-
1
-
-
33750512766
-
Sample bias among women with retained DNA samples for future genetic studies
-
Aagaard-Tillery K, Sibai B, Spong CY, Momirova V, Wendel G Jr, Wenstrom K, Samuels P, Cotroneo M, Moawad A, Sorokin Y, Miodovnik M, Meis P, O'Sullivan MJ, Conway D, Wapner RJ. 2006. Sample bias among women with retained DNA samples for future genetic studies. Obstet Gynecol 108:1115-1120.
-
(2006)
Obstet Gynecol
, vol.108
, pp. 1115-1120
-
-
Aagaard-Tillery, K.1
Sibai, B.2
Spong, C.Y.3
Momirova, V.4
Wendel Jr., G.5
Wenstrom, K.6
Samuels, P.7
Cotroneo, M.8
Moawad, A.9
Sorokin, Y.10
Miodovnik, M.11
Meis, P.12
O'Sullivan, M.J.13
Conway, D.14
Wapner, R.J.15
-
2
-
-
29144437732
-
African Americans' opinions about human-genetics research
-
Achter P, Parrott R, Silk K. 2004. African Americans' opinions about human-genetics research. Politics Life Sci 23:60-66.
-
(2004)
Politics Life Sci
, vol.23
, pp. 60-66
-
-
Achter, P.1
Parrott, R.2
Silk, K.3
-
4
-
-
80054914233
-
-
BBB. Better business bureau tips-Scam. Available at: Date accessed: 2/23/2011.
-
BBB. 2011. Better business bureau tips-Scam. Available at: Date accessed: 2/23/2011.
-
(2011)
-
-
-
5
-
-
53349107714
-
Informed consent for biorepositories: Assessing prospective participants' understanding and opinions
-
Beskow LM, Dean E. 2008. Informed consent for biorepositories: Assessing prospective participants' understanding and opinions. Cancer Epidemiol Biomarkers Prev 17:1440-1451.
-
(2008)
Cancer Epidemiol Biomarkers Prev
, vol.17
, pp. 1440-1451
-
-
Beskow, L.M.1
Dean, E.2
-
6
-
-
0035861017
-
Informed consent for population-based research involving genetics
-
Beskow LM, Burke W, Merz JF, Barr PA, Terry S, Penchaszadeh VB, Gostin LO, Gwinn M, Khoury MJ. 2001. Informed consent for population-based research involving genetics. JAMA 286:2315-2321.
-
(2001)
JAMA
, vol.286
, pp. 2315-2321
-
-
Beskow, L.M.1
Burke, W.2
Merz, J.F.3
Barr, P.A.4
Terry, S.5
Penchaszadeh, V.B.6
Gostin, L.O.7
Gwinn, M.8
Khoury, M.J.9
-
7
-
-
33646254125
-
Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group
-
Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. 2006. Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. Am J Med Genet Part A 140A:1033-1040.
-
(2006)
Am J Med Genet Part A
, vol.140 A
, pp. 1033-1040
-
-
Bookman, E.B.1
Langehorne, A.A.2
Eckfeldt, J.H.3
Glass, K.C.4
Jarvik, G.P.5
Klag, M.6
Koski, G.7
Motulsky, A.8
Wilfond, B.9
Manolio, T.A.10
Fabsitz, R.R.11
Luepker, R.V.12
-
8
-
-
0016710177
-
A study of the effect of remuneration upon response in the health and nutrition examination survey, United States
-
Bryant EE, Kovar MG, Miller H. 1975. A study of the effect of remuneration upon response in the health and nutrition examination survey, United States. Vital Health Stat 2:1-23.
-
(1975)
Vital Health Stat
, vol.2
, pp. 1-23
-
-
Bryant, E.E.1
Kovar, M.G.2
Miller, H.3
-
9
-
-
23944502273
-
Attitudes about genetics in underserved, culturally diverse populations
-
Catz DS, Green NS, Tobin JN, Lloyd-Puryear MA, Kyler P, Umemoto A, Cernoch J, Brown R, Wolman F. 2005. Attitudes about genetics in underserved, culturally diverse populations. Commun Genet 8:161-172.
-
(2005)
Commun Genet
, vol.8
, pp. 161-172
-
-
Catz, D.S.1
Green, N.S.2
Tobin, J.N.3
Lloyd-Puryear, M.A.4
Kyler, P.5
Umemoto, A.6
Cernoch, J.7
Brown, R.8
Wolman, F.9
-
10
-
-
33749476204
-
Racial and ethnic disparity in participation in DNA collection at the Atlanta site of the National Birth Defects Prevention Study
-
Crider KS, Reefhuis J, Woomert A, Honein MA. 2006. Racial and ethnic disparity in participation in DNA collection at the Atlanta site of the National Birth Defects Prevention Study. Am J Epidemiol 164:805-812.
-
(2006)
Am J Epidemiol
, vol.164
, pp. 805-812
-
-
Crider, K.S.1
Reefhuis, J.2
Woomert, A.3
Honein, M.A.4
-
11
-
-
79951863517
-
Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group
-
Fabsitz RR, McGuire A, Sharp RR, Puggal M, Beskow LM, Biesecker LG, Bookman E, Burke W, Burchard EG, Church G, Clayton EW, Eckfeldt JH, Fernandez CV, Fisher R, Fullerton SM, Gabriel S, Gachupin F, James C, Jarvik GP, Kittles R, Leib JR, O'Donnell C, O'Rourke PP, Rodriguez LL, Schully SD, Shuldiner AR, Sze RK, Thakuria JV, Wolf SM, Burke GL. 2010. Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group. Circ Cardiovasc Genet 3:574-580.
-
(2010)
Circ Cardiovasc Genet
, vol.3
, pp. 574-580
-
-
Fabsitz, R.R.1
McGuire, A.2
Sharp, R.R.3
Puggal, M.4
Beskow, L.M.5
Biesecker, L.G.6
Bookman, E.7
Burke, W.8
Burchard, E.G.9
Church, G.10
Clayton, E.W.11
Eckfeldt, J.H.12
Fernandez, C.V.13
Fisher, R.14
Fullerton, S.M.15
Gabriel, S.16
Gachupin, F.17
James, C.18
Jarvik, G.P.19
Kittles, R.20
Leib, J.R.21
O'Donnell, C.22
O'Rourke, P.P.23
Rodriguez, L.L.24
Schully, S.D.25
Shuldiner, A.R.26
Sze, R.K.27
Thakuria, J.V.28
Wolf, S.M.29
Burke, G.L.30
more..
-
12
-
-
80054897222
-
-
FBI. Federal Bureau of Investigations investigative programs common fraud schemes. Available at: Date accessed: 2/23/2011.
-
FBI. 2011. Federal Bureau of Investigations investigative programs common fraud schemes. Available at: Date accessed: 2/23/2011.
-
(2011)
-
-
-
13
-
-
0031001074
-
DNA by mail: An inexpensive and noninvasive method for collecting DNA samples from widely dispersed populations
-
Freeman B, Powell J, Ball D, Hill L, Craig I, Plomin R. 1997. DNA by mail: An inexpensive and noninvasive method for collecting DNA samples from widely dispersed populations. Behav Genet 27:251-257.
-
(1997)
Behav Genet
, vol.27
, pp. 251-257
-
-
Freeman, B.1
Powell, J.2
Ball, D.3
Hill, L.4
Craig, I.5
Plomin, R.6
-
14
-
-
0032195192
-
Follow-up care of the low birth weight infant
-
Gerdes M, Bernbaum J. 1998. Follow-up care of the low birth weight infant. Indian J Pediatr 65:829-839.
-
(1998)
Indian J Pediatr
, vol.65
, pp. 829-839
-
-
Gerdes, M.1
Bernbaum, J.2
-
15
-
-
0035295832
-
Money for research participation: Does in jeopardize informed consent
-
Grady C. 2001. Money for research participation: Does in jeopardize informed consent? Am J Bioeth 1:40-44.
-
(2001)
Am J Bioeth
, vol.1
, pp. 40-44
-
-
Grady, C.1
-
16
-
-
39749155113
-
Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study
-
Jenkins MM, Rasmussen SA, Moore CA, Honein MA. 2008. Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study. Am J Med Genet Part C 148C:40-46.
-
(2008)
Am J Med Genet Part C
, vol.148 C
, pp. 40-46
-
-
Jenkins, M.M.1
Rasmussen, S.A.2
Moore, C.A.3
Honein, M.A.4
-
17
-
-
70449397330
-
Maternal attitudes toward DNA collection for gene-environment studies: A qualitative research study
-
Jenkins MM, Reed-Gross E, Rasmussen SA, Barfield WD, Prue CE, Gallagher ML, Honein MA. 2009. Maternal attitudes toward DNA collection for gene-environment studies: A qualitative research study. Am J Med Genet Part A 149A:2378-2386.
-
(2009)
Am J Med Genet Part A
, vol.149 A
, pp. 2378-2386
-
-
Jenkins, M.M.1
Reed-Gross, E.2
Rasmussen, S.A.3
Barfield, W.D.4
Prue, C.E.5
Gallagher, M.L.6
Honein, M.A.7
-
19
-
-
0019567271
-
On paying money to research subjects: 'due' and 'undue' inducements
-
Macklin R. 1981. On paying money to research subjects: 'due' and 'undue' inducements. IRB 3:1-6.
-
(1981)
IRB
, vol.3
, pp. 1-6
-
-
Macklin, R.1
-
20
-
-
0021961507
-
The contribution of low birth weight to infant mortality and childhood morbidity
-
McCormick MC. 1985. The contribution of low birth weight to infant mortality and childhood morbidity. N Engl J Med 312:82-90.
-
(1985)
N Engl J Med
, vol.312
, pp. 82-90
-
-
McCormick, M.C.1
-
21
-
-
0019185769
-
Rehospitalization in the first year of life for high-risk survivors
-
McCormick MC, Shapiro S, Starfield BH. 1980. Rehospitalization in the first year of life for high-risk survivors. Pediatrics 66:991-999.
-
(1980)
Pediatrics
, vol.66
, pp. 991-999
-
-
McCormick, M.C.1
Shapiro, S.2
Starfield, B.H.3
-
22
-
-
85045589348
-
Paying people to participate in research: Why not? A response to Wilkinson and Moore
-
McNeill P. 1997. Paying people to participate in research: Why not? A response to Wilkinson and Moore. Bioethics 11:390-396.
-
(1997)
Bioethics
, vol.11
, pp. 390-396
-
-
McNeill, P.1
-
23
-
-
33746897353
-
Consent for genetic research in a general population: An update on the National Health and Nutrition Examination Survey experience
-
McQuillan GM, Pan Q, Porter KS. 2006. Consent for genetic research in a general population: An update on the National Health and Nutrition Examination Survey experience. Genet Med 8:354-360.
-
(2006)
Genet Med
, vol.8
, pp. 354-360
-
-
McQuillan, G.M.1
Pan, Q.2
Porter, K.S.3
-
24
-
-
0028889266
-
High-yield noninvasive human genomic DNA isolation method for genetic studies in geographically dispersed families and populations
-
Meulenbelt I, Droog S, Trommelen GJ, Boomsma DI, Slagboom PE. 1995. High-yield noninvasive human genomic DNA isolation method for genetic studies in geographically dispersed families and populations. Am J Hum Genet 57:1252-1254.
-
(1995)
Am J Hum Genet
, vol.57
, pp. 1252-1254
-
-
Meulenbelt, I.1
Droog, S.2
Trommelen, G.J.3
Boomsma, D.I.4
Slagboom, P.E.5
-
25
-
-
33750121111
-
High microsatellite and SNP genotyping success rates established in a large number of genomic DNA samples extracted from mouth swabs and genotypes
-
Min JL, Lakenberg N, Bakker-Verweij M, Suchiman E, Boomsma DI, Slagboom PE, Meulenbelt I. 2006. High microsatellite and SNP genotyping success rates established in a large number of genomic DNA samples extracted from mouth swabs and genotypes. Twin Res Hum Genet 9:501-506.
-
(2006)
Twin Res Hum Genet
, vol.9
, pp. 501-506
-
-
Min, J.L.1
Lakenberg, N.2
Bakker-Verweij, M.3
Suchiman, E.4
Boomsma, D.I.5
Slagboom, P.E.6
Meulenbelt, I.7
-
26
-
-
4043138903
-
Racial differences in enrolment in a cancer genetics registry
-
Moorman PG, Skinner CS, Evans JP, Newman B, Sorenson JR, Calingaert B, Susswein L, Crankshaw TS, Hoyo C, Schildkraut JM. 2004. Racial differences in enrolment in a cancer genetics registry. Cancer Epidemiol Biomarkers Prev 13:1349-1354.
-
(2004)
Cancer Epidemiol Biomarkers Prev
, vol.13
, pp. 1349-1354
-
-
Moorman, P.G.1
Skinner, C.S.2
Evans, J.P.3
Newman, B.4
Sorenson, J.R.5
Calingaert, B.6
Susswein, L.7
Crankshaw, T.S.8
Hoyo, C.9
Schildkraut, J.M.10
-
27
-
-
80054954183
-
-
NBAC. Research involving human biological materials: Ethical issues and policy guidance. Volume I: Report and recommendations of the National Bioethics Advisory Commission. Rockville, Maryland. August 1999. Available at: Date accessed: 2/23/2011.
-
NBAC. 1999. Research involving human biological materials: Ethical issues and policy guidance. Volume I: Report and recommendations of the National Bioethics Advisory Commission. Rockville, Maryland. August 1999. Available at: Date accessed: 2/23/2011.
-
(1999)
-
-
-
29
-
-
33749521826
-
Incentives for survey participation when are they "coercive
-
Singer E, Bossarte RM. 2006. Incentives for survey participation when are they "coercive"? Am J Prev Med 31:411-418.
-
(2006)
Am J Prev Med
, vol.31
, pp. 411-418
-
-
Singer, E.1
Bossarte, R.M.2
-
30
-
-
80054916408
-
-
Self-collected buccal cell samples: DNA yield and participation rates. ASHG 56th Annual Meeting Abstract 2267/A. New Orleans, LA.
-
Smith VJ, Jenkins MM, Sturchio C, Gallagher M, Hobbs CA. 2006. Self-collected buccal cell samples: DNA yield and participation rates. ASHG 56th Annual Meeting Abstract 2267/A. New Orleans, LA.
-
(2006)
-
-
Smith, V.J.1
Jenkins, M.M.2
Sturchio, C.3
Gallagher, M.4
Hobbs, C.A.5
-
31
-
-
27944433835
-
Undue inducement: The only objection to payment
-
VanderWalde A. 2005. Undue inducement: The only objection to payment? Am J Bioeth 5:25-27.
-
(2005)
Am J Bioeth
, vol.5
, pp. 25-27
-
-
VanderWalde, A.1
-
32
-
-
0034845303
-
The National Birth Defects Prevention Study
-
Yoon PW, Rasmussen SA, Lynberg MC, Moore CA, Anderka M, Carmichael SL, Costa P, Druschel C, Hobbs CA, Romitti PA, Langlois PH, Edmonds LD. 2001. The National Birth Defects Prevention Study. Public Health Rep 116:32-40.
-
(2001)
Public Health Rep
, vol.116
, pp. 32-40
-
-
Yoon, P.W.1
Rasmussen, S.A.2
Lynberg, M.C.3
Moore, C.A.4
Anderka, M.5
Carmichael, S.L.6
Costa, P.7
Druschel, C.8
Hobbs, C.A.9
Romitti, P.A.10
Langlois, P.H.11
Edmonds, L.D.12
|