effects of a short-term exercise training program on aerobic fitness, fatigue, health perception and activity level of subjects with multiple sclerosis. Mult Scler 2002;8:161-168.
4. Neill J, Belan I, Ried K. Effectiveness of non-pharmacological interventions for fatigue in adults with multiple sclerosis, rheumatoid arthritis, or systemic lupus erythematosus: a systematic review. J Adv Nurs 2006;56:617-635.
5. Kos D, Duportail M, D'hooghe M, Nagels G, Kerckhofs E. Multidisciplinary fatigue management programme in multiple sclerosis: a randomized clinical trial. Mult Scler 2007;13:996-1003.
6. van Kessel K, Moss-Morris R, Willoughby E, Chalder T, Johnson MH, Robinson E. A randomized controlled trial of cognitive behavior therapy for multiple sclerosis fatigue. Psychosom Med 2008;70:205-213.
7. Packer TL, Brink N, Sauriol A. Managing fatigue: A six-week course for energy conservation. Tucson (AZ): Therapy Skill Builders; 1995.
8. Mathiowetz VG, Finlayson ML, Matuska KM, Chen HY, Luo P. Randomized controlled trial of an energy conservation course for persons with multiple sclerosis. Mult Scler 2005;11:592-601.
9. Sauter C, Zebenholzer K, Hisakawa J, Zeitlhofer J, Vass K. A longitudinal study on effects of a six-week course for energy conservation for multiple sclerosis patients. Mult Scler 2008;14:500-505.
10. Corbin JM, Strauss A. Unending work and care: Managing chronic illness at home. San Francisco: Jossey-Bass; 1988.
11. Ghahari S, Packer TL, Passmore AE. Development, standardisation and pilot testing of an online fatigue self-management program. Disabil Rehabil 2009;31:1762-1772.
12. Ghahari S, Leigh Packer T, Passmore AE. Effectiveness of an online fatigue self-management programme for people with chronic neurological conditions: a randomized controlled trial. Clin Rehabil 2010;24:727-744.
13. Is activity level key to reducing fatigue in chronic conditions? Canadian Association of Occupational Therapists National Conference; 26-29 May 2010.
14. Krupp LB, LaRocca NG, Muir-Nash J, Steinberg AD. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol 1989;46:1121-1123.
15. Katzman R, Brown T, Fuld P, Peck A, Schechter R, Schimmel H. Validation of a short Orientation-Memory-Concentration Test of cognitive impairment. Am J Psychiatry 1983;140:734-739.
16. Bandura A. Sources of self-efficacy. Self-efficacy: The exercise of control New York: W.H. Freeman; 1997, 79-113.
17. Fisk JD, Pontefract A, Ritvo PG, Archibald CJ, Murray TJ. The impact of fatigue on patients with multiple sclerosis. Can J Neurol Sci 1994;21:9-14.
18. Freeman JA, Hobart JC, Langdon DW, Thompson AJ. Clinical appropriateness: a key factor in outcome measure selection: the 36 item short form health survey in multiple sclerosis. J Neurol Neurosurg Psychiatr 2000;68:150-156.
19. Doney RM, Packer TL. Measuring changes in activity participation of older Australians: validation of the Activity Card Sort-Australia. Australas J Ageing 2008;27:33-37.
20. Girdler SJ, Boldy DP, Dhaliwal SS, Crowley M, Packer TL. Vision selfmanagement for older adults: a randomised controlled trial. Br J Ophthalmol 2010;94:223-228.
21. Lovibond SH, Lovibond PF. Manual for the Depression Anxiety Stress Scales. 2nd edn. Sydney, Australia: Psychology Foundation of Australia; 1995.
22. Koenig HG, Westlund RE, George LK, Hughes DC, Blazer DG, Hybels C. Abbreviating the Duke Social Support Index for use in chronically ill elderly individuals. Psychosomatics 1993;34:61-69.
23. Schwarzer R. Measurement of perceived self-efficacy: Psychometric scale for cross-cultural research. Berlin: Free University of Berlin Press; 1993.
24. Warsi A, Wang PS, LaValley MP, Avorn J, Solomon DH. Self-management education programs in chronic disease: a systematic review and methodological critique of the literature. Arch Intern Med 2004;164:1641-1649.
25. Nguyen HQ, Carrieri-Kohlman V, Rankin SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput Biol Med 2004;34:95-112.
26. Mathiowetz V, Matuska KM, Murphy ME. Efficacy of an energy conservation course for persons with multiple sclerosis. Arch Phys Med Rehabil 2001;82:449-456.
27. Vanage SM, Gilbertson KK, Mathiowetz V. Effects of an energy conservation course on fatigue impact for persons with progressive multiple sclerosis. Am J Occup Ther 2003;57:315-323.
28. Hugos CL, Copperman LF, Fuller BE, Yadav V, Lovera J, Bourdette DN. Clinical trial of a formal group fatigue program in multiple sclerosis. Mult Scler 2010;16:724-732.
29. International Wellbeing Group. Personal wellbeing index. 4th edn. Melbourne: Australian Centre on Quality of Life; 2006.
30. Steed L, Cooke D, Newman S. A systematic review of psychosocial outcomes following education, self-management and psychological interventions in diabetes mellitus. Patient Educ Couns 2003;51:5-15.