Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care

Journal of Pediatric Oncology Nursing

Volumn 28, Issue 6, 2011, Pages 319-325

  Tomlinson, Deborah ^a   Hendershot, Eleanor ^a   Bartels, Ute ^a   Maloney, Anne Marie ^a   Armstrong, Christine ^a   Wrathall, Glynis ^a   Sung, Lillian ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

cancer; end of life; parent proxy report; quality of life

Indexed keywords

ARTICLE; CHILD; CROSS-SECTIONAL STUDY; DECISION MAKING; HUMAN; NEOPLASM; PALLIATIVE THERAPY; PARENT; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE;

CHILD; CROSS-SECTIONAL STUDIES; DECISION MAKING; HUMANS; NEOPLASMS; PALLIATIVE CARE; PARENTS; QUALITY OF LIFE;

EID: 84055214159     PISSN: 10434542     EISSN: 15328457     Source Type: Journal    
DOI: 10.1177/1043454211418666     Document Type: Article

References (20)

1. American Cancer Society. (2007). Cancer facts & figures. Retrieved from http://www.cancer.org/acs/groups/content/@nho/documents/document/caff2007pwsecuredpdf.pdf.
2. Barrera M.,D'Agostino N.,Gammon J.,Spencer L.,Baruchel S.Health-related quality of life and enrollment in phase 1 trials in children with incurable cancer.Palliative & Supportive Care. 2005;3:191-196.
3. Chesler M. A.,Parry C.Gender roles and/or styles in crisis: An integrative analysis of the experiences of fathers of children with cancer.Qualitative Health Research. 2001;11:363-384.
4. Colton T.Statistics in medicine. Boston, MA: Little, Brown; 1974:.
5. Craft A. W.Childhood cancer-Mainly curable so where next?.Acta Paediatrica. 2000;89:386-392.
6. da Silva F. M.,Jacob E.,Nascimento L. C.Impact of childhood cancer on parents' relationships: An integrative review.Journal of Nursing Scholarship. 2010;42:250-261.
7. Edwards K. E.,Neville B. A.,Cook E. F.,Aldridge S. H.,Dussel V.,Wolfe J.Understanding of prognosis and goals of care among couples whose child died of cancer.Journal of Clinical Oncology. 2008;26:1310-1315.
8. Eiser C.,Eiser J. R.Mothers' ratings of quality of life in childhood cancer: Initial optimism predicts improvement over time.Psychology & Health. 2007;22:535-543.
9. Fields M. F.,Behrman R. E.When children die: Improving palliative and end-of-life care for children and their families. Washington, DC: National Academies Press; 2003:.
10. Hays R. M.,Valentine J.,Haynes G.,Geyer J. R.,Villareale N.,McKinstry B.,Churchill S. S.The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life.Journal of Palliative Medicine. 2006;9:716-728.
11. Health Canada. (1999). Cancer mortality. Retrieved from http://www.hc-sc.gc.ca/pphb-dgspsp/publicat/meas-haut/mu_i_e.html.
12. Kamps W. A.,Akkerboom J. C.,Kingma A.,Humphrey G. B.Experimental chemotherapy in children with cancer-A parent's view.Pediatric Hematology and Oncology. 1987;4:117-124.
13. Masera G.,Spinetta J. J.,Jankovic M.,Ablin A. R.,D'Angio G. J.,Van Dongen-Melman J.,Chesler M. A.Guidelines for assistance to terminally ill children with cancer: A report of the SIOP Working Committee on psychosocial issues in pediatric oncology.Medical Pediatric and Oncology. 1999;32:44-48.
14. Poder U.,Ljungman G.,von Essen L.Parents' perceptions of their children's cancer-related symptoms during treatment: A prospective, longitudinal study.Journal of Pain and Symptom Management. 2010;40:661-670.
15. Tomlinson D.,Bartels U.,Hendershot E.,Constantin J.,Wrathall G.,Sung L.Challenges to participation in paediatric palliative care research: A review of the literature.Palliative Medicine. 2007;21:435-440.
16. Tomlinson D.,Capra M.,Gammon J.,Volpe J.,Barrera M.,Hinds P. S.,Sung L.Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input.European Journal of Oncology Nursing. 2006;10:198-206.
17. Tomlinson D.,Hinds P. S.,Bartels U.,Hendershot E.,Sung L.Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure.Journal of Clinical Oncology. 2011;29:639-645.
18. Varni J. W.,Burwinkle T. M.,Katz E. R.,Meeske K.,Dickinson P.The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module.Cancer. 2002;94:2090-2106.
19. Varni J. W.,Katz E. R.,Seid M.,Quiggins D. J.,Friedman-Bender A.The pediatric cancer quality of life inventory-32 (PCQL-32): I. Reliability and validity.Cancer. 1998;82:1184-1196.
20. Yeh C. H.Gender differences in the use of coping strategies among Taiwanese parents whose children have cancer.Cancer Nursing. 2004;27:100-107.