Cross-cultural validation of a measure of felt stigma in people with intellectual disabilities

Journal of Applied Research in Intellectual Disabilities

Volumn 25, Issue 1, 2012, Pages 11-19

  Kock, Elizabeth ^a   Molteno, Chris ^b   Mfiki, Ntathu ^a   Kidd, Martin ^c   Ali, Afia ^d   King, Michael ^d   Strydom, Andre ^d  

^a Alexandra Hospital   (South Africa)

^b UNIVERSITY OF CAPE TOWN   (South Africa)

^c STELLENBOSCH UNIVERSITY   (South Africa)

^d UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

Culture; Ethnicity; Intellectual disabilities; Mental retardation; South Africa; Stigma

Indexed keywords

ADULT; ARTICLE; COMPARATIVE STUDY; CULTURAL FACTOR; ETHNOLOGY; FEMALE; HOSPITALIZATION; HUMAN; INFORMATION PROCESSING; INSTRUMENTATION; INTELLECTUAL IMPAIRMENT; MALE; MENTAL PATIENT; PILOT STUDY; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUESTIONNAIRE; REPRODUCIBILITY; SOCIAL STIGMA; SOUTH AFRICA; STANDARD; UNITED KINGDOM; VALIDATION STUDY;

ADULT; CROSS-CULTURAL COMPARISON; FEMALE; FOCUS GROUPS; GREAT BRITAIN; HUMANS; INTELLECTUAL DISABILITY; MALE; MENTALLY DISABLED PERSONS; PILOT PROJECTS; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SEVERITY OF ILLNESS INDEX; SOCIAL STIGMA; SOUTH AFRICA;

EID: 83255176857     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/j.1468-3148.2011.00644.x     Document Type: Article

References (28)

1. Ali A., Strydom A., Hassiotis A., Williams R. & King M. (2008) A measure of perceived stigma in people with intellectual disability. British Journal of Psychiatry 193, 410-415.
2. Campbell C. & Deacon H. (2006) Unravelling the contexts of stigma: from internalisation to resistance to change. Journal of Community & Applied Social Psychology 16, 411-417.
3. Cummins R. & Lau A. (2003) Community integration or community exposure? A review and discussion in relation to people with an intellectual disability. Journal of Applied Research in Intellectual Disabilities 16, 145-157.
4. Dagnan D. & Sandhu S. (1999) Social comparison, self-esteem and depression in people with intellectual disability. Journal of Intellectual Disability Research 43, 372-379.
5. Dagnan D. & Waring M. (2004) Linking stigma to psychological distress: testing a social-cognitive model of the experience of people with intellectual disabilities. Clinical Psychology & Psychotherapy 11, 247-254.
6. Department of Health, England (2001) Valuing People: A New Strategy for Learning Disability for the 21st Century; A White Paper. Available at: (accessed on 11 August 2011).
7. Department of Health, England (2009) Valuing People Now: A New Three-year Strategy for People with Learning Disabilities. Available at: (accessed on 11 August 2011).
8. Department of Health, Government of the Western Cape (2002) Integrated Provincial Disability Strategy. Department of Health, Government of the Western Cape, Cape Town.
9. Dube A. K. (2005) The Role and Effectiveness of Disability Legislation in South Africa. Disability Knowledge and Research programme. Available at: (accessed on 11 August 2011).
10. Goffman E. (1963) Stigma; Notes on the Management of Spoiled Identity. Prentice-Hall, Englewood Cliffs, NJ, USA.
11. Hogg J., Lucchino R., Wang K. & Janicki M. (2000) Healthy Ageing - Adults with Intellectual Disabilities Aging & Social Policy. World Health Organization, Geneva.
12. Jacoby A. (2008) Epilepsy and stigma: an update and critical review. Current Neurology and Neuroscience Reports 8, 339-344.
13. Jahoda A. & Markova I. (2004) Coping with social stigma: people with intellectual disabilities moving from institutions and family home. Journal of Intellectual Disability Research 48, 719-729.
14. Jahoda A., Pert C., Squire J. & Trower P. (1998) Facing stress and conflict: a comparison of the predicted responses and self-concepts of aggressive and non-aggressive people with intellectual disability. Journal of Intellectual Disability Research 42, 360-369.
15. Link B. & Phelan J. (2001) Conceptualising stigma. Annual Review of Sociology 27, 363-387.
16. Link B. G., Yang L. H., Phelan J. C. & Collins P. Y. (2004) Measuring mental illness stigma. Schizophrenia Bulletin 30, 511-541.
17. Littlewood R. (2006) Mental health and intellectual disability: culture and diversity. Journal of Intellectual Disability Research 50, 555-560.
18. McLaughlin D. P., Pachana N. A. & McFarland K. (2008) Stigma, seizure frequency and quality of life: the impact of epilepsy in late adulthood. Seizure 17, 281-287.
19. Møller V., Dickow H. & Harris M. (1999) South Africa's ''Rainbow People'', National Pride and Happiness. Social Indicators Research 47, 245-280.
20. O'Connor B. P. (2000) SPSS and SAS programs for determining the number of components using parallel analysis and Velicer's MAP test. Behavior Research Methods, Instruments, & Computers 32, 396-402.
21. Office of the Deputy President, Republic of South Africa (1997) Integrated National Disability Strategy - White Paper. Available at: (accessed 11 August 2011).
22. Special Olympics & Centre for Social Development and Education (2003) Multinational Study of Attitudes toward Individuals with Intellectual Disabilities. Special Olympics Inc., Washington, DC.
23. Statutes of the republic of South Africa (1996) Constitution of the Republic of South Africa no. 108 of 1996. Available at: (accessed 11 August 2011).
24. Stevens J. (1986) Applied Multivariate Statistics for Social Sciences. Lawrence Erlbaum, Hillsdale, NJ.
25. Thornicroft G., Rose D., Kassam A. & Sartorius N. (2007) Stigma: ignorance, prejudice or discrimination? British Journal of Psychiatry 190, 192-193.
26. United Kingdom Parliament (1998) The Human Rights Act. United Kingdom Parliament, London.
27. United Kingdom Parliament (2005) Disability Discrimination Act. United Kingdom Parliament, London.
28. Wettergren L., Kettis-Lindblad A., Sprangers M. & Ring L. (2009) The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW. Quality of Life Research 18, 737-746.