Coping with caring: Profiles of caregiving by informal carers living with a loved one who has dementia

Dementia

Volumn 11, Issue 1, 2012, Pages 113-130

  Kraijo, Henk ^a   Brouwer, Werner ^b   de Leeuw, Rob ^a   Schrijvers, Guus ^a   van Exel, Job ^b  

^a UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^b Erasmus University Rotterdam   (Netherlands)

Author keywords

caregiver support; caregivers; coping; perseverance time; subjective burden

Indexed keywords

EID: 84855889200     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301211421261     Document Type: Article

References (33)

1. Baker R.M.Economic rationality and health and lifestyle choices for people with diabetes.Social Sciene & Medicine. 2006;63 (9): 2341-2353.
2. Brown S.R.Q-methology. Political subjectivity: Applications of Q-methodology in political science. New Haven, CT: Yale University Press; 1980:.
3. Brown S.R.A primer on Q-methodology.Operant Subjectivity. 1993;16 (3/4): 91-138.
4. Bryant L.D.,Green J.M.,Hewison J.Understanding of Down's syndrome: A Q-methodological investigation.Social Sciene & Medicine. 2006;63 (5): 1188-1200.
5. Buljac M.,van Wijngaarden J.D. H.,van Wijk K.P.,van Exel N.J. A.Perceptions of team workers in youth care of what makes teamwork effective.Health & Social Care in the Community. 2010;19 (3): 307-316.
6. Bussemaker J.Zorg voor mensen met Dementie. 2008:.
7. Cramm J.M.,Finkenflügel H.,Møller V.,van Exel N.J. A.Patient views on determinants of adherence with tuberculosis treatment in the Eastern Cape, South Africa: An application of Q-methodology.The Patient: Patient-Centered Outcomes Research. 2010;3 (3): 159-172.
8. Cross R.M.Exploring attitudes: the case for Q-methodology.Health Education Research. 2005;20 (2): 206-213.
9. De Lange J.,Poos M.J. J. C.In: Volksgezondheid Toekomst Verkenning, Nationaal Kompas Volksgezondheid. Bilthoven: RIVM; 2007:.
10. Ferri C.P.,Prince M.,Brayne C.,Brodaty H.,Fratiglioni L.,Ganguli M., et al.Alzheimer's Disease International.Global prevalence of dementia: a Delphi consensus study. Lancet. 2005;366 (9503): 2112-2117.
11. Dementie. Den Haag: Gezondheidraad, publicatie nr; 2002:.
12. Jedeloo S.,Van Staa A.,Latour J.M.,van Exel N.J. A., et al.Preferences for Health Care and Self-Management among Dutch Adolescents with Chronic Conditions: A Q-Methodological Investigation.International Journal of Nursing Studies. 2010;47 (5): 593-603.
13. Kreuger L.,van Exel N.J. A.,Nieboer A.Needs of persons with severe intellectual disabilities: a Q-methodological study of clients with severe behavioral disorders and severe intellectual disabilities.Journal of Applied Reasearch in Intellectual Disabilities. 2008;21 (5): 466-476.
14. Peeters J.,Francke A.,van Beek S.,Meerveld J.Welke groepen mantelzorgers van mensen met dementie ervaren de meeste belasting? Resultaten van de monitor van het Landelijk Dementieprogramma (Factsheet 3). Utrecht: NIVEL; 2007:.
15. Peeters J.,van Beek S.,Francke A.Problemen en wensen van mantelzorgers van mensen met dementie; Resultaten van de monitor van het Landelijk Dementieprogramma (Factsheet 2). Utrecht: NIVEL; 2007:.
16. Risdon A.,Eccleston G.,McCracken L.How can we learn to live with pain? A Q-methodological analysis of the diverse understandings of acceptance of chronic pain.Social Science & Medicine. 2003;56:375-386.
17. Robinson B.C.Validation of a Caregiver Strain Index.Journal of Gerontology. 1983;38 (3): 344-348.
18. Smith N.W.History, theory, research and applications. Wadsworth; 2001:.
19. Stenner P.H. D.,Dancey C.P.,Watts S.The understanding of their illness amongst people irritable bowel syndrome: A Q-methodological study.Social Science & Medicine. 2000;51 (3): 439-452.
20. Stephenson W.Correlating persons instead of tests.Character and Personality. 1935;4:17-24.
21. Tielen M.,Van Staa A.,Jedeloo S.,van Exel N.J. A.,Weimar W.Q-methodology to identify young adult renal transplant recipients at risk for non-adherence.Transplantation. 2008;85 (5): 700-706.
22. Tielen M.,van Exel N.J. A.,van Buren M.C.,Maasdam L.,Weimar W.Attitudes towards medication non-adherence in elderly kidney transplant patients: a Q-methodology study.Nephrology Dialysis Transplantation. 2011;26 (5): 1723-1728.
23. Van der Poel K.,van Beek A.P. A.Ontwikkeling vragenlijst 'Wensen en problemen van mantelzorgers van mensen met dementie'. 2006:.
24. Van Exel N.J. A.,Scholte op Reimer W.J. M.,Brouwer W.B. F.,van den Berg B.,Koopmanschap M.A.,van den Bos G.A. M.Instruments for assessing the burden of informal care giving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and Self-Rated Burden.Clinical Rehabilitation. 2004;18 (2): 203-214.
25. Van ExelN.J. A.de GraafG. (2005). Q-methodology: A sneak preview. Available from www.qmethod.org/howto.
26. Van Exel N.J. A.,de Graaf G.,Brouwer W.B. F.Everyone dies, so you might as well have fun! Images of youths about their lifestyle.Social Science & Medicine. 2006;63 (10): 2628-2639.
27. Van Exel N.J. A.,de Graaf G.,Brouwer W.B. F.Care for a break? An investigation of informal caregivers' attitudes toward respite care using Q-methododlogy.Health Policy. 2007;83 (2/3): 332-342.
28. Van Exel N.J. A.,de Ruiter M.,Brouwer W.B. F.When time is not on your side. Patient experiences with waiting for home care and admission to a nursing or residential home.The Patient. 2008;1 (1): 55-71.
29. Vermaire J.H.,Hoogstraten J.,van Loveren C.,Poorterman J.H. G.,van Exel N.J. A.Attitudes toward oral health among parents of six-year-old children at risk of developing caries.Community Dentistry and Oral Epidemiology. 2010;38 (6): 507-520.
30. Wallenburg I.,van Exel N.J. A.,Stolk E.,Scheele F.,de Bont A.,Meurs P.Between Trust and Accountability: Different Perspectives on the Modernization of Postgraduate Medical Training in the Netherlands.Academic Medicine. 2010;85 (6): 1082-1090.
31. Wancata J.,Musalek M.,Alexandrowicz R.,Krautgartner M.Number of dementia sufferers in Europe between the years 2000 and 2050.European Psychiatry. 2003;18 (6): 306-313.
32. Watts S.,Stenner P.Doing Q methodology: theory, method and interpretation.Qualitive Research in Psychology. 2005;2:67-91.
33. Wimo A.,Winblad B.,Aguero-Torres H.,Von Strauss E.The magnitude of dementia occurrence in the world.Alzheimer Disease and Associated Disorders. 2003;17 (2): 63-67.