Difficulty assisting with health care tasks among caregivers of multimorbid older adults

Journal of General Internal Medicine

Volumn 27, Issue 1, 2012, Pages 37-44

  Giovannetti, Erin R ^a   Wolff, Jennifer L ^a,b   Xue, Qian Li ^a,b   Weiss, Carlos O ^a   Leff, Bruce ^a,b   Boult, Chad ^a,b   Hughes, Travonia ^a   Boyd, Cynthia M ^a,b  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

caregiver; chronic disease; psychology; self efficacy

Indexed keywords

ADULT; ARTICLE; CAREGIVER BURDEN; DAILY LIFE ACTIVITY; DEPRESSION; FEMALE; GERIATRIC PATIENT; HEALTH CARE COST; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH CARE TASK DIFFICULTY; HEALTH EDUCATION; HUMAN; HUMAN RELATION; MALE; MEDICATION THERAPY MANAGEMENT; MULTIMORBID OLDER ADULT; OUTCOME ASSESSMENT; SELF CONCEPT; SHORT FORM 36; WELLBEING;

AGE FACTORS; AGED; AGED, 80 AND OVER; CAREGIVERS; COMORBIDITY; CROSS-SECTIONAL STUDIES; FEMALE; HOME NURSING; HUMANS; MALE; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL;

EID: 84856690944     PISSN: 08848734     EISSN: 15251497     Source Type: Journal    
DOI: 10.1007/s11606-011-1831-5     Document Type: Article

References (44)

1. CM Boyd J Darer C Boult LP Fried L Boult AW Wu 2005 Clinical practice guidelines and quality of care for older patients with multiple comorbid diseases: implications for pay for performance JAMA. 294 6 716 24 16091574 10.1001/jama.294.6.716 1:CAS:528:DC%2BD2MXns1OhsL0%3D (Pubitemid 41159291)
2. R Gijsen N Hoeymans FG Schellevis D Ruwaard WA Satariano GA van den Bos 2001 Causes and consequences of comorbidity: a review J Clin Epidemiol. 54 7 661 74 11438406 10.1016/S0895-4356(00)00363-2 1:STN:280:DC%2BD3MzotVynug%3D%3D (Pubitemid 32594852)
3. C Hoffman D Rice HY Sung 1996 Persons with chronic conditions. Their prevalence and costs JAMA 276 18 1473 9 8903258 10.1001/jama.1996.03540180029029 1:STN:280:DyaK2s%2FmtVahsQ%3D%3D (Pubitemid 26398755)
4. C May VM Montori FS Mair 2009 We need minimally disruptive medicine BMJ. 339 b2803 19671932 10.1136/bmj.b2803
5. A Bookman M Harrington 2007 Family caregivers: a shadow workforce in the geriatric health care system? Journal of Health Politics, Policy and Law. 23 6 1105 41
6. MB Kapp 1991 Health care decision making by the elderly: I get by with a little help from my family Gerontologist. 31 5 619 23 1778487 10.1093/geront/31.5.619 1:STN:280:DyaK387jslOntw%3D%3D
7. GT Deimling VL Smerglia CM Barresi 1990 Health care professionals and family involvement in care-related decisions concerning older patients J Aging Health. 2 3 310 25 10105400 10.1177/089826439000200302 1:STN:280: DyaK3czitFClsw%3D%3D (Pubitemid 20280616)
8. H Wu J Wang JT Cacioppo R Glaser JK Kiecolt-Glaser WB Malarkey 1999 Chronic stress associated with spousal caregiving of patients with Alzheimer's dementia is associated with downregulation of B-lymphocyte GH mRNA J Gerontol A Biol Sci Med Sci. 54 4 M212 5 10219013 10.1093/gerona/54.4.M212 1:STN:280:DyaK1M3jtleqtQ%3D%3D
9. JK Kiecolt-Glaser KJ Preacher RC MacCallum C Atkinson WB Malarkey R Glaser 2003 Chronic stress and age-related increases in the proinflammatory cytokine IL-6 Proc Natl Acad Sci U S A. 100 15 9090 5 12840146 10.1073/pnas.1531903100 1:CAS:528:DC%2BD3sXlvVyhsrs%3D (Pubitemid 36899228)
10. LC Burton JT Newsom R Schulz CH Hirsch PS German 1997 Preventive health behaviors among spousal caregivers Prev Med. 26 2 162 9 9085384 10.1006/pmed.1996.0129 1:STN:280:DyaK2s3jvFOhsQ%3D%3D (Pubitemid 27184603)
11. M Pinquart S Sorensen 2007 Correlates of physical health of informal caregivers: a meta-analysis Journal of Gerontology: Psychological Sciences. 62B 2 P126 P37 10.1093/geronb/62.2.P126
12. R Schulz J Newsom M Mittelmark L Burton C Hirsch S Jackson 1997 Health effects of caregiving: the caregiver health effects study: an ancillary study of the Cardiovascular Health Study Ann Behav Med. 19 2 110 6 9603685 10.1007/BF02883327 1:STN:280:DyaK1c3mt1entA%3D%3D (Pubitemid 27400940)
13. Albert SM. Beyond ADL-IALD: recognizing the full scope of family caregiving. In: Levine C, ed. Family caregivers on the job: moving beyond ADLs and IADLs. New York: United Hospital Fund; 2004.
14. MT Oberst SE Thomas KA Gass SE Ward 1989 Caregiving demands and appraisal of stress among family caregivers Cancer Nursing. 12 4 209 15 2766264 10.1097/00002820-198908000-00003 1:STN:280:DyaL1MzlsVamsg%3D%3D (Pubitemid 19211800)
15. T Bakas SC Burgener 2002 Predictors of emotional distress, general health and caregiving outcomes in family caregiving of stroke survivors Topics in Stroke Rehabilitation. 9 1 34 45 14523721 10.1310/GN0J-EXVX-KX0B-8X43 (Pubitemid 34507504)
16. PJ Carey MT Oberst MA McCubbin SH Hughes 1991 Appraisal and caregiving burden in family members caring for patients receiving chemotherapy Oncology Nursing Forum. 18 8 1341 8 1762974 1:STN:280:DyaK387gslOltw%3D%3D
17. T Bakas JK Austin SL Jessup LS Williams MT Oberst 2004 Time and difficulty of tasks provided by family caregivers of stroke survivors Journal of Neuroscience Nursing. 36 2 95 106 15115364 10.1097/01376517-200404000-00007
18. T Bakas SJ Pressler EA Johnson JA Nauser T Shaneyfelt 2006 Family caregiving in heart failure Nursing Research. 55 3 180 88 16708042 10.1097/00006199-200605000-00004 (Pubitemid 44503665)
19. MA Halm T Bakas 2007 Factors associated with caregiver depressive symptoms, outcomes and perceived physical health after coronary artery bypass surgery Journal of Cardiovascular Nursing. 22 6 508 15 18090193
20. S Travis WJ McAuley J Kmochowski MA Bernard HS Kao R Greene 2007 Factors associated with medication hassles experienced by family caregivers of older adults Patient Education and Counseling. 66 51 7 17118616 10.1016/j.pec.2006.10. 004 (Pubitemid 46389472)
21. S Travis MA Bernard WJ McAuley M Thornton T Kole 2003 Development of the Family caregiver medication administration hassles scale Gerontologist. 43 3 360 8 12810899 10.1093/geront/43.3.360 (Pubitemid 36718410)
22. Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer; 1984.
23. JL Wolff E Rand-Giovannetti S Palmer S Wegener L Reider K Frey, et al. 2009 Caregiving and chronic care: the guided care program for families and friends J Gerontol A Biol Sci Med Sci. 64 7 785 91 19349586 10.1093/gerona/ glp030
24. G Pope J Kautter R Ellis A Ash J Ayanian L Lezzoni, et al. 2004 Risk adjustment of Medicare capitation payments using the CMS-HCC model Health Care Financ Rev. 25 119 41 15493448 (Pubitemid 39201560)
25. B Robinson 1983 Validation of a caregiver strain index J Gerontol. 38 3 344 8 6841931 1:STN:280:DyaL3s7oslClsA%3D%3D (Pubitemid 13083970)
26. Boyd C, Wolff JL, Giovannetti ER, Reider L, Weiss CO, Xue Q, et al. Difficulty with health care management tasks among multimorbid older adults. JAGS. 2010. 58(s1). Presented at the annual research meeting in Orlando, FL.
27. Lorig K, Stewart A, Ritter P, Gonzalez V, Laurent D, Lynch J. Outcome measures for health education and other health care interventions. Thousand Oaks: Sage; 1996.
28. M Thornton S Travis 2003 Analysis of the reliability of the modified caregiver strain index J Gerontol B Psychol Sci Soc Sci. 58B 2 S127 S32 10.1093/geronb/58.2.S127
29. MM Weissman D Sholomskas M Pottenger BA Prusoff BZ Locke 1977 Assessing depressive symptoms in five psychiatric populations: a validation study Am J Epidemiol. 106 3 203 14 900119 1:STN:280:DyaE2s3msVSqsQ%3D%3D (Pubitemid 8190169)
30. Ware J, Kosinski M. SF-36 Physical and Mental Health summary scales: a manual for users of version I. 2nd ed. Lincoln: Quality Metric Inc.; 2001.
31. CO Weiss CM Boyd Q Yu JL Wolff B Leff 2007 Patterns of prevalent major chronic disease among older adults in the United States JAMA. 298 10 1160 2 17848649 10.1001/jama.298.10.1160-b 1:CAS:528:DC%2BD2sXhtVGmtL3O (Pubitemid 47403117)
32. RH Fortinsky K Kercher CJ Burant 2002 Measurement and correlates of family caregiver self-efficacy for managing dementia Aging Ment Health. 6 2 153 60 12028884 10.1080/13607860220126763 1:STN:280:DC%2BD383osl2hsQ%3D%3D (Pubitemid 34587162)
33. S Nakagawa I Cuthill 2007 Effect size, confidence interval and statistical significance: a practical guide for biologists Biol Rev. 82 591 605 17944619 10.1111/j.1469-185X.2007.00027.x (Pubitemid 47609922)
34. CM Gilliam AM Steffen 2006 The relationship between caregiving self-efficacy and depressive symptoms in dementia family caregivers Aging Ment Health. 10 2 79 86 16517482 10.1080/13607860500310658 1:STN:280: DC%2BD287ivVSltg%3D%3D (Pubitemid 43355117)
35. R Schulz AT O'Brien J Bookwala K Fleissner 1995 Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes Gerontologist. 35 6 771 91 8557205 10.1093/geront/35.6.771 1:STN:280: DyaK287islKqsA%3D%3D
36. MG Ory RR Hoffman JL Yee S Tennstedt R Schulz 1999 Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers Gerontologist. 39 2 177 85 10224714 10.1093/geront/39.2.177 1:STN:280:DyaK1M3ktFahtw%3D%3D (Pubitemid 29187874)
37. S Sorensen M Pinquart P Duberstein 2002 How effective are interventions with caregivers? An updated meta-analysis Gerontologist. 42 3 356 72 12040138 10.1093/geront/42.3.356 (Pubitemid 34693550)
38. ML Keller H Leventhal TR Prohaska EA Leventhal 1989 Beliefs about aging and illness in a community sample Research in Nursing & Health 12 4 247 55 10.1002/nur.4770120407 1:STN:280:DyaL1MzmvVSguw%3D%3D
39. R Schulz RS Hebert MA Dew SL Brown MF Scheier SR Beach, et al. 2007 Patient suffering and caregiver compassion: new opportunities for research, practice, and policy Gerontologist. 47 1 4 13 17327535 10.1093/geront/47.1.4
40. MW Rabow JM Hauser J Adams 2004 Supporting family caregivers at the end of life:"they don't know what they don't know." JAMA. 291 4 483 91 14747506 10.1001/jama.291.4.483 1:CAS:528:DC%2BD2cXos12msQ%3D%3D (Pubitemid 38129753)
41. Council on Scientific Affairs, American Medical Association. Physicians and family caregivers: a model for partnership. JAMA. 1993;269(10):1282-4.
42. LR Tulner SV Frankfort F Wesselius JP van Campen CH Koks JH Beijnen 2009 Do geriatric outpatients adhere to medication changes advised after assessment? An exploratory pilot study Curr Clin Pharmacol. 4 2 154 8 19442081 10.2174/157488409788184990
43. MR DiMatteo 2004 Social support and patient adherence to medical treatment: a meta-analysis Health Psychol. 23 2 207 18 15008666 10.1037/0278-6133.23.2.207 (Pubitemid 38365280)
44. EA Miller WG Weissert 2000 Predicting elderly people's risk for nursing home placement, hospitalization, functional impairment, and mortality: a synthesis Med Care Res Rev. 57 3 259 97 10981186 10.1177/107755870005700301 1:STN:280:DC%2BD3M%2FhtVSmug%3D%3D (Pubitemid 30663090)