Informed consent and patient registry for the rare disease community: Editorial

Contemporary Clinical Trials

Volumn 33, Issue 1, 2012, Pages 3-4

  Grady, Christine ^a   Rubinstein, Yaffa R ^a   Groft, Stephen C ^a  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

Author keywords

Informed consent; Patient advocacy group; Patient registry; Rare disease; Rare disease community

Indexed keywords

CLINICAL RESEARCH; CLINICAL TRIAL (TOPIC); EDITORIAL; INFORMED CONSENT; MEDICAL ETHICS; MEDICAL INFORMATION; MEDICAL RESEARCH; PATIENT ADVOCACY; PATIENT CARE; PATIENT DECISION MAKING; PATIENT INFORMATION; PATIENT PARTICIPATION; PATIENT SELECTION; RARE DISEASE;

GUIDELINE ADHERENCE; HUMANS; INFORMED CONSENT; PATIENT ADVOCACY; RARE DISEASES; REGISTRIES;

EID: 84855344185     PISSN: 15517144     EISSN: 15592030     Source Type: Journal    
DOI: 10.1016/j.cct.2011.10.005     Document Type: Editorial

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