A pan-European survey of research in end-of-life cancer care

Supportive Care in Cancer

Volumn 20, Issue 1, 2012, Pages 39-48

  Sigurdardottir, Katrin Ruth ^a,b,c   Haugen, Dagny Faksvåg ^a,c   Bausewein, Claudia ^d   Higginson, Irene J ^d   Harding, Richard ^d   Rosland, Jan Henrik ^b,e   Kaasa, Stein ^a,f  

^a NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

^b Haraldsplass Deaconess Hospital   (Norway)

^c HAUKELAND UNIVERSITY HOSPITAL   (Norway)

^d KING'S COLLEGE LONDON   (United Kingdom)

^e UNIVERSITY OF BERGEN   (Norway)

^f TRONDHEIM UNIVERSITY HOSPITAL   (Norway)

Author keywords

Europe; Neoplasms; Palliative care; Research; Survey; Terminal care

Indexed keywords

ADULT; AGED; CACHEXIA; CANCER MORTALITY; CANCER PALLIATIVE THERAPY; CANCER RESEARCH; CONTROLLED STUDY; EUROPE; FATIGUE; FEMALE; HEALTH CARE SURVEY; HUMAN; INTERNATIONAL COOPERATION; JOURNAL IMPACT FACTOR; MALE; OUTCOME ASSESSMENT; PAIN ASSESSMENT; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RESEARCH PRIORITY; REVIEW; TERMINAL CARE; TREATMENT PLANNING;

ADULT; AGED; CROSS-SECTIONAL STUDIES; EUROPE; FEMALE; HUMANS; INTERNET; JOURNAL IMPACT FACTOR; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; PERIODICALS AS TOPIC; QUESTIONNAIRES; RESEARCH; RESEARCH DESIGN; TERMINAL CARE;

EID: 83555172634     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-010-1048-x     Document Type: Review

References (28)

1. World Health Organization/UICC (2003) Global action against cancer. World Health Organization/UICC, Geneva
2. Higginson IJ, Costantini M (2008) Dying with cancer, living well with advanced cancer. Eur J Cancer 44:1414-1424
3. The European Association for Palliative Care Research Network (EAPC RN). Available at: http://www.eapcnet.org/. Accessed 25 June 2010
4. Kaasa S, Radbruch L (2008) Palliative care research - priorities and the way forward. Eur J Cancer 44:1175-1179
5. Shipman C, Gysels M, White P, Worth A, Murray SA, Barclay S, Forrest S, Shepherd J, Dale J, Dewar S, Peters M, White S, Richardson A, Lorenz K, Koffman J, Higginson IJ (2008) Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups. BMJ 337:848-851
6. Palliative Medicine (2006) Special issue on palliative care research methodology. Palliat Med 20:725-871
7. Christakis NA (2006) Advances in palliative care research methodology. Palliat Med 20:725-726 (Pubitemid 46040123)
8. Kaasa S, De Conno F (2001) Palliative care research. Eur J Cancer 37:153-159
9. Patrick DL, Ferketich SL, Frame PS, Harris JJ, Hendricks CB, Levin B, Link MP, Lustig C, McLaughlin J, Ried LD, Turrisi AT 3 rd, Unutzer J, Vernon SW (2003) National Institutes of Health state-of-the-science conference statement: symptom management in cancer: pain, depression, and fatigue, July 15-17, 2002. J Natl Cancer Inst 95:1110-1117
10. OPCARE9. Available at: http://www.opcare9.eu/. Accessed 25 June 2010
11. European Palliative Research Collaborative. Available at: http://www.epcrc.org/. Accessed 25 June 2010
12. Fainsinger RL (2008) Global warming in the palliative care research environment: adapting to change. Palliat Med 22:328-335 (Pubitemid 351895348)
13. Defining best practice in palliative care in Europe. Available at: http://www.painandpalliativemedicine.eu/. Accessed 25 June 2010
14. Harding R, Higginson IJ (2010) PRISMA: a pan-European coordinating action to advance the science in end-of-life cancer care. Eur J Cancer 46:1493-1501
15. National Cancer Research Institute (NCRI) (2004) Supportive and palliative care research in the UK: report of the NCRI Strategic Planning Group on Supportive and Palliative Care. NCRI, London. pp. 1-64.
16. Wenk R, De Lima L, Eisenchlas J (2008) Palliative care research in Latin America: results of a survey within the scope of the Declaration of Venice. J Palliat Med 11:717-722 (Pubitemid 351918844)
17. Hardy J, Dingle K, Beebe H, Yates P (2005) Creating a palliative research network in Queensland, Australia - is this the answer? Prog Palliat Care 13:277-281 (Pubitemid 41782669)
18. SelectSurveyASP Advanced 8.1.10 software. Available at: http://www.classapps.com/. Accessed 25 June 2010
19. Wright M, Wood J, Lynch T, Clark D (2008) Mapping levels of palliative care development: a global view. J Pain Symptom Manage 35:469-485
20. Web of Knowledge - Science - Thomson Reuters. Available at: http://wokinfo.com/. Accessed 25 June 2010
21. Kaasa S, Hjermstad MJ, Loge JH (2006) Methodological and structural challenges in palliative care research: how have we fared in the last decades? Palliat Med 20:727-734 (Pubitemid 46040124)
22. Kenna R, Berche B (2010) Critical mass and the dependency of research quality on group size. pp. 1-15. Available at: http://arxiv.org/
23. Payne SA, Turner JM (2008) Research methodologies in palliative care: a bibliometric analysis. Palliat Med 22:336-342 (Pubitemid 351895349)
24. Binswanger J, Inauen R, Strasser F (2006) Barriers to Palliative Care (PC) research. Palliat Med 20: abstr # 467
25. Hagen NA, Addington-Hall J, Sharpe M, Richardson A, Cleeland CS (2006) The Birmingham International Workshop on supportive, palliative, and end-of-life care research. Cancer 107:874-881 (Pubitemid 44232680)
26. Sigurdardottir KR, Haugen DF, van der Rijt CC, Sjogren P, Harding R, Higginson IJ, Kaasa S (2010) Clinical priorities, barriers and solutions in end-of-life cancer care research across Europe. Report from a workshop. Eur J Cancer 46:1815-1822
27. European Palliative Care Research Centre. Available at: http://www.ntnu.edu/prc. Accessed 25 June 2010
28. Cicely Saunders Institute. Available at: http://www. cicelysaundersfoundation.org/cicely-saunders-institute. Accessed 25 June 2010