Assessing quality of life in patients with schizophrenia in an acute psychiatric setting: Reliability, validity and feasibility of the EQ-5D and the Q-LES-Q

Nordic Journal of Psychiatry

Volumn 66, Issue 1, 2012, Pages 19-25

  Pitknen, Anneli ^a,d   Vlimki, Maritta ^a   Endicott, Jean ^b   Katajisto, Jouko ^a   Luukkaala, Tiina ^c   Koivunen, Marita ^a   Kuosmanen, Lauri ^a   Htönen, Heli ^a  

^a UNIVERSITY OF TURKU   (Finland)

^b Hospital District of Southwest Finland ^*  (United States)

^c TAMPERE UNIVERSITY OF TECHNOLOGY   (Finland)

^d Pitkäniemi Hospital   (Finland)

Author keywords

EQ 5D; Outcome measurement; Q LES Q; Quality of life; Schizophrenia

Indexed keywords

ADULT; AGED; ARTICLE; EUROQOL 5D; FEASIBILITY STUDY; FEMALE; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; PSYCHIATRIC DEPARTMENT; QUALITY OF LIFE; QUALITY OF LIFE ENJOYMENT AND SATISFACTION QUESTIONNAIRE; QUESTIONNAIRE; RELIABILITY; SCHIZOPHRENIA; VALIDATION STUDY;

ACUTE DISEASE; ADOLESCENT; ADULT; AGED; FEASIBILITY STUDIES; FEMALE; FINLAND; HEALTH STATUS INDICATORS; HUMANS; INPATIENTS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SCHIZOPHRENIA; YOUNG ADULT;

EID: 84855681882     PISSN: 08039488     EISSN: 15024725     Source Type: Journal    
DOI: 10.3109/08039488.2011.593099     Document Type: Article

References (40)

1. Mueser KT, McGurk SR. Schizophrenia. Lancet 2004;363:2063-7 2. (Pubitemid 38781110)
2. Wetherell JL, Palmer BW, Thorp SR, Patterson TL, Golshan S, Jeste DV. Anxiety symptoms and quality of life in middle-aged and older outpatients with schizophrenia and schizoaffective disorders. J Clin Psychiatry 2003;64:1476-82. (Pubitemid 41270107)
3. Nørholm V, Bech P. Quality of life in schizophrenia patients: Association with depressive symptoms. Nord J Psychiatry 2006;60:32-7.
4. Harvey PD, Green MF, Keefe RS, Velligan DI. Cognitive functioning in schizophrenia: A consensus statement on its role in the defi nition and evaluation of effective treatments for the illness. J Clin Psychiatry 2004;65:361-72.
5. Ritsner MS. The distress/protection vulnerability model of quality of life impairment syndrome. In Ritsner MS, Awad AG, editors. Quality of life impairment in schizophrenia, mood and anxiety disorders. New perspectives on research and treatment. London: Springer 2007. p. 3-19.
6. Finnish Psychiatry Association. Current care of schizophrenia [Skitsofrenian käypähoitosuositus]. Duodecim 2001;117,2640-57.
7. NICE (National Institute for Health and Clinical Excellence). Schizophrenia: Core interventions in the treatment and management of schizophrenia in adults in primary and secondary care, 2002 [updated March 2009]. Available at: http://www.nice.org.uk/nicemedia/pdf/CG82NICEGuideline.pdf (accessed 14 October 2009).
8. APA (American Psychiatric Association). Practice guideline for the treatment of patients with schizophrenia, 2nd edition, 2004. Available at: http://www.psychiatryonline.com/pracGuide/pracGuideTopic-6.aspx (accessed 12 March 2010.
9. Bengtsson-Tops A, Hansson L, Sandlund M, Bjarnason O, Korkeila J, Merinder L, et al. Subjective versus interviewer assessment of global quality of life among persons with schizophrenia living in the community: A Nordic multicentre study. Qual Life Res 2005;14:221-9. (Pubitemid 40249096)
10. Bobes J, Garcfa-Portilla P, Sfi iz PA, Bascarfi n T, Bousofi o M. Quality of life measures in schizophrenia. Eur Psychiatry 2005; 20:313-17.
11. Van de Willige G, Wiersma D, Nienhuis FJ, Jenner JA. Changes in quality of life in chronic psychiatric patients: A comparison between EuroQoL (EQ-5D) and WHOQoL. Qual Life Res 2005;14:441-51. (Pubitemid 40576394)
12. Priebe S. Social outcomes in schizophrenia. Br J Psychiatry 2007;191Suppl 50:15-20.
13. Price MA, Hill CD, Williams VSL, Morlock RJ, Leeuwenkamp O, Patterson TL. Measures of functional status and quality-of-life in schizophrenia. Curr Psychiatr Rev 2008;4:28-38. (Pubitemid 351513495)
14. A wad AG, Voruganti LNP. Intervention research in Psychosis: Issues related to the assessment of quality of life. Schizophr Bull 2000;26:557-64.
15. Naber D, Karow A, Lambert M. Subjective well-being under neuroleptic treatment and its relevance for compliance. Acta Psychiatr Scand 2005;111 Suppl 427:29-34. (Pubitemid 40780197)
16. Wisniewski SR, Rush AJ, Bryan C, Shelton R, Trivedi MH, Marcus S, et al. Comparison of quality of life measures in a depressed population. J Nerv Ment Dis 2007;195:219-25. (Pubitemid 46673542)
17. Department of Health. Mental health policy implementation guide. Adult acute inpatient care provision. Department of Health Publications, London. Available at: http://www.dh.gov.uk/dr-consum-dh/groups/dh-digitalassets/@dh/@en/ documents/digitalasset/dh-4069194.pdf (accessed 13 October 2008).
18. Brooks R. Introduction. In Brooks R, Rabin R, de Charro F, editors. The measurement and valuation of heath status using EQ-5D A European perspective. Evidence from the EuroQoL BIOMED research programme. Dordrecht: Kluwer; 2003. p. 1-5.
19. EuroQoL Group. EQ-5D. A standardised instrument for use as a measure of health outcome. EuroQoL Group, 2009 Available at: http://www.euroqol.org (accessed 12 January 2010).
20. Endicott J, Nee J, Harrison W, Blumenthal R. Quality of Life Enjoyment and Satisfaction Questionnaire: A new measure. Psychopharmacol Bull 1993;29:321-6. (Pubitemid 23311543)
21. Danovitch I, Endicott J. Quality of life measures. In Rush AJ, First MB, Blacker D, editors. Handbook of psychiatric measures, 2nd edition. Washington DC: American Psychiatric Publishing 2008. p. 125-40.
22. Välimäki M, Anttila M, Hätönen H, Koivunen M, Jakobsson T, Pitkänen A, et al. Design and development process of patient-centred computer-based support system for patients with schizophrenia spectrum psychosis. Inform Health Soc Care 2008; 33:113-23.
23. W orld Health Organisation. The ICD-10 classifi cation of mental and behavioural disorders. Clinical descriptions and diagnostic guidelines. Geneva: WHO 1992.
24. Mental Health Act [Mielenterveyslaki] 1116/1990. Helsinki: Edita Publishing Oy; 1990.
25. Ohinmaa A, Sintonen H. Quality of life of the Finnish population as measured by the EuroQoL. In Badia X, Herdman M, Segura A, editors. EuroQoL Plenary Meeting, 3-6 October, Barcelona 1990. p. 161-72.
26. Prieto L, Novick D, Sacristá n JA, Edgell ET, Alonso J on behalf of the SOHO Study Group. A Rasch model analysis to test the crosscultural validity of EuroQol-5D in the schizophrenia outpatient health outcomes study. Acta Psychiatr Scand 2003;107 Suppl 416:24-9.
27. König H-H, Roick C, Angermeyer MC. Validity of the EQ-5D in assessing and valuing status in patients with schizophrenia, schizotypal or delusional disorders. Eur Psychiatry 2007;22:177-87.
28. Prieto L, Sacristá n JA, Hormaechea JA, Casado A, Badia X, Cómez JC. Psychometric validation of a generic health-related quality of life measure (EQ-5D) in a sample of schizophrenic patients. Curr Med Res Opin 2004;20:827-35.
29. Bishop SL, Walling DP, Dott SG, Folkes CC, Bucy J. Refi ning quality of life: Validating a multidimensional factor measure in the severe mentally ill. Qual Life Res 1999;8:151-60. (Pubitemid 29362756)
30. Ritsner M, Kurs R, Gibel A, Ratner Y, Endicott J. Validity of an abbreviated Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q-18) for schizophrenia, schizoaffective, and mood disorder patients. Qual Life Res 2005;14:1693-703. (Pubitemid 40978478)
31. Ritsner M, Kurs R, Kostizky H, Ponozovsky A, Modai I. Subjective quality of life in severely mentally ill patients: A comparison of two instruments. Qual Life Res 2002;11:553-61. (Pubitemid 34876129)
32. K ay SR, Fiszbein A, Opler LA. The Positive and Negative Syndrome Scale (PANSS) for schizophrenia. Schizophr Bull 1987;13:261-76. (Pubitemid 18039085)
33. Williams JBW. Mental health status, functioning, and disabilities measures. In Rush AJ, First MB, Blacker D, editors. Handbook of psychiatric measures, 2nd edition. Washington DC: American Psychiatric Publishing 2008. p. 83-105.
34. Stewart AL. Psychometric considerations in functional status instruments. In WONCA Classifi cation Committee, editor. Functional status measurement in primary care. New York: Springer-Verlag; 1990. p. 3-26.
35. Ferketich S. Focus on psychometrics. Aspects of item analysis. Res Nurs Health 1991;14:165-8.
36. World Medical Association. World Medical Association Declaration of Helsinki. Ethical principles for medical research involving human subjects. 59th WMA General Assembly, Seoul; 2008. Available at: http://www.wma.net/en/ 30publications/10policies/b3/index.html (accessed 13 February 2009).
37. European Commission. Ethical issues in EU research proposals-checklist. European Commission 2007. Available at http://ec. europa.eu/research/science- society (last accessed 12 February 2009).
38. Kuosmanen L, Välimäki M, Joffe G, Pitkänen A, Hätönen H, Patel A, Knapp M. The effectiveness of technology-based patient education on self reported deprivation of liberty among people with severe mental illness: A randomised controlled trial. Nord J Psychiatry 2009;63:383-9.
39. Priebe S, Fakhoury WKH. Quality of life. In Mueser KT, Jeste DV, editors. Clinical handbook of schizophrenia. New York: The Guilford Press 2008. p. 581-91.
40. Marwaha S, Johanson S. Schizophrenia and employment. Soc Psychiatr Epidemiol 2004;39:337-49.