Quality of life of ALS and LIS patients with and without invasive mechanical ventilation

Journal of Neurology

Volumn 258, Issue 10, 2011, Pages 1801-1804

  Rousseau, Marie Christine ^a   Pietra, Stéphane ^a   Blaya, José ^a   Catala, Anne ^a  

^a ASSISTANCE PUBLIQUE HÔPITAUX DE PARIS   (France)

Author keywords

ALS; LIS; Mechanical ventilation; Quality of life

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; AMYOTROPHIC LATERAL SCLEROSIS FUNCTIONAL RATING SCALE; ARTICLE; ARTIFICIAL VENTILATION; BECK DEPRESSION INVENTORY; CLINICAL ARTICLE; FEMALE; HUMAN; INVASIVE PROCEDURE; LOCKED IN SYNDROME; MALE; NON INVASIVE PROCEDURE; PRIORITY JOURNAL; PSYCHOLOGIC ASSESSMENT; QUALITY OF LIFE; RATING SCALE; SCORING SYSTEM; SHORT FORM 36; SPIELBERGER ANXIETY INVENTORY; TORONTO ALEXITHYMIA SCALE;

ADULT; AGED; AGED, 80 AND OVER; AMYOTROPHIC LATERAL SCLEROSIS; FEMALE; HUMANS; MALE; MIDDLE AGED; QUADRIPLEGIA; QUALITY OF LIFE; RESPIRATION, ARTIFICIAL; YOUNG ADULT;

EID: 80054745669     PISSN: 03405354     EISSN: 14321459     Source Type: Journal    
DOI: 10.1007/s00415-011-6018-9     Document Type: Article

References (27)

1. C Neudert D Oliver M Wasner GD Borasio 2001 The course of the terminal phase in patients with amyotrophic lateral sclerosis J Neurol 248 612 616 11518004 10.1007/s004150170140 1:STN:280:DC%2BD3MvnsVGhtQ%3D%3D (Pubitemid 32700299)
2. LJ Haverkamp V Appel 1995 Appel SH: natural history of amyotrophic lateral sclerosis in a database population: validation of a scoring system and a model for survival prediction Brain 118 707 719 7600088 10.1093/brain/118.3.707
3. H Hein B Schuler H Magnussen 1999 Intermittent assisted ventilation in neuromuscular diseases: course and quality of life Pneumologie 53 suppl 2 S89 S90 10613050
4. LS Aboussouan SU Khan DP Meeker, et al. 1997 Effect of non-invasive positive-pressure ventilation on survival in amyotrophic lateral sclerosis Ann Intern Med 127 450 453 9313002 1:STN:280:DyaK2svktVShtw%3D%3D (Pubitemid 27400908)
5. KA Kleopa M Sherman B Neal, et al. 1999 Bipap improves survival and rate of pulmonary function decline in patients with ALS? J Neurol Sci 164 82 88 10385053 10.1016/S0022-510X(99)00045-3 1:STN:280:DyaK1MzhtFOkuw%3D%3D (Pubitemid 29256079)
6. LH Goldstein L Atkins PN Leigh 2002 Correlates of quality of life in people with motor neuron disease (MND) Amyotrop Lateral Sler Other Motor Neuron Discord 3 123 129 10.1080/146608202760834120 1:STN:280:DC%2BD38jjt12luw%3D%3D (Pubitemid 35439538)
7. Z Simmons BA Bremer RA Robins, et al. 2000 Quality of life in ALS depends on factors other than strength and physical function Neurology 55 388 392 10932273 1:STN:280:DC%2BD3cvgs1GjsQ%3D%3D (Pubitemid 30650079)
8. RA Robbins Z Simmons BA Bremer, et al. 2001 Quality of life in ALS is maintained as physical function declines Neurology 56 442 444 11222784 1:STN:280:DC%2BD3M7ps1Kiuw%3D%3D (Pubitemid 32172865)
9. C Neudert M Wasner GD Borasio 2004 Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis J Palliat Med 7 551 557 15353099 10.1089/jpm.2004.7.551 (Pubitemid 39237570)
10. BR Brooks RG Miller M Swash TL Munsat 2000 Word Federation of Neurology Research Group on motor neuron disease: El escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis Amyotroph Lateral Scler Other Motor Neuron Disord 1 293 299 11464847 10.1080/146608200300079536 1:STN:280:DC%2BD3Mvhs1Ghsg%3D%3D
11. Plum F, Posner JB (1983) The diagnosis of stupor and coma. Philadelphia, USA
12. S Piepers JP Van Den Berg S Kalmijn WL Van Der Pol JHJ Wokke E Lindeman LH Van Der Berg 2006 Effects of non-invasive ventilation on survival, quality of life, respiratory function and cognition: a review of the literature Amyotroph Lateral Scler 7 195 200 17127557 10.1080/14660820500514974 (Pubitemid 46290907)
13. DF Gelinas P O'Connor RG Miller 1998 Quality of life for ventilator-dependant ALS patients and their caregiver J Neurol Sci 160 suppl1 S134 S136 9851663 10.1016/S0022-510X(98)00212-3 (Pubitemid 28522532)
14. JS Lou A Reeves T Benice G Sexton 2003 Fatigue and depression are associated with poor quality of life in ALS Neurology 1 122 123 (Pubitemid 36070659)
15. C Neudert M Wasner GD Borasio 2001 Patient's assessment of quality of life instruments: a randomised study of SIP, SF36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis J Neurol Sci 191 103 109 11676999 10.1016/S0022-510X(01)00612-8 1:STN:280:DC%2BD3Mnkt1Kruw%3D%3D (Pubitemid 33035901)
16. A Gauthier A Vignola A Calvo E Cavallo C Moglia L Sellitti R Mutani A Choi 2007 A longitudial study on quality of life and depression in ALS patient-caregiver couples Neurology 68 923 926 17372127 10.1212/01.wnl. 0000257093.53430.a8 1:STN:280:DC%2BD2s7ntlynsQ%3D%3D (Pubitemid 46568504)
17. S Laureys F Pellas P Van eckhout S Ghorbel C Shnakers F Perrin J Berre ME Faymonville KH Pantke F Damas M Lamy G Moonen S Goldman 2005 The locked-in syndrome: what is it like to be conscious but paralysed and voiceless? Prog Brain Res 150 495 510 16186044 10.1016/S0079-6123(05)50034-7 (Pubitemid 41381572)
18. Z Simmons SH Felgoise BA Bremer SM Walsh DJ Huffird MB Bromberg W David DA Forshew TD Heiman-Patterson EC Lai L McCluskey 2006 Balancing physical and nonphysical factors in assessing quality of life in ALS Neurology 67 1659 1663 17101900 10.1212/01.wnl.0000242887.79115.19 1:STN:280:DC%2BD28nmslamtA%3D%3D (Pubitemid 44747940)
19. S Clarke A Hickey C O'Boyle O Hardiman 2001 Assessing quality of life in amyotrophic lateral sclerosis Qual Life Res 10 149 158 11642685 10.1023/A:1016704906100 1:STN:280:DC%2BD3MrmtF2ltA%3D%3D (Pubitemid 32885692)
20. I Nygren H Askmark 2006 Self-reported quality of life in amyotrophic lateral sclerosis J Palliat Med 2 304 308 10.1089/jpm.2006.9.304
21. G Lo Coco D Lo Coco V Cicero A Oliveri G Lo Verso F Piccoli V La Bella 2005 Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregiver J Neurol Sci 238 11 17 16109426 10.1016/j.jns.2005.05.018 (Pubitemid 41560948)
22. D Kaub-Wittemer N von Steinbuchel M Wasner G Laier-Gtoneveld GD Borasio 2003 Quality of life psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers J Pain Symptom Manag 26 4 890 896 10.1016/S0885-3924(03)00323-3 (Pubitemid 37188465)
23. A Brownlee M Paloveak 2007 The role of augmentative communication devices in the medical management of ALS Neurorehabilitation 22 445 454 18198430
24. M Hecht T Hillemacher E Gräsel S Tigges M Winterholler D Heuss MJ Hilz B Neundörfer 2002 Subjective experience and coping in ALS Amyotroph Lateral Scler Other Motor Neuron Disord 3 225 232 12710513 (Pubitemid 36221782)
25. LOU Jau-Schin A Reeves TH Benice G Sexton 2003 Fatigue and depression are associated with poor quality of life in ALS Neurology 60 122 123 (Pubitemid 36070659)
26. SF Stromberg DB Weiss 2006 Depression and quality of life issues in patients with amyotrophic lateral sclerosis Curr Options Neurol 8 410 414 10.1007/s11940-006-0030-x (Pubitemid 44349494)
27. A Kubler S Winter A Ludolph M Hautzinger N Birbaumer 2005 Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis Neurorehabilitation Neural Repair 19 3 182 192 16093409 10.1177/1545968305276583 (Pubitemid 41216294)