The effect of mode of administration on Medical Outcomes Study health ratings and EuroQol scores in AIDS

Quality of Life Research

Volumn 6, Issue 1, 1997, Pages 3-10

  Wu, A W ^a,b   Jacobson, D L ^a   Berzon, R A ^c   Revicki, D A ^d   Van Der Horst, C ^e   Fichtenbaum, C J ^f   Saag, M S ^g   Lynn, L ^h   Hardy, D ⁱ   Feinberg, J ^b  

^a JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c Burroughs Wellcome Co   (United States)

^d BATTELLE MEMORIAL INSTITUTE   (United States)

^e UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^f WASHINGTON UNIVERSITY   (United States)

^g UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

^h UNIVERSITY OF PENNSYLVANIA   (United States)

ⁱ UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

EuroQol; health status; HIV; mode of administration; MOS HIV; quality of life; survey research methods

Indexed keywords

VALACICLOVIR;

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADULT; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DOUBLE BLIND PROCEDURE; FEMALE; HEALTH SERVICES RESEARCH; HEALTH STATUS; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL;

ADULT; DOUBLE-BLIND METHOD; HEALTH SERVICES RESEARCH; HEALTH STATUS; HEALTH SURVEYS; HIV INFECTIONS; HUMANS; INTERVIEWS; MALE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 8044227210     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (41)

1. Wu AW, Mathews WC, Brysk LT, et al. Quality of life in a placebo-controlled trial of zidovudine in patients with AIDS and AIDS-Related Complex in AIDS clinical trials. J Acquir Immune Defic Syndr 1990; 3: 683-690.
2. Wu AW, Rubin HR, Mathews WC, et al. Functional status and well-being in a placebo-controlled trial of zidovudine in early AIDS-related complex. J Acquir Immune Defic Syndr 1993; 6: 452-458.
3. Wu AW, Lamping DL. Assessment of quality of life in HIV disease. AIDS 1994; Suppl: S349-S359.
4. Bozzette SA, Kanouse DE, Berry S, Duan N, Roche 3300/ACTG 114 Study Group. Health status and function with zidovudine or zalcitabine as initial therapy for AIDS: A randomized controlled trial. JAMA 1995; 273: 295-301.
5. Revicki DA, Simpson KN, Wu AW, LaVallee RL. Evaluating the quality of life associated with rifabutin prophylaxis for mycobacterium avium complex in persons with AIDS: combining Q-TWiST and multiattribute utility techniques. Qual Life Res 1995; 4: 309-318.
6. Hochstim J. A critical comparison of three strategies of collecting data from households. J Am Stat Assoc 1967; 62: 976-989.
7. Locander W, Sudman S, Bradburn N. An investigation of interview method, threat, and response distortion. J Am Stat Assoc 1976; 71: 269-274.
8. Siemiatycki M. A comparison of mail, telephone, and home interview strategies for household health surveys. Am J Public Health 1979; 69(3): 238-245.
9. McHorney CA, Kosinski M, Ware JE. Comparisons of the costs and quality of norms for the SF-36. Health survey collected by mail versus telephone interview. Results from a national survey. Med Care 1994; 32: 295-301.
10. Simon GE, Revicki D, Von Korff M. Telephone assessment of depression severity. J Psychiatr Res 1993; 27: 247-252.
11. Cannell CF, Fowler F. A Study of the Reporting of Visits to Doctors in the National Health Survey. Ann Arbor, MI: Survey Research Center, The University of Michigan, 1963.
12. Anderson R, Kasper J, Frankel M. Total Survey Error. San Francisco, CA: Jossey-Bass, 1979.
13. Magaziner J, Hebel JR, Warren JW. The use of proxy responses for aged patients in long term care settings. Compr Gerontol 1987; B1: 118-121.
14. Magaziner J, Simonsick EM, Kashner TM, Hebel JR. Patient-proxy response comparability on measures of patient and functional status. J Clin Epidemiol 1988; 41: 1065-1074.
15. Epstein A, Hall J, Tognetti J, Son L, Conant L. Using proxies to evaluate quality of life: Can they provide valid information about patients' health status and satisfaction with medical care? Med Care 1989; 27: S91-S98.
16. Bassett SS, Magaziner J, Hebel JR. Reliability of proxy response. Psychol Ageing 1995; 5: 127-132.
17. O'Brien J, Francis A. The use of next-of-kin to estimate pain in cancer patients. Pain 1988; 35: 171-178.
18. Magaziner J. Use of proxy respondents. In: Wallace RB, Woolson RF, eds. The Epidemiologic Study of the Elderly. New York: Oxford University Press, 1992: 120-129.
19. Wu AW, Rubin HR, Mathews WC, et al. A health status questionnaire using 30 items from the Medical Outcomes Study: Preliminary validation in persons with early HIV infection. Med Care 1991; 29(8): 786-798.
20. Group TE. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990; 16: 199-208.
21. Nord E. EuroQol: health-related quality of life measurement. Valuations of health states by the general public in Norway. Health Policy 1991; 18: 25-36.
22. Stewart AL, Hays RD, Ware JE. The MOS short-form general health survey: reliability and validity in a patient population. Med Care 1988; 26: 724-735.
23. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992; 30: 473-483.
24. Revicki D, Wu AW, Brown R. Change in clinical status, health status and health utility outcomes in HIV-infected patients. Med Care 1995; 33(4): AS173-AS182.
25. de Leeuw E, van der Zouwen J. Data quality in telephone and face to face surveys: A comparative meta-analysis. In: Groves R, Biemer P, Lyberg L, Massey J, Nicholls W, Waksberg J, eds. Telephone Survey Methodology. New York, NY: John Wiley and Sons, 1988: 283-299.
26. Klecka W, Tuchfarber J. Random digit dialing: A comparison to personal surveys. Public Opin Q 1978; 42(1): 105-114.
27. Weeks M, Kulka R, Lessler J, Whitmore R. Personal versus telephone surveys for collecting household health data at the local level. Am J Public Health 1983; 73: 1389-1394.
28. Aneshensel C, Frerichs R, Clark V, Yokopenic P. Measuring depression in the community: A comparison of telephone and personal interviews. Public Opin Q 1982; 46: 110-121.
29. Sykes W, Collins M. Effects of mode of interview: Experiments in the UK. In: Groves R, Biemer P, Lyberg L, Massey J, Nicholls W, Waksberg J, eds. Telephone Survey Methodology. New York, NY: John Wiley and Sons, 1988: 301-319.
30. Kormendi E. The quality of income information in telephone and face to face surveys. In: Groves R, Biemer P, Lyberg L, Massey J, Nicholls W, Waksberg J, eds. Telephone Survey Methodology. New York, NY: John Wiley and Sons, 1988: 341.
31. Rogers T. Interview by telephone and in person: Quality of responses and field performance. Public Opin Q 1976; 40(1): 51-65.
32. Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review. J Clin Epidemiol 1992; 45(7): 743-760.
33. Rothman ML, Hedrick SC, Bulcroft KA, Hickam DH, Rubenstein LZ. The validity of proxy-generated scores as measures of patient health status. Med Care 1991; 29: 115-124.
34. Ganz PA, Haskell CM, Figlin RA. Estimating the quality of life in a clinical trial of patients with metastatic lung cancer using the Karnofsky Performance Status and the Functional Living Index-Cancer. Cancer 1988; 61: 849-856.
35. Aaronson NK. Quality of life assessment in clinical trials: Methodological issues. Contr Clin Trials 1989; 10:195S-208S.
36. Schag CA, Heinrich RL, Aadlord R, Ganz PA. Assessing problems of cancer patients: Psychometric properties of the cancer inventory of problem situations. Health Psychol 1990; 9: 83-102.
37. Wu AW, Bergner MB, Damiano A, et al. Predicting future functional status for seriously ill hospitalized adults: The SUPPORT prognostic model. Ann Intern Med 1995; 122: 342-50.
38. Tarnai J, Dillman D. Questionnaire context as a source of response differences in mail and telephone surveys. In: Schwartz N, Sudman S, eds. Context Effects in Social and Psychological Research. New York, NY: Springer-Verlag, 1992: 115-129.
39. Bishop G, Hippler H, Schwarz N, Stack F. A comparison of response effects in self-administered and telephone surveys. In: Groves R, Biemer P, Lyberg L, Massey J, Nicholls W, Waksberg J, eds. Telephone Survey Methodology. New York, NY: John Wiley and Sons, 1988: 321-340.
40. Bishop G. Experiments with the middle response alternative in survey questions. Public Opin Q 1987; 51: 220-232.
41. Presser S, Shuman H. The measurement of a middle position in attitude surveys. Public Opin Q 1980; 71-85.