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Volumn 81, Issue 1, 2012, Pages 64-69

Adoption and the communication of genetic risk: Experiences in Huntington disease

Author keywords

Adoption; Communication; Discrimination; Genetic information; Huntington disease

Indexed keywords

ADOPTION; ARTICLE; CROSS-SECTIONAL STUDY; EXPERIENCE; FAMILY HISTORY; GENETIC RISK; GENETIC SCREENING; HUMAN; HUNTINGTON CHOREA; MEDICAL ETHICS; PRIORITY JOURNAL; SOCIAL PSYCHOLOGY;

EID: 83355175341     PISSN: 00099163     EISSN: 13990004     Source Type: Journal    
DOI: 10.1111/j.1399-0004.2010.01614.x     Document Type: Article
Times cited : (8)

References (32)
  • 2
    • 85178939437 scopus 로고    scopus 로고
    • Gamete donors and mistaken identities: the importance of genetic awareness and proposals favoring donor identity disclosue for children born from gamete donations in the United States.
    • Baines JA. Gamete donors and mistaken identities: the importance of genetic awareness and proposals favoring donor identity disclosue for children born from gamete donations in the United States. Fam Court Rev 2007: 45: 116-132.
    • (2007) Fam Court Rev , vol.45 , pp. 116-132
    • Baines, J.A.1
  • 4
    • 0022922475 scopus 로고
    • Genetic screening raises questions for employers and insurers.
    • Kolata G. Genetic screening raises questions for employers and insurers. Science 1986: 232: 317-319.
    • (1986) Science , vol.232 , pp. 317-319
    • Kolata, G.1
  • 5
    • 0023760652 scopus 로고
    • Adoption and genetic prediction for Huntington's disease.
    • Morris M, Tyler A, Harper PS. Adoption and genetic prediction for Huntington's disease. Lancet 1988: 2: 1069-1070.
    • (1988) Lancet , vol.2 , pp. 1069-1070
    • Morris, M.1    Tyler, A.2    Harper, P.S.3
  • 6
    • 0025177369 scopus 로고
    • Opinion: predictive testing for Huntington disease in childhood: challenges and implications.
    • Bloch M, Hayden MR. Opinion: predictive testing for Huntington disease in childhood: challenges and implications. Am J Hum Genet 1990: 46: 1-4.
    • (1990) Am J Hum Genet , vol.46 , pp. 1-4
    • Bloch, M.1    Hayden, M.R.2
  • 8
    • 0027480960 scopus 로고
    • A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosomes. The Huntington's Disease Collaborative Research Group.
    • A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosomes. The Huntington's Disease Collaborative Research Group. Cell 1993: 72: 971-983.
    • (1993) Cell , vol.72 , pp. 971-983
  • 9
    • 83355174276 scopus 로고    scopus 로고
    • Huntington's Disease Genetic Testing Group. United States, New York, NY: Huntington's disease Society of America
    • Huntington's Disease Genetic Testing Group. Genetic testing for Huntington's disease revised HDSA guidelines. United States, New York, NY: Huntington's disease Society of America, 2003.
    • (2003) Genetic testing for Huntington's disease revised HDSA guidelines
  • 10
    • 0033912028 scopus 로고    scopus 로고
    • Genetic testing in adoption. The American Society of Human Genetics Social Issues Committee and The American College of Medical Genetics Social, Ethical, and Legal Issues Committee.
    • PMID: 10712194 [PubMed - indexed for MEDLINE] PMCID: PMC1288161Free PMC Article.
    • Genetic testing in adoption. The American Society of Human Genetics Social Issues Committee and The American College of Medical Genetics Social, Ethical, and Legal Issues Committee. Am J Hum Genet 2000: 66: 761-767. PMID: 10712194 [PubMed - indexed for MEDLINE] PMCID: PMC1288161Free PMC Article.
    • (2000) Am J Hum Genet , vol.66 , pp. 761-767
  • 11
    • 0037222942 scopus 로고    scopus 로고
    • Guidelines for genetic testing of healthy children.
    • Canadian Paediatric Society
    • Canadian Paediatric Society. Guidelines for genetic testing of healthy children. Pediatr Child Health 2003: 8: 42-45.
    • (2003) Pediatr Child Health , vol.8 , pp. 42-45
  • 12
    • 83355169944 scopus 로고
    • American Medical Association, Opinion 2.138 Genetic Testing of Children. Code of Medical Ethics
    • American Medical Association, Opinion 2.138 Genetic Testing of Children. Code of Medical Ethics, 1995.
    • (1995)
  • 13
    • 0028031125 scopus 로고
    • Guidelines for the molecular genetics predictive test in Huntington's disease. International Huntington Association (IHA) and the World Federation of Neurology (WFN) Research Group on Huntington's Chorea.
    • PMID: 8058167 [PubMed - indexed for MEDLINE].
    • Guidelines for the molecular genetics predictive test in Huntington's disease. International Huntington Association (IHA) and the World Federation of Neurology (WFN) Research Group on Huntington's Chorea. Neurology 1994: 44: 1533-1536. PMID: 8058167 [PubMed - indexed for MEDLINE].
    • (1994) Neurology , vol.44 , pp. 1533-1536
  • 16
    • 0029677157 scopus 로고    scopus 로고
    • Individual, family, and societal dimensions of genetic discrimination: a case study analysis.
    • Geller LN, Alper JS, Billings PR et al. Individual, family, and societal dimensions of genetic discrimination: a case study analysis. Sci Eng Ethics 1996: 2: 71-88.
    • (1996) Sci Eng Ethics , vol.2 , pp. 71-88
    • Geller, L.N.1    Alper, J.S.2    Billings, P.R.3
  • 17
    • 45149104257 scopus 로고    scopus 로고
    • Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients.
    • Taylor S, Treloar S, Barlow-Stewart K et al. Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients. Clin Genet 2008: 74: 20-30.
    • (2008) Clin Genet , vol.74 , pp. 20-30
    • Taylor, S.1    Treloar, S.2    Barlow-Stewart, K.3
  • 18
    • 85010612299 scopus 로고    scopus 로고
    • Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey.
    • Bombard Y, Veenstra G, Friedman JM et al. Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey. BMJ 2009: 338: b2175.
    • (2009) BMJ , vol.338
    • Bombard, Y.1    Veenstra, G.2    Friedman, J.M.3
  • 19
    • 83355167178 scopus 로고    scopus 로고
    • Huntington's Disease Association (UK). (UK) Huntington's Disease Association. Liverpool: Huntington's Disease Association
    • Huntington's Disease Association (UK). Fact sheet - predictive testing for Huntington's disease. In: (UK) Huntington's Disease Association. Liverpool: Huntington's Disease Association, 2010.
    • (2010) Fact sheet - predictive testing for Huntington's disease.
  • 20
    • 34848813214 scopus 로고    scopus 로고
    • Process and outcome in communication of genetic information within families: a systematic review.
    • Gaff CL, Clarke AJ, Atkinson P et al. Process and outcome in communication of genetic information within families: a systematic review. Eur J Hum Genet 2007: 15: 999-1011.
    • (2007) Eur J Hum Genet , vol.15 , pp. 999-1011
    • Gaff, C.L.1    Clarke, A.J.2    Atkinson, P.3
  • 21
    • 34249651432 scopus 로고    scopus 로고
    • Communicating genetic information in families-a review of guidelines and position papers.
    • Forrest LE, Delatycki MB, Skene L et al. Communicating genetic information in families-a review of guidelines and position papers. Eur J Hum Genet 2007: 15: 612-618.
    • (2007) Eur J Hum Genet , vol.15 , pp. 612-618
    • Forrest, L.E.1    Delatycki, M.B.2    Skene, L.3
  • 22
    • 0041320737 scopus 로고    scopus 로고
    • Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption.
    • Venne VL, Botkin JR, Buys SS. Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption. Am J Med Genet 2003: 119A: 41-46.
    • (2003) Am J Med Genet , vol.119 , pp. 41-46
    • Venne, V.L.1    Botkin, J.R.2    Buys, S.S.3
  • 23
    • 76149085300 scopus 로고    scopus 로고
    • Birth family health history Adopters' perspectives on learning about their child's health inheritance.
    • Hill C, Edwards M. Birth family health history Adopters' perspectives on learning about their child's health inheritance. Adopt Foster 2009: 33: 45-53.
    • (2009) Adopt Foster , vol.33 , pp. 45-53
    • Hill, C.1    Edwards, M.2
  • 24
    • 33847268635 scopus 로고    scopus 로고
    • Managing genetic discrimination: strategies used by individuals found to have the Huntington disease mutation.
    • Bombard Y, Penziner E, Decolongon J et al. Managing genetic discrimination: strategies used by individuals found to have the Huntington disease mutation. Clin Genet 2007: 71: 220-231.
    • (2007) Clin Genet , vol.71 , pp. 220-231
    • Bombard, Y.1    Penziner, E.2    Decolongon, J.3
  • 25
    • 39749118704 scopus 로고    scopus 로고
    • Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease.
    • Bombard Y, Penziner E, Suchowersky O et al. Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease. Eur J Hum Genet 2008: 16: 279-289.
    • (2008) Eur J Hum Genet , vol.16 , pp. 279-289
    • Bombard, Y.1    Penziner, E.2    Suchowersky, O.3
  • 28
    • 83355167177 scopus 로고    scopus 로고
    • Genetests. Genetests Database. National Institutes of Health
    • Genetests. Genetests Database. National Institutes of Health, 2010.
    • (2010)
  • 29
    • 0035489030 scopus 로고    scopus 로고
    • Communicating genetic test results to the family: a six-step, skills-building strategy.
    • Daly MB, Barsevick A, Miller SM et al. Communicating genetic test results to the family: a six-step, skills-building strategy. Fam Community Health 2001: 24: 13-26.
    • (2001) Fam Community Health , vol.24 , pp. 13-26
    • Daly, M.B.1    Barsevick, A.2    Miller, S.M.3
  • 30
    • 83355167176 scopus 로고    scopus 로고
    • Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease.
    • Nov 10. [Epub ahead of print] PMID: 21069869 [PubMed - as supplied by publisher].
    • Bombard Y, Palin J, Friedman JM et al. Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease. Am J Med Genet B Neuropsychiatr Genet 2010 Nov 10. [Epub ahead of print] PMID: 21069869 [PubMed - as supplied by publisher].
    • (2010) Am J Med Genet B Neuropsychiatr Genet
    • Bombard, Y.1    Palin, J.2    Friedman, J.M.3
  • 31
    • 53049083346 scopus 로고    scopus 로고
    • Civilian and military genetics: nondiscrimination policy in a post-GINA world.
    • Baruch S, Hudson K. Civilian and military genetics: nondiscrimination policy in a post-GINA world. Am J Hum Genet 2008: 83: 435-444.
    • (2008) Am J Hum Genet , vol.83 , pp. 435-444
    • Baruch, S.1    Hudson, K.2
  • 32
    • 0000652384 scopus 로고    scopus 로고
    • The possibilities and pitfalls of doing a secondary analysis of a qualitative data set.
    • Hinds PS, Vogel RJ, Clarke-Steffen L. The possibilities and pitfalls of doing a secondary analysis of a qualitative data set. Qual Health Res 1997: 7: 408-424.
    • (1997) Qual Health Res , vol.7 , pp. 408-424
    • Hinds, P.S.1    Vogel, R.J.2    Clarke-Steffen, L.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.