Loss, gain, and the reframing of perspectives in long-term stroke survivors: A dynamic experience of quality of life

Topics in Stroke Rehabilitation

Volumn 18, Issue 5, 2011, Pages 437-449

  Bourland, Emilia L R ^a   Neville, Marsha A ^a   Pickens, Noralyn D ^a  

^a TEXAS WOMAN'S UNIVERSITY   (United States)

Author keywords

lived experience; phenomenology; qualitative; quality of life; stroke

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO DISABILITY; ATTITUDE TO ILLNESS; COPING BEHAVIOR; DAILY LIFE ACTIVITY; DISEASE DURATION; DISEASE SEVERITY; FEMALE; HUMAN; MALE; QUALITY OF LIFE; SELF REPORT; SHORT FORM 12; STROKE PATIENT;

ADAPTATION, PSYCHOLOGICAL; AGED; FEMALE; HUMANS; INTERVIEW, PSYCHOLOGICAL; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; QUALITY OF LIFE; STROKE; SURVIVORS;

EID: 81255179250     PISSN: 10749357     EISSN: 19455119     Source Type: Journal    
DOI: 10.1310/tsr1805-437     Document Type: Article

References (39)

1. American Heart Association. Heart disease and stroke statistics: 2009 update at-a-glance. Updated 2009. http://www.americanheart.org/downloadable/ heart/1240250946756LS-1982%20Heart%20 and%20Stroke%20Update.042009.pdf. Accessed November 1, 2009.
2. American Heart Association. Heart disease and stroke statistics: 2008 update at-a-glance. Updated 2008. http://www.americanheart.org/presenter. jhtml?identifi er=3037327. Accessed November 4, 2008.
3. Quality of life. MSN Encarta Web site. Updated 2009. http://encarta.msn. com/ encnet/features/dictionary/DictionaryResults. aspx?lextype=3&search= quality%20of%20life. Accessed May 17, 2010.
4. Dunn DS, Brody C. Defining the good life following acquired physical disability. Rehabil Psychol. 2008:53(4):413-425.
5. Notes on "quality of life." Global Development Research Center Web site. http://www.gdrc.org/ uem/qol-defi ne.html. Accessed May 17, 2010.
6. Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion. Health-related quality of life. Updated 2009. http://www.cdc.gov/hrqol/. Accessed May 17, 2010.
7. World Health Organization. International Classifi cation of Functioning, Disability and Health. Updated 2010. http://www.who.int/classi fi cations/ icf/en/. Accessed May 16, 2010.
8. Kielhofner G. Model of Human Occupation: Theory and Application. 4th ed. Baltimore, MD: Lippincott Williams & Wilkins; 2008.
9. Hinojosa J, Kramer P, Royeen, CB, Luebben AJ. Core concept of occupation. In: Kramer P, Hinojosa J, Royeen CB, eds. Perspectives in Human Occupation: Participation in Life. Philadelphia: Lippincott Williams & Wilkins; 2003:1-17.
10. Christiansen CH, Townsend EA, Bing RK. An introduction to occupation. In: Christiansen CH, Townsend EA, eds. Introduction to Occupation: The Art and Science of Living. 1st ed. Upper Saddle River, NJ: Pearson Education; 2004:1-23.
11. Christiansen CH. Occupation and identity: becoming who we are through what we do. In Christiansen CH, Townsend EA, eds. Introduction to Occupation: The Art and Science of Living. 1st ed. Upper Saddle River, NJ: Pearson Education; 2004:121-137.
12. Paterson BL. The shifting perspectives model of chronic illness. J Nurs Scholar. 2001;33(1):21.
13. Paterson B, Thorne S, Crawford J, Tarko M. Living with diabetes as a transformational experience. Qual Health Res. 1999;9(6):786-802.
14. Patel MD, McKevitt C, Lawrence E, Rudd AG, Wolfe CDA. Clinical determinants of long-term quality of life after stroke. Age Ageing. 2007;36(3):316-322.
15. Mackenzie AE, Chang AM. Predictors of quality of life following stroke. Disabil Rehabil. 2002;24(5): 259-265.
16. Teoh V, Sims J, Milgrom J. Grand rounds. Psychosocial predictors of quality of life in a sample of community-dwelling stroke survivors: a longitudinal study. Top Stroke Rehabil. 2009;16(2):157-166.
17. Kwok T, Lo RS, Wong E, Wai-Kwong T, Mok V, Kai-Sing W. Quality of life of stroke survivors: a 1-year follow-up study. Arch Phys Med Rehabil. 2006;87(9):1177-1182.
18. Mayo NE, Wood-Dauphinee S, Côté R, Durcan L, Carlton J. Activity, participation, and quality of life 6 months poststroke. Arch Phys Med Rehabil. 2002;83(8):1035-1042.
19. Sveen U, Thommessen B, Bautz-Holter E, Wyller TB, Laake K. Well-being and instrumental activities of daily living after stroke. Clin Rehabil. 2004;18(3):267-274.
20. Edwards DF, Hahn M, Baum C, Dromerick AW. The impact of mild stroke on meaningful activity and life satisfaction. J Stroke Cerebrovasc Dis. 2006;15(4):151-157.
21. Bellew JW, Symons TB, Vandervoort AA. Geriatric fi tness: effects of aging and recommendationsfor exercise in older adults Cardiopulm Phys Ther J. 2005;16(1):20-31.
22. Berger S, Porell F. The association between low vision and function. J Aging Health. 2008;20(5): 504-525.
23. Enrietto JA, Jacobson KM, Baloh RW. Aging effects on auditory and vestibular responses: a longitudinal study. Am J Otolaryngol. 1999;20(6):371-378.
24. Girdler S, Packer TL, Boldy D. The impact of age-related vision loss. OTJR Occup Participation Health. 2008;28(3):110-120.
25. Kramer SE, Kapteyn TS, Kuik DJ, Deeg DJH. The association of hearing impairment and chronic diseases with psychosocial health status in older age. J Aging Health. 2002;14(1):122-137.
26. Phillips EM, Davidoff DA. Normal and successful aging: what happens to function as we age. Prim Psychiatry. 2004;11(1):35.
27. Shaffer SW, Harrison AL. Aging of the somatosensory system: a translational perspective. Phys Ther. 2007;87(2):193-207.
28. West R. Visual distraction, working memory, and aging. Memory Cogn. 1999;27(6):1064-1072.
29. Zelinski EM, Kennison RF. The Long Beach Longitudinal Study: evaluation of longitudinal effects of aging on memory and cognition. Home Health Care Serv Q. 2001;19(3):45-55.
30. US Department of Health and Human Services. Health, United States, 2008: with special feature on the health of young adults. Updated 2008. http:// www.cdc.gov/nchs/data/hus/hus08.pdf#059. Accessed November 3, 2009.
31. Lynch EB, Butt Z, Heinemann A, et al. A qualitative study of quality of life after stroke: the importance of social relationships. J Rehabil Med. 2008;40(7):518-523.
32. Salter K, Hellings C, Foley N, Teasell R. The experience of living with stroke: a qualitative metasynthesis. J Rehabil Med. 2008;40(8):595-602.
33. Creswell JW. Qualitative Inquiry & Research Design: Choosing Among Five Approaches. 2nd ed. Thousand Oaks, CA: Sage Publications; 2007: 61-62.
34. Van Manen M. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. Albany, NY: State University of New York Press; 1990.
35. Richards L. Data alive! The thinking behind NVivo. Qual Health Res. 1999;9(3):412-428.
36. Dewar AL, Morse JM. Unbearable incidents: failure to endure the experience of illness. J Adv Nurs. 1995;22:957-964.
37. Greenfi eld EA, Marks NF. Formal volunteering as a protective factor for older adults' psychological well-being. J Gerontol B Psychol Sci Soc Sci. 2004;59B(5):S258-264.
38. Morrow-Howell N, Hinterlong J, Rozario PA, Tang F. Effects of volunteering on the well-being of older adults. J Gerontol B Psychol Sci Soc Sci. 2003;58B(3):S137-S145.
39. Dukes S. Phenomenological methodology in the human sciences. J Relig Health.1984;23(3):197-203.