Hospital-based home care for children with cancer: A qualitative exploration of family members' experiences in Denmark

European Journal of Cancer Care

Volumn 21, Issue 1, 2012, Pages 59-66

  Hansson, H ^a   Kjaergaard H ^a   Schmiegelow, K ^b   Hallstrom I ^c  

^a Rigshospitalet   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

^c LUND UNIVERSITY   (Sweden)

Author keywords

Childhood cancer; Experience; Family; Hospital based home care; Qualitative

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD HEALTH CARE; DENMARK; FAMILY; FEMALE; HEALTH CARE QUALITY; HOME CARE; HUMAN; INFANT; MALE; MIDDLE AGED; NEOPLASM; ORGANIZATION AND MANAGEMENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STANDARD;

ADOLESCENT; ADULT; CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; DENMARK; FAMILY; FEMALE; HOME CARE SERVICES, HOSPITAL-BASED; HUMANS; INFANT; MALE; MIDDLE AGED; NEOPLASMS; QUALITY OF HEALTH CARE; QUESTIONNAIRES;

EID: 84155164693     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2011.01280.x     Document Type: Article

References (23)

1. Björk M., Wiebe T. & Hallström I. (2005) Striving to survive: families' lived experiences when a child is diagnosed with cancer. Journal of Pediatric Oncology Nursing 22, 265-275.
2. Björk M., Nordström B. & Hallström I. (2006) Needs of young children with cancer during their initial hospitalization: an observational study. Journal of Pediatric Oncology Nursing 23, 210-219.
3. Björk M., Wibe T. & Hallström I. (2009) An everyday struggle - Swedish families' lived experiences during a child's cancer treatment. Journal of Pediatric Nursing 24, 423-432.
4. Close P., Burkey E., Kazak A., Danz P. & Lange B. (1995) A prospective, controlled evaluation of home chemotherapy for children with cancer. Pediatrics 95, 896-900.
5. Cooper C., Wheeler D.M., Woolfenden S.R., Boss T. & Piper S. (2006) Specialist home-based nursing services for children with acute and chronic illnesses. Cochrane Database of Systematic Reviews (18), CD004383.
6. Frierdich S., Goes C. & Dadd G. (2003) Community and home care services provided to children with cancer: a report from the Children's Cancer Group Nursing Committee-Clinical Practice Group. Journal of Pediatric Oncology Nursing 20, 252-259.
7. Gibson F. & Twycross A. (2007) Royal College of Nursing's Research in Child Health Group, Children's and Young People's Rights and Ethics Group. Children's participation in research. Paediatric Nursing 19, 14-17.
8. Goldsmith D.M., Silverman L.B. & Safran C. (2002) Pediatric Cancer CareLink - supporting home management of childhood leukemia. Proceedings/AMIA...Annual Symposium. AMIA Symposium 4, 290-294.
9. Graneheim U.H. & Lundman B. (2004) Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24, 105-112.
10. Hallström I., Runesson I. & Elander G. (2002) Observed parental needs during their child's hospitalization. Journal of Pediatric Nursing 17, 140-148.
11. James K., Keegan-Wells D., Hinds P.S., Kelly K.P., Bond D., Hall B., Mahan R., Moore I.M., Roll L. & Speckhart B. (2002) The care of my child with cancer: parents' perceptions of caregiving demands. Journal of Pediatric Oncology Nursing 19, 218-228.
12. Kandsberger D. (2007) Factors influencing the successful utilization of home health care in the treatment of children and adolescents with cancer. Home Health Care Management and Practice 10, 450-455.
13. Kirk S. (2007) Methodological and ethical issues in conducting qualitative research with children and young people: a literature review. International Journal of Nursing Studies 44, 1250-1260.
14. Kirk S. & Glendinning C. (2004) Developing services to support parents caring for a technology-dependent child at home. Child: Care, Health and Development 30, 209-219.
15. McGrath P. (2001) Identifying support issues of parents of children with leukemia. Cancer Practice 9, 198-205.
16. National Association of Children's Hospitals and Related Institutions (NACHRI) Patient Care Oncology FOCUS Group (2000) Home care requirements for children and adolescents with cancer. Journal of Pediatric Oncology Nursing 17, 45-49.
17. Nolbris M., Enskär K. & Hellström A.L. (2007) Experience of siblings of children treated for cancer. European Journal of Oncology Nursing 11, 106-112.
18. Parker G., Bhakta P., Lovett C.A., Paisley S., Olsen R., Turner D. & Young B. (2002) A systematic review of the costs and effectiveness of different models of paediatric home care. Health Technology Assessment 6, iii-108.
19. Parker G., Bhakta P., Lovett C., Olsen R., Paisley S. & Turner D. (2006) Paediatric home care: a systematic review of randomized trials on costs and effectiveness. Journal of Health Services Research and Policy 11, 110-119.
20. Patton Q.M. (1990) Qualitative Evaluation and Research Methods, 2nd edn. Sage Publications, Newbury Park, CA, USA.
21. Stevens B., Croxford R., McKeever P., Yamada J., Booth M., Daub S., Gafni A. & Gammon J. (2006a) Hospital and home chemotherapy for children with leukemia: a randomized cross-over study. Pediatric Blood and Cancer 47, 285-292.
22. Stevens B., McKeever P., Law M.P., Booth M., Greenberg M., Daub S., Gammon J., Yamada J. & Epstein I. (2006b) Children receiving chemotherapy at home: perceptions of children and parents. Journal of Pediatric Oncology Nursing 23, 276-285.
23. Svavarsdottir E.K. (2005) Caring for a child with cancer: a longitudinal perspective. Journal of Advanced Nursing 50, 153-161.