Awareness of direct-to-consumer genetic tests and use of genetic tests among Puerto Rican adults, 2009

Preventing Chronic Disease

Volumn 8, Issue 5, 2011, Pages

  Ortiz, Ana Patricia ^a   López, Magdalena ^b   Flores, Libertad T ^c   Soto Salgado, Marievelisse ^a   Rutten, Lila J Finney ^d   Serrano Rodriguez, Ruby A ^e   Hesse, Bradford W ^f   Tortolero Luna, Guillermo ^a  

^a UNIVERSITY OF PUERTO RICO   (Puerto Rico)

^b UNIVERSITY OF NORTH CAROLINA   (United States)

^c BROWN UNIVERSITY   (United States)

^d SAIC FREDERICK INC   (United States)

^e Puerto Rico Department of Health   (United States)

^f NATIONAL CANCER INSTITUTE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BIOTECHNOLOGY; CONSUMER HEALTH INFORMATION; FEMALE; GENETIC SCREENING; HUMAN; MALE; MARKETING; METHODOLOGY; MIDDLE AGED; PATIENT EDUCATION; PUERTO RICO; UTILIZATION REVIEW;

ADOLESCENT; ADULT; BIOTECHNOLOGY; CONSUMER HEALTH INFORMATION; FEMALE; GENETIC TESTING; HUMANS; MALE; MARKETING; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; PUERTO RICO; YOUNG ADULT;

EID: 84855178174     PISSN: 15451151     EISSN: 21665435     Source Type: Journal    
DOI: None     Document Type: Article

References (30)

1. Butler D. Human genome at ten: science after the sequence. Nature 2010;465(7301):1000-1.
2. Burke W. Genetic testing. N Engl J Med 2002;347(23):1867-75.
3. Chung WK. Implementation of genetics to personalize medicine. Gend Med 2007;4(3):248-65.
4. Robson ME, Storm CD, Weitzel J, Wollins DS, Offit K, American Society of Clinical Oncology. American Society of Clinical Oncology policy statement update: genetic and genomic testing for cancer susceptibility. J Clin Oncol 2010;28(5):893-901.
5. Durfy SJ, Bowen DJ, McTiernan A, Sporleder J, Burke W. Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in western Washington. Cancer Epidemiol SEPTEMBER 2011 Centers for Disease Control and Prevention. www.cdc.gov/pcd/issues/2011/sep/10_0220.htm The findings and conclusions in this report are those of the authors and do not necessarily represent the official of the Centers for Disease Control and Prevention Biomarkers Prev 1999;8(4 Pt 2):369-75.
6. Kinney AY, Choi YA, DeVellis B, Kobetz E, Millikan RC, Sandler RS. Interest in genetic testing among first-degree relatives of colorectal cancer patients. Am J Prev Med 2000;18(3):249-52.
7. Bottorff JL, Ratner PA, Balneaves LG, Richardson CG, McCullum M, Hack T, et al. Women's interest in genetic testing for breast cancer risk: the influence of sociodemographics and knowledge. Cancer Epidemiol Biomarkers Prev 2002;11(1):89-95.
8. Pagán JA, Su D, Li L, Armstrong K, Asch DA. Racial and ethnic disparities in awareness of genetic testing for cancer risk. Am J Prev Med 2009;37(6):524-30.
9. Wideroff L, Vadaparampil ST, Breen N, Croyle RT, Freedman AN. Awareness of genetic testing for increased cancer risk in the year 2000 National Health Interview Survey. Community Genet 2003;6(3):147-56.
10. Donovan KA, Tucker DC. Knowledge about genetic risk for breast cancer and perceptions of genetic testing in a sociodemographically diverse sample. J Behav Med 2000;23(1):15-36.
11. Kinney AY, Croyle RT, Dudley WN, Baley CA, Pelias MK, Neuhausen SL. Knowledge, attitudes, and interest in breast-ovarian cancer gene testing: a survey of a large African-American kindred with a BRCA1 mutation. Prev Med 2001;33:543-51.
12. Lacour RA, Daniels MS, Westin SN, Meyer LA, Burke CC, Burns KA, et al. What women with ovarian cancer think and know about genetic testing. Gynecol Oncol 2008;111(1):132-6.
13. Heck JE, Franco R, Jurkowski JM, Sheinfeld Gorin S. Awareness of genetic testing for cancer among United States Hispanics: the role of acculturation. Community Genet 2008;11(1):36-42.
14. Goddard KA, Moore C, Ottman D, Szegda KL, Bradley L, Khoury MJ. Awareness and use of direct-to-consumer nutrigenomic tests, United States, 2006. Genet Med 2007;9(8):510-17.
15. Goddard KA, Robitaille J, Dowling NF, Parrado AR, Fishman J, Bradley LA, et al. Health-related direct-to-consumer genetic tests: a public health assessment and analysis of practices related to Internet-based tests for risk of thrombosis. Public Health Genomics 2009;12(2):92-104.
16. Sterling R. The on-line promotion and sale of nutri-genomic services. Genet Med 2008;10(11):784-96.
17. Testimony before the Special Committee on Aging, US Senate. Nutrigenetic testing: tests purchased from four web sites mislead customers. US Government Accountability Office; 2006. http://www.gao.gov/new.items/d06977t.pdf. Accessed August 20, 2010.
18. Testimony before the Subcommittee on Oversight and Investigations, Committee on Energy and Commerce, House of Representatives. Direct-to-consumer genetic tests: misleading test results are further complicated by deceptive marketing and other questionable practices. US Government Accountability Office; 2010. http://www.gao.gov/new.items/d10847t.pdf. Accessed November 15, 2010.
19. Suther S, Kiros GE. Barriers to the use of genetic testing: a study of racial and ethnic disparities. Genet Med 2009;11(9):655-62.
20. Tortolero-Luna G, Finney Rutten LJ, Hesse BW, Davis T, Kornfeld J, Sanchez M, et al. Health and cancer information seeking practices and preferences in Puerto Rico: creating an evidence base for cancer communication efforts. J Health Commun 2010;15 Suppl 3:30-45.
21. Survey instruments. Health Information National Trends Survey. http://hints.cancer.gov/instrument.jsp. Accessed September 7, 2010.
22. Have you heard or read about any genetic tests? 2007 data. Health Information National Trends Survey. http://hints.cancer.gov/questions/question-details.jsp?qid=740&dataset=2007&method=combined. Accessed August 20, 2010.
23. Lee JA, Lustria MLA. Linking health information seeking, genetic testing and public awareness of the Genetic Information Nondiscrimination Act (GINA) in the US. Poster presented at: HINTS Data Users Conference; September 24-25, 2009; Silver Spring, MD.
24. Workshop summary. Direct to consumer (DTC) advertising of genetic tests. National Human Genome Research Institute; 2004. http://www.genome.gov/12010660. Accessed November 15, 2010.
25. Manolio TA. Genomewide association studies and assessment of the risk of disease. N Engl J Med 2010;363(2):166-76
26. Annes JP, Giovanni MA, Murray MF. Risks of presymptomatic direct-to-consumer genetic testing. N Engl J Med 2010;363(12):1100-1.
27. Vadaparampil ST, Wideroff L, Breen N, Trapido E. The impact of acculturation on awareness of genetic testing for increased cancer risk among Hispanics in the year 2000 National Health Interview Survey. Cancer Epidemiol Biomarkers Prev 2006;15(4):618-23.
28. Howe HL, Wu X, Ries LA, Cokkinides V, Ahmed F, Jemal A, et al. Annual report to the nation on the status of cancer, 1975-2003, featuring cancer among US Hispanic/Latino populations. Cancer 2006;107(8):1711-42.
29. Rotimi CN, Jorde LB. Ancestry and disease in the age of genomic medicine. N Engl J Med 2010;363(16):1551-8.
30. Health Information National Trends Survey 2007: final report. http://hints.cancer.gov/docs/HINTS2007FinalReport.pdf. Accessed August 20, 2010.