Evaluation of a hospital-based cancer information and support centre

Supportive Care in Cancer

Volumn 20, Issue 2, 2012, Pages 287-300

  Kinnane, Nicole A ^a  

^a PETER MACCALLUM CANCER CENTRE   (Australia)

Author keywords

Cancer; Information; Information prescription; Service delivery; Support

Indexed keywords

ACCESS TO INFORMATION; ADULT; AGED; AMBULATORY CARE NURSING; ATTITUDE TO HEALTH; CANCER INFORMATION AND SUPPORT CENTER; CANCER PATIENT; COMMUNITY HEALTH NURSING; CONSUMER ATTITUDE; CONTROLLED STUDY; FAMILY SERVICE; FEMALE; HEALTH CARE NEED; HEALTH SURVEY; HELP SEEKING BEHAVIOR; HOSPITAL INFORMATION SYSTEM; HUMAN; INFORMATION CENTER; INFORMATION SEEKING; INTERNET; MAJOR CLINICAL STUDY; MALE; NEEDS ASSESSMENT; PATIENT REFERRAL; PRIORITY JOURNAL; REVIEW; SELF CARE; SUPPORT GROUP;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CANCER CARE FACILITIES; FEMALE; HEALTH CARE SURVEYS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERNET; MALE; MIDDLE AGED; NEOPLASMS; PATIENT EDUCATION AS TOPIC; PEER GROUP; REFERRAL AND CONSULTATION; YOUNG ADULT;

EID: 84855187874     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-010-1071-y     Document Type: Review

References (44)

1. E Adams M Boulton E Watson 2009 The information needs of partners and family members of cancer patients: a systematic literature review Patient Educ Couns 77 179 186 19406609 10.1016/j.pec.2009.03.027
2. S Aranda P Schofield L Weih P Yates D Milne R Faulkner N Voudouris 2005 Mapping the quality of life and unmet meeds of urban women with metastatic breast cancer Eur J Cancer Care Engl 14 211 222 15952965 10.1111/j.1365-2354. 2005.00541.x 1:STN:280:DC%2BD2Mzgs1Sjsw%3D%3D (Pubitemid 40853709)
3. C Balmer 2005 The information requirements of people with cancer. Where to go after the 'patient information leaflet'? Cancer Nurs 28 36 44 15681980 10.1097/00002820-200501000-00005 (Pubitemid 40250623)
4. P Butow E Brindle D McConnell R Boakes M Tattersall 1998 Information booklets about cancer: factors influencing satisfaction and utilization Patient Educ Couns 33 129 141 9732653 10.1016/S0738-3991(97)00071-2 1:STN:280: DyaK1cvgtlSjtA%3D%3D (Pubitemid 28090060)
5. JH Chelf P Agre A Axelrod L Cheney DD Cole K Conrad S Hooper I Liu A Mercurio K Stepan L Villejo C Weaver 2001 Cancer-related patient education: an overview of the last decade of evaluation and research Oncol Nurs Forum 28 1139 1147 11517847 1:STN:280:DC%2BD3MvnsVKmtg%3D%3D
6. JH Chelf AMB Deshler KMB Thiemann AM Dose SK Quella S Hillman 2002 Learning and support preferences of adult patients with cancer at a comprehensive cancer centre Oncol Nurs Forum 29 862 867 10.1188/02.ONF.863-867
7. J Coleman SJ Olsen PK Sauter D Baker MB Hodgin C Stanfield A Emerling RH Hruban MT Nolan 2005 The effect of a frequently asked questions module on a pancreatic cancer web site patient family chat room Cancer Nurs 28 460 468 16330968 10.1097/00002820-200511000-00009 (Pubitemid 44378099)
8. J Corner 2008 For your information⋯. Nurs Manage 15 12 13
9. A Cornwall S Moore H Plant 2008 Embracing technology: patients', family members and nurse specialists' experience of communicating using email Eur J Oncol Nurs 12 198 208 18406667 10.1016/j.ejon.2007.09.008
10. Coulter A (2007) Evidence on effectiveness of strategies to improve patients' experience of cancer. Macmillan Cancer Support Cancer Reform Strategy Patient Experience Working Group, Oxford, Picker Institute Europe
11. A Coulter J Ellins 2007 Effectiveness of strategies for informing, educating and involving patients BMJ 335 24 27 17615222 10.1136/bmj.39246. 581169.80 (Pubitemid 47066902)
12. L Dodson R Bisnauth N James 2008 Information is power Nurs Manage 15 14 19
13. M Fitch 2000 Supportive care for cancer patients Hosp Q Summer 3 39 46 1:STN:280:DC%2BD3Mvjs1Giug%3D%3D
14. C Foster I Scott J Addington-Hall 2010 Who visits mobile UK services providing cancer information and support in the community? Eur J Cancer Care Engl 19 221 226 10.1111/j.1365-2354.2008.01007 19552731 10.1111/j.1365-2354. 2008.01007.x 1:STN:280:DC%2BC3czkvVGjsw%3D%3D
15. DH Gustafson R Hawkins S Pingree F Mc Tavish NK Arora J Medenhall DF Cella RC Serlin FM Apantaku J Stewart A Salner 2001 Effect of computer support on younger women with breast cancer J Gen Intern Med 16 435 445 11520380 10.1046/j.1525-1497.2001.016007435.x 1:STN:280:DC%2BD3MvnvFOqsA%3D%3D (Pubitemid 34208919)
16. D Hathaway 1986 Effect of preoperative instruction on postoperative outcomes: a meta-analysis Nurs Res 35 269 275 3638606 10.1097/00006199- 198609000-00004 1:STN:280:DyaL28zht12lsQ%3D%3D (Pubitemid 16016680)
17. N James H Daniels R Rahman C McConkey J Derry A Young 2007 A study of information seeking by cancer patients and their carers Clin Oncol 19 356 362 10.1016/j.c;on.2007.02.005 10.1016/j.clon.2007.02.005 1:STN:280: DC%2BD2szgtlemsQ%3D%3D (Pubitemid 46760595)
18. M Jefford MHN Tattersall 2002 Informing and involving cancer patients in their own care Lancet Oncol 3 629 637 12372725 10.1016/S1470-2045(02)00877-X (Pubitemid 35174681)
19. MJ Jones J Nyhof-Young A Friedman P Catton 2001 More than just a pamphlet: development of an innovative computer-based education program for cancer patients Patient Educ Couns 44 271 278 11553428 10.1016/S0738-3991(00) 00204-4 1:STN:280:DC%2BD3MrgsVSrtw%3D%3D (Pubitemid 32842868)
20. MA Lieberman M Golant J Giese-Davis A Winzlenberg H Benjamin K Humphreys C Kronenwetter S Russo D Spiegel 2003 Electronic support groups for breast carcinoma Cancer 97 920 925 12569591 10.1002/cncr.11145 (Pubitemid 36173143)
21. GM Leydon M Boulton C Moynihan A Jones J Mossman M Boudioni K McPherson 2000 Cancer patients' information needs and information seeking behaviour: in depth interview study BMJ 320 909 913 10.1136/bmj.320.7239.909 10742000 10.1136/bmj.320.7239.909 1:STN:280:DC%2BD3c3gs1Gjtg%3D%3D (Pubitemid 30182384)
22. S Lillis V Gibbons R Lawrenson 2010 The experience of final year medical students undertaking a general practice run with a distance education component Rural Remote Health 10 1268 20345189
23. DL Manning P Quigley 2002 Understanding the needs of people using an information service in Northern Ireland Eur J Cancer Care Engl 11 139 142 12099950 10.1046/j.1365-2354.2002.00299.x 1:STN:280:DC%2BD38zls12ktQ%3D%3D
24. DL Manning C Dickens 2006 Health literacy: more choice, but do cancer patients have the skills to decide? Eur J Cancer Care Engl 15 448 452 17177901 10.1111/j.1365-2354.2006.00687.x 1:STN:280:DC%2BD28jktVGktw%3D%3D (Pubitemid 44893372)
25. DL Manning C Dickens 2007 Cancer information and support centres: fixing the parts cancer drugs cannot reach Eur J Cancer Care Engl 16 33 38 10.1111/j.1365-2354.2006.00699 17227351 10.1111/j.1365-2354.2006.00699.x 1:STN:280:DC%2BD2s%2FjtVSitg%3D%3D
26. E McCaughan H McKenna 2007 Never-ending making sense: towards a substantive theory of the information-seeking behaviour of newly diagnosed cancer patients J Clin Nurs 16 2096 2104 10.1111/j.1365-2702.2006.01817.x 17331090 10.1111/j.1365-2702.2006.01817.x
27. ME McDowell S Occhipinti M Ferguson J Dunn SK Chambers 2010 Predictors of change in unmet supportive care needs in cancer Psychooncology 19 508 515 10.1002/pon.1604 19598292 10.1002/pon.1604 1:STN:280:DC%2BC3c3ptFOitw%3D%3D
28. ME Mills K Sullivan 1999 The importance of information giving for patients newly diagnosed with cancer: a review of the literature J Clin Nurs 8 631 642 10827609 10.1046/j.1365-2702.1999.00296.x 1:STN:280: DC%2BD3czosVKkug%3D%3D
29. ME Mills R Davidson 2002 Cancer patient's sources of information: use and quality issues Psychooncology 11 371 378 10.1002/pon.584 12228870 10.1002/pon.584
30. R Moody 2003 Overcoming barriers to delivering information to cancer patients Br J Nurs 12 1281 1287 14685119
31. SM Morris C Thomas 2001 The carers place in the cancer situation: where does the carer stand in the medical setting? Eur J Cancer Care Engl 10 87 95 11829054 10.1046/j.1365-2354.2001.00249.x 1:STN:280:DC%2BD38%2FpvFeqsA%3D%3D (Pubitemid 33699413)
32. SM Morris C Thomas 2002 The need to know: informal carers and information Eur J Cancer Care Engl 11 183 187 12296835 10.1046/j.1365-2354.2002.00337.x 1:STN:280:DC%2BD38vos1Kqtg%3D%3D
33. National Breast Cancer Centre and National Cancer Centre Control Initiative (2003) Clinical practice guidelines for the psycho-social care of adults with cancer. National Health and Medical Research, Camperdown N.S.W
34. S Roberts C Black K Todd 2002 The living with cancer education programme: II. Evaluation of an Australian education and support programme for cancer patients and their family and friends Eur J Cancer Care Engl 11 280 289 12492465 10.1046/j.1365-2354.2002.00317.x 1:STN:280:DC%2BD38jjtVCqsQ%3D%3D
35. S Roberts P Schoefield J Freeman D Hill D Akkerman A Rodger 2002 Bridging the information and support gap: evaluation of a hospital-based cancer support nurse service Patient Educ Couns 47 47 55 12023100 10.1016/S0738-3991(01)00174-4 (Pubitemid 34522086)
36. LJF Rutten NK Arora AD Bakos N Aziz J Rowland 2005 Information needs and sources of information among cancer patients: a systematic review of research (1980-2003) Patient Educ Couns 57 250 261 15893206 10.1016/j.pec.2004.06.006 (Pubitemid 40694003)
37. R Sanson-Fisher A Girgis A Boyes B Bonevski L Burton P Cook 2000 The unmet supportive care needs of patients with cancer Cancer 88 226 237 10618627 10.1002/(SICI)1097-0142(20000101)88:1<226::AID-CNCR30>3.0.CO;2-P 1:STN:280:DC%2BD3c%2Fos1OlsA%3D%3D
38. P Schofield M Jefford M Carey K Thomson M Evans C Baravelli S Aranda 2008 Preparing patients for threatening medical treatments: effects of a chemotherapy educational DVD on anxiety, unmet needs, and self-efficacy Support Care Cancer 16 37 45 17534670 10.1007/s00520-007-0273-4 (Pubitemid 350243758)
39. P Schofield J Diggens C Charleson R Marigliani M Jefford 2010 Effectively discussing complementary and alternative medicine in a conventional oncology setting: communication recommendations for clinicians Patient Educ Couns 79 143 151 19783116 10.1016/j.pec.2009.07.038
40. KA Skalla M Bakitas CT Furstenberg T Ahles JV Henderson 2004 Patients' need for information about cancer therapy Oncol Nurs Forum 31 313 319 15017447 10.1188/04.ONF.313-319
41. C Smith C Dickens S Edwards 2005 Provision of information for cancer patients: an appraisal and review Eur J Cancer Care Engl 14 282 288 15952974 10.1111/j.1365-2354.2005.00576.x 1:STN:280:DC%2BD2Mzgs1Sisg%3D%3D (Pubitemid 40853718)
42. G Sutherland L Hoey V White M Jefford S Hegarty 2008 How does a cancer education program impact on people with cancer and their family and friends? J Cancer Educ 23 126 132 18569249 10.1080/08858190802039177 (Pubitemid 351882908)
43. K Todd S Roberts C Black 2002 The living with cancer education programme: I. Development of an Australian education and support programme for cancer patients and their family and friends Eur J Cancer Care Engl 11 280 289 12492465 10.1046/j.1365-2354.2002.00317.x
44. Walther JB, Pingree S, Hawkins RP, Buller DB (2005) Attributes of interactive online health information systems. J Med Internet Res 7:e33 ( http//www.jmir.org/2005/7/e33/ doi: 10.2196/jmir.7.3.e33 ) (Pubitemid 41800627)