Perspectives of transition care in inflammatory bowel disease: A survey

Gastrointestinal Nursing

Volumn 10, Issue 1, 2012, Pages 30-35

  Houston, Yasmine ^a   Lindsay, James O ^b   Jenkins, Huw ^c   McCartney, Sarah ^d   Ahmad, Tariq ^e   Arnott, Ian ^f   Croft, Nick ^g   Russell, Richard ^h   Sebastian, Shaji ^a  

^a HULL AND EAST YORKSHIRE HOSPITALS NHS TRUST   (United Kingdom)

^b BARTS HEALTH NHS TRUST   (United Kingdom)

^c UNIVERSITY HOSPITAL OF WALES   (United Kingdom)

^d UNIVERSITY COLLEGE LONDON HOSPITALS   (United Kingdom)

^e ROYAL DEVON AND EXETER HOSPITAL   (United Kingdom)

^f WESTERN GENERAL HOSPITAL   (United Kingdom)

^g QUEEN MARY UNIVERSITY OF LONDON   (United Kingdom)

^h ROYAL HOSPITAL FOR SICK CHILDREN   (United Kingdom)

Author keywords

Adolescents; Barriers; IBD nurse; Transition care

Indexed keywords

EID: 84856679556     PISSN: 14795248     EISSN: None     Source Type: Journal    
DOI: 10.12968/gasn.2012.10.1.30     Document Type: Review

References (27)

1. Benchimol EI, Fortinsky KJ, Gozdyra P et al (2011a) Epidemiology of paediatric inflammatory bowel disease: A systematic review of international trends.Inflamm Bowel Dis 17(1): 423-39
2. Benchimol EI, Walters TD, Kaufman M, et al (2011b) Assessment of knowledge in adolescents with inflammatory bowel disease using a novel transition tool. Inflamm Bowel Dis 17(5): 1131-7
3. Betz CL, Redcay G (2003) Creating Helathy Futures: An innovative nurse-managed transition clinic for adolescents and young adults with special health care needs. Pediatr Nurs 29(1): 25-30
4. Blum RWM, Garell D, Hodgman CH, et al (1993) Transition from child-centered to adult health-care system for adolescents with chronic conditions. A position paper of the society for Adolescent Medicine. J Adolesc Health 14: 570-76 (Pubitemid 23345069)
5. Brooks F, Bunn F, Morgan J (2010) Transition for adolescents with long-term conditions: Event to process. Br J Community Nurs 14(7): 301-4
6. Carr-Gregg M, Enderby K, Grover S (2003) Risk taking behavior of young women in Australia: Screening for health risk behaviors. Med J Aust 178(12): 601-4
7. Escher JC (2009) Transition from paediatric to adult health care in Inflammatory bowel disease. Dig Dis 27(3): 382-6
8. Goodhand, JR, Hedin CH, Croft NM et al (2011) Adolescents with IBD: The importance of structured transition care Journal of Crohn's and Colitis 5(6): 509-19
9. Hait E, Arnold JH, Fishman LN (2006) Educate, communicate, anticipate- practical recommendations for transitioning adolescents with inflammatory bowel disease to adult health care. Inflamm Bowel Dis 12(1): 70-3 (Pubitemid 43032455)
10. Hait EJ, Barendse RM, Arnold JH, et al (2009) Transition of adolescents with inflammatory bowel disease from paediatric to adult care: A survey of adult gastroenterologists. J Pediatr Gastroenterol Nutr 48(1): 61-5
11. Hanline MF, Halvorsen A (1989) Parent perceptions of the integration transition process; overcoming artificial barriers. Except Child 55(6): 487-92
12. Irvine T, Casson DH, Auth M, et al (2010) Assessing the value of a pre-transfer meeting in IBD transition services. Gastrointestinal Nursing 8(7): 19-25
13. McDonagh JE, Southwood TR, Shaw KL; British Society of Paediatric and Adolescent Rheumatology (2007) The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 46(1):161-8 (Pubitemid 44932806)
14. Nicholas DB, Otley A, Smith C et al (2007) Challenges and strategies of children and adolescents with inflammatory bowel disease: A qualitative examination. Health Qual Life Outcomes 25: 5-28
15. Okumura MJ, Heisler M, Davis MM et al (2008) Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood. J Gen Intern Med 23(10): 1621-7
16. Paone MC, Wigle M, Saewyc E (2006) The ON TRAC model for the transitional care of adolescents. Progress in Transplantation 16(4): 291-302 (Pubitemid 44902088)
17. Pywell A (2010) 'Transition: Moving on Well'-from paediatric to adult health care. Br J Nurs 19(10): 652-6
18. Rapley P, Davidson PM (2010) Enough of a problem: A review of time for health care transition solutions for young adults with a chronic illness. J Clin Nurs 19(3-4): 313-23
19. Rearick E (2007) Enhancing success in transition service coordinators: Use of transformational leadership. Prof Case Manag 12(5): 283-7
20. Reid GJ, Irvine MJ, McCrindle BW et al (2004) Prevalence and correlates of successful transfer from paediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113: E197-205
21. Royal College of Nursing (2004) Adolescent Transitional Care - Guidance for Nursing Staff. RCN, London
22. Rutishauser C, Akré C, Surìs JC (2011) Transition from paediatric to adult health care: Expectations of adolescents with chronic disorders and their parents. Eur J Pediatr 170(7): 865-71
23. Sawyer SM, Drew S, Yeo MS, Britto MT (2007) Adolescents with a chronic condition: Challenges living, challenges treating. Lancet 369:1481-9 (Pubitemid 46635756)
24. Shaw KL, Southwood TR, McDonagh JE (2007) British Society of Paediatric and Adolescent Rheumatology. Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis. Child Care Health Dev 33(4): 380-8 (Pubitemid 46909323)
25. Tong EM, Kools S (2004) Health care transitions for adolescents with congenital heart disease: Patient and family perspectives. Nurs Clin North Am 39(4): 727-40 (Pubitemid 39550530)
26. Touchman LK, Slap GB, Britto MT (2008) Transition to adult care: Experiences and expectations of adolescents with a chronic illness. Child Care Health Dev 34(5): 557-63
27. While A, Forbes A, Ullman R, Lewis S, et al (2004) Practices that address continuity during transition from child to adult care: Synthesis of the evidence. Child Care Health Devel 30(5): 439-52 (Pubitemid 39255777)