Rethinking risk and self-management for chronic illness

Social Theory and Health

Volumn 10, Issue 1, 2012, Pages 78-99

  Morden, Andrew ^a   Jinks, Clare ^a   Ong, Bie Nio ^a  

^a KEELE UNIVERSITY   (United Kingdom)

Author keywords

lay perspective The online version of this article is available Open Access; neo liberalism; policy; risk; self management

Indexed keywords

EID: 84855399790     PISSN: 14778211     EISSN: 1477822X     Source Type: Journal    
DOI: 10.1057/sth.2011.20     Document Type: Article

References (105)

1. Alaszewski, A. (2005) Risk communication: Identifying the importance of social context. Health, Risk & Society 7(2): 101-105. (Pubitemid 40796996)
2. Alaszewski, A., Alaszewski, H. and Potter, J. (2006) Risk, uncertainty and life threatening trauma: Analysing stroke survivor's accounts of life after stroke. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 7(1): Article 18, http://nbn-resolving.de/urn:nbn:de:0114-fqs0601189, accessed 7 January 2011.
3. Alaszewski, A. and Brown, P. (2007) Risk, uncertainty and knowledge. Health, Risk & Society 9(1): 1-10. (Pubitemid 46371944)
4. Alaszewski, A. and Coxon, K. (2008) The everyday experience of living with risk and uncertainty. Health, Risk & Society 10(5): 413-420.
5. Alaszewski, A. and Horlick-Jones, T. (2003) How can doctors communicate information about risk more effectively? BMJ 327: 728-731. (Pubitemid 37176758)
6. Armstrong, D. (1995) The rise of surveillance medicine. Sociology of Health & Illness 17(3): 393-404.
7. Balfe, M. (2007a) Alcohol, diabetes and the student body. Health, Risk & Society 9(3): 241-257. (Pubitemid 47272840)
8. Balfe, M. (2007b) Diets and discipline: The narratives of practice of university students with type 1 diabetes. Sociology of Health & Illness 29(1): 136-153.
9. Beck, U. (1992) Risk Society: Towards a New Modernity. London, UK: Sage.
10. Bendelow, G. (2009) Health, Emotion and the Body. Cambridge: Polity.
11. Bendelow, G.A. (2006) Pain, suffering & risk. Health, Risk & Society 8(1): 59-70.
12. Bendelow, G.A. and Williams, S.J. (1995) Transcending the dualisms: Towards a sociology of pain. Sociology of Health & Illness 17(2): 139-165.
13. Blaxter, M. (2004) Health (Key Concepts). Cambridge: Polity Press.
14. Bury, M. (1988) Meanings at risk: The experience of arthritis. In: R. Anderson and M. Bury (eds.) Living with Chronic Illness: The Experiences of Patients and Their Families. London, UK: Unwin, pp. 89-117.
15. Bury, M. (2000) On chronic disease and disability. In: C.E. Bird, P. Conrad and A.M. Fremont (eds.) Hand Book of Medical Sociology, 5th edn. New Jersey, PA: Prentice Hall.
16. Bury, M., Newbould, J. and Taylor, D. (2005) A Rapid Review of the Current State of Knowledge Regarding Lay-Led Self-Management of Chronic Illness. London, UK: National Institute for Health and Clinical Excellence.
17. Bury, M. and Taylor, D. (2008) Towards a theory of care transition: From medical dominance to managed consumerism. Social Theory & Health 6(3): 201-219.
18. Charmaz, K. (1983) Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health & Illness 5(2): 168-195.
19. Clarke, C.L. (2006) Risk and ageing populations: Practice developments research through an international research network. International Journal of Older People Nursing 1(3): 169-176.
20. Clarke, C.L. (2009) Risk and long-term conditions: The contradictions of self in society. Health, Risk & Society 11(4): 297-302.
21. Cruikshank, B. (1996) Revolutions within: Self-government and self-esteem. In: A. Barry, T. Osborne and N. Rose (eds.) Foucault and Political Reason. London, UK: UCL Press, pp. 231-253.
22. Davis, M., Rhodes, T. and Martin, A. (2004) Preventing hepatitis C: 'Common sense', 'the bug' and other perspectives from the risk narratives of people who inject drugs. Social Science & Medicine 59(9): 1807-1819.
23. Davison, C., Davey Smith, G. and Frankel, S. (1991) Lay epidemiology and the prevention paradox: Implications of coronary candidacy for health education. Sociology of Health & Illness 13(1): 1-19.
24. Davison, C., Frankel, S. and Davey Smith, G. (1992) The limits of lifestyle: Re-assessing : 'fatalism' in the popular culture of illness prevention. Social Science & Medicine 34(6): 675-685.
25. Dean, M. (1996) Foucault, government and the enfolding of authority. In: A. Barry, T. Osborne and N. Rose (eds.) Foucault and Political Reason. London, UK: UCL Print, pp. 209.
26. Dean, M. (1999a) Governmentality: Power and Rule in Modern Society. London, UK: Sage.
27. Dean, M. (1999b) Risk, calculable and incalculable. In: D. Lupton (ed.) Risk and Sociocultural Theory: New Perspectives and Directions. Cambridge: Cambridge University Press.
28. Department of Health. (2001a) The Expert Patient: A New Approach to Chronic Disease Management for the 21st Century. London, UK: Crown.
29. Department of Health. (2001b) National Service Framework for Diabetes. London, UK: Crown.
30. Department of Health. (2004) Choosing Health: Making Healthy Choices Easier. London, UK: The Stationary Office Ltd.
31. Department of Health. (2005) Self Care-A Real Choice. Self Care Support-A Practical Option. London: Crown.
32. Department of Health. (2006a) The Musculoskeletal Services Framework. A Joint Responsibility: Doing It Differently. London, UK: HMSO.
33. Department of Health. (2006b) Support for Self-care in General Practice and Urgent Care Settings. A Baseline Study, London: Crown.
34. Department of Health. (2006c) Supporting People with Long Term Conditions to Self Care. A Guide to Developing Local Strategies and Good Practice. London: Crown.
35. Department of Health. (2010) Equity and Excellence: Liberating the NHS. London: The Stationery Office Limited.
36. Douglas, M. (1986) Risk Acceptability According to the Social Sciences. London, UK: Routledge & Kegan Paul.
37. Douglas, M. (1992) Risk and Blame: Essays in Cultural Theory. London, UK: Routledge.
38. Edwards, C. and Imrie, R. (2003) Disability and bodies as bearers of value. Sociology 37(2): 239-257.
39. Fischer, B. and Poland, B. (1998) Exclusion, 'risk', and social control-reflections on community policing and public health. Geoforum 29(2): 187-198.
40. Flynn, R. (2006) Health and risk. In: G. Mythen and S. Walklate (eds.) Beyond the Risk Society: Critical Reflections on Risk and Human Security. Maidenhead, UK: Open University Press, pp. 77-95.
41. Furler, J. et al (2008) The emotional context of self-management in chronic illness: A qualitative study of the role of health professional support in the self-management of type 2 diabetes. BMC Health Services Research 8: 214.
42. Galvin, R.D. (2002) Disturbing notions of chronic illness and individual responsibility: Towards a genealogy of morals. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 6(2): 107-138.
43. Galvin, R.D. (2005) Researching the disabled identity: Contextualising the identity transformations which accompany the onset of impairment. Sociology of Health & Illness 27(3): 393-413. (Pubitemid 40880691)
44. Garrett, C. (2001) Sources of hope in chronic illness. Health Sociology Review 10(2): 99-107.
45. Giddens, A. (1991) Modernity and Self-Identity; Self and Society in the Late Modern Age. Cambridge: Polity Press.
46. Giddens, A. (1998) The Third Way: The Renewal of Social Democracy. Cambridge: Polity.
47. Gleeson, B. (1999) Geographies of Disability. London, UK: Routledge.
48. Graham, H. (1993) Hardship and Health in Women's Lives. London, UK: Harvester Wheatsheaf.
49. Green, J. (2009) Is it time for the sociology of health to abandon 'risk'? Health, Risk & Society 11(6): 493-508.
50. Greener, I. (2008) Expert patients and human agency: Long-term conditions and Giddens' structuration theory. Social Theory & Health 6(4): 273-290.
51. Greenhalgh, T (2009) Patient and public involvement in chronic illness: Beyond the expert patient. BMJ 49: 338.
52. Hallowell, N. and Lawton, J. (2002) Negotiating present and future selves: Managing the risk of hereditary ovarian cancer by prophylactic surgery. Health: an Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 6(4): 423-442.
53. Higginbottom, G.M. (2006a) 'Pressure of life': Ethnicity as a mediating factor in mid-life and older peoples' experience of high blood pressure. Sociology of Health & Illness 28(5): 583-610. (Pubitemid 44222242)
54. Higginbottom, G.M. (2006b) The use of herbal remedies in self care and the promotion of general well-being by individuals of African Caribbean origin with hypertension. Diversity in Health and Social Care 3(2): 99-110.
55. Hunter, D.J. (2003) Public Health Policy. Cambridge: Polity.
56. Joyce, P. (2001) Governmentality and risk: Setting new priorities in the NHS. Sociology of Health & Illness 23(5): 594-614.
57. Kelly, M.P. and Field, D. (1996) Medical sociology, chronic illness and the body. Sociology of Health & Illness 18(2): 241-257.
58. Kendall, E., Ehrlich, C., Sunderland, N., Muenchberger, H. and Rushton, C. (2011) Self-managing versus self-management: Reinvigorating the socio-political dimensions of self-management. Chronic Illness 7(1): 87-98.
59. Kendall, E. and Rogers, A. (2007) Extinguishing the social?: State sponsored self-care policy and the chronic disease self-management programme. Disability & Society 22(2): 129-144.
60. Kennedy, A. and Rogers, A. (2001) Improving self-management skills: A whole systems approach. British Journal of Nursing 10(11): 734-738.
61. Kennedy, A., Rogers, A. and Bower, P. (2007) Support for self care for patients with chronic disease. BMJ 335(7627): 968-970. (Pubitemid 350144663)
62. Kralik, D., Koch, T., Price, K. and Howard, N. (2004) Chronic illness self-management: Taking action to create order. Journal of Clinical Nursing 13(2): 259-267. (Pubitemid 38184158)
63. Lorig, K., Mazonson, P.D. and Holman, H. (1993) Evidence suggesting that health education for self management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis and Rheumatism 36(439): 446.
64. Lupton, D. (1999) Risk. London, UK: Routledge.
65. Lupton, D. (2006) Sociology and risk. In: G. Mythen and S. Walklate (eds.) Beyond the Risk Society. Maidenhead, UK: Open University Press, pp. 11-24.
66. Lupton, D. and Tulloch, J. (2002) 'Risk is part of your life': Risk epistemologies among a group of Australians. Sociology 36(2): 317-335.
67. Monaghan, L., Bloor, M., Dobash, R.P. and Dobash, R.E. (2000) Drug-taking, 'risk boundaries' and social identity: Bodybuilders' talk about ephedrine and nubain. Sociological Research Online 5(2), http://www. socresonline.org.uk/5/2/monaghan.html, accessed 7 January 2011.
68. Monaghan, L.F. (2002) Vocabularies of motive for illicit steroid use among bodybuilders. Social Science & Medicine 55(5): 695-709.
69. National Institute for Clinical Excellence. (2009) Type 1 Diabetes: Diagnosis and Management of Type 1 Diabetes in Children, Young People and Adults. London: National Institute for Clinical Excellence.
70. National Institute for Health and Clinical Excellence. (2008) Ostearthiritis: National Clinical Guideline for Care and Management in Adults. London, UK: Royal College of Physicians.
71. Nettleton, S. (2006) The Sociology of Health and Illness, 2nd edn. Cambridge: Polity Press.
72. O'Brien, R., Hunt, K. and Hart, G. (2009) 'The average Scottish man has a cigarette hanging out of his mouth, lying there with a portion of chips': Prospects for change in Scottish men's constructions of masculinity and their health-related beliefs and behaviours. Critical Public Health 19(3-4): 363-381.
73. O'Malley, P. (1996) Risk and responsibility. In: A. Barry, T. Osborne and N. Rose (eds.) Foucault and Political Reason. London, UK: UCL Press, pp. 189-208.
74. Ong, B.N. and Jinks, C. (2006) 'Walking like John Wayne': Open-format diaries of people with knee pain and disability. Chronic Illness 2(1): 21-26. (Pubitemid 44146063)
75. Paterson, B.L., Russell, C. and Thorne, S. (2001) Critical analysis of everyday self-care decision making in chronic illness. Journal of Advanced Nursing 35(3): 335-341. (Pubitemid 33603258)
76. Peterson, A. and Lupton, D. (1996) The New Public Health: Health and Self in the Age of Risk. London, UK: Sage.
77. Popay, J., Bennet, S., Thomas, C., Williams, G., Gattrel, A. and Bostock, L. (2003) Beyond 'beer, fags egg and chips'? Exploring lay understandings of social inequalities in health. Sociology of Health & Illness 25(1): 1-23. (Pubitemid 36782822)
78. Popay, J., Williams, G. and Gattrell, A. (1998) Theorising inequalities in health: The place of lay knowledge. Sociology of Health & Illness 20(5): 619-644.
79. Reventlow, S.D., Hvas, L. and Malterud, K. (2006) Making the invisible body visible. Bone scans, osteoporosis and women's bodily experiences. Social Science & Medicine 62(11): 2720-2731. (Pubitemid 44389403)
80. Rogers, A., Kennedy, A., Nelson, E. and Robinson, A. (2005) Uncovering the limits of patient-centredness: Implementing a self-management trial for chronic illness. Qualitative Health Research 15(2): 224-239. (Pubitemid 41358807)
81. Rogers, A., Lee, V. and Kennedy, A. (2007) Continuity and change?: Exploring reactions to a guided self-management intervention in a randomised controlled trial for IBS with reference to prior experience of managing a long term condition. Trials 8(6): 1-12.
82. Rose, N. (1996) Governing 'advanced' liberal democracies. In: A. Barry, T. Osborne and N. Rose (eds.) Foucault and Political Reason. London, UK: UCL Press, pp. 37-64.
83. Rose, N. (1999) Governing the Soul: The Shaping of the Private Self, 2nd edn. London, UK: Free Association Books.
84. Royer, A. (2000) Uncertainty: A key characteristic of chronic illness and a major problem for managed care. Health, Illness and the Use of Care 18(1): 269-286. (Pubitemid 33243386)
85. Sanders, C., Donovan, J. and Dieppe, P. (2002) The significance and consequences of having painful and disabled joints in older age: Co-existing accounts of normal and disrupted biographies. Sociology of Health & Illness 24(2): 227-253.
86. Scambler, G. (2002) Health and Social Change: A Critical Theory. Buckingham, UK: Open University Press.
87. Seear, K. (2009a) 'Nobody really knows what it is or how to treat it': Why women with endometriosis do not comply with healthcare advice. Health, Risk & Society 11(4): 367-385.
88. Seear, K. (2009b) 'Standing up to the beast': Contradictory notions of control, un/certainty and risk in the endometriosis literature. Critical Public Health 19(1): 45-58.
89. Taylor, D. and Bury, M. (2007) Chronic illness, expert patients and care transition. Sociology of Health & Illness 29(1): 27-45.
90. Thomas, C. (2007) Sociologies of Disability and Illness. Basingstoke, UK: Palgrave Macmillan.
91. Thorne, S., Paterson, B.L. and Russell, C. (2003) The structure of everyday self-care decision making. Qualitative Health Research 13(10): 1337-1352. (Pubitemid 44526590)
92. Tomkins, S. and Collins, A. (2005) Promoting Optimal Self Care. NHS Dorset and Somerset Health Authority.
93. Tulle, E. (2008) The ageing body and the ontology of ageing: Atheletic competence in later life. Body & Society 14(1): 1-18.
94. Tulloch, J. and Lupton, D. (2003) Risk and Everyday Life. London, UK: Sage.
95. Turner, B.S. (2008) The Body and Society: Explorations in Social Theory. Los Angeles, CA: Sage.
96. Wanless, D. (2004) Securing Good Health for the Whole of the Population. Final report, 2004. London, UK: HMSO.
97. Wilkinson, I. (2006) Health, risk and social suffering. Health, Risk & Society 8(1): 1-8.
98. Wilkinson, I. (2009) Risk, Vulnerability and Everyday Life. London, UK: Routledge.
99. Williams, S.J. (1999) Is anybody there? Critical realism, chronic illness and the disability debate. Sociology of Health & Illness 21(6): 797-819.
100. Wilson, P., Kendall, S. and Brooks, F. (2007) The expert patients programme: A paradox of patient empowerment and medical dominance. Health and Social Care in the Community 15(5): 426-439.
101. Yu, D.S., Lee, D.T., Kwong, A.N., Thompson, D.R. and Woo, J. (2008) Living with chronic heart failure: A review of qualitative studies of older people. Journal of Advanced Nursing 61(5): 474-483.
102. Zinn, J.O. (2004) Health, risk and uncertainty in the life course: A typology of biographical certainty constructions. Social Theory & Health 2(3): 199-222.
103. Zinn, J.O. (2005) The biographical approach: A better way to understand behaviour in health and illness. Health, Risk & Society 7(1): 1-9. (Pubitemid 40485274)
104. Zinn, J.O. (2008) Heading into the unknown: Everyday strategies for managing risk and uncertainty. Health, Risk & Society 10(5): 439-450.
105. Zinn, J.O. (2009) The sociology of risk and uncertainty: A response to Judith Green's 'Is it time for the sociology of health to abandon risk'. Health, Risk & Society 11(6): 509-526.