Combining health register data and biobank data

Statistical Journal of the IAOS

Volumn 28, Issue 1-2, 2012, Pages 53-58

  Gissler, Mika ^a,b   Surcel, Heljä Marja ^a  

^a NATIONAL PUBLIC HEALTH INSTITUTE   (Finland)

^b NORDIC SCHOOL OF PUBLIC HEALTH   (Sweden)

Author keywords

Administrative registers; biobank data; health information system; longitudinal studies; register; register based research

Indexed keywords

EID: 80555144168     PISSN: 18747655     EISSN: None     Source Type: Journal    
DOI: 10.3233/SJI-2012-0744     Document Type: Article

References (18)

1. M. Gissler and J. Haukka, Finnish health and social welfare registers in epidemiological research, Norsk Epidemiologi 14 (2004), 113-120.
2. Personal Data Act 523/1999. In English: http://www.finlex.fi/ en/laki/kaannokset/1999/en19990523 (As accessed 16 April 2010).
3. M. Gissler, Administrative registers in health research - a cohort study of Finnish children born in 1987, STAKES Research Report 97 (1999).
4. Act on the National Institute for Health andWelfare 668/2008. In English: http://www.finlex.fi/en/laki/kaannokset/2008/ en20080668 (As accessed 16 April 2010).
5. P. Laukkanen, P. Koskela, E. Läärä, J. Dillner, E. Pukkala and M. Lehtinen, Time trends of papilloma virus infection incidence in Finland, J Gen Virol 84 (2003), 2105-2109.
6. M. Kaasila, P. Koskela, R. Kirnbauer, E. Pukkala, H.-M. Surcel and M. Lehtinen, Population dynamics of serologically identified co-infections with human papilloma-virus types 11, 16, 18 and 31 in fertile-aged Finnish women, Int J Cancer 125 (2009), 2166-2172.
7. T. Männistö, M. Vääräsmäki, A. Pouta, A.-L. Hartikainen, A. Ruokonen, H.-M. Surcel, A. Bloigu, M.-R. Järvelin and E. Suvanto-Luukkonen, Perinatal outcome of children born to mothers with thyroid dysfunction or antibodies: a prospective population-based cohort study, J Clin Endocrinol Metab 94 (2009), 772-779.
8. E. Lyytikäinen,M.Kaasila, E.Hiltunen-Back,M. Lehtinen, K. Tasala, H.-M. Surcel, J. Paavonen and P. Koskela, Chlamydia trachomatis prevalence and incidence in Finnish women in 1983-2003, BMC Infect Dis 8 (2008), 169.
9. M. Lappalainen, P. Koskela, K. Hedman, K. Teramo, P. Ämmä lä, V. Hiilesmaa and M. Koskiniemi, Incidence of primary toxoplasma infections during pregnancy in southern Finland: a prospective cohort study, Scand J Infect Dis 24 (1992), 97-104.
10. Eurostat, Eurobarometer 60.0 / 2003. European Union citizens' views about privacy. Special Eurobarometer 196). Available at: http://www.europa.eu.int/ comm/internal market /privacy/lawreport en.htm#actions (As accessed 16 April 2010).
11. Eurostat. Flash Eurobarometer 225/2008. Data protection in the European Union. Citizens' perceptions. Analytical report. Available at: http://ec.europa.eu/public opinion/flash/fl 225 en.pdf (As accessed 16 April 2010).
12. M. Gissler, Assessment of environmental health risks is feasible by secondary use of administrative registers, Journal of Official Statistics (2011), in press.
13. I. Keskimäki and S. Aro, Accuracy of data on diagnoses, procedures and accidents in the Finnish Hospital Discharge Register, Int J Health Sciences 2 (1991), 15-21.
14. J. Teperi, AMulti-methodApproach to theAssessment ofData Quality in the Finnish Medical Birth Registry, J Epidemiol Community Health 47 (1993), 242-247.
15. L. Teppo, M. Lehtonen and E. Pukkala, Data quality and quality control of a population-based cancer registry, Acta Oncol 33 (1994), 365-369.
16. M. Gissler, J. Teperi, E. Hemminki and J. Meriläinen, Data quality after restructuring a nationwide medical birth registry, Scand J Soc Med 23 (1995), 75-80.
17. M. Gissler, V.-M. Ulander, E. Hemminki and A. Rasimus, Declining induced abortion rate in Finland: Data-quality of the Abortion Register, Int J Epidemiol 25 (1996), 376-380.
18. M. Gissler and J. Shelley, Quality of data on subsequent events in a routine Medical Birth Register, Med Inform Internet Med 27 (2002), 33-37.