Self-management abilities of diabetes in people with an intellectual disability living in New Zealand

Journal of Policy and Practice in Intellectual Disabilities

Volumn 8, Issue 4, 2011, Pages 223-230

  Hale, Leigh A ^a   Trip, Henrietta T ^b   Whitehead, Lisa ^b   Conder, Jenny ^b,c  

^a UNIVERSITY OF OTAGO   (New Zealand)

^b UNIVERSITY OF OTAGO   (New Zealand)

^c Donald Beasley Institute   (New Zealand)

Author keywords

Diabetes; Education; Health; Intellectual disability; Self management

Indexed keywords

EID: 83455206584     PISSN: 17411122     EISSN: 17411130     Source Type: Journal    
DOI: 10.1111/j.1741-1130.2011.00314.x     Document Type: Article

References (29)

1. Anderson, R., Freedland, K., Clouse, R., & Lustman, P. (2001). The prevalence of comorbid depression in adults with diabetes: A meta-analysis. Diabetes Care, 24, 1069-1078.
2. Anwar, A. J., Walker, J. D., & Frier, B. M. (1998). Type 1 diabetes mellitus and Down's syndrome: Prevalence, management and diabetic complications. Diabetic Medicine, 15, 160-163.
3. Beard, E., Clark, M., Hurel, S., & Cooke, D. (2010). Do people with diabetes understand their clinical marker of long-term glycemic control (HbA1c levels) and does this predict diabetes self-care behaviours and HbA1c? Patient Education and Counseling, 80, 227-232.
4. Bergholdt, R., Eising, S., Nerup, J., & Pociot, F. (2006). Increased prevalence of Down's syndrome in individuals with type 1 diabetes in Denmark: A nationwide population-based study. Diabetologia, 49, 1179-1182.
5. Bonnet, C., Gagnayre, R., & d'Ivernois, J. F. (2001). Difficulties of diabetic patients in learning about their illness. Patient Education and Counselling, 42, 159-164.
6. Chisholm, W., & Vanderheiden, G. (Eds.). (1999). Web content accessibility guidelines 1.0. W3C (MIT, INRIA, Keio). Retrieved October 26, 2011, from.
7. Cooper, S., Smiley, E., Morrison, J., Williamson, A., & Allan, L. (2007). Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. British Journal of Psychiatry, 190, 27-35.
8. Diabetes New Zealand. (2008). Diabetes fact sheet. Retrieved October 26, 2011, from.
9. Janicki, M. P., Davidson, P. W., Henderson, C. M., McCallion, P., Taet, J. D., Force, L. T., etal. (2002). Health characteristics and health services utilization in older adults with intellectual disability living in community residences. Journal of Intellectual Disability Research, 46, 287-298.
10. King, A. (2001). Primary health care strategy. Retrieved May 18, 2010, from.
11. Krahn, G. L., Hammond, L., & Turner, A. (2006). A cascade of disparities: Health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 12, 70-82.
12. Lennox, N., Edieb, G., Taylora, M., Rey-Condea, T., & McPheea, J. (2009). Diabetes, to the point: Designing a website about diabetes for adults with intellectual disability and carers. Technology and Disability, 21, 11-18.
13. Moser, A., van der Bruggen, H., Widdershoven, G., & Spreeuwenberg, C. (2008). Self-management of type 2 diabetes mellitus: A qualitative investigation from the perspective of participants in a nurse-led, shared-care programme in the Netherlands. BMC Public Health, 8, 90-99.
14. Napthine, A. (2001). Empowering people with diabetes who have learning disabilities. Journal of Diabetes Nursing, 5, 19-22.
15. New Zealand Ministry of Health. (2002). Implementing the New Zealand health strategy. Retrieved May 18, 2010, from.
16. New Zealand Ministry of Health. (2003). Decades of disparity: Ethnic mortality trends in New Zealand 1990-1999. Wellington, New Zealand: Author. Retrieved May 18, 2010, from.
17. Perkins, E. A. (2007). Self and proxy reports across three populations: Older adults, persons with Alzheimer's disease, and persons with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4, 1-10.
18. Polit, D. F., & Beck, C. T. (2004). Nursing research: Principles and methods. Philadelphia, PA: Lippincott Williams & Wilkins.
19. Reed, J. A., Lawrence, J. M., Hollinghurst, S., & Higgs, E. R. (2003). Diabetes self-management: How are we doing? Practical Diabetes International, 20, 318-322.
20. Reichard, A., & Stolzle, H. (2011). Diabetes among adults with cognitive limitations compared to individuals with no cognitive disabilities. Journal of Intellectual & Developmental Disability, 49, 141-153.
21. Rey-Conde, T., & Lennox, N. (2007). Delivering diabetes care to people with intellectual disability. Health Delivery, 52, 16-18.
22. Rey-Conde, T., Lennox, N., & Tucker, M. (2005). Diabetes and intellectual disability-Perceptions from people with disability and their supporters. Retrieved October 26, 2011, from.
23. Schneider, Z., Elliott, D., Beanland, C., LoBiondo-Wood, G., & Haber, J. (2003). Nursing research: methods, critical appraisal and utilisation. Sydney, Australia: Elsevier Pty Limited.
24. Thomas, D. R. (2006). A general inductive approach for analysing qualitative evaluation data. American Journal of Evaluation, 27, 237-246.
25. van Loon, J., Knibbe, J., & Van Hoeve, G. (2005). From institutional to community support: Consequences for medical care. Journal of Applied Research in Intellectual Disabilities, 18, 175-180.
26. Walmsley, J. (2004). Involving users with learning difficulties in health improvement: Lessons from inclusive learning disability research. Nursing Inquiry, 11, 54-64.
27. World Health Organization. (2011). Diabetes (Fact sheet number 312). Retrieved October 26, 2011, from.
28. Wullink, M., Widdershoven, G., van Schrojenstein Lantman-de Valk, H., Metsmakers, J., & Dinant, G.-J. (2009). Autonomy in relation to health among people with intellectual disability: A literature review. Journal of Intellectual Disability Research, 53, 816-826.
29. Ziviani, J., Lennox, N., Allison, H., Lyons, M., & Del Mar, C. (2004). Meeting in the middle: Improving communication in primary health care consultations with people with an intellectual disability. Journal of Intellectual & Developmental Disability, 29, 211-225.