Recently accepted for the waiting list for heart or lung transplantation - patients' experiences of information and support

Clinical Transplantation

Volumn 25, Issue 6, 2011, Pages

  Ivarsson, Bodil ^a   Ekmehag, Björn ^a   Sjöberg, Trygve ^a  

^a LUND UNIVERSITY   (Sweden)

Author keywords

Chronic illness; End stage disease; Heart; Information; Lung; Support; Transplantation team; Waiting list

Indexed keywords

ADULT; AGED; ARTICLE; CARDIOLOGIST; CHRONIC DISEASE; CLINICAL ARTICLE; FEMALE; HEALTH CARE PERSONNEL; HEART TRANSPLANTATION; HOSPITAL ADMISSION; HUMAN; LUNG TRANSPLANTATION; MALE; MEDICAL SPECIALIST; NURSE; ORGAN TRANSPLANTATION; PATIENT ATTITUDE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT; SOCIAL WORKER; SURGEON; TEAMWORK;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; FEMALE; HEART TRANSPLANTATION; HUMANS; LUNG TRANSPLANTATION; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT EDUCATION AS TOPIC; PATIENT-CENTERED CARE; QUALITATIVE RESEARCH; SOCIAL SUPPORT; TIME FACTORS; TISSUE AND ORGAN PROCUREMENT; WAITING LISTS; YOUNG ADULT;

EID: 83555166065     PISSN: 09020063     EISSN: 13990012     Source Type: Journal    
DOI: 10.1111/j.1399-0012.2011.01511.x     Document Type: Article

References (34)

1. Dobbels F, De Geest S, Cleemput I et al. Psychosocial and behavioral selection criteria for solid organ transplantation. Prog Transplant 2001: 11: 121.
2. Kirklin JK, McGiffin DC, Pinderski LJ, Tallaj J. Selection of patients and techniques of heart transplantation. Surg Clin North Am 2004: 84: 257.
3. Glanville AR, Estenne M. Indications, patient selection and timing of referral for lung transplantation. Eur Respir J 2003: 22: 845.
4. Wright Pinson C, Feurer ID, Payne JL, Wise PE, Shockley S, Speroff T. Health-related quality of life after different types of solid organ transplantation. Ann Surg 2000: 232: 597.
5. Dobbels F, Wernli-Fluri C, Denhaerynck K et al. Comparison of perceived health status among solid organ transplant candidates. Clin Transplant 2010: 5: 660.
6. Jalowiec A, Grady KL, White-Williams C. Stressors in patients awaiting a heart transplant. Behav Med 1994: 19: 145.
7. Muirhead J, Meyerowitz BE, Leedham B, Eastburn TE, Merrill WH, Frist WH. Quality of life and coping in patients awaiting heart transplantation. J Heart Lung Transplant 1992: 11: 265. discussion 71-2.
8. Wang LY, Chang PC, Shih FJ, Sun CC, Jeng C. Self-care behavior, hope, and social support in Taiwanese patients awaiting heart transplantation. J Psychosom Res 2006: 61: 485.
9. Burker EJ, Carels RA, Thompson LF, Rodgers L, Egan T. Quality of life in patients awaiting lung transplant: cystic fibrosis versus other end-stage lung diseases. Pediatr Pulmonol 2000: 30: 453.
10. Kaba E, Thompson DR, Burnard P. Coping after heart transplantation: a descriptive study of heart transplant recipients' methods of coping. J Adv Nurs 2000: 32: 930.
11. Macdonald K. Living in limbo - patients with cystic fibrosis waiting for transplant. Br J Nurs 2006: 15: 566.
12. Zipfel S, Lowe B, Paschke T et al. Psychological distress in patients awaiting heart transplantation. J Psychosom Res 1998: 45: 465.
13. Sadala ML, Stolf NA. Heart transplantation experiences: a phenomenological approach. J Clin Nurs 2008: 17: 217.
14. Youngner S. Some must die. Zygon 2003: 38: 705.
15. Taylor JL, Smith PJ, Babyak MA et al. Coping and quality of life in patients awaiting lung transplantation. J Psychosom Res 2008: 65: 71.
16. Jalowiec A, Grady KL, White-Williams C. Predictors of perceived coping effectiveness in patients awaiting a heart transplant. Nurs Res 2007: 56: 260.
17. Burker EJ, Madan A, Evon D, Finkel JB, Mill MR. Educational level, coping, and psychological and physical aspects of quality of life in heart transplant candidates. Clin Transplant 2009: 23: 233.
18. Yorke J, Cameron-Traub E. Patients' perceived care needs whilst waiting for a heart or lung transplant. J Clin Nurs 2008: 17: 78.
19. Haugh KH, Salyer J. Needs of patients and families during the wait for a donor heart. Heart Lung 2007: 36: 319.
20. Cupples SA, Nolan MT, Augustine SM, Kynoch D. Perceived stressors and coping strategies among heart transplant candidates. J Transpl Coord 1998: 8: 179.
21. Flanagan JC. The critical incident technique. Psychol Bull 1954: 51: 327.
22. Kemppainen JK. The critical incident technique and nursing care quality research. J Adv Nurs 2000: 32: 1264.
23. Ivarsson B, Larsson S, Sjoberg T. Patients' experiences of support while waiting for cardiac surgery. a critical incident technique analysis. Eur J Cardiovasc Nurs 2004: 3: 183.
24. TenVergert EM, Essink-Bot M-L, Geertsma A, van Enckevort PJ, de Boer WJ, van der Bij W. The effect of lung transplantation on health-related quality of life: a longitudinal study. Chest 1998: 113: 358.
25. Rodrigue JR, Baz MA, Widows MR, Ehlers SL. A randomized evaluation of quality-of-life therapy with patients awaiting lung transplantation. Am J Transplant 2005: 5: 2425.
26. Liden H, Karason K, Bergh CH, Nilsson F, Koul B, Wiklund L. The feasibility of left ventricular mechanical support as a bridge to cardiac recovery. Eur J Heart Fail 2007: 9: 525.
27. Cullen DL. Long term oxygen therapy adherence and COPD: what we don't know. Chron Respir Dis 2006: 3: 217.
28. Noel PH, Frueh BC, Larme AC, Pugh JA. Collaborative care needs and preferences of primary care patients with multimorbidity. Health Expect 2005: 8: 54.
29. Petty M. Lung and heart-lung transplantation: implications for nursing care when hospitalized outside the transplant center. Medsurg Nurs 2003: 12: 250.
30. Kuhn WF, Davis MH, Lippmann SB. Emotional adjustment to cardiac transplantation. Gen Hosp Psychiatry 1988: 10: 108.
31. Burker EJ, Evon DM, Marroquin Losielle M, Finkel JB, Mill MR. Coping predicts depression and disability in heart transplant candidates. J Psychosom Res 2005: 59: 215.
32. Shih FJ, Wang SS, Hsiao SM, Tseng PH, Chu SS. Comparison of the psychospiritual needs of Chinese heart transplant recipients at pre- and postoperative stages. Transplant Proc 2008: 40: 2597.
33. Novick G. Is there a bias against telephone interviews in qualitative research? Res Nurs Health 2008: 31: 391.
34. Lincoln YS, Guba EG. Naturalistic Inquiry. Beverly Hills, CA: Sage, 1985.