Family quality of life in 25 Belgian families: Quantitative and qualitative exploration of social and professional support domains

Journal of Intellectual Disability Research

Volumn 55, Issue 12, 2011, Pages 1123-1135

  Steel, R ^a   Poppe, L ^a   Vandevelde, S ^a   Van Hove, G ^b   Claes, C ^a  

^a UNIVERSITY COLLEGE GHENT   (Belgium)

^b GHENT UNIVERSITY   (Belgium)

Author keywords

Family; Intellectual disability; Parents; Quality of life; Support

Indexed keywords

ADULT; ARTICLE; BELGIUM; CLINICAL ARTICLE; FAMILY LIFE; FAMILY QUALITY OF LIFE; FEMALE; HEALTH SERVICE; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; OPEN ENDED QUESTIONNAIRE; PROFESSIONAL PRACTICE; QUALITATIVE DIAGNOSIS; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT;

ADOLESCENT; ADULT; AGED; BELGIUM; CHILD; CHILD, PRESCHOOL; DOWN SYNDROME; FAMILY HEALTH; FEMALE; HUMANS; INTELLECTUAL DISABILITY; MALE; MIDDLE AGED; PARENTS; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIAL SUPPORT; YOUNG ADULT;

EID: 81855183216     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2011.01433.x     Document Type: Article

References (24)

1. Blacher J. & Baker B. L. (2007) Positive impact of intellectual disability on families. American Journal on Mental Retardation 112, 330-48.
2. Brown I. (2010) Family quality of life: a comparison of trends in eight countries. In: Contemporary Issues in Intellectual Disabilities (ed. V. Prasher ), pp. 255-64. Nova Publishers, New York.
3. Brown I., Anand S., Fung W. L. A., Isaacs B. & Baum N. (2003) Family quality of life: Canadian results from an international study. Journal of Developmental and Physical Disabilities 15, 207-29.
4. Brown I., Brown R., Baum N. T., Isaacs B. J., Myerscough T., Neikrug S. etal. (2006a) The Family Quality of Life Survey: Main Caregivers of People with Intellectual and Developmental Disabilities. Surrey Place Centre, Toronto, ON.
5. Brown R. I., Mac-Adam-Crisp J., Wang M. & Iarocci G. (2006b) Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities 3, 238-45.
6. Claes C., Broekaert E. & Vander Beken K. (2006) Begeleiding, opvang en ondersteuning van personen met een handicap. In: Orthopedagogische werkvelden in beweging: Organisatie en tendensen (eds W. Vanderplasschen, C. Claes, S. Vandevelde, E. Broekaert & G. Van Hove ), pp. 175-237. Garant, Antwerpen/Apeldoorn.
7. Davis K. & Gavidia-Payne S. (2009) The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual & Developmental Disability 34, 153-62.
8. Dodd J., Saggers S. & Wildy H. (2009) Constructing the 'ideal' family for family-centred practice: challenges for delivery. Disability & Society 24, 173-86.
9. Dunst C. J., Johanson C., Trivette C. M. & Hamby D. (1991) Family-oriented early intervention policies and practices: family-centered or not? Exceptional Children 58, 115-26.
10. Elchardus M. (2000) Werk en gezin: naar een nieuwe tijdsordening. Met Zorg 6, 28-37.
11. Isaacs B., Brown I., Brown R., Baum N., Myerscough T., Neikrug S. etal. (2007) The International Family Quality of Life Project: goals and description of a survey tool. Journal of Policy and Practice in Intellectual Disabilities 4, 177-85.
12. Kuckartz A. (2007) MaxQDA, The Art of Text Analysis. VERBI Software, Consult, Research GmbH, Germany, Marburg.
13. Lenssens J. (1991) Richtnota. Vlaams gehandicaptenbeleid in de jaren negentig. Ministerie van Gezin en Welzijn, Brussels.
14. Naidoo P. (2006) Potential contributions to disability theorizing and research from positive psychology. Disability and Rehabilitation 28, 595-602.
15. Park J., Hoffman L., Marquis J., Turnbull A. P., Poston D., Mannan H. etal. (2003) Toward assessing family outcomes of service delivery: validation of a family quality of life survey. Journal of Intellectual Disability Research 47, 367-84.
16. Parmentier S. (1998) Kansarmoede en rechtshulp. Drie uitdagingen op de drempel van de volgende eeuw. Alert 24, 24-31.
17. Poppe L., Moyson T., Steel R. & Vandevelde S. (2010) Broers en zussen (brussen) van personen met een verstandelijke beperking: een verkenning van een aantal opvallende thema's. Vlaams Tijdschrift voor Orthopedagogiek 29, 3-15.
18. Poston D., Turnbull A., Park J., Mannan H., Marquis J. & Wang M. (2003) Family quality of life: a qualitative inquiry. Mental Retardation 41, 313-28.
19. Rioux M. H. (1997) Disability: the place of judgement in a world of fact. Journal of Intellectual Disability Research 41, 102-11.
20. Samuel P. S., Rillotta F. & Brown I. (2011) The development of family quality of life concepts and measures. Journal of Intellectual Disability Research (in press).
21. Steel R., Vandevelde S., Poppe L. & Moyson T. (2010) How to support siblings of children with intellectual disabilities? A brief outline of a longitudinal, multi-perspective study on siblings of children with intellectual disabilities. In: Contemporary Issues in Intellectual Disabilities (ed. V. Prasher ), pp. 233-7. Nova Publishers, New York.
22. Strohm K. (2005) Being the Other One: Growing up with a Brother of Sister Who Has Special Needs. Shambhala, Boston, MA.
23. Summers J. A., Poston D. J., Turnbull A. P., Marquis J., Hoffman L., Mannan H. etal. (2005) Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research 49, 777-83.
24. Werner S., Edwards M., Baum N., Brown I., Brown R. I. & Isaacs B. J. (2009) Family quality of life among families with a member who has an intellectual disability: an exploratory examination of key domains and dimensions of the revised FQOL Survey. Journal of Intellectual Disability Research 53, 501-11.