The European internet-based patient and research database for primary immunodeficiencies: Update 2011

Clinical and Experimental Immunology

Volumn 167, Issue 3, 2012, Pages 479-491

  Gathmann, B ^a   Binder, N ^a   Ehl, S ^a   Kindle, G ^a   Mahlaoui, Nizar ^b   Devergnes, Nathalie ^b   Brosselin, Pauline ^b   Sanal, Özden ^b   Yegin, Olcay ^b   Kütükcüler, Necil ^b   Kilic, Sara Sebnem ^b   Barlan, Isil B ^b   Reisli, Ismail ^b   Caracseghi, Fabiola ^b   Santos, Juan Luis ^b   Llobet, Pilar ^b   Carbone, Javier ^b   Gonzalez, Luis Ignacio Granado ^b   Sanchez Ramon, Silvia ^b   Tricas, Lourdes ^b   Matamoros, Nuria ^b   Exley, Andrew ^b   Kumararatne, Dinakantha ^b   Allwood, Zoe ^b   Grimbacher, Bodo ^b   Longhurst, Hilary ^b   Knerr, Viviane ^b   Bangs, Catherine ^b   Boardman, Barbara ^b   Tierney, Patricia ^b   Chapel, Helen ^b   Notarangelo, Luigi D ^b   Plebani, Alessandro ^b   Pignata, Claudio ^b   Nickel, Renate ^b   Schauer, Uwe ^b   Späth, Brigitta ^b   Kaiser, Petra ^b   Roesler, Joachim ^b   Bienemann, Kirsten ^b   Linde, Richard ^b   Schubert, Ralf ^b   El Helou, Sabine ^b   Ritterbusch, Henrike ^b   Goldacker, Sigune ^b   Schaefer, Marzena ^b   Baumann, Ulrich ^b   Witte, Torsten ^b   Dückers, Gregor ^b   Fabhauer, Maria ^b   Borte, Michael ^b   Notheis, Gundula ^b   Belohradsky, Bernd H ^b   Sollinger, Franz ^b   Classen, Carl Friedrich ^b   Apel, Katrin ^b   Steinmann, Sandra ^b   Müglich, Carmen ^b   Szaflarska, Anna ^b   Bernatowska, Ewa ^b   Heropolitanska, Edyta ^b   Kuijpers, Taco W ^b   van Beem, Rachel ^b   Galal, Nermeen Mouftah ^b   Reda, Shereen ^b   Farber, Claire Michele ^b   Meyts, Isabelle ^b   Velbri, Sirje ^b   Kanariou, Maria ^b   Farmaki, Evangelia ^b   Papadopoulou Alataki, Efimia ^b   Trachana, Maria ^b   Richter, Darko ^b   Blaziene, Audra ^b   Seidel, Markus ^b   Marques, Laura ^b   Feighery, Conleth ^b   Cucuruz, Maria ^b   Konoplyannikova, Julia ^b   Paschenko, Olga ^b   Shcherbina, Anna ^b   Berglöf, Anna ^b   Jardefors, Helene ^b   Wagström, Per ^b   Brodszki, Nicholas ^b   Cantoni, Nathan ^b   Duppenthaler, Andrea ^b   Fahrni, Gaby ^b   Hoernes, Miriam ^b   Sahrbacher, Ulrike ^b   Pasic, Srdjan ^b   Ciznar, Peter ^b   Jeverica, Anja Koren ^b   Litzman, Jiri ^b   Hlavackova, Eva ^b   Savchak, Ihor ^b   Farkas, Henriette ^b   Marodi, Laszlo ^b   more..

^a UNIVERSITY OF FREIBURG   (Germany)

^b NONE

Author keywords

Epidemiology; ESID; Online database; Primary immunodeficiency; Registry

Indexed keywords

ANTIBIOTIC AGENT; ANTIFUNGAL AGENT; IMMUNOGLOBULIN; IMMUNOSUPPRESSIVE AGENT; STEROID;

ADULT; AGAMMAGLOBULINEMIA; AGED; ARTICLE; ATAXIA TELANGIECTASIA; CHRONIC GRANULOMATOUS DISEASE; CLINICAL RESEARCH; COMMON VARIABLE IMMUNODEFICIENCY; CONSANGUINITY; DATA BASE; DELAYED DIAGNOSIS; DIGEORGE SYNDROME; FEMALE; FRANCE; HUMAN; HUNGARY; IMMUNE DEFICIENCY; IMMUNOGLOBULIN G DEFICIENCY; INCIDENCE; INTERNET; MAJOR CLINICAL STUDY; MALE; PREVALENCE; PRIMARY IMMUNODEFICIENCY; PRIORITY JOURNAL; SELECTIVE IMMUNOGLOBULIN A DEFICIENCY; SEVERE COMBINED IMMUNODEFICIENCY; SPAIN; STEM CELL TRANSPLANTATION; WISKOTT ALDRICH SYNDROME;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; COMMON VARIABLE IMMUNODEFICIENCY; DATABASES, FACTUAL; EUROPE; FEMALE; HUMANS; IGA DEFICIENCY; IMMUNOGLOBULINS, INTRAVENOUS; IMMUNOLOGIC DEFICIENCY SYNDROMES; INFANT; INFANT, NEWBORN; INTERNET; MALE; MIDDLE AGED; REGISTRIES; SEVERE COMBINED IMMUNODEFICIENCY; SOCIETIES, MEDICAL; YOUNG ADULT;

EID: 84856383286     PISSN: 00099104     EISSN: 13652249     Source Type: Journal    
DOI: 10.1111/j.1365-2249.2011.04542.x     Document Type: Article

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