A thematic analysis of patient communication in Parkinson's disease online support group discussion forums

Computers in Human Behavior

Volumn 28, Issue 2, 2012, Pages 500-506

  Attard, Angelica ^a   Coulson, Neil S ^a  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

Author keywords

Online support groups; Parkinson's disease; Patient interaction; Thematic analysis

Indexed keywords

DATA-DRIVEN; DISCUSSION FORUM; GROUP DISCUSSIONS; HEALTH CONDITION; ON-LINE COMMUNICATION; ONLINE SUPPORT; PARKINSON'S DISEASE; PATIENT INTERACTION; PERSONAL INFORMATION; THEMATIC ANALYSIS;

COMMUNICATION;

NEURODEGENERATIVE DISEASES;

EID: 84855548084     PISSN: 07475632     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.chb.2011.10.022     Document Type: Article

References (36)

1. A. Barak, M. Boniel-Nissim, and J. Suler Fostering empowerment in online support groups Computers in Human Behavior 24 2008 1867 1883
2. D.O. Braithwaite, V.R. Waldron, and J. Finn Communication of social support in computer-mediated groups for people with disabilities Health Communication 11 1999 123 151
3. V. Braun, and V. Clarke Using thematic analysis in psychology Qualitative Research in Psychology 3 2006 77 101
4. British Psychological Society (2007). Report of the Working Party on Conducting Research on the Internet. Guidelines for ethical practice in psychological research online. < http://www.bps.org.uk/document-download- area/document-download$.cfm?file-uuid=2B3429B3-1143-DFD0-7E5A- 4BE3FDD763CC&ext=pdf > Retrieved 24.01.10.
5. H. Buchanan, and N.S. Coulson Accessing dental anxiety online support groups: An exploratory qualitative study of motives and experiences Patient Education and Counseling 66 2007 263 269 (Pubitemid 46729746)
6. G.S. Charlton, and C.J. Barrow Coping and self-help group membership in Parkinson's disease: An exploratory qualitative study Health and Social Care in the Community 10 2002 472 478 (Pubitemid 36844238)
7. N.S. Coulson, H. Buchanan, and A. Aubeeluck Social support in cyberspace. a content analysis of communication within a Huntington's disease online support group Patient Education and Counseling 68 2007 173 178 (Pubitemid 47375026)
8. C.K. Coursaris, and M. Liu An analysis of social support exchanges in online HIV/AIDS self-help groups Computers in Human Behavior 25 2009 911 918
9. J.N. Cummings, L. Sproull, and S.B. Kiesler Beyond hearing: Where real-world and online support meet Group Dynamics: Theory, Research, and Practice 6 2002 78 88 (Pubitemid 34232586)
10. K.P. Davison, J.W. Pennebaker, and S.S. Dickerson Who talks? The social psychology of illness support groups American Psychologist 55 2000 205 217
11. A. Esquivel, F. Meric-Bernstam, and E.V. Bernstam Accuracy and self correction of information received from an internet breast cancer list: Content analysis BMJ 332 2006 939 942 (Pubitemid 44365550)
12. J. Finn An exploration of helping processes in an online self-help group focusing on issues of disability Health and Social Work 24 1999 220 231
13. J.H. Friedman Making the connection between brain and behaviour: Coping with Parkinson's disease 2008 Demos Medical Publishing New York
14. J. Lamerichs Discourse of support: Exploring online discussion on depression 2003 Wageningen Universiteit Wageningen
15. M.A. Lieberman Effects of disease and leader type on moderators in online support groups Computers in Human Behavior 24 2008 2446 2455
16. M.A. Lieberman, A. Winzelberg, M. Golant, and M. Di Minno The impact of group composition on internet support groups: Homogeneous versus heterogeneous Parkinson's groups Group Dynamics: Theory, Research, and Practice 9 2005 239 250 (Pubitemid 43201592)
17. M.A. Lieberman, A. Winzelberg, M. Golant, M. Wakahiro, M. DiMinno, and M. Aminoff Online support groups for Parkinson's patients: A pilot study of effectiveness Social Work & Health Care 42 2005 23 38
18. S.H. Malik, and N.S. Coulson Computer-mediated infertility support groups: An exploratory study of online experiences Patient Education and Counseling 73 2008 105 113
19. S. Moore, and S. Knowles Beliefs and knowledge about Parkinson's disease E-Journal of Applied Psychology: Clinical and Social Issues 2 2006 15 21
20. G. Nijhof Parkinson's disease as a problem of shame in public appearance Sociology of Health and Illness 17 1995 193 205
21. Parkinson's UK. (2010). What is Parkinson's? < http://www.parkinsons. org.uk/about-parkinsons/what-is-parkinsons.aspx > Retrieved 12.03.10.
22. L.J. Phillips Dropping the bomb: The experience of being diagnosed with Parkinson's disease Geriatric Nursing 27 2006 362 369 (Pubitemid 44890902)
23. S.Z. Pirtosek The sadness behind the mask European Parkinson's Nurses Network Journal 10 2007 10 11
24. H.W.W. Potts Online support groups: An overlooked resource for patients Health Information on the Internet 44 2005 6 8
25. J. Preece Empathic communities: Balancing emotional and factual communication Interacting with Computers 12 1999 63 77 (Pubitemid 129592054)
26. J. Preece, B. Nonnecke, and D. Andrews The top five reasons for lurking: Improving community experiences for everyone Computers in Human Behavior 20 2004 201 223
27. M. Stanley-Hermanns, and J. Engebretson Sailing the stormy seas: The illness experience of persons with Parkinson's disease The Qualitative Report 15 2010 340 369
28. F. Sudweeks, and S. Rafaeli How to get a hundred strangers to agree? Computer-mediated communication and collaboration T.M. Harrison, T.D. Stephen, Computer networking and scholarship in the 21st century university 1996 SUNY Press New York 115 136
29. M. Trail, E.J. Protas, and E.C. Lai Neurorehabilitation in Parkinson's disease: An evidence-based treatment model 2008 Slack Incorporated Thorofare
30. A. Trojan Benefits of self-help groups: A survey of 232 members from 65 disease-related groups Social Science and Medicine 29 1989 225 232 (Pubitemid 19166087)
31. C.F. Uden-Kraan, C.H.C. Drossaert, E. Taal, C.E.I. Lebrun, K.W. Drossaers-Bakker, and W.M. Smit Coping with somatic illnesses in online support groups: Do the feared disadvantages actually occur? Computers in Human Behavior 24 2008 309 324
32. C.F. Uden-Kraan, C.H.C. Drossaert, E. Taal, B.R. Shaw, E.R. Seydel, and M.A.F.J. van de Laar Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia Qualitative Health Research 18 2008 405 417 (Pubitemid 351201349)
33. Voice and online pedagogy (n.d). An introduction to Wimba Voice Tools. < http://www.dit.ie/lttc/media/ditlttc/webcourses/ Voice%20&%20Online%20Pedagogy.pdf > Retrieved 01.10.11.
34. A. Winzelberg The analysis of an electronic support group for individuals with eating disorders Computers in Human Behaviour 13 1997 393 407 (Pubitemid 127403737)
35. E. Wressle, C. Engstrand, and A.K. Granérus Living with Parkinson's disease: Elderly patients' and relatives' perspective on daily living Australian Occupational Therapy Journal 54 2007 131 139
36. J. Wright Online counselling: Learning from writing therapy British Journal of Guidance & Counselling 30 2002 285 298