Adolescents with implantable cardioverter defibrillators: A patient and parent perspective

PACE - Pacing and Clinical Electrophysiology

Volumn 35, Issue 1, 2012, Pages 62-72

  Rahman, Belinda ^a   MacCiocca, Ivan ^b   Sahhar, Margaret ^a,b   Kamberi, Suleman ^c,d   Connell, Vanessa ^c   Duncan, Rony E ^a,b  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b MURDOCH CHILDREN'S RESEARCH INSTITUTE   (Australia)

^c ROYAL CHILDREN'S HOSPITAL   (Australia)

^d MEDTRONIC INC   (United States)

Author keywords

adolescent; implantable cardioverter defibrillators; qualitative research; sudden cardiac death

Indexed keywords

ADOLESCENT; ARTICLE; CLINICAL ARTICLE; DEFIBRILLATOR; FEMALE; HUMAN; IMPLANTATION; MALE; PARENT; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SHOCK;

ADOLESCENT; ADULT; ATTITUDE TO HEALTH; AUSTRALIA; FEMALE; HEART FAILURE; HUMANS; MALE; PARENTS; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITY OF LIFE;

EID: 84855907632     PISSN: 01478389     EISSN: 15408159     Source Type: Journal    
DOI: 10.1111/j.1540-8159.2011.03229.x     Document Type: Article

References (26)

1. Gradaus R, Wollman C, Kobe J, Hammel D, Kothoff S, Block M, Breithardt G, et al,. Potential benefit from implantable-defibrillator therapy in children and young adolescents. Heart 2004; 90: 328-329. (Pubitemid 38250732)
2. Burgess ES, Quigley JF, Moran G, Sutton FJ, Goodman M,. Predictors of psychosocial adjustment in patients with implantable cardioverter defibrillators. Pacing Clin Electrophysiol 1997; 20: 1790-1795. (Pubitemid 27315254)
3. Gallagher RD, McKinley S, Mangan B, Pelletier D, Squire J, Mitten-Lewis S,. The impact of implantable cardioverter defibrillator on quality of life. Am J Crit Care 1997; 6: 16-24. (Pubitemid 127457712)
4. Blom NA,. Implantable cardioverter-defibrillators in children. Pacing Clin Electrophysiol 2008; 24: 32-34.
5. Costa R, da Silva KR, Mendonca RC, D'orio Nishioka SA, de Freitas Siqueira S, Tamaki WT, Crevelari ES, et al,. Incidence of shock and quality of life in young patients with implantable cardioverter defibrillator. Arq Bras Cardiol 2007; 88: 229-235.
6. Sears SF, Amant JB, Zeigler V,. Psychosocial considerations for children and young adolescents with implantable cardioverter defibrillators: An update. Pacing Clin Electrophysiol 2009; 32: 80-82.
7. Zeigler VL, Nelms T,. Almost normal: Experiences of adolescents with implantable cardioverter defibrillators. J Spec Pediatr Nurs 2009; 14: 142-151.
8. Sears SF, Burns JL, Handberg E, Sotile WM, Conti JB,. Young at heart: Understanding the unique psychosocial adjustment of young implantable cardioverter defibrillator recipients. Pacing Clin Electrophysiol 2001; 24: 1113-1117. (Pubitemid 32641735)
9. Zeigler VL, Decker-Walters B,. Determining psychosocial research priorities for adolescents with implantable cardioverter defibrillators using Delphi methodology. J Cardiovasc Nurs 2010; 25: 398-404.
10. Eicken A, Kolb C, Lange S, Brodherr-Heberlein S, Zrenner B, Schreiber C, Hess J,. Implantable cardioverter defibrillator (ICD) in children. Int J Cardiol 2006; 107: 30-35. (Pubitemid 41767515)
11. DeMaso DR, Lauretti A, Spieth L, Van Der Freen JR, Jay KS, Gauvreau K, Walsh EP, et al,. Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators. Am J Cardiol 2004; 93: 582-587. (Pubitemid 38293062)
12. Starks H, Trinidad SB,. Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory. Qual Health Res 2007; 17: 1372-1380. (Pubitemid 350130659)
13. Elliott P, Andersson B, Arbustini E, Bilinska Z, Checchi F, Charron P, Dubourg O, et al,. Classification of the cardiomyopathies: A position statement from the European Society of Cardiology Working Group on Myocardial and Pericardial Diseases. Eur Heart J 2008; 29: 270-276.
14. Maron BJ, Towbin JA, Thiene G, Antzelevitch C, Corrado D, Arnett D, Moss AJ, et al,. Contemporary definitions and classifications of the cardiomyopathies: An American Heart Association scientific statement from the Council on Clinical Cardiology, Heart Failure and Transplantation Committee; Quality of Care and Outcomes Research and Functional Genomics and Translational Biology Interdisciplinary Working Groups; and Council on Epidemiology and Prevention. Circulation 2006; 113: 1807-1816. (Pubitemid 43958474)
15. Schwartz PJ,. The long QT syndrome. In:, Camm AJ, (ed.): Clinical Approaches to Tachyarrhythmias. Armonk, NY, Futura Publishing Co., Inc., 1997, pp. 1-73.
16. Braun V, Clarke V,. Using thematic analysis in psychology. Qual Res Psychol 2006; 3: 77-101.
17. Liamputtong P, Ezzy D,. Qualitative Research Methods. Victoria, Australia: Oxford University Press, 2005.
18. Shea JB,. Quality of life issues in patients with implantable cardioverter defibrillators: Driving, occupation, and recreation. AACN Clin Issues 2004; 15: 478-489.
19. Tagney J, James JE, Albarran JW,. Exploring the patient's experiences of learning to live with an implantable cardioverter defibrillator (ICD) from one UK centre: A qualitative study. Eur J Cardiovasc Nurs 2003; 2: 195-203. (Pubitemid 37153167)
20. Beresford BA, Sloper P,. Chronically ill adolescents' experiences of communicating with doctors: A qualitative study. J Adolesc Health 2003; 33: 172-179. (Pubitemid 36999826)
21. Meulenkamp TM, et al,. Predictive genetic testing for cardiovascular disease: Impact on carrier children. Am J Med Genet Part A 2008; 146: 3136-3146.
22. Dunbar SB,. Psychosocial issues of patients with implantable cardioverter defibrillators. Am J Crit Care 2005; 14: 294-303. (Pubitemid 41032331)
23. Goel AK, Berger S, Pelech A, Dhala A,. Implantable cardioverter defibrillator therapy in children with long QT syndrome. Pediatr Cardiol 2004; 25: 370-378. (Pubitemid 38989523)
24. Farnsworth MF, Fosyth D, Haglund C, Ackerman MJ,. When I go in to wake them I wonder: Parental perceptions about congenital long QT syndrome. J Am Acad Nurse Pract 2005; 18: 284-290.
25. Bostwick JM, Sola CL,. An updated review of implantable cardioverter/defibrillators, induced anxiety, and quality of life. Psychiatr Clin North Am 2007; 30: 677-688. (Pubitemid 47552649)
26. Anderson J, Oyen N, Bjorvatn C, Gjengedal E,. Living with long QT syndrome: A qualitative study of coping with increased risk of sudden cardiac death. J Genet Couns 2008; 17: 489-498.