Long-term outcome in patients with juvenile dermatomyositis: A cross-sectional follow-up study

Scandinavian Journal of Rheumatology

Volumn 41, Issue 1, 2012, Pages 50-58

  Mathiesen, P ^a   Hegaard, H ^b   Herlin, T ^c   Zak, M ^b   Pedersen, F K ^b   Nielsen, S ^b  

^a Mental Health Center Glostrup   (Denmark)

^b Rigshospitalet   (Denmark)

^c AARHUS UNIVERSITY HOSPITAL   (Denmark)

Author keywords

[No Author keywords available]

Indexed keywords

AGE DISTRIBUTION; ARTICLE; CALCINOSIS; CHILD; CLINICAL ASSESSMENT TOOL; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DERMATOMYOSITIS; DISEASE DURATION; DISEASE SEVERITY; FEMALE; FOLLOW UP; HUMAN; JUVENILE DERMATOMYOSITIS; LIPODYSTROPHY; MAJOR CLINICAL STUDY; MALE; MEDICAL RECORD REVIEW; MUSCLE DISEASE; MUSCLE DYSFUNCTION; MYOSITIS DAMAGE INDEX; MYOSITIS DISEASE DAMAGE BY VISUAL ANALOGUE SCALE; OUTCOME ASSESSMENT; PHYSICAL EXAMINATION; PRESCHOOL CHILD; PRIORITY JOURNAL; RISK ASSESSMENT; SCAR FORMATION; SCHOOL CHILD;

ADOLESCENT; ADULT; CALCINOSIS; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; DERMATOMYOSITIS; FOLLOW-UP STUDIES; HUMANS; MIDDLE AGED; MUSCLE STRENGTH; MYOSITIS; PROGNOSIS; RETROSPECTIVE STUDIES; SICKNESS IMPACT PROFILE; YOUNG ADULT;

EID: 84856414003     PISSN: 03009742     EISSN: 15027732     Source Type: Journal    
DOI: 10.3109/03009742.2011.608376     Document Type: Article

References (32)

1. McCann LJ, Juggins AD, Maillard SM, Wedderburn LR, Davidson JE, Murray KJ, et al. The Juvenile Dermatomyositis National Registry and Repository (UK and Ireland): clinical characteristics of children recruited within the first 5 yr. Rheumatology (Oxford) 2006;45:1255-60. (Pubitemid 44542066)
2. Mendez EP, Lipton R, Ramsey-Goldman R, Roettcher P, Bowyer S, Dyer A, et al. US incidence of juvenile dermatomyositis, 1995-1998: results from the National Institute of Arthritis and Musculoskeletal and Skin Diseases Registry. Arthritis Rheum 2003;49:300-5. (Pubitemid 36682395)
3. Huber AM, Lang B, LeBlanc CM, Birdi N, Bolaria RK, Malleson P, et al. Medium- and long-term functional outcomes in a multicenter cohort of children with juvenile dermatomyositis. Arthritis Rheum 2000;43:541-9. (Pubitemid 30394944)
4. Rider LG, Gurley RC, Pandey JP, Garcia de la Torre I, Kalovidouris AE, O'Hanlon TP, et al. Clinical, serologic, and immunogenetic features of familial idiopathic inflammatory myopathy. Arthritis Rheum 1998;41:710-19. (Pubitemid 28214990)
5. Rider LG, Lindsley CB, Cassidy JT. Juvenile dermatomyositis. In: Cassidy JT, Petty RE, Laxer RM, Lindsley CB, editors. Textbook of pediatric rheumatology, 6th edn. Philadelphia: W.B. Saunders Company, 2010:375-413.
6. Ramanan AV, Feldman BM. Clinical features and outcomes of juvenile dermatomyositis and other childhood onset myositis syndromes. Rheum Dis Clin North Am 2002;28:833-57. (Pubitemid 36008555)
7. Huber A, Feldman BM. Long-term outcomes in juvenile dermatomyositis: how did we get here and where are we going? Curr Rheumatol Rep 2005;7:441-6.
8. Feldman BM, Rider LG, Reed AM, Pachman LM. Juvenile dermatomyositis and other idiopathic inflammatory myopathies of childhood. Lancet 2008;28:2201-12. (Pubitemid 351890413)
9. Ravelli A, Trail L, Ferrari C, Ruperto N, Pistorio A, Pilkington C, et al. Long-term outcome and prognostic factors of juvenile dermatomyositis: a multinational, multicenter study of 490 patients. Arthritis Care Res (Hoboken ) 2010;62:63-72.
10. Rider LG, Lachenbruch PA, Monroe JB, Ravelli A, Cabalar I, Feldman BM, et al. Damage extent and predictors in adult and juvenile dermatomyositis and polymyositis as determined with the myositis damage index. Arthritis Rheum 2009;60:3425-35.
11. Sanner H, Gran JT, Sjaastad I, Flato B. Cumulative organ damage and prognostic factors in juvenile dermatomyositis: a crosssectional study median 16.8 years after symptom onset. Rheumatology (Oxford) 2009;48:1541-7.
12. Isenberg DA, Allen E, Farewell V, Ehrenstein MR, Hanna MG, Lundberg IE, et al. International consensus outcome measures for patients with idiopathic inflammatory myopathies. Development and initial validation of myositis activity and damage indices in patients with adult onset disease. Rheumatology (Oxford) 2004;43:49-54. (Pubitemid 38088368)
13. Ruperto N, Ravelli A, Pistorio A, Ferriani V, Calvo I, Ganser G, et al. The provisional Paediatric Rheumatology International Trials Organisation/American College of Rheumatology/European League Against Rheumatism Disease activity core set for the evaluation of response to therapy in juvenile dermatomyositis: a prospective validation study. Arthritis Rheum 2008;59:4-13. (Pubitemid 351171873)
14. Bohan A, Peter JB. Polymyositis and dermatomyositis (first of two parts). N Engl J Med 1975;292:344-7.
15. Bohan A, Peter JB. Polymyositis and dermatomyositis (second of two parts). N Engl J Med 1975;292:403-7.
16. Spencer CH, Hanson V, Singsen BH, Bernstein BH, Kornreich HK, King KK. Course of treated juvenile dermatomyositis. J Pediatr 1984;105:399-408. (Pubitemid 14072122)
17. Rider LG, Koziol D, Giannini EH, Jain MS, Smith MR, Whitney-Mahoney K, et al. Validation of manual muscle testing and a subset of eight muscles for adult and juvenile idiopathic inflammatory myopathies. Arthritis Care Res (Hoboken) 2010; 62:465-72.
18. Rennebohm RM, Jones K, Huber AM, Ballinger SH, Bowyer SL, Feldman BM, et al. Normal scores for nine maneuvers of the Childhood Myositis Assessment Scale. Arthritis Rheum 2004; 51:365-70. (Pubitemid 38725134)
19. Huber AM, Feldman BM, Rennebohm RM, Hicks JE, Lindsley CB, Perez MD, et al. Validation and clinical significance of the Childhood Myositis Assessment Scale for assessment of muscle function in the juvenile idio-pathic inflammatory myopathies. Arthritis Rheum 2004; 50:1595-603. (Pubitemid 38608082)
20. Huber AM, Hicks JE, Lachenbruch PA, Perez MD, Zemel LS, Rennebohm RM, et al. Validation of the Childhood Health Assessment Questionnaire in the juvenile idiopathic myopathies. Juvenile Dermatomyositis Disease Activity Collaborative Study Group. J Rheumatol 2001;28:1106-11. (Pubitemid 32422597)
21. Nielsen S, Ruperto N, Herlin T, Pedersen FK. The Danish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001;19: S50-4. (Pubitemid 33730187)
22. Alexanderson H, Lundberg IE, Stenstrom CH. Development of the myositis activities profile - validity and reliability of a selfadministered questionnaire to assess activity limitations in patients with polymyositis/dermatomyositis. J Rheumatol 2002; 29:2386-92. (Pubitemid 35266031)
23. Linde L, Sorensen J, Ostergaard M, Horslev-Petersen K, Hetland ML. Health-related quality of life: validity, reliability, and responsiveness of SF-36, 15D,EQ-5D [corrected] RAQoL, and HAQ in patientswith rheumatoid arthritis. J Rheumatol 2008;35:1528-37.
24. Miller FW, Rider LG, Chung YL, Cooper R, Danko K, Farewell V, et al. Proposed preliminary core set measures for disease outcome assessment in adult and juvenile idiopathic inflammatory myopathies. Rheumatology (Oxford) 2001;40:1262-73.
25. Bode RK, Klein-Gitelman MS, Miller ML, Lechman TS, Pachman LM. Disease activity score for children with juvenile dermatomyositis: reliability and validity evidence. Arthritis Rheum 2003;49:7-15. (Pubitemid 36286124)
26. Pachman LM, Abbott K, Sinacore JM, Amoruso L, Dyer A, Lipton R, et al. Duration of illness is an important variable for untreated children with juvenile dermatomyositis. J Pediatr 2006;148:247-53. (Pubitemid 43286768)
27. Pachman LM, Lipton R, Ramsey-Goldman R, Shamiyeh E, Abbott K, Mendez EP, et al. History of infection before the onset of juvenile dermatomyositis: results from the National Institute of Arthritis and Musculoskeletal and Skin Diseases Research Registry. Arthritis Rheum 2005;53:166-72. (Pubitemid 40530155)
28. Fisler RE, Liang MG, Fuhlbrigge RC, Yalcindag A, Sundel RP. Aggressive management of juvenile dermatomyositis results in improved outcome and decreased incidence of calcinosis. J Am Acad Dermatol 2002;47:505-11.
29. Tabarki B, Ponsot G, Prieur AM, Tardieu M. Childhood dermatomyositis: clinical course of 36 patients treated with low doses of corticosteroids. Eur J Paediatr Neurol 1998;2:205-11. (Pubitemid 28445025)
30. Stringer E, Singh-Grewal D, Feldman BM. Predicting the course of juvenile dermatomyositis: significance of early clinical and laboratory features. Arthritis Rheum 2008;58:3585-92.
31. Mathiesen PR, Zak M, Herlin T, Nielsen SM. Clinical features and outcome in a Danish cohort of juvenile dermatomyositis patients. Clin Exp Rheumatol 2010;28:782-9.
32. Martini A, Ravelli A, Viola S, Sambugaro R, De BF. Calcinosis as the presenting sign of juvenile dermatomyositis in a 14-month-old boy. Helv Paediatr Acta 1987;42:181-4. (Pubitemid 18036521)