Care Coordination in the Spina Bifida Clinic Setting: Current Practice and Future Directions

Journal of Pediatric Health Care

Volumn 26, Issue 1, 2012, Pages 16-26

  Brustrom, Jennifer ^a   Thibadeau, Judy ^b   John, Lisa ^a   Liesmann, Jaime ^a   Rose, Shyanika ^a  

^a BATTELLE MEMORIAL INSTITUTE   (United States)

^b CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

Author keywords

Care coordination; Spina bifida

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHILD; COUNSELING; FAMILY; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NURSE ADMINISTRATOR; NURSE PATIENT RELATIONSHIP; ORGANIZATION AND MANAGEMENT; OUTPATIENT DEPARTMENT; PATIENT CARE; PATIENT REFERRAL; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; SPINAL DYSRAPHISM; UNITED STATES;

ADOLESCENT; ADULT; AMBULATORY CARE FACILITIES; CAREGIVERS; CHILD; CHILD, PRESCHOOL; COMMUNICATION; COUNSELING; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NURSE ADMINISTRATORS; NURSE-PATIENT RELATIONS; PATIENT CARE TEAM; REFERRAL AND CONSULTATION; SPINAL DYSRAPHISM; UNITED STATES; YOUNG ADULT;

EID: 83555177390     PISSN: 08915245     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedhc.2010.06.003     Document Type: Article

References (12)

1. Brei T.J. The future of the multidisciplinary clinic. Scientific World Journal: TSW Urology 2007, 7:1752-1756. 10.1100/tsw.2007.254.
2. Bunch W.H., Cass A.S., Bensman A.S., Long D.M. Modern management of myelomeningocele 1972, Warren H. Green, St. Louis, MO.
3. Caldado E., Loff C. The "failures" of spina bifida transdisciplinary care. European Journal of Pediatric Surgery- Short Reports 2002, 12:S51-S52.
4. Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities. (2007). October is spina bifida awareness month. Retrieved from http://www.cdc.gov/features/spinabifida.
5. Dunleavy M.J. The role of the nurse coordinator in spina bifida clinics. Scientific World Journal: TSW Urology 2007, 7:1884-1889. 10.1100/tsw.2007.305.
6. Kinsman S.L., Levey E., Ruffing V., Stone J., Warren L. Beyond multidisciplinary care: A new conceptual model for spina bifida services. European Journal of Pediatric Surgery 2000, 10(suppl 1):35-38.
7. Lindeke L.L., Leonard B.J., Presler B., Garwick A. Family-centered care coordination for children with special needs across multiple settings. Journal of Pediatric Health Care 2002, 16:290-297.
8. Guidelines for spina bifida health care services throughout the life span 2006, Spina Bifida Association Professional Advisory Council, Washington, DC. 3rd ed. M.J. Merkens (Ed.).
9. Palfrey J.S., Sofis L.A., Davidson E.J., Liu J., Freeman L., Ganz M.L. The pediatric alliance for coordinated care: Evaluation of a medical home model. Pediatrics 2004, 113:1507-1516.
10. The Patient Protection and Affordable Care Act, H.R. 3590 (Public Law 111-148) (2010).
11. Presler B. Care coordination for children with special health care needs. Orthopaedic Nursing 1998, 17:45-48.
12. Spina Bifida Association. (2010). Spina bifida clinics. Retrieved from http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2663669/k.690A/Spina_Bifida_Clinics.htm.