"Please don't tell me": The right not to know

Cambridge Quarterly of Healthcare Ethics

Volumn 21, Issue 1, 2012, Pages 20-29

  Herring, Jonathan ^a   Foster, Charles ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD; DECEPTION; DECISION MAKING; DOCTOR PATIENT RELATION; ETHICS; EUROPE; GENETIC PRIVACY; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; LEGAL ASPECT; MEDICOLEGAL ASPECT; MENTAL STRESS; PATIENT RIGHT; PERSONAL AUTONOMY; PRIVACY; PSYCHOLOGICAL ASPECT; TRUST; UNITED KINGDOM; UNITED NATIONS; UNITED STATES; WORLD HEALTH ORGANIZATION;

CHILD; CHOICE BEHAVIOR; DECEPTION; EUROPE; GENETIC PRIVACY; GREAT BRITAIN; HUMANS; INTERPERSONAL RELATIONS; LEGISLATION, MEDICAL; PATIENT RIGHTS; PERSONAL AUTONOMY; PHYSICIAN-PATIENT RELATIONS; PRIVACY; STRESS, PSYCHOLOGICAL; TRUST; TRUTH DISCLOSURE; UNITED NATIONS; UNITED STATES; WORLD HEALTH ORGANIZATION;

EID: 84055211914     PISSN: 09631801     EISSN: 14692147     Source Type: Journal    
DOI: 10.1017/S0963180111000466     Document Type: Article

References (34)

1. Chadwick R, Levitt M, Shickle D, eds. The Right to Know and the Right Not to Know. Aldershot: Avebury; 1997
2. Andorno R. The right not to know: An autonomy based approach. Journal of Medical Ethics 2004;30:435-9.
3. World Health Organization. Guidelines on Ethical Issues in Medical Genetics and the Provision of Genetic Services. Geneva: World Health Organization; 1997, at 2.
4. See Foster C. Autonomy should chair, not rule. The Lancet 2010;375(9712):368-9 For further examples.
5. See note 3, Foster 2010.
6. See note 1, Andorno 2004.
7. Foster C. Choosing Life, Choosing Death: The Tyranny of Autonomy in Medical Ethics and Law. Oxford: Hart; 2009, at chapter 1.
8. Turner C. The burden of knowledge. Georgia Law Review 2009;43:297-366.
9. See note 7, Turner 2009.
10. Wilson J. To know or not to know? Genetic ignorance, autonomy and paternalism. Bioethics 2005;19:492-504. (Pubitemid 41527505)
11. Laurie G. Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge: Cambridge University Press; 2002, at 255-74.
12. See note 10, Laurie 2002.
13. See note 10, Laurie 2002:274.
14. See note 7, Turner 2009.
15. Suter S. Disentangling privacy from property. George Washington Law Review 2004;72:737-814.
16. See note 14, Suter 2004.
17. Sperling S. Knowledge rites and the right not to know. PoLAR 2007;269-85, at 282.
18. American Medical Association. Code of Medical Ethics, Opinion 8.08, Informed Consent. Washington, DC: American Medical Council; 2006; available at http://www.ama-assn.org/ama/pub/physicianresources/medical-ethics/ code-medical-ethics/opinion808.page.
19. General Medical Council. Consent: Patients and Doctors Making Decisions Together. London: General Medical Council; 2008, at paras. 14-15.
20. See note 6, Foster 2010:368.
21. Fortin J. Children's rights to know their origins-too far, too fast? Child and Family Law Quarterly 2009;21:336-55.
22. Re T (Paternity: Ordering Blood Tests) [2001] 2 Family Law Reports 1190.
23. Smart C. Family secrets: Law and understandings of openness in everyday relationships. Journal of Social Policy 2009;38:551-67, at 558.
24. See note 20, Fortin 2009.
25. Harris J, Keywood K. Ignorance, information and autonomy. Theoretical Medicine 2001;22:415-36. (Pubitemid 34036706)
26. Rhodes R. Genetic links, family ties and social bonds: Rights and responsibilities in the face of genetic knowledge. Journal of Medicine and Philosophy 1998;23:10-30, at 18. (Pubitemid 128670816)
27. See note 10, Laurie 2002.
28. Raikkia J. Freedom and a right (not) to know. Bioethics 1998;12:49-63.
29. See note 25, Rhodes 1998.
30. E.g., Asscher E, Koops B-J. Genetic diagnosis for Huntington's disease: The right not to know and pre-implantation genetic testing. Journal of Medical Ethics 2010;36:30-3.
31. See note 14, Suter 2004.
32. Gilbar R. Communicating genetic information in the family: The familial relationship as the forgotten factor. Journal of Medical Ethics 2007;33:390-3.
33. See note 31, Gilbar 2007:393.
34. General Medical Council. Confidentiality. London: General Medical Council; 2009.