Information seeking related to clinical trial enrollment

Communication Research

Volumn 38, Issue 6, 2011, Pages 856-882

  Yang, Z Janet ^a   McComas, Katherine A ^b   Gay, Geri ^b   Leonard, John P ^c   Dannenberg, Andrew J ^c   Dillon, Hildy ^d  

^a UNIVERSITY AT BUFFALO   (United States)

^b Department of Obstetrics Gynecology   (United States)

^c WEILL CORNELL MEDICAL COLLEGE   (United States)

^d The Leukemia & Lymphoma Society   (United States)

Author keywords

clinical trial; emotion; information seeking; normative belief; risk

Indexed keywords

EID: 81055155623     PISSN: 00936502     EISSN: 15523810     Source Type: Journal    
DOI: 10.1177/0093650210380411     Document Type: Article

References (67)

1. Abraham, N. S., Young, J. M., & Solomon, M. J. (2006). A systematic review of reasons for nonentry of eligible patients into surgical randomized controlled trials. Surgery, 139, 469-483.
2. Afifi, W. A., & Weiner, J. L. (2004). Toward a theory of motivated information management. Communication Theory, 14, 167-190.
3. Ajzen, I. (1988). Attitudes, personality, and behavior. Milton Keynes, UK: Open University Press.
4. Albrecht, T. L., Eggly, S. E., Gleason, M. E. J., Harper, F. W. K., Foster, T. S., Peterson, A. M., et al. (2008). Influence of clinical communication on patients' decision making on participation in clinical trials. Journal of Clinical Oncology, 26, 2666-2673.
5. Albrecht, T. L., Ruckdeschel, J. C., Riddle, D. L., Blanchard, C. G., Penner, L. A., Coovert, M. D., et al. (2003). Communication and consumer decision making about cancer clinical trials. Patient Education and Counseling, 50, 39-42.
6. Almeida, L., Kashdan, T. B., Nunes, T., Coelho, R., Albino-Teixeira, A., & Soares-da-Silva, P. (2008). Why volunteers for phase I clinical trials? Influences of anxiety, social anxiety and depressive symptoms on selfselection and the reporting of adverse events. European Journal of Clinical Pharmacology, 64, 575-582.
7. American Association for Public Opinion Research. (2008). Standard definitions: Final disposition of case codes and outcome rates for surveys (5th ed.). Lexena, KS: Author.
8. Andreassen, H. K., Trondsen, M., Kummervold, P. E., Gammon, D., & Hjortdahl, P. (2006). Patients who use E-mediated communication with their doctor: New constructions of trust in the patient-doctor relationship. Qualitative Health Research, 16, 238-248.
9. Aspinwall, L. G., & Brunhart, S. M. (1996). Distinguishing optimism from denial: Optimistic beliefs predict attention to health threats. Personality and Social Psychology Bulletin, 22, 993-1003.
10. Atkinson, N. L., Saperstein, S. L., Massett, H. A., Leonard, C. R., Grama, L., & Manrow, R. (2008). Using the Internet to search for cancer clinical trials: A comparative audit of clinical trial search tools. Contemporary Clinical Trials, 29, 555-564.
11. Baquet, C. R., Commiskey, P., Mullins, C. D., & Mishra, S. I. (2006). Recruitment and participation in clinical trials: Socio-demographic, rural/urban, and health care access predictors. Cancer Detection and Prevention, 30(1), 24-33.
12. Bless, H., & Schwarz, N. (1999). Sufficient and necessary conditions in dual-process models. In S. Chaiken & Y. Trope (Eds.), Dual-process theories in social psychology (pp. 423-440). New York: Guilford.
13. Brashers, D. E. (2001). Communication and uncertainty management. Journal of Communication, 51, 477-497.
14. Brashers, D. E., Goldsmith, D. J., & Hsieh, E. (2002). Information seeking and avoiding in health contexts. Human Communication Research, 28, 258-271.
15. Case, D. O. (2002). Looking for information: A survey of research on information seeking, needs, and behavior. San Diego, CA: Academic Press.
16. Cassileth, B. R., Zupkis, R. V., Sutton-Smith, K., & March, V. (1980). Information and parcitipation preferences among cancer patients. Annals of Internal Medicine, 92, 832-836.
17. Chaffee, S. H. (1986). Mass media and interpersonal channels: Competitive, convergent, or complementary? In G. Gumpert & R. Cathcart (Eds.), InterMedia (3rd ed., pp. 62-80). New York: Oxford University Press.
18. Chaiken, S., Liberman, A., & Eagly, A. H. (1989). Heuristic and systematic information processing within and beyond the persuasion context. In J. S. Uleman & J. A. Bargh (Eds.), Unintended thought (pp. 212-252). New York: Guilford.
19. Chen, X., & Siu, L. L. (2001). Impact of the media and internet on oncology: Survey of cancer patients and oncologists in Canada. Journal of Clinical Oncology, 19, 4291-4297.
20. Cohen, J., Cohen, P., West, S. G., & Aiken, L. S. (2003). Applied multiple regression/correlation analysis for the behavioral sciences (3rd ed.). Mahwah, NJ: Erlbaum.
21. Cohen, L., de Moor, C., & Amato, R. (2001). The association between treatment-specific optimism and depressive symptomatology in patients enrolled in a Phase I cancer clinical trial. Cancer, 91, 1949-1955.
22. Comis, R. L., Miller, J. D., Aldige, C. R., Krebs, L., & Stoval, E. (2003). Public attitudes toward participation in cancer clinical trials. Journal of Clinical Oncology, 21, 830-835.
23. Eagly, A., & Chaiken, S. (1993). The psychology of attitudes. Fort Worth, TX: Harcourt Brace and Jovanovich.
24. Fallowfield, L., Ford, S., & Lewis, S. (1995). No news is not good news: Information preferences of patients with cancer. Psycho-Oncology, 4, 197-202.
25. Fredrickson, B. L. (2005). Positive emotions. In C. R. Snyder & S. J. Lopez (Eds.), Handbook of positive psychology (pp. 120-134). New York: Oxford University Press.
26. Gantz, W., Fitzmaurice, M., & Fink, E. (1991). Assessing the active component in information seeking. Journalism Quarterly, 68, 630-637.
27. Giuliano, A. R., Mokuau, N., Hughes, C., Tortolero-Luna, G., Risendal, B., Ho, R. C. S., et al. (2000). Participation of minorities in cancer research: The influence of structural, cultural, and linguistic factors. Annals of Epidemiology, 10, S22-S34.
28. Gordon, E. F., & Daugherty, C. K. (2001). Referral and decision making among advanced cancer patients participating in Phase I trials at a single institution. Journal of Clinical Ethics, 12, 37-38.
29. Grama, L. M., Beckwith, M., Bittinger, W., Blais, D., Lollar, C., & Middleswarth, A. (2005). The role of user input in shaping online information from the National Cancer Institute. Journal of Medical Internet Research, 7, e25.
30. Gregory, R., & Mendelsohn, R. (1993). Perceived risk, dread, and benefits. Risk Analysis, 13, 259-264.
31. Griffin, R. J., & Dunwoody, S. (2000). The relation of communication to risk judgment and preventive behavior related to lead in tap water. Health Communication, 12, 81-107.
32. Griffin, R. J., Dunwoody, S., & Neuwirth, K. (1999). Proposed model of the relationship of information seeking and processing to the development of preventive behaviors. Environmental Research, 80, S230-S245.
33. Griffin, R. J., Neuwirth, K., Dunwoody, S., & Giese, J. (2004). Information sufficiency and risk communication. Media Psychology, 6, 23-61.
34. Griffin, R. J., Neuwirth, K., Giese, J., & Dunwoody, S. (2002). Linking the heuristic-systematic model and depth of processing. Communication Research, 29, 705-732.
35. Griffin, R. J., Yang, Z. J., ter Huurne, E., Boerner, F., Ortiz, S., & Dunwoody, S. (2008). After the flood: Anger, attribution, and the seeking of information. Science Communication, 29, 285-315.
36. Isen, A. M. (1987). Positive affect, cognitive processes, and social behavior. In L. Berkowitz (Ed.), Advances in experimental social psychology (Vol. 20, pp. 203-253). San Diego, CA: Academic Press.
37. Isen, A. M. (1999). Positive affect. In T. P. Dalgleish & M. J. Power (Ed.), Handbook of cognition and emotion (pp. 521-538). Chichester, UK: John Wiley.
38. James, N., Daniels, H., Rahman, R., McConkey, C., Derry, J., & Young, A. (2007). A study of information seeking by cancer patients and their carers. Clinical Oncology, 19, 356-362.
39. Johnson, J. D. (1997). Cancer-related information seeking. Cresskill, NJ: Hampton Press.
40. Johnson, J. D., Meischke, H., Grau, J., & Johnson, S. (1992). Cancer-related channel selection. Health Communication, 4, 183-196.
41. Joreskog, K. G., & Sorbom, D. (1996a). LISREL 8: User's reference guide. Chicago: Scientific Software International.
42. Joreskog, K. G., & Sorbom, D. (1996b). PRELIS 2: User's reference guide. Chicago: Scientific Software International.
43. Kahlor, L. (2007). An augmented risk information seeking model: The case of global warming. Media Psychology, 10, 414-435.
44. Kahlor, L., Dunwoody, S., Griffin, R. J., & Neuwirth, K. (2006). Seeking and processing information about impersonal risk. Science Communication, 28, 163-194.
45. Kahlor, L., Dunwoody, S., Griffin, R. J., Neuwirth, K., & Giese, J. (2003). Studying heuristic-systematic processing of risk communication. Risk Analysis, 23, 355-368.
46. Kahlor, L., & Rosenthal, S. (2009). If we seek, do we learn? Predicting knowledge of global warming. Science Communication, 30, 380-414.
47. Kline, R. B. (2005). Principles and practice of structural equation modeling (2nd ed.). New York: Guilford.
48. Leventhal, H. (1970). Findings and theory in the study of fear communications. In L. Berkowitz (Ed.), Advances in experimental social psychology (Vol. 5, pp. 119-186). New York: Academic Press.
49. Leydon, G. M., Boulton, M., Moynihan, C., Jones, A., Mossman, J., Boudioni, M., et al. (2008). Cancer patients' information needs and information seeking behaviour: In depth interview study. British Medical Journal, 320, 909-913.
50. Madsen, S. M., Holm, S., & Riis, P. (2007). Attitudes towards clinical research among cancer trial participants and non-participants: An interview study using a grounded theory approach. Journal of Medical Ethics, 33, 234-240.
51. McGuire, W. J. (1974). Psychological motives and communication gratification. In J. G. Blumler & E. Katz (Eds.), The uses of mass communications: Current perspectives on gratifications research (pp. 167-198). Beverly Hills, CA: Sage.
52. Meropol, N. J., Buzaglo, J. S., Millard, J., Damjanov, N., Miller, S. M., Ridgway, C., et al. (2007). Barriers to clinical trial participation as perceived by oncologists and patients. Journal of the National Comprehensive Cancer Network, 5, 655-664.
53. Metz, J. M., Coyle, C., Hudson, C., & Hampshire, M. (2005). An Internet-based cancer clinical trials matching resource. Journal of Medical Internet Research, 7, e24.
54. Mills, E. J., Seely, D., Rachlis, B., Griffith, L., Wu, P., Wilson, K., et al. (2006). Barriers to participation in clinical trials of cancer: A meta-analysis and systematic review of patient-reported factors. Lancet Oncology, 7, 141-148.
55. National Cancer Institute. (2002). Cancer clinical trials: The in-depth program. Bethesda, MD: Author.
56. Niederdeppe, J., Hornik, R. C., Kelly, B. J., Frosch, D. L., Romantan, A., Stevens, R. S., et al. (2007). Examining the dimensions of cancer-related information seeking and scanning behavior. Health Communication, 22, 153-167.
57. Pentz, R. D., Flamm, A. L., Sugarman, J., Cohen, M. Z., Ayers, G. D., Herbst, R. S., et al. (2002). Study of the media's potential influence on prospective research participants' understanding of and motivations for participation in a high-profile Phase I trial. Journal of Clinical Oncology, 20, 3785-3791.
58. Rogers, E. M. (2002). Intermedia processes and powerful media effects. In J. Bryant & D. Zillmann (Eds.), Media effects: Advances in theory and research (pp. 199-214). Mahwah, NJ: Lawrence Erlbaum.
59. Romantan, A., Hornik, R., Price, V., Cappella, J., & Viswanath, K. (2008). A comparative analysis of the performance of alternative measures of exposure. Communication Methods and Measures, 2(1-2), 80-99.
60. Sharf, B. F., & Street, J. R. L. (1997). The patient as a central construct: Shifting the emphasis. Health Communication, 9, 1-11.
61. Siminoff, L. A., & Thomas, T. A. (2008). Why learning to communicate with our patients is so important: Using communicaiton to enhance accrual to cancer clinical trials. Journal of Clinical Oncology, 26, 2614-2615.
62. Slovic, P. (1992). Perception of risk: Reflections on the psychometric paradigm. In S. Krimsky & D. Golding (Eds.), Social theories of risk (pp. 117-152). Westport, CT: Praeger.
63. Slovic, P., Finucane, M. L., Peters, E., & MacGregor, D. G. (2004). Risk as analysis and risk as feelings: Some thoughts about affect, reason, risk, and rationality. Risk Analysis, 24, 311-322.
64. ter Huurne, E. F. J., Griffin, R. J., & Gutteling, J. M. (2009). Risk information seeking among U.S. and Dutch residents: An application of the model of risk information seeking and processing. Science Communication, 31, 215-237.
65. Trope, Y., & Neter, E. (1994). Reconciling competing motives in self-evaluation: The role of self-control in feedback seeking. Journal of Personality and Social Psychology, 66, 646-657.
66. U.S. Census Bureau. (2007). 2006 American Community Survey. Retrieved May 24, 2010, from http://www.census.gov/acs/www/index.html
67. Witte, K. (1994). Fear control and danger control: An empirical test of the extended parallel process model. Communication Monographs, 61, 113-134.