The use of full-setting non-invasive ventilation in the home care of people with amyotrophic lateral sclerosis-motor neuron disease with end-stage respiratory muscle failure: A case series

Journal of Medical Case Reports

Volumn 6, Issue , 2012, Pages

  De Vito, Eduardo L ^a   Suárez, Adrián A ^a   Monteiro, Sergio G ^a  

^a INSTITUTO DE INVESTIGACIONES MÉDICAS ALFREDO LANARI   (Argentina)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIBIOTIC AGENT; BRONCHODILATING AGENT; CARBON DIOXIDE; OXYHEMOGLOBIN; RILUZOLE;

ADULT; AMYOTROPHIC LATERAL SCLEROSIS; ANTIBIOTIC THERAPY; ARTERIAL GAS; ARTICLE; ASTHMA; BRONCHITIS; CASE REPORT; CASE STUDY; CAUCASIAN; COUGHING; DISEASE COURSE; DISEASE SEVERITY; DYSPHAGIA; DYSPNEA; END STAGE RESPIRATORY MUSCLE FAILURE; FEMALE; FORCED EXPIRATORY VOLUME; HOME CARE; HUMAN; HYPOVENTILATION; LUNG ALVEOLUS; LUNG FUNCTION TEST; LUNG INFECTION; LUNG VENTILATION; MALE; MUSCLE WEAKNESS; NONINVASIVE VENTILATION; OXYGEN SATURATION; OXYGENATION; PERCUTANEOUS ENDOSCOPIC GASTROSTOMY; PNEUMONIA; POSITIVE END EXPIRATORY PRESSURE; PRIORITY JOURNAL; PROGNOSIS; RESPIRATORY FAILURE; TRACHEOSTOMY; TREATMENT DURATION; WHEELCHAIR;

EID: 84856248087     PISSN: None     EISSN: 17521947     Source Type: Journal    
DOI: 10.1186/1752-1947-6-42     Document Type: Article

References (32)

1. Natural history of amyotrophic lateral sclerosis in a database population. Validation of a scoring system and a model for survival prediction. Haverkamp LJ, Appel V, Appel SH, Brain 1995 118 707 719 10.1093/brain/118.3.707 7600088
2. Amyotrophic lateral sclerosis: prognostic indicators of survival. Mandrioli J, Faglioni P, Nichelli P, Sola P, Amyotroph Lateral Scler 2006 7 211 220 17127559
3. Oliver D, Motor Neuron disease: a family affair Great Britain: Sheldon Press 2002
4. Palliative care in amyotrophic lateral sclerosis. Borasio GD, Voltz R, Miller RG, Neurol Clin 2001 19 829 847 10.1016/S0733-8619(05)70049-9 11854102 (Pubitemid 33051854)
5. Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, Kalra S, Katz JS, Mitsumoto H, Rosenfeld J, Shoesmith C, Strong MJ, Woolley SC, Quality Standards Subcommittee of the American Academy of Neurology, Neurology 2009 73 1227 1233 10.1212/WNL.0b013e3181bc01a4 19822873
6. Motor neuron disease: systematic reviews of treatment for ALS and SMA. Orrell RW, Br Med Bull 2010 93 145 159 10.1093/bmb/ldp049 20015852
7. Management of respiration in MND/ALS patients: an evidence based review. Heffernan C, Jenkinson C, Holmes T, Macleod H, Kinnear W, Oliver D, Leigh N, Ampong MA, Amyotroph Lateral Scler 2006 7 5 15 10.1080/14660820510043235 16546753
8. Noninvasive ventilation at the end of life. Benditt JO, Respir Care 2000 45 1376 1381 11063525
9. Non-invasive ventilation and palliation: experience in a district general hospital and a review. Shee CD, Green M, Palliat Med 2003 17 21 6 10.1191/0269216303pm659oa 12597462 (Pubitemid 36193217)
10. Respiratory assistance with a non-invasive ventilator (Bipap) in MND/ALS patients: survival rates in a controlled trial. Pinto AC, Evangelista T, Carvalho M, Alves MA, Sales Luis ML, J Neurol Sci 1995 129 19 26 7595610
11. Home mechanical ventilation for amyotrophic lateral sclerosis: nasal compared to tracheostomy-intermittent positive pressure ventilation. Cazzolli PA, Oppenheimer EA, J Neurol Sci 1996 139 Suppl 123 128 8899671
12. Effect of noninvasive positive-pressure ventilation on survival in amyotrophic lateral sclerosis. Aboussouan LS, Khan SU, Meeker DP, Stelmach K, Mitsumoto H, Ann Intern Med 1997 15 450 453 (Pubitemid 27400908)
13. Amyotrophic lateral sclerosis: prolongation of life by noninvasive respiratory aids. Bach JR, Chest 2002 122 92 98 10.1378/chest.122.1.92 12114343 (Pubitemid 34754147)
14. Prevention of pulmonary morbidity for patients with Duchenne muscular dystrophy. Bach JR, Ishikawa Y, Kim H, Chest 1997 112 1024 1028 10.1378/chest.112.4.1024 9377912 (Pubitemid 27446324)
15. Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing. Gomez-Merino E, Bach JR, Am J Phys Med Rehabil 2002 81 411 415 10.1097/00002060-200206000-00003 12023596 (Pubitemid 34564110)
16. El Escorial revisited: revisited criteria for the diagnosis of ALS.-World Federation of Neurology research group on motor diseases. A consensus conference held at Airlie House. Worrenton 1998 2 4
17. A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver. Bach JR, Chest 1993 104 1702 1706 10.1378/chest.104.6.1702 8252946 (Pubitemid 23360095)
18. Full-time non-invasive ventilation: possible and desirable. Benditt J, Respir Care 2006 51 1005 1012 16934164 (Pubitemid 44870530)
19. Neuromuscular ventilatory insufficiency: the effect of home mechanical ventilator use vs. oxygen therapy on pneumonia and hospitalization rates. Bach JR, Rajaraman R, Ballanger F, Tzeng AC, Ishikawa Y, Kulessa R, Bansal T, Am J Phys Med Rehabil 1998 77 8 19 10.1097/00002060-199801000-00003 9482374 (Pubitemid 28113365)
20. Randomised controlled trial of nasal ventilation in acute respiratory failure due to chronic obstructive airways disease. Bott J, Carroll MP, Conway JH, Keilty SE, Ward EM, Brown AM, Paul EA, Elliott MW, Godfrey RC, Wedzicha JA, Moxham J, Lancet 1993 341 1555 1557 10.1016/0140-6736(93)90696-E 8099639 (Pubitemid 23170460)
21. Ethical and clinical issues in the use of home non-invasive mechanical ventilation for the palliation of breathlessness in motor neurone disease. Polkey MI, Lyall RA, Davidson AC, Leigh PN, Moxham J, Thorax 1999 54 367 371 10.1136/thx.54.4.367 10092700 (Pubitemid 29150168)
22. Oximetry and indications for tracheostomy in amyotrophic lateral sclerosis. Bach JR, Bianchi C, Aufiero E, Chest 2004 126 1502 1507 10.1378/chest.126.5.1502 15539719 (Pubitemid 39525023)
23. Noninvasive mechanical ventilation in patients with neuromuscular diseases and in patients with chest restriction. Lisboa C, Díaz O, Fadic R, Arch Bronconeumol 2003 39 314 320 10.1157/13048992 12846961 (Pubitemid 37176207)
24. Amyotrophic lateral sclerosis: prolongation of life by noninvasive respiratory aids. Bach JR, Chest 2002 122 92 98 10.1378/chest.122.1.92 12114343 (Pubitemid 34754147)
25. Peak flow and peak cough flow in the evaluation of expiratory muscle weakness and bulbar impairment in patients with neuromuscular disease. Suárez AA, Pessolano FA, Monteiro SG, Ferreyra G, Capria ME, Mesa L, Dubrovsky A, De Vito EL, Am J Phys Med Rehabil 2002 81 506 511 10.1097/00002060-200207000-00007 12131177 (Pubitemid 34665884)
26. Expiratory flow maneuvers in patients with neuromuscular diseases. Bach JR, Goncalves MR, Paez S, Winck JC, Leitao S, Abreu P, Am J Phys Med Rehabil 2006 85 105 111 10.1097/01.phm.0000197307.32537.40 16428900 (Pubitemid 43162427)
27. A prospective study of the quality of life in ALS patients treated with noninvasive ventilation. Lyall RA, Donaldson N, Fleming T, Wood C, Newsom-Davis I, Polkey MI, Leigh PN, Moxham J, Neurology 2001 57 153 156 11445650 (Pubitemid 32634871)
28. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomized controlled trial. Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ, Lancet Neurol 2006 5 140 147 10.1016/S1474-4422(05)70326-4 16426990 (Pubitemid 43109171)
29. Motor neuron disease: systematic reviews of treatment for ALS and SMA. Orrell RW, Br Med Bull 2010 93 145 159 10.1093/bmb/ldp049 20015852
30. Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group. Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, Pradat PF, Silani V, Tomik B, EALSC Working Group, Amyotroph Lateral Scler 2007 8 195 213 10.1080/17482960701262376 17653917 (Pubitemid 47190223)
31. Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs, and patient, family, and physician attitudes. Moss AH, Casey P, Stocking CB, Roos RP, Brooks BR, Siegler M, Neurology 1993 43 438 443 8437718 (Pubitemid 23060289)
32. Predictors and course of elective long-term mechanical ventilation: A prospective study of ALS patients. Rabkin JG, Albert SM, Tider T, Del Bene ML, O'Sullivan I, Rowland LP, Mitsumoto H, Amyotroph Lateral Scler 2006 7 86 95 10.1080/14660820500515021 16753972 (Pubitemid 43878829)