Increasing prevalence of domiciliary ventilation: Changes in service demand and provision in the South West of the UK

European Journal of Pediatrics

Volumn 170, Issue 9, 2011, Pages 1187-1192

  Goodwin, Sarah ^a   Smith, Hayley ^a   Hewer, Simon Langton ^a   Fleming, Peter ^b   Henderson, John A ^a   Hilliard, Tom ^a   Fraser, James ^a  

^a BRISTOL ROYAL HOSPITAL FOR CHILDREN   (United Kingdom)

^b ST MICHAEL'S HOSPITAL   (United Kingdom)

Author keywords

Home ventilation; Long term ventilation; Non invasive ventilation; Ventilator weaning

Indexed keywords

ADOLESCENT; ARTICLE; ARTIFICIAL VENTILATION; CHILD; COMORBIDITY; DEATH; DOMICILIARY VENTILATION; HOME CARE; HOSPITAL MANAGEMENT; HUMAN; HYPOVENTILATION; INCIDENCE; INFANT; MAJOR CLINICAL STUDY; MEDICAL RECORD REVIEW; NEUROMUSCULAR DISEASE; NEWBORN; NON INVASIVE PROCEDURE; PRESCHOOL CHILD; PREVALENCE; PRIORITY JOURNAL; RESPIRATORY TRACT DISEASE; UNITED KINGDOM;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; COMORBIDITY; ENGLAND; FEMALE; HOME CARE SERVICES; HUMANS; INFANT; MALE; NEUROMUSCULAR DISEASES; RESPIRATION, ARTIFICIAL; RESPIRATORY TRACT DISEASES; RETROSPECTIVE STUDIES; VENTILATOR WEANING;

EID: 80054762429     PISSN: 03406199     EISSN: 14321076     Source Type: Journal    
DOI: 10.1007/s00431-011-1430-9     Document Type: Article

References (15)

1. Davidson Z, Truby H (2009) A review of nutrition in Duchenne muscular dystrophy. J Hum Nutr Diet 22:383-93
2. Eagle M, Baudouin S, Chandler C, Giddings D, Bullock R, Bushby K (2002) Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromusc Dis 12:926-9 (Pubitemid 35408673)
3. Edwards EA, Hsiao K, Nixon GM (2005) Paediatric home ventilatory support: The Auckland experience. J Paediatr Child Health 41:652-658 (Pubitemid 43961137)
4. Edwards EA, O'Toole M, Wallis C (2004) Sending children home on tracheostomy dependent ventilation: Pitfalls and outcomes. Arch Dis Child 89:251-255 (Pubitemid 38325818)
5. Fraser J, Henrichsen T, Mok Q, Tasker R (1998) Prolonged mechanical ventilation as a consequence of acute illness. Arch Dis Child 78:253-256 (Pubitemid 28176338)
6. Henderson J, Beckley S, England K, Booth W, Fleming P (2000) Organising ventilation at home. Curr Paediatr 10:18-21
7. Jardine E, O'Toole M, Paton JY, Wallace C (1999) Current status of long term ventilation of children in the United Kingdom: Questionnaire study. BMJ 318:295-299 (Pubitemid 29195137)
8. Jardine E, Wallis C (1998) Core guidelines for the discharge home of the child on long-term assisted ventilation in the United Kingdom. Thorax 53:762-767 (Pubitemid 28408716)
9. Katz S, Selvadurai H, Keilty K, Mitchell M, MacLusky I (2002) Outcome of non-invasive positive pressure ventilation in paediatric neuromuscular disease. Arch Dis Child 89:121-124
10. Noyes J, Godfrey C, Beecham J (2006) Resource use and service costs for ventilator-dependent children and young people in the UK. Health Soc Care Community 14:508-522 (Pubitemid 44630282)
11. Robinson R (1990) Ventilator dependency in the United Kingdom. Arch Dis Child 65:1235-1236
12. Simonds A, Ward S, Heather S, Bush A, Muntoni F (2000) Outcome of paediatric domiciliary mask ventilation in neuromuscular and skeletal disease. Eur Respir J 16:476-481
13. Tibballs J, Henning R, Robertson CF, Massie J, Hochmann M, Carter B, Osborne A, Stephens RA, Scoble M, Jones SE, White J, Bryan D (2010) A home respiratory support programme for children by parents and layperson carers. J Paediatr Child Health 46:57-62
14. Trang H, Dehan M, Beaufils F, Zaccaria I, Amiel J, Gaultier C (2005) The French Congenital Central Hypoventilation Registry. Chest 127:72-79
15. While AE, Cockett AM, Lewis S (2003) Children and young people requiring home assisted ventilation in the South of England: Incidence, receipt of care support and components of the care package. Child Soc 18:207-217 (Pubitemid 38830199)