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Volumn 39, Issue 4, 2011, Pages 621-630

The Return of Results of Deceased Research Participants

Author keywords

[No Author keywords available]

Indexed keywords

CONFERENCE PAPER; DEATH; ETHICS; FAMILY; GENETIC SCREENING; GENETICS; HUMAN; INTERNATIONAL COOPERATION; INTERPERSONAL COMMUNICATION; LEGAL ASPECT; PRACTICE GUIDELINE; RESEARCH SUBJECT;

EID: 81255208683     PISSN: 10731105     EISSN: 1748720X     Source Type: Journal    
DOI: 10.1111/j.1748-720X.2011.00629.x     Document Type: Conference Paper
Times cited : (22)

References (65)
  • 1
    • 81255138708 scopus 로고    scopus 로고
    • Canadian Legal Information Institute, CanLII, available at <> (last visited August 19, ).
    • Canadian Legal Information Institute, CanLII, available at <> (last visited August 19, 2011).
    • (2011)
  • 2
    • 81255129441 scopus 로고    scopus 로고
    • U.S. Government, available at <> (last visited August 19,).
    • U.S. Government, available at <> (last visited August 19, 2011).
    • (2011)
  • 3
    • 84859211391 scopus 로고    scopus 로고
    • French Secrétariat général du gouvernement, LegiFrance, available at <> (last visited August 17, ).
    • French Secrétariat général du gouvernement, LegiFrance, available at <> (last visited August 17, 2011).
    • (2011)
  • 4
    • 81255150885 scopus 로고    scopus 로고
    • Centre of Genomics and Policy, HumGen International, available at <> (last visited August 19,).
    • Centre of Genomics and Policy, HumGen International, available at <> (last visited August 19, 2011).
    • (2011)
  • 5
    • 81255129439 scopus 로고    scopus 로고
    • Council of Europe, Council of Europe Treaties, available at <> (last visited August 19, ).
    • Council of Europe, Council of Europe Treaties, available at <> (last visited August 19, 2011).
    • (2011)
  • 6
    • 81255150887 scopus 로고    scopus 로고
    • National Institutes of Health, Pubmed, available at <> (last visited August 19,).
    • National Institutes of Health, Pubmed, available at <> (last visited August 19, 2011).
    • (2011)
  • 7
    • 81255129440 scopus 로고    scopus 로고
    • Google, Google Scholar, available at <> (last visited August 19,).
    • Google, Google Scholar, available at <> (last visited August 19, 2011).
    • (2011)
  • 8
    • 84859212323 scopus 로고    scopus 로고
    • quot;Return of Research Results
    • General Principles and International Perspectives"; and B. M. Knoppers and E. Lévesque, quot;Introduction: On this topic, Return of Research Results: How Should Research Results Be Handled?" in this symposium.
    • On this topic, see E. Lévesque, Y. Joly, and J. Simard, "Return of Research Results: General Principles and International Perspectives"; and B. M. Knoppers and E. Lévesque, "Introduction: Return of Research Results: How Should Research Results Be Handled?" in this symposium.
    • Lévesque, E.1    Joly, Y.2    Simard, J.3
  • 9
    • 81255138699 scopus 로고    scopus 로고
    • World Medical Association, WMA Declaration on Ethical Considerations Regarding Health Databases, Washington, D.C., 2002, available at <> (last visited August 19
    • World Medical Association, WMA Declaration on Ethical Considerations Regarding Health Databases, Washington, D.C., 2002, available at <> (last visited August 19, 2011)
    • (2011)
  • 10
    • 81255138704 scopus 로고    scopus 로고
    • World Health Organization, Genetic Databases Assessing the Benefits and the Impact on Human & Patient Rights, Geneva, 2003, available at <> (last visited August 19,)
    • World Health Organization, Genetic Databases Assessing the Benefits and the Impact on Human & Patient Rights, Geneva, 2003, available at <> (last visited August 19, 2011)
    • (2011)
  • 11
    • 81255150880 scopus 로고    scopus 로고
    • World Medical Association, WMA International Code of Medical Ethics, South Africa, 2006, available at <> (last visited August 19,
    • World Medical Association, WMA International Code of Medical Ethics, South Africa, 2006, available at <> (last visited August 19, 2011).
    • (2011)
  • 12
    • 81255138689 scopus 로고    scopus 로고
    • Council for International Organizations of Medical Sciences in collaboration with the World Health Organization, International Ethical Guidelines for Biomedical Research Involving Human Subjects, Geneva, 2002, at Guidelines 5 and 18, available at <> (last visited August 19, 2011); Council for International Organizations of Medical Sciences and the World Health Organization, International Ethical Guidelines for Epidemiological Studies, Geneva, 2008, at Guidelines 5(15) and 18, available at <> (last visited August 19, ).
    • Council for International Organizations of Medical Sciences in collaboration with the World Health Organization, International Ethical Guidelines for Biomedical Research Involving Human Subjects, Geneva, 2002, at Guidelines 5 and 18, available at <> (last visited August 19, 2011); Council for International Organizations of Medical Sciences and the World Health Organization, International Ethical Guidelines for Epidemiological Studies, Geneva, 2008, at Guidelines 5(15) and 18, available at <> (last visited August 19, 2011).
    • (2011)
  • 13
    • 81255129437 scopus 로고    scopus 로고
    • Id. (Council for International Organizations of Medical Sciences, 2002), at Guideline 5(7); Id. (Council for International Organizations of Medical Sciences, ), at Guideline .
    • Id. (Council for International Organizations of Medical Sciences, 2002), at Guideline 5(7); Id. (Council for International Organizations of Medical Sciences, 2008), at Guideline 5(7).
    • (2008) , vol.5 , Issue.7
  • 14
    • 81255150878 scopus 로고    scopus 로고
    • See World Medical Association (2002), supra note 9; Council for International Organizations of Medical Sciences, supra note 10, at Guidelines and .
    • See World Medical Association (2002), supra note 9; Council for International Organizations of Medical Sciences (2008), supra note 10, at Guidelines 18 and 24.
    • (2008) , Issue.18 , pp. 24
  • 15
    • 81255129438 scopus 로고    scopus 로고
    • UNESCO, International Declaration on Human Genetic Data, G.A. Res. 22 at 39; U.N. GAOR, 32nd Sess. (October 17, ), at s. (b)
    • UNESCO, International Declaration on Human Genetic Data, G.A. Res. 22 at 39; U.N. GAOR, 32nd Sess. (October 17, 2003), at s. 14(b);
    • (2003) , Issue.14
  • 16
    • 81255143806 scopus 로고    scopus 로고
    • UNESCO, Universal Declaration on Bioethics and Human Rights, G.A. Res 36, at 74, U.N. GAOR, 33rd Sess. (October 19, ), at s.
    • UNESCO, Universal Declaration on Bioethics and Human Rights, G.A. Res 36, at 74, U.N. GAOR, 33rd Sess. (October 19, 2005), at s. 9;
    • (2005) , Issue.9
  • 17
    • 81255150884 scopus 로고    scopus 로고
    • Human Genome Organization Ethics Committee, Statement on DNA Sampling: Control and Access, London, 1998, available at <> (last visited August 19
    • Human Genome Organization Ethics Committee, Statement on DNA Sampling: Control and Access, London, 1998, available at <> (last visited August 19, 2011);
    • (2011)
  • 18
    • 81255129436 scopus 로고    scopus 로고
    • Organization for Economic Co-operation and Development, Guidelines on Human Biobanks and Genetic Research Databases, Paris, 2009, at s. 7.F, available at <> (last visited August 19
    • Organization for Economic Co-operation and Development, Guidelines on Human Biobanks and Genetic Research Databases, Paris, 2009, at s. 7.F, available at <> (last visited August 19, 2011).
    • (2011)
  • 19
    • 81255150877 scopus 로고    scopus 로고
    • See World Medical Association (), supra note 9, at s. .
    • See World Medical Association (2002), supra note 9, at s. 19.
    • (2002) , pp. 19
  • 20
    • 81255143804 scopus 로고    scopus 로고
    • See UNESCO , supra note 13, at s. .
    • See UNESCO (2005), supra note 13, at s. 16.
    • (2005) , pp. 16
  • 21
    • 81255143802 scopus 로고    scopus 로고
    • UNESCO, Draft Report on the Collection, Treatment, Storage and Use of Genetic Data, Paris, , at s.
    • UNESCO, Draft Report on the Collection, Treatment, Storage and Use of Genetic Data, Paris, 2002, at s. 31.
    • (2002) , pp. 31
  • 22
    • 81255138697 scopus 로고    scopus 로고
    • See World Health Organization , supra note 9 at .
    • See World Health Organization (2003), supra note 9 at 23.
    • (2003) , pp. 23
  • 23
    • 81255138701 scopus 로고    scopus 로고
    • Privacy Act, R.S.C. c..
    • Privacy Act, R.S.C. c. P-21.
  • 24
    • 81255138696 scopus 로고    scopus 로고
    • Personal Information Protection and Electronic Documents Act, S.C., c. .
    • Personal Information Protection and Electronic Documents Act, S.C., c. 5 (2000).
    • (2000) , pp. 5
  • 25
    • 81255150876 scopus 로고    scopus 로고
    • See Privacy Act, supra note 22, at s. 3; see Personal Information Protection and Electronic Documents Act, supra note 23, at s. .
    • See Privacy Act, supra note 22, at s. 3; see Personal Information Protection and Electronic Documents Act, supra note 23, at s. 2.
  • 26
    • 81255138705 scopus 로고    scopus 로고
    • See Privacy Act, supra note .
    • See Privacy Act, supra note 22.
  • 27
    • 81255143803 scopus 로고    scopus 로고
    • See Personal Information Protection and Electronic Documents Act, supra note .
    • See Personal Information Protection and Electronic Documents Act, supra note 23.
  • 28
    • 81255150883 scopus 로고    scopus 로고
    • See Privacy Act, supra note .
    • See Privacy Act, supra note 22.
  • 29
    • 81255138698 scopus 로고    scopus 로고
    • Act respecting health services and social services, R.S.Q., ch.
    • Act respecting health services and social services, R.S.Q., ch. S-4.2.
  • 30
    • 81255143805 scopus 로고    scopus 로고
    • Act respecting the protection of personal information in the private sector, R.S.Q., ch. .
    • Act respecting the protection of personal information in the private sector, R.S.Q., ch. P-39.1.
  • 31
    • 81255143799 scopus 로고    scopus 로고
    • See Act respecting health services and social services, supra note 33, at s. 23; see Act respecting the protection of personal information in the private sector, supra note 35, at s. .
    • See Act respecting health services and social services, supra note 33, at s. 23; see Act respecting the protection of personal information in the private sector, supra note 35, at s. 31.
  • 32
    • 84859210403 scopus 로고    scopus 로고
    • Réseau de Médecine Génétique Appliquée (RMGA), Statement of Principles: Human Genome Research, Quebec, 2000, available at <> (last visited August 19, ).
    • Réseau de Médecine Génétique Appliquée (RMGA), Statement of Principles: Human Genome Research, Quebec, 2000, available at <> (last visited August 19, 2011).
    • (2011)
  • 33
    • 81255138688 scopus 로고    scopus 로고
    • Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada, Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, Ottawa, 2010, available at <> (last visited August 19, ).
    • Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada, Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, Ottawa, 2010, available at <> (last visited August 19, 2011).
    • (2011)
  • 34
    • 81255138695 scopus 로고    scopus 로고
    • QCCS 3309 (leave of appeal granted, CA #500-09-020-928-107).
    • Liss c. Watters, 2010 QCCS 3309 (leave of appeal granted, CA #500-09-020-928-107).
    • (2010)
    • Watters, L.C.1
  • 35
    • 81255150881 scopus 로고    scopus 로고
    • Public Welfare, 45 C.F.R. 46 .
    • Public Welfare, 45 C.F.R. 46 (2005).
    • (2005)
  • 36
    • 81255129435 scopus 로고    scopus 로고
    • Id., at s. ..
    • Id., at s. 46.116 -117.
    • , Issue.46
  • 37
    • 81255150875 scopus 로고    scopus 로고
    • Health Insurance Portability and Accountability Act (HIPAA) of .
    • Health Insurance Portability and Accountability Act (HIPAA) of 1996 (P.L.104-191).
    • (1996) , pp. 104-191
  • 38
    • 81255129434 scopus 로고    scopus 로고
    • See Public Welfare, supra note 48, at s. 160 and .
    • See Public Welfare, supra note 48, at s. 160 and 164.
  • 39
    • 81255143797 scopus 로고    scopus 로고
    • American Medical Association, Opinion 5.051 - Confidentiality of Medical Information Postmortem, Chicago, 2000, available at <> (last visited August 19, ).
    • American Medical Association, Opinion 5.051 - Confidentiality of Medical Information Postmortem, Chicago, 2000, available at <> (last visited August 19, 2011).
    • (2011)
  • 40
    • 81255143800 scopus 로고
    • Threlkel, 661 So.2d 278 (Fla. ).
    • Pate v. Threlkel, 661 So.2d 278 (Fla. 1995).
    • (1995)
    • Pate, V.1
  • 41
    • 81255129431 scopus 로고    scopus 로고
    • Pack, 677 A.2d 1188 (NJ).
    • Safer v. Pack, 677 A.2d 1188 (NJ 1996).
    • (1996)
    • Safer, V.1
  • 42
    • 84859212321 scopus 로고    scopus 로고
    • Loi no 2004-800 du 6 aoǔt 2004 relative à la bioéthique [Bioethics Law], Journal Officiel de la République Française [Official Journal of French Republic] Gazette of France (July 29, ): at 14040.
    • Loi no 2004-800 du 6 aoǔt 2004 relative à la bioéthique [Bioethics Law], Journal Officiel de la République Française [Official Journal of French Republic] Gazette of France (July 29, 2004): at 14040.
    • (2004)
  • 43
    • 84859209747 scopus 로고    scopus 로고
    • Code de la santé publique [Public Health Code], Consolidated Version (Novembre 8, ).
    • Code de la santé publique [Public Health Code], Consolidated Version (Novembre 8, 2010).
    • (2010)
  • 44
    • 81255138691 scopus 로고    scopus 로고
    • Code civil [Civil Code], Consolidated Version (October 1, ).
    • Code civil [Civil Code], Consolidated Version (October 1, 2010).
    • (2010)
  • 45
    • 81255129426 scopus 로고    scopus 로고
    • Code de la recherche [Research Code], Consolidated Version (May 8, ).
    • Code de la recherche [Research Code], Consolidated Version (May 8, 2010).
    • (2010)
  • 46
    • 84859210404 scopus 로고    scopus 로고
    • Cour Administrative d'Appel de Paris, 3ème chambre [Administrative Appeal Court of Paris, 3rd Chamber] (February 2, ).
    • Cour Administrative d'Appel de Paris, 3ème chambre [Administrative Appeal Court of Paris, 3rd Chamber] (February 2, 2008).
    • (2008)
  • 47
    • 81255143790 scopus 로고    scopus 로고
    • See UNESCO (2003), supra note 13, at s. 14(b); see UNESCO (2005), supra note 13, s.9; see Human Genome Organization Ethics Committee (1998), supra note 13; see Organization for Economic Co-operation and Development (2009), supra note 13, at s. 7.F; see World Medical Association (2002), supra note 9, at s. 19.
    • See UNESCO (2003), supra note 13, at s. 14(b); see UNESCO (2005), supra note 13, s.9; see Human Genome Organization Ethics Committee (1998), supra note 13; see Organization for Economic Co-operation and Development (2009), supra note 13, at s. 7.F; see World Medical Association (2002), supra note 9, at s. 19.
    • (2002)
  • 48
    • 81255143795 scopus 로고    scopus 로고
    • See World Health Organization (), supra note 9, at rec. 13.
    • See World Health Organization (2003), supra note 9, at rec. 13.
    • (2003)
  • 49
    • 84859211967 scopus 로고    scopus 로고
    • quot;Éthique et droit du vivant"[Ethics and Rights of the Living], Revue générale de droit médical at 367.
    • J.-R. Binet and N.-J. Mazen, "Éthique et droit du vivant"[Ethics and Rights of the Living], Revue générale de droit médical 37 (2010): 361-376, at 367.
    • (2010) , vol.37 , pp. 361-376
    • Binet, J.-R.1    Mazen, N.-J.2
  • 50
    • 84859209748 scopus 로고    scopus 로고
    • É. Deleury and D. Goubau, Le droit des personnes physiques, 4e édition (Cowansville, Éditions Yvon Blais, ): at 899.
    • É. Deleury and D. Goubau, Le droit des personnes physiques, 4e édition (Cowansville, Éditions Yvon Blais, 2008): at 899.
    • (2008)
  • 51
    • 84859211389 scopus 로고    scopus 로고
    • As illustrated by the latin maxim, quot;Infans conceptus pro nato habetus, quoties de commodis ejus agitur," which means that the conceived child is considered to be born wherever it is in his or her interest.
    • As illustrated by the latin maxim, "Infans conceptus pro nato habetus, quoties de commodis ejus agitur, " which means that the conceived child is considered to be born wherever it is in his or her interest.
  • 52
    • 84922503831 scopus 로고
    • Life Before Birth: The Moral and Legal Status of Embryos and Fetuses (Oxford: Oxford University Press, ): at 24 and s.
    • B. Steinbock, Life Before Birth: The Moral and Legal Status of Embryos and Fetuses (Oxford: Oxford University Press, 1992): at 24 and s.
    • (1992)
    • Steinbock, B.1
  • 53
    • 0037511345 scopus 로고    scopus 로고
    • quot;Grave Secrets: Legal and Ethical Analysis of Postmortem Confidentiality,"Connecticut Law Review , at 91.
    • J. Berg, quot;Grave Secrets: Legal and Ethical Analysis of Postmortem Confidentiality,"Connecticut Law Review 34 (2001): 81-122, at 91.
    • (2001) , vol.34 , pp. 81-122
    • Berg, J.1
  • 54
    • 81255143761 scopus 로고    scopus 로고
    • The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Belmont Report, Bethesda, 1979, available at <> (last visited August 19, ).
    • The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Belmont Report, Bethesda, 1979, available at <> (last visited August 19, 2011).
    • (2011)
  • 55
    • 81255138682 scopus 로고    scopus 로고
    • Principles of Biomedical Ethics, 6th ed. (Oxford: Oxford University Press, ).
    • T. L. Beauchamp and J. F. Childress, Principles of Biomedical Ethics, 6th ed. (Oxford: Oxford University Press, 2008).
    • (2008)
    • Beauchamp, T.L.1    Childress, T.L.2
  • 56
    • 84924698783 scopus 로고    scopus 로고
    • M. Häyry and R. Chadwick, The Ethics and Governance of Human Genetic Databases: European Perspectives (Cambridge: Cambridge University Press, ).
    • M. Häyry and R. Chadwick, The Ethics and Governance of Human Genetic Databases: European Perspectives (Cambridge: Cambridge University Press, 2007).
    • (2007)
  • 57
    • 0011928405 scopus 로고
    • "On Harming the Dead,"
    • J. C. Callahan, "On Harming the Dead, " Ethics 97, no. 2 (1987): 341-352.
    • (1987) Ethics , vol.97 , Issue.2 , pp. 341-352
    • Callahan, J.C.1
  • 58
    • 81255150874 scopus 로고
    • J. Rawls, A Theory of Justice (Oxford: Oxford University Press, ).
    • J. Rawls, A Theory of Justice (Oxford: Oxford University Press, 1971).
    • (1971)
  • 59
    • 84966872938 scopus 로고    scopus 로고
    • quot;Consequentialism," in J. Skorupski, ed., The Routledge Companion to Ethics (New York: Routledge, ): at 444.
    • B. Hooker, "Consequentialism, " in J. Skorupski, ed., The Routledge Companion to Ethics (New York: Routledge, 2010): at 444.
    • (2010)
    • Hooker, B.1
  • 60
    • 0011078242 scopus 로고    scopus 로고
    • Introduction générale à la bioéthique
    • Histoire, concepts et outils [General Introduction to Bioethics: History, Concepts and Tools] (Montreal: Éditions Fides, ): at 299.
    • G. Durand, Introduction générale à la bioéthique: Histoire, concepts et outils [General Introduction to Bioethics: History, Concepts and Tools] (Montreal: Éditions Fides, 1999): at 299.
    • (1999)
    • Durand, G.1
  • 61
    • 81255138647 scopus 로고    scopus 로고
    • See UNESCO (2003), supra note 13, at s. 14(b); see UNESCO (2005), supra note 13, at s. 9; see Human Genome Organization Ethics Committee (1998), supra note 13; see Organization for Economic Co-operation and Development, supra note 13, at s. 7.F.
    • See UNESCO (2003), supra note 13, at s. 14(b); see UNESCO (2005), supra note 13, at s. 9; see Human Genome Organization Ethics Committee (1998), supra note 13; see Organization for Economic Co-operation and Development (2009), supra note 13, at s. 7.F.
    • (2009)
  • 62
    • 81255138649 scopus 로고    scopus 로고
    • See World Medical Association, supra note 9, at s. 19.
    • See World Medical Association (2002), supra note 9, at s. 19.
    • (2002)
  • 63
    • 81255143763 scopus 로고    scopus 로고
    • See World Health Organization, supra note 9, at rec. 13.
    • See World Health Organization (2003), supra note 9, at rec. 13.
    • (2003)
  • 65
    • 81255129425 scopus 로고    scopus 로고
    • See World Health Organization, supra note 9.
    • See World Health Organization (2003), supra note 9.
    • (2003)


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