Facing death together: Exploring the conceptualizations of hospice patients and family as a single unit of care

Journal of Hospice and Palliative Nursing

Volumn 13, Issue 6, 2011, Pages 419-425

  Nebel, Sarah ^a  

^a UNIVERSITY OF IOWA   (United States)

Author keywords

family; hospice; patient centered care; recipient of care

Indexed keywords

EID: 80455145344     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/NJH.0b013e318229aad2     Document Type: Article

References (29)

1. The Hospice Experiment. American RadioWorks. American Public Media Web site. Updated June 27 2002. http://americanradioworks.publicradio.org/features/ hospice/. Accessed April 2007.
2. What is hospice and palliative care? About NHPCO. National Hospice and Palliative Care Organization Web site. Updated 2009. http://www.nhpco.org/i4a/ pages/index.cfm?pageid=4648&openpage=4648. Accessed September 25, 2009.
3. Zimmerman JM. Hospice care as a response to the problems of terminal illness: problems in the care of the patient dying from cancer. In Zimmerman JM, ed. Hospice: Complete Care for the Terminally Ill. Baltimore, MD/Munich, Germany: Urban & Schwarzenberg; 1986:1-16.
4. Lyons RF, Mickelson KD, Sullivan MJL, Coyne JC. Coping as a communal process. J Soc Pers Relat. 1998;15:579-605.
5. Stewart M. Towards a global definition of patient-centered care. Br Med J. 2001;322:444-445.
6. Brown JB, Stewart M, Weston WW, Freeman TR. Introduction. In StewartM, Brown JB, Weston WW, McWhinney IR, McWilliam CL, Freeman TR, eds. Patient-Centered Medicine: Transforming the Clinical Method. 2nd ed. Oxon, UK: Radcliffe Medical Press Ltd.; 2003:3-15.
7. Wong N, King T. The cultural construction of risk understandings through illness narratives. J Consumer Res. 2008;579-594.
8. Brown JB, Weston WW. The second component: understanding the whole person, section 1: individual and family. In Stewart M, Brown JB, Weston WW, McWhinney IR, McWilliam CL, Freeman TR, eds. Patient-Centered Medicine: Transforming the Clinical Method. 2nd ed. Oxon, UK: Radcliffe Medical Press Ltd.; 2003:53-69.
9. Haley W, Allen RS, Reynolds S, Chen H, Burton A, Gallagher-Thompson D. Family issues in end-of-life decision making and end-of-life care. Am Behav Sci. 2002;46:284-298.
10. O'Donnell P. Ethical issues in end-of-life care: social work facilitation and proactive intervention. In Berzoff J, Silverman PR, eds. Living With Dying: A Handbook for End-of-Life Healthcare Practitioners. New York: Columbia University Press; 2004:172-187.
11. Cicirelli V, ed. Family Caregiving: Autonomous and Paternalistic Decision Making. Newbury Park, CA: Sage Publications; 1992.
12. Arrington MI. "She's right behind me all the way": an analysis of prostate cancer narratives and changing in family relationships. J Fam Commun. 2005;5:141-162.
13. Ahlstrom G, Sjoden P. Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy. J Psychosom Res. 1996;41:365-376.
14. Lyons RF, Meade D. Painting a new face on relationships: relationship remodeling in response to chronic illness. In Duck S, Wood JT, eds. Confronting Relationship Challenges. Thousand Oaks, CA: Sage; 1995:181-210.
15. Archbold PG, Stewart BJ, Greenlick MR, Harvath T. Mutuality and preparedness as predictors of caregiver role strain. Res Nurs Health. 1990;13:375-384.
16. Barber CE, Pasley BK. Family care of Alzheimer's patients: the role of gender and generational relationship on caregiver outcomes. J Appl Gerontol. 1995;14:172-192.
17. Gates MF. Culture caretheory for studyofdying patientsinhospital and hospice contexts. In Leininger MM, ed. Culture Care Diversity and Universality: A Theory of Nursing. NewYork: National League for Nursing Press; 1992:281-304.
18. Glaser BG, Strauss AL, eds. Awareness of Dying. New York: Aldine; 1965.
19. Pennebaker JW, ed. Opening Up. The Healing Power of Expressing Emotions. New York: Guilford Press; 1997.
20. Hudson PL. How well do family caregivers cope after caring for a relative with advanced disease and how can health professionals enhance their support? J Palliat Med. 2006;9:694-703.
21. Keeley MP. 'Turning toward death together': the functions of message during final conversations in close relationships. J Soc Pers Relat. 2007;24:225-253.
22. Hebert RS, Dang Q, Schulz R. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study. J Palliat Med. 2006;9:683-693.
23. Boss P. Ambiguous loss. In Walsh F, McGoldrick M, eds. Living Beyond Loss: Death in the Family. 2nd ed. New York: Norton & Company, Inc; 2004:237-246.
24. Lutgendorf SK, Laudenslager ML. Care and the caregiver: stress and dysregulation of inflammatory control in cancer caregivers. J Clin Oncol. 2009;27:2894-2895.
25. Ragan SL, Wittenberg E, Hall HT. The communication of palliative care for the elderly cancer patient. Health Commun. 2003;15:219-226.
26. DeSpelder LA, Strickland AL, eds. The Last Dance: Encountering Death and Dying. 8th ed. Boston, MA: McGraw-Hill; 2002.
27. Parkes CM, Relf M, Couldrick A, eds. Counselling in Terminal Care and Bereavement. Leicester, UK: BPS Books; 1996.
28. Kovacs PJ, Bellin MH, Fauri DP. Family-centered care: a resource for social work in end-of-life and palliative care. J Soc Work End Life Palliat Care. 2006;2:13-27.
29. Randall F, Downie RS, eds. The Philosophy of Palliative Care: Critique and Reconstruction. Oxford: University Press; 2006.