Coping with pediatric cancer: Strategies employed by children and their parents to manage cancer-related stressors during treatment

Journal of Pediatric Oncology Nursing

Volumn 28, Issue 6, 2011, Pages 344-354

  Hildenbrand, Aimee K ^a   Clawson, Kathleen J ^a   Alderfer, Melissa A ^a,b   Marsac, Meghan L ^a  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

cancer related stressors; coping; parent coping assistance; pediatric cancer

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; CHILD; FEMALE; HUMAN; MALE; MENTAL STRESS; NEOPLASM; PARENT; PSYCHOLOGICAL ASPECT;

ADAPTATION, PSYCHOLOGICAL; ADULT; CHILD; FEMALE; HUMANS; MALE; NEOPLASMS; PARENTS; STRESS, PSYCHOLOGICAL;

EID: 84055214151     PISSN: 10434542     EISSN: 15328457     Source Type: Journal    
DOI: 10.1177/1043454211430823     Document Type: Article

References (59)

1. Aldridge A.,Roesch S.Coping and adjustment in children with cancer: A meta-analytic study.Journal of Behavioral Medicine. 2007;30:115-129.
2. American Cancer Society. (2010). Childhood leukemia: Detailed guide. Retrieved from http://www.cancer.org/Cancer/LeukemiainChildren/DetailedGuide/index.
3. Armstrong D.,Gosling A.,Weinman J.,Marteau T.The place of inter-rater reliability in qualitative research: An empirical study.Sociology-The Journal of the British Sociological Association. 1997;31:597-606.
4. Armstrong F. D.,Horn M.Educational issues in childhood cancer.School Psychology Quarterly. 1995;10:292-304.
5. Barrera M.,Schulte F.A group social skills intervention program for survivors of childhood brain tumors.Journal of Pediatric Psychology. 2009;34:1108-1118.
6. Bauld C.,Anderson V.,Arnold J.Psychosocial aspects of adolescent cancer survival.Journal of Paediatrics and Child Health. 1998;34:120-126.
7. Blount R. L.,Corbin S. M.,Sturges J. W.,Wolfe V. V.,Prater J. M.,James L. D.The relationship between adults behavior and child coping and distress during Bma Lp procedures-A sequential-analysis.Behavior Therapy. 1989;20:585-601.
8. Blount R. L.,Landolf-Fritsche B.,Powers S. W.,Sturges J. W.Differences between high and low coping children and between parent and staff behaviors during painful medical procedures.Journal of Pediatric Psychology. 1991;16:795-809.
9. Bowen G. A.Naturalistic inquiry and the saturation concept: A research note.Qualitative Research. 2008;8:137-152.
10. Briggs-Gowan M. J.,Carter A. S.,Schwab-Stone M.Discrepancies among mother, child, and teacher reports: Examining the contributions of maternal depression and anxiety.Journal of Abnormal Child Psychology. 1996;24:749-765.
11. Bryant R.Managing side effects of childhood cancer treatment.Journal of Pediatric Nursing. 2003;18:113-125.
12. Chelser M. A.,Barbarin O. A.Childhood cancer and the family: Meeting the challenge of stress and support. New York, NY: Brunner/Mazel; 1986:.
13. Cohen M. S.Families coping with childhood chronic illness: A research review.Families, Systems, & Health. 1999;17:149-164.
14. Collins J. J.,Byrnes M.,Dunkel I.,Lapin J.,Nadel T.,Thaler H., Portenoy R. K.The measurement of symptoms in children with cancer.Journal of Pain and Symptom Management. 2000;19:363-377.
15. Dahlquist L. M.,Power T. G.,Carlson L.Physician and parent behavior during invasive pediatric cancer procedures: relationships to child behavioral distress.Journal of Pediatric Psychology. 1995;20:477-490.
16. Dahlquist L. M.,Shroff Pendley J.,Power T. G.,Landthrip D. S.,Jones C. L.,Steuber C. P.Adult command structure and children's distress during the anticipatory phase of invasive cancer procedures.Children's Health Care. 2001;30:151-167.
17. Eiser C.,Eiser J. R.,Stride C. B.Quality of life in children newly diagnosed with cancer and their mothers.Health and Quality Life Outcomes. 2005;3:29.
18. Fraser D. F. G.Strangers in their own land: Friendship issues when children have cancer.Journal of Research in Special Educational Needs. 2003;3:147-153.
19. Gibbs G. R.Qualitative data analysis: Explorations with NVivo. Buckingham, England: Open University Press; 2002:.
20. Griffiths M.,Schweitzer R.,Yates P.Childhood experiences of cancer: An interpretative phenomenological analysis approach.Journal of Pediatric Oncology Nursing. 2011;28:83-92.
21. Hedstrom M.,Haglund K.,Skolin I.,von Essen L.Distressing events for children and adolescents with cancer: Child, parent, and nurse perceptions.Journal of Pediatric Oncology Nursing. 2003;20:120-132.
22. Houtzager B.,Grootenhuis M.,Caron H.,Last B.Quality of life and psychological adaption in siblings of pediatric cancer patients, 2 years after diagnosis.Psycho-Oncology. 2003;13:499-511.
23. Hruschka D. J.,Schwartz D.,St. John D. C.,Picone-Decaro E.,Jenkins R. A.,Care J. W.Reliability in coding open-ended data: Lessons learned from HIV behavioral research.Field Methods. 2004;16:307-333.
24. Kazak A. E.,Boeving C. A.,Alderfer M. A.,Hwang W. T.,Reilly A.Posttraumatic stress symptoms during treatment in parents of children with cancer.Journal of Clinical Oncology. 2005;23:7405-7410.
25. Kazak A. E.,Rourke M.,Alderfer M.,Pai A.,Reilly A.,Meadows A.Evidence-based assessment, intervention and psychosocial care in pediatric oncology: A blueprint for comprehensive services across treatment.Journal of Pediatric Psychology. 2007;32:1099-1110.
26. Kazak A. E.,Simms S.,Rourke M. T.Family systems practice in pediatric psychology.Journal of Pediatric Psychology. 2002;27:133-143.
27. Klosky J.,Tyc V. L.,Tong X.,Srivastava D.,Kronenberg M.,de Armendi A., Merchant T. E.Predicting pediatric distress during radiation therapy procedures: The role of medical, psychosocial, and demographic factors.Pediatrics. 2007;119:e1159-e1166.
28. Koch A."If only it could be me": The families of pediatric cancer patients.Family Relations. 1985;34 (1): 63-70.
29. Kuppenheimer W. G.,Brown R. T.Painful procedures in pediatric cancer. A comparison of interventions.Clinical Psychology Review. 2002;22:753-786.
30. Kupst, M. J. (1994). Coping with pediatric cancer: Theoretical and research perspectives. In D. J. Bearison & R. K. Mulhern (Eds.), Pediatric psychooncology: Psychological perspectives on children with cancer (pp. 35-60). New York, NY: Oxford University Press.
31. Kupst M. J.,Schulman J. L.Long-term coping with pediatric leukemia: A six-year follow-up study.Journal of Pediatric Psychology. 1988;13 (1): 7-22.
32. Lahteenmaki P. M.,Huostila J.,Hinkka S.,Salmi T. T.Childhood cancer patients at school.European Journal of Cancer. 2002;38:1227-1240.
33. LaMontagne L. L.,Wells N.,Hepworth J. T.,Johnson B. D.,Manes R.Parent coping and child distress behaviors during invasive procedures for childhood cancer.Journal of Pediatric Oncology Nursing. 1999;16:3-12.
34. Landolt M.,Vollrath M.,Niggli F.,Gnehm H.,Sennhauser F.Health-related quality of life in children with newly diagnosed cancer: A one year follow-up study.Health and Quality of Life Outcomes. 2006;4:63.
35. Ljungman G.,Gordh T.,Sorensen S.,Kreuger A.Pain in paediatric oncology: Interviews with children, adolescents and their parents.Acta Paediatrica. 1999;88:623-630.
36. Miller K.,Vannatta K.,Compas B.,Vasey M.,McGoron K.,Salley C., Gerhardt C. A.The role of coping and temperament in the adjustment of children with cancer.Journal of Pediatric Psychology. 2009;34:1135-1143.
37. Miller P. A.,Kliewer W.,Hepworth J. T.,Sandler I. N.Maternal socialization of children's postdivorce coping: Development of a measurement model.Journal of Applied Developmental Psychology. 1994;15:457-487.
38. Padgett D.Qualitative methods in social work research. 2008). Qualitative methods in social work research (2nd ed.). Thousand Oaks, CA: Sage.Thousand Oaks, CA: Sage; 2008:.
39. Pai A.,Lewandowski A.,Younstrom E.,Greenley R.,Drotar D.,Peterson C.A meta-analytic review of the influence of pediatric cancer on parent and family functioning.Journal of Family Psychology. 2007;21:407-415.
40. Patenaude A. F.,Kupst M. J.Psychosocial functioning in pediatric cancer.Journal of Pediatric Psychology. 2005;30 (1): 9-27.
41. Patino-Fernandez A. M.,Pai A. L. H.,Alderfer M.,Hwang W. T.,Reilly A.,Kazak A. E.Acute stress in parents of children newly diagnosed with cancer.Pediatric Blood & Cancer. 2008;50:289-292.
42. Patterson J.,Holm K.,Gurney J.The impact of childhood cancer on the family: A qualitative analysis of strains, resources, and coping behaviors.Psycho-Oncology. 2004;13:390-407.
43. Patton M. Q.Qualitative research & evaluative methods. 2002). Qualitative research & evaluative methods (3rd ed.). Thousand Oaks, CA: Sage.Thousand Oaks, CA: Sage; 2002:.
44. Phipps S.,Fairclough D.,Mulhern R. K.Avoidant coping in children with cancer.Journal of Pediatric Psychology. 1995;20:217-232.
45. Power T. G.Stress and coping in childhood: The parents' role.Parenting-Science and Practice. 2004;4:271-317.
46. Prinstein M. J.,LaGreca A. M.,Vernberg E. M.,Silverman W. K.Children's coping assistance: How parents, teachers, and friends help children cope after a natural disaster.Journal of Clinical Child Psychology. 1996;25:463-475.
47. SEER cancer statistics review, 1975-2004. Ries L.Melbert D.Krapcho M.Mariotto A.Miller B.Feuer E. Edwards B. K., ed. Bethesda, MD: National Cancer Institute; 2007:.
48. Roth S.,Cohen L. J.Approach, avoidance, and coping with stress.American Psychologist. 1986;41:813-819.
49. Sanger M. S.,Copeland D. R.,Davidson E. R.Psychosocial adjustment among pediatric cancer patients: A multidimensional assessment.Journal of Pediatric Psychology. 1991;16:463-474.
50. Schmidt S.,Petersen C.,Bullinger M.Coping with chronic disease from the perspective of children and adolescents-A conceptual framework and its implications for participation.Child: Care, Health and Development. 2003;29 (1): 63-75.
51. Skinner E. A.,Zimmer-Gembeck M. J.The development of coping.Annual Review of Psychology. 2007;58:119-144.
52. Stuber M. L.,Kazak A. E.,Meeske K.,Barakat L.,Guthrie D.,Garnier H.,Meadows A.Predictors of posttraumatic stress symptoms in childhood cancer survivors.Pediatrics. 1997;100:958-964.
53. Trask P. C.,Paterson A. G.,Trask C. L.,Bares C. B.,Birt J.,Maan C.Parent and adolescent adjustment to pediatric cancer: Associations with coping, social support, and family function.Journal of Pediatric Oncology Nursing. 2003;20:36-47.
54. Treutler C. M.,Epkins C. C.Are discrepancies among child, mother, and father reports on children's behavior related to parents' psychological symptoms and aspects of parent-child relationships?.Journal of Abnormal Child Psychology. 2003;31 (1): 13-27.
55. Vance Y.,Eiser C.Caring for a child with cancer-A systematic review.Pediatric Blood & Cancer. 2004;42:249-253.
56. Vance Y. H.,Morse R. C.,Jenney M. E.,Eiser C.Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health.Journal of Child Psychology and Psychiatry. 2001;42:661-667.
57. Varni J. W.,Katz E. R.,Colegrove R.,Dolgin M.Perceived social support and adjustment of children with newly diagnosed cancer.Journal of Developmental & Behavioral Pediatrics. 1994;15 (1): 20-26.
58. Woodgate R. L.,Degner L. F.,Yanofsky R.A different perspective to approaching cancer symptoms in children.Journal of Pain and Symptom Management. 2003;26:800-817.
59. Zhang A. Y.,Siminoff L. A.Silence and cancer: Why do families and patients fail to communicate?.Health Communication. 2003;15:415-429.